Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Afternoon Fatigue


SGWhiskers

Recommended Posts

SGWhiskers Collaborator

I''ve been hitting a wall of fatigue and achiness at around 2:30 lately. I need some ideas to help get me through my day.

I've got celiac and probably fibro. I have caffinated tea for breakfast and a big lunch with protien and veggies and off and on with grains/beans(fatigue is the same on or off carbs). I switch to herbal tea after 1 or 2 cups. I'm exhausted from sunrise to sunset unless I'm engaged in a patient centered activity or if I get carried away and have lots of caffine. I can cope most of the time, but getting through the last few hours of work is dragging on me.

Yes, I need to deal with the medical piece of fibro, but while I'm waiting for dr.s appts, can you give me your hints for maintaining energy in the afternoon?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txplowgirl Enthusiast

I hate to say this, but cut out the caffine and cut down on your sugar intake, and eat more protien. The caffine and sugar is causing some of the fatigue. If you can eat some kind of protien snack instead of having the tea that will help, well, at least it did for me anyway.

Also, are you drinking a lot of diet drinks with aspertame? If so, cut down on those too. I have fibro and and I read on The Fibro Network that aspertame exacerbates (spelling)? the fatigue symptoms. Anyway, I have cut it almost completely out and that has helped some.

Hope this helps and good luck.

YoloGx Rookie

Good advice! Caffeine and sugar both give false energy and actually end up depleting your reserves.

I also suggest you take olive leaf extract or leaf regularly (no alcohol however). It really can root out underlying cases of fibro--such as long term bacteria, parasites, viruses, microbes, fungi. Neem leaf can help too. First 2 to 3 days you might feel worse--but then that means its working--and you will afterwards feel much better. Just start slow and work yourself up as far as dosage goes.

If you don't have kidney or diabetes problems, L-glutamine can help greatly. Soothes and heals the intestines plus gives a big boost of energy.

R-Lipoic acid and NAC also will speed your mitochondria and give you a good energy boost. Many studies on this by the way.

And of course exercise--even it it feels like its killing you it will help--even if its just a walk.

Bea

Mrs. Smith Explorer

I agree and if you have any deficiencies, such as Iron, Magnesium or B12 you will get fatigue and muscle aches. I thought I had fibro, too but 6mos gluten-free and taking these supplements, all symptoms went away. I used to have afternoon fatigue really bad and no longer experience it whatsoever. B12 made the most difference as far as my energy level. If you are gluten-free your body is healing so make sure you get plenty of sleep and rest. I remember when I was first dx I fatigued very easily and now I am back to a normal activity level and do not fatigue easily anymore. Take epsom salt baths for the muscle pain if you over do it and rest, rest, rest.

inmygenes Apprentice

Caffeine is best cut out it will just wear out your system even more. Have you tried cutting out nightshades? - it might be worth it just to see if you have an intolerance. A surprisingly large amount of people are intolerant to them and they cause numerous symptoms.

Try and keep well hydrated and try some soothing herbal teas. How are your mineral levels? - are you taking supplements?

Ahorsesoul Enthusiast

I found a great dr who treated my fibro. She uses Dr Teitelbaum methods. I started to feel better in 3 weeks. I still have to take some medications but it's well worth the trouble. I fee better now than when I was 20. I have a friend who went with this method with excellent results also. Look under treatments for the Shine treatment protocol. I keep one printed out for any doctor visit.

I also went to the Mayo Clinic fibro workshop. Three days long which for a fibro patient is way to long. I did learn I was trying to do too much a day. The PT guy said to start with 1 minute of exercise a day. Increase when 1 minute is tolerated for two weeks. Other than that I really can't remember much from those three days because of the fibro fog. Mayo flunked Fibro 101 in my book but I have to say it was over 5 years ago.

Funny thing about Teitelbaum, my spell check wants to change it to Doodlelbug. I'd understand tidal wave but not doodebug.

Open Original Shared Link

Korwyn Explorer
I''ve been hitting a wall of fatigue and achiness at around 2:30 lately. I need some ideas to help get me through my day.

I've got celiac and probably fibro. I have caffinated tea for breakfast and a big lunch with protien and veggies and off and on with grains/beans(fatigue is the same on or off carbs). I switch to herbal tea after 1 or 2 cups. I'm exhausted from sunrise to sunset unless I'm engaged in a patient centered activity or if I get carried away and have lots of caffine. I can cope most of the time, but getting through the last few hours of work is dragging on me.

Yes, I need to deal with the medical piece of fibro, but while I'm waiting for dr.s appts, can you give me your hints for maintaining energy in the afternoon?

Kill the caffeine and sugar and no grains or beans at all. You need to check into Adrenal Fatigue. Take a look at the quick questionnaire at adrenalfatigue.com (I have no affiliation other than I have had tremendous life changes and improvements after beginning treatment for 'moderate' adrenal fatigue).

Also watch the decaf tea as some of them are NOT gluten tea and include barley grass or wheat grass.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mbrookes Community Regular

I get the mid afternoon fatigue about 2:30-3:00. Quite by accident I discovered that a small can of V-8 and a couple of gluten-free crackers fix me right up. I think I must need something in the V-8, because nothing else works as well.dent, I discovered that a few gluten-free crackers (I love Mary's Gone Crackers) and a small can of V-

YoloGx Rookie
I get the mid afternoon fatigue about 2:30-3:00. Quite by accident I discovered that a small can of V-8 and a couple of gluten-free crackers fix me right up. I think I must need something in the V-8, because nothing else works as well.dent, I discovered that a few gluten-free crackers (I love Mary's Gone Crackers) and a small can of V-

Its true, it could be just a case of mild hypoglycemia. Mine is less prominant now that I have been entirely gluten-free for 2 years. But I still often do better with a snack mid afternoon. For me my easy favorite is sunflower seeds and/or yogurt.

Bea

SGWhiskers Collaborator

Thank you all for the suggestions. I only have one cup of caffinated tea most days, but I'll work on switching to all decaf. I was caffine free for many years in my teens and twenties and I didn't miss it. Regular and herbal teas are is exclusively Stash brand which is entirely gluten free (teas, not their cookies). I NEVER have artificial sweeteners.

Sugar. I keep hearing about sugar. Poop! I'm in denial and mourning about this one. I'll try the paleo diet longer to cut out the sugar from grains and beans. I lost weight and had less gas which was a bonus when I did a trial run with the paleo diet. Can I keep eating my fruit? Rhumy said no. I managed to cut back to 1 or 2 a day instead of 3-5. I don't tend to have much in the way of sugar/corn syrup (one or two servings per week) I'm keeping my sugar through the holidays though. Come to think of it, I had a lot of sugar the past week or two. I really am in denial about this one.

Night shades, is it possible/likely to test negative for night shade allergies and still have an intolerance?

Olive, Neem, R-lipolic, l-glutamine, NAC: I'll work on adding those. I've seen yours and others post about some of those and I've been curious. My stomach just hates pills and I've been avoiding them (including all my vitamins). I still test in the "normal" range on all my vitamins for what that is worth. Maybe I can find a gluten-free liquid.

Adrenal fatigue: I swear, I'm there.

I'm researching Dr. Doodlebug's information as tonight's project. Well, that and burning dinner.

Protien snack at 2:00. That is easy. V8 and crackers. That will be the last one I try. I disllike V8 and crackers and cutting sugar don't mix.

YoloGx Rookie
Thank you all for the suggestions. I only have one cup of caffinated tea most days, but I'll work on switching to all decaf. I was caffine free for many years in my teens and twenties and I didn't miss it. Regular and herbal teas are is exclusively Stash brand which is entirely gluten free (teas, not their cookies). I NEVER have artificial sweeteners.

Sugar. I keep hearing about sugar. Poop! I'm in denial and mourning about this one. I'll try the paleo diet longer to cut out the sugar from grains and beans. I lost weight and had less gas which was a bonus when I did a trial run with the paleo diet. Can I keep eating my fruit? Rhumy said no. I managed to cut back to 1 or 2 a day instead of 3-5. I don't tend to have much in the way of sugar/corn syrup (one or two servings per week) I'm keeping my sugar through the holidays though. Come to think of it, I had a lot of sugar the past week or two. I really am in denial about this one.

Night shades, is it possible/likely to test negative for night shade allergies and still have an intolerance?

Olive, Neem, R-lipolic, l-glutamine, NAC: I'll work on adding those. I've seen yours and others post about some of those and I've been curious. My stomach just hates pills and I've been avoiding them (including all my vitamins). I still test in the "normal" range on all my vitamins for what that is worth. Maybe I can find a gluten-free liquid.

Adrenal fatigue: I swear, I'm there.

I'm researching Dr. Doodlebug's information as tonight's project. Well, that and burning dinner.

Protien snack at 2:00. That is easy. V8 and crackers. That will be the last one I try. I disllike V8 and crackers and cutting sugar don't mix.

Sounds like you are on the path towards better health! Let us all know if you start feeling better--or not!

Bea

  • 2 weeks later...
StacyA Enthusiast

A regular routine of exercise and sunlight may also help. Exercise builds energy - although at first it feels like a catch-22 because you don't have the energy to exercise. If you don't get natural light, consider checking into a full-spectrum light (you need to find the actual phrase 'full spectrum') - you can get a cheap $14 bulb you put in a light and have on for a few hours during the day, or an expensive $100 to $200 light box you use just in the am. However, if you or someone near the light has bipolar disorder, the light can trigger manic episodes. Read directions carefully if you look into full spectrum lighting.

NE Mom Apprentice

I was dx'd with Fibro two years ago. I'm not willing to settle for a life of feeling 40 years older than I am so I started a gluten free diet a week ago. My brain fog has already cleared up.

I was severely deficient in Vitamin D when I was first dx'd. I took a large RX dose for three months and now take 2000 IU's daily. this has really helped with the fatigue. I also found I was lactose intolerant so I avoid dairy which helps with fatigue as well.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    2. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    5. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.