Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened By Amy's?

tmack

By tmack
in Coping with Celiac Disease

Recommended Posts

tmack Newbie
tmack
Posted

This is the second time I have been glutened by Amy's. I do not say this lightly, After I felt better I ate anything new from that day(wanted to make sure of the source). I have eaten there NO GLUTEN INGREDIENTS frozen meals three times, two of which I was glutened. It was not severe, I was only sick for 2 days, with the lingering gut problems for 8 days. If I get a lot of gluten it will take me out for 5 days or so( plus the lingering gut problems). Just wanted to know if anyone else has had this problem, or is it just me?

I'm wondering if it is some other kind of food that I'm having problems with. I have to watch my lactose, but my symptoms were just like being glutened?

Thanks for any help ;)

Trina

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Piccolo Apprentice
Piccolo
Posted

Trina,

Yes, Amy's got me too. :o It was some time ago. I had a delayed response and the room was spinning for 6 hours. I'm never touching anything by that company again.

Susan

Northern Celiac Newbie
Northern Celiac
Posted
This is the second time I have been glutened by Amy's. I do not say this lightly, After I felt better I ate anything new from that day(wanted to make sure of the source). I have eaten there NO GLUTEN INGREDIENTS frozen meals three times, two of which I was glutened. It was not severe, I was only sick for 2 days, with the lingering gut problems for 8 days. If I get a lot of gluten it will take me out for 5 days or so( plus the lingering gut problems). Just wanted to know if anyone else has had this problem, or is it just me?

I'm wondering if it is some other kind of food that I'm having problems with. I have to watch my lactose, but my symptoms were just like being glutened?

Thanks for any help ;)

Trina

Trina, there can be hidden sources of gluten in amy's products. I know from reasearch and from personal experience with other products. If you can get a copy you need to read a book called dangerous grains. It explains about hidden sources of gluten

ksymonds84 Enthusiast
ksymonds84
Posted
This is the second time I have been glutened by Amy's. I do not say this lightly, After I felt better I ate anything new from that day(wanted to make sure of the source). I have eaten there NO GLUTEN INGREDIENTS frozen meals three times, two of which I was glutened. It was not severe, I was only sick for 2 days, with the lingering gut problems for 8 days. If I get a lot of gluten it will take me out for 5 days or so( plus the lingering gut problems). Just wanted to know if anyone else has had this problem, or is it just me?

I'm wondering if it is some other kind of food that I'm having problems with. I have to watch my lactose, but my symptoms were just like being glutened?

Thanks for any help ;)

Trina

My G.I. warned me about Amy's, his wife and son are celiac and he said they had issue's with Amy's.

6ft6 Newbie
6ft6
Posted

I can count on Amy's to make me sick every time. So now I don't buy the products. I despise the ccompany.

modiddly16 Enthusiast
modiddly16
Posted

I stopped eating Amy's after my first year with the disease (I'm on year 6)...it never failed that every time I ate it I'd get sick. While I appreciate their effort to be "gluten-free"...it still makes me wonder what it is making so many people still sick!

Glamour Explorer
Glamour
Posted

I ate some Amy's gluten-free dinners also and was itchy. But my ankles were swollen also, so I though it was too much salt in them.

I heard that Trader Joes carries some dinners that are made by amy's, don't know if it is true.

No more Amy's for me, too expensive, I only bought them because they were on sale.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ciavyn Contributor
ciavyn
Posted

I had a severe reaction immediately after ingesting their products. So yes, I agree - definitely something in those meals!

mysecretcurse Contributor
mysecretcurse
Posted

Yes, Amy's stuff also makes me not feel good. It's been ages but I remember being glutened by them a long time ago. I stay away from ANY processed foods now.

AnneM Apprentice
AnneM
Posted

Yes I have been glutened twice by Amys frozen dinners, It's a shame because they are something quick and tasty to eat. I am not buying them anymore. :(

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Just thought I would chime in to say that I do not get sick from Amy's food BUT I have never really eaten the ones that say "no gluten ingredients." Plus, I also only eat the dairy-free ones.

Mtndog Collaborator
Mtndog
Posted

In the past, I have reacted to Amy's. I contacted them and they were incredibly great to deal with. They sent a sample off to the lab at the University of Nebraska for me to be tested from a batch I reacted to. It came back at 33 ppm.

I now eat their rice crust pizza because it is never a problem for me.

You may react to their products, but at least they are one of the honest, upfront companies that discloses ALL their ingredients and manufacturing processes. The products labeled "no gluten ingredients" do not have gluten but any processed food is subject to CC.

dilettantesteph Collaborator
dilettantesteph
Posted

My son reacted to their rice pizza once. I called them and it had been tested to contain less than 5 ppm gluten. I was disappointed to find out that my son is so sensitive to trace levels of gluten.

Mey Marie Explorer
Mey Marie
Posted
This is the second time I have been glutened by Amy's. I do not say this lightly, After I felt better I ate anything new from that day(wanted to make sure of the source). I have eaten there NO GLUTEN INGREDIENTS frozen meals three times, two of which I was glutened. It was not severe, I was only sick for 2 days, with the lingering gut problems for 8 days. If I get a lot of gluten it will take me out for 5 days or so( plus the lingering gut problems). Just wanted to know if anyone else has had this problem, or is it just me?

I'm wondering if it is some other kind of food that I'm having problems with. I have to watch my lactose, but my symptoms were just like being glutened?

Thanks for any help ;)

Trina

It's not just you. My friend has the same problem with Amy's. It sucks because they really have some great stuff.

Mey Marie Explorer
Mey Marie
Posted
Trina,

Yes, Amy's got me too. :o It was some time ago. I had a delayed response and the room was spinning for 6 hours. I'm never touching anything by that company again.

Susan

That's it. I am going to write the company. I think we all should. This is not OK. If they want to say in business, They need all of us. If they start to lose the people who use celiac.com Then they are losing a large part of there customer base.

tmack Newbie
tmack
Posted
  • Author

Thanks so much for the help, all of you are great. It makes me realize I'm not alone. :D

I think for me the part that bothers me the most is that the labeling (to me) is misleading. I fell like they are purposly trying to mislead you by the way they word it. I don't know about ya'll but it is like gambling, will I get sick, maybe, maybe not. I'm not into rolling the dice!!

dilettantesteph Collaborator
dilettantesteph
Posted

I roll the dice every time I eat anything processed. How does gluten free mean up to 20 ppm gluten?

Mtndog Collaborator
Mtndog
Posted

I think under 20 ppm is impossible to detect via current testing methods.

gaingus Rookie
gaingus
Posted
I heard that Trader Joes carries some dinners that are made by amy's, don't know if it is true.

I have bought Trader Joe's Rice Pasta and Cheese (I think thats the name of it), when I looked at the Powdered cheese envelope, I noticed it was stamped for Amy's product. Course I didn't look until too late. I ended up with the same reaction that I did for the same product with the Amy's label so I don't buy either of those products anymore.

Kathleen Smith Contributor
Kathleen Smith
Posted

I get sick everytime I eat Amys Gluten Free Frozen lunch/dinner and the Soup!!!! I get really nauseous for a couple hours.

I am Gluten free since April but had some issues in August from that took a while to recover from. I was thinking I was getting sick from Amy's b/c my stomach probably isnt healed yet and it couldnt handle anything "processed" b/c AMys is the only pre-prepared meals I eat.

Amy's was my "emergency" food (when I forgot to make my lunch or too late to cook dinner), but if you all are saying it is gluten then I wont buy from them anymore. Its not about just being nauseous its about healing my stomach. .......sneaky.

passionfruit877 Apprentice
passionfruit877
Posted

I like the enchilada meal (the dairy free one) and haven't had a problem. Perhaps there are certain ones that are riskier than others.

Tigercat17 Enthusiast
Tigercat17
Posted

I haven't noticed a reaction either, but I was only eating the frozen mac & cheese. I really liked it! Now I'm afraid to eat it. I definitely won't try the others now. That's really too bad so many people are having a reaction. There must be some gluten in them. I guess gluten free doesn't mean "gluten free." That's just crazy! I do think we should all write and call the company. That's just putting people's health at risk!

Gfresh404 Enthusiast
Gfresh404
Posted

I guess I'll consider myself one of the lucky ones. I have never had a problem with any of Amy's products. I do only eat the gluten-free and non-dairy ones, maybe that has something to do with it?

Cynbd Contributor
Cynbd
Posted

I have been gluten free for more than three years now. Early on I found I had reactions to Amy's and decided to stay away from them. I have a tiny variety of foods that I eat every day, a gluten free kitchen, and as many of you, over a long process of elimination (including never eating at restaurants, or anything that anyone else made), I have not been sick in almost a year, until this week. Over the past two years I probably have been sick only a couple of times.

Over the past couple of months I started eating Amy's again, only the gluten free, dairy free Mexican dishes -- and yesterday I was sick. I think I had a few stomach pangs after eating Amy's over the past couple of months' however, I did not get sick, but yesterday knocked me out and today I am feeling iffy. I am wondering if I have been having mild reactions to Amy's, since I have been so good for so long, and the last meal caught me- I made it up and over into the bad reaction threshold.

It really does concern me that when I am feeling good for so long that I may be slowly poisoning myself with Amy's foods. I will not purchase any more of those convenient meals. I am going to stick with my instincts when it comes to certain foods.

Merry Christmas- Happy Holidays to all!

dilettantesteph Collaborator
dilettantesteph
Posted
I think under 20 ppm is impossible to detect via current testing methods.

When I contacted Amy's to tell them that their rice pizza has glutened my son, they told me that it had been tested to contain less than 5 ppm gluten. The tests that they use test to 5 ppm. That is under 20 ppm. Crispy Green told me by e-mail that they test to 5 ppm, and Tropical Source on label says that they test to 5 ppm. The New Grist beer company told me by e-mail that they have their beer tested to 5 ppm at the University of Nebraska.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will...
    2. Jacki Espo
      - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure.
    3. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

      Hi Tiffany. Thank you for writing your dituation and circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines. Way back when I was in my 2...
    4. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but...
    5. knitty kitty
      - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      Fascinating.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748
    jenny44
    Newest Member
    jenny44
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.