Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Did Not Expect To Feel Worse!


shepgs

Recommended Posts

shepgs Apprentice

I started this gluten-free diet three weeks ago as a result of family history of health issues and Enterolab results, not because I was having any significant ones of my own, especially not digestive issues. However, I have noticed increased digestive problems... bloating, gas pains, etc. with today being the worst. What is going on? I didn't have intestinal damage to begin with so why the upset?

I know this probably gets asked alot by newbies...sorry. But what do I do?

Thanks so much!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CeliacMom2008 Enthusiast

Have you been eating a lot of bean flours or beans? It could be a reaction to a very different diet.

mushroom Proficient

I had bloating and gas pains and cramping from lactose, long before I was aware of any gluten problem. Try giving up lactose or all dairy and see if it makes a difference.

GFinDC Veteran

I started this gluten-free diet three weeks ago as a result of family history of health issues and Enterolab results, not because I was having any significant ones of my own, especially not digestive issues. However, I have noticed increased digestive problems... bloating, gas pains, etc. with today being the worst. What is going on? I didn't have intestinal damage to begin with so why the upset?

I know this probably gets asked alot by newbies...sorry. But what do I do?

Thanks so much!

How do you know you didn't have intestinal damage? Some people have silent celiac where they don't have GI symptoms but they are still being damaged. Personally I think people go through an adjustment phase where their gut bacteria balance changes due to the different foods they are eating. Things that might help: staying strictly gluten free, eating no sugar or sugary drinks, taking a dairy-free probiotic, getting more fiber in your diet, and time. I know I had gut spasms for weeks after going gluten-free as my intestines were healing. You may also find you have additional food intolerances to root out. Any of the top 8 allergens are a good starting point for things to eliminate if you don't start feeling better after a while. Keep trucking on the diet, it takes time to adjust and to get better. I am a little over 2 years in and have gotten quite a bit better just this year after eliminating soy completely.

shepgs Apprentice

I'm just going off my Enterolab results. My ttg level was in the normal range, as was the malabsorption part. It was just the IgA that was elevated. Does all that mean there wasn't any damage? I'm still new to figuring that stuff out. Also, my casein level was normal. I am realizing as I type that that's different than lactose issues, though.

I haven't been adding any beans or bean flours, trying to avoid digestive issues others relate and, frankly, I'm just not a bean fan, tastewise. I've been using sorghum, millet, and brown rice flours, along with the requisite starches...and xanthan gum.

I think after today (son's birthday) I'll take a hiatus from baking (too stressful) and stick to plain, naturally gluten free foods. Hopefully, that will help. I only thought of true celiac (not gluten sensitive) patients as dealing with this part.

Any more input is welcome. Thank you!

Reba32 Rookie

the only sure way to know if you have intestinal damage is to have the endoscopy and biopsy. Blood tests cannot see damage to the villi, and as previously noted, some Celiacs do not have noticable gastric distress symptoms.

Try just whole natural foods for a while, rather than going nuts with the baking and prepackaged gluten free alternatives. There's no gluten in broccoli or steak. :) Thank goodness!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,514
    • Most Online (within 30 mins)
      7,748

    PaulK
    Newest Member
    PaulK
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.