Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Symptoms (mental) Even When Not Glutened?

Becci

By Becci
in Coping with Celiac Disease

Recommended Posts

Becci Enthusiast
Becci
Posted

Well, lately... I have been having my 'mental' gluten symptoms, without being glutened!

It is the same.. Depression, Severe mood swings, anger issues, mind fogginess and short term memory problems...

I know I am not getting gluten, or else I would be having my other symptoms.

Why is it staying all of the time?

Is this normal?

Please help, this is driving me CRAZY!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


soulcurrent Explorer
soulcurrent
Posted

PMS? I get all out of sorts myself, can't think logically or rationally for 3-4 days a month.

Becci Enthusiast
Becci
Posted
  • Author

Too early for PMS, and I neverrrr get like that...

This is Gluten symptoms all over.

What the heccccckkkk???????????

It is driving me nuts!

Roda Rising Star
Roda
Posted

How is your thyroid, vitamin and mineral levels? Hypothyroid, anemia, b12 and vitamin D deficiency can affect some or all of these.

RobinN Newbie
RobinN
Posted
Well, lately... I have been having my 'mental' gluten symptoms, without being glutened!

It is the same.. Depression, Severe mood swings, anger issues, mind fogginess and short term memory problems...

I know I am not getting gluten, or else I would be having my other symptoms.

Why is it staying all of the time?

Is this normal?

Please help, this is driving me CRAZY!

Consider insulin levels

I have to for my daughter. Think of all the refined products even if gluten-free, and also foods such as potato and banana.

Actually figuring out the Glycemic Index of the foods you are eating.

Hypoglycemia can cause these emotional symptoms.

My daughter tends to have reactive hypoglycemia (IMO) undiagnosed, but watching this has eliminated her seizures.

These were occurring around her TOM and an abundance of insulin can kick up estrogen levels.

Sorry - I am not a doctor but it what I have personally researched and tried in my own home.

Good luck

gfp Enthusiast
gfp
Posted
Well, lately... I have been having my 'mental' gluten symptoms, without being glutened!

It is the same.. Depression, Severe mood swings, anger issues, mind fogginess and short term memory problems...

I know I am not getting gluten, or else I would be having my other symptoms.

Why is it staying all of the time?

Is this normal?

Please help, this is driving me CRAZY!

RobinN and Roda hit the nail on the head...

You might also check yourself and make sure you are not getting CC or small amounts of hidden gluten.

CODEX gluten is enough for me to get the exact symptoms you describe...

Is this due to glycaemic index? Possibly ... A good sublingual B supplement seems to help... but ultimately it is when I take little chances and get caught out that it occurs.

Ms Jan Rookie
Ms Jan
Posted

It could also be due to other food intolerances, fx dairy, soy, night shades or others - or perhaps chemical additives; many people have gluten like reactions to some of these. So if this might be likely for you, try to think of what you've eaten when you react like this, perhaps keep a food diary. Or more radically, try an elimination diet, where you start with foods you know are safe for you, and then add in one more item every couple of days. then you'll quickly see what you are reacting to.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Korwyn Explorer
Korwyn
Posted
Well, lately... I have been having my 'mental' gluten symptoms, without being glutened!

It is the same.. Depression, Severe mood swings, anger issues, mind fogginess and short term memory problems...

I know I am not getting gluten, or else I would be having my other symptoms.

Why is it staying all of the time?

Is this normal?

Please help, this is driving me CRAZY!

Hi Becci,

I had the same issue after I was gluten-free for a while. Turned out that much of the psychological and neuro symptoms I had were actually soy, and in fact they are even worse for me than when I get glutened. I also have issue with some of the nightshades, peppers especially (chili, etc). Tomatoes and Potatoes are OK for me in small quantities. Dairy and Soy both produce depression, and soy triggers anxiety, panic attacks, and neuromuscular issues.

  • 5 weeks later...
Jean'sBrainonGluten Newbie
Jean'sBrainonGluten
Posted

For me inhaled gluten causes some of those symptoms. You might also check for exposure through the skin via toiletries or makeup.... or like some have said try cutting out other foods and see if you see improvement.

CarbQueen Newbie
CarbQueen
Posted

I have multiple allergies, so trying to live a healthy lifestyle is a challenge.

Just trace amounts can affect my body.

Even a sneeze. Sometimes, drugstores at certain times of year, where colognes are tested. Even, after I shake the hand of someone who has handled gluten or allergens will trigger a reaction.

I'm experiencing mood swings right now. Aaarrrgh!

The severity of the reactions decreased over time because my digestive tract is healing. My immune system is stronger.

  • 1 month later...
muchmalignedminx Newbie
muchmalignedminx
Posted

I never realised how sensitive we could be. I was aware of the problem of cc during food prep etc but not of what could happen in a drug store. All rather scary stuff I think.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
    2. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    3. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
    4. knitty kitty
      - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten! Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten. I can get glutened from the bakery section at the grocery store. The nose and mouth drain into the digestive system and can trigger systemic reactions. I find the histamine release...
    5. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Guinness, can you drink it?

      This article may be helpful:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748
    IRENEG6
    Newest Member
    IRENEG6
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.