Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel Myself Slipping Into "That Place" Again

jasonD2

By jasonD2
in Coping with Celiac Disease

Recommended Posts

jasonD2 Experienced
jasonD2
Posted

Hello All-

As some of you know I made some progress and have been feeling much better mentally & physically. However, these past few weeks have been a little stressful for me...I didn't get a job that I wanted and also went for an endoscopy, which in of itself was a bit intimidating. My results showed no evidence of celiac, but again i have been gluten free for a while. I guess its good that the bowel at least looks normal...means i healed or am healing.

All my other labs were ok, but unfortunately my liver ALT enzyme is still a bit elevated (has been for 6 months)...it actually dropped 10 points since the last test (went from 70 to 60) but im still concerned. I am negative for Hep A & B and am afraid to get the Hep C test...dont consider myself to be at risk but who the hell knows. I havent been taking any meds and am not a heavy drinker so I dont know what the problem is. My doc wants to run some more tests to see if there are any nutrient deficiencies so maybe that will shed some light.

On top of that I had a false positive HIV test which initially scared the crap out of me and was also diagnosed with Oral Lichen planus. So as you can see I havent been in a very peaceful state of mind lately.

I was really on the right track for a while and hit another snag on the road to happiness. Anyway, just venting on a freezing cold Saturday morning. Thanks for listening :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mskedi Newbie
Mskedi
Posted

Sounds like you've had good reason to be stressed. The good news is that, in my experience, once you've experienced being happier and healthier it's easier to return to that state. Congratulations on not having any evidence of Celiac anymore -- that means you've been doing quite well. :)

I hope you get all the answers you need about any deficiencies you have.

Could the Oral Lichen Planus be related to Celiac in any way since it's also an autoimmune reaction? What I read on it (I'll admit this is the first I've ever heard of it, so I googled) implied that they don't know the exact cause of it. It (the Mayo Clinic site) did say it often occurs with other autoimmune diseases and allergies, so that would make sense. In any case, I hope you are able to learn to manage it in some way. I wish you luck.

ravenwoodglass Mentor
ravenwoodglass
Posted

Im sorry you didn't get that job. These times are hard for anyone looking for work right now.

I am glad to hear the liver enzymes are going down. I wouldn't stress out about it too much if your doctor isn't overly concerned. Many of us do have elevated enzymes when diagnosed and they can take some time to get down to normal levels. Your doing the right thing by avoiding alcohol for now and taking care of yourself diet wise.

It is good that your doctor is checking you for nutrient issues, do make sure to let him know if you take any supplements as they can skew the results.

I think you have come a long way from the posts when you first joined us. This bump in the road will pass.

Ahorsesoul Enthusiast
Ahorsesoul
Posted

Jason,

So sorry you did not get the job you desired. Hopefully this will leave a opening for something better for you.

About your tests. Go for all you can. The more you know the better you will be able to deal with it. It's the thinking and worrying about it that gets all of us down. Attack it head on and wrestle it. No reason for it to stalk you.

Oral Lichen Planus, could be related to celiac, track any new spots in a food/symptom journal to see, otherwise consider them tattoos

Hep C, take the test, better to know than to keep worrying

Diseases are not something we have much control over, none of them are shameful, diseases happen, we just have to deal with them the best we can. Look how far you have come. I know you can do this.

Wolicki Enthusiast
Wolicki
Posted

Jason

Elevated liver enzymes are common with Celiac. I wouldn't worry too much about it. As far as the tests go, have them all. It's better to know than to worry. Sorry about the job, but this just means that something better is waiting for you in the future :rolleyes:

Keep a positive attitude, walk on the sunny side of the street. When you get bummed, just be thankful for the things you have, and try not to worry about things outside of your control.

Be well

Janie

Ahorsesoul Enthusiast
Ahorsesoul
Posted

Jason,

About "that place", I just called there and they said they are full so you can't come in!!!

jerseyangel Proficient
jerseyangel
Posted

Jason,

About "that place", I just called there and they said they are full so you can't come in!!!

:D :D

Sorry about the job, Jason. I like to think that these things happen for a reason and that an even better one will come along ;)

I wouldn't be too concerned about the enzymes--they're headed in the right direction and Celiac can really affect them in some of us--I included. Also, be careful of NSAD's and or Tylenol (if you take them) they can have an effect on liver enzymes too.

There will always be challenges along the line--just when you think you're on top of it all something else can crop up. Take it from someone much older--such is life. Keep your wonderful new upbeat attitude, focus on the positive, and keep the faith! You've come a long way and I'm proud of you :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Ditto, to all previous posters. Once you've found the bright side, the gloomy side is not the place to be. Be a take charge kind of guy, and "don't let the bastards get you down." Stay warm and sunny. ^_^

jasonD2 Experienced
jasonD2
Posted
  • Author

You guys are the most supportive people in my life - thank you! :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,952
    • Most Online (within 30 mins)
      7,748
    SY8
    Newest Member
    SY8
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.