Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Did Not Expect To Feel Worse!

shepgs

By shepgs
in Coping with Celiac Disease

Recommended Posts

shepgs Apprentice
shepgs
Posted

I started this gluten-free diet three weeks ago as a result of family history of health issues and Enterolab results, not because I was having any significant ones of my own, especially not digestive issues. However, I have noticed increased digestive problems... bloating, gas pains, etc. with today being the worst. What is going on? I didn't have intestinal damage to begin with so why the upset?

I know this probably gets asked alot by newbies...sorry. But what do I do?

Thanks so much!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CeliacMom2008 Enthusiast
CeliacMom2008
Posted

Have you been eating a lot of bean flours or beans? It could be a reaction to a very different diet.

mushroom Proficient
mushroom
Posted

I had bloating and gas pains and cramping from lactose, long before I was aware of any gluten problem. Try giving up lactose or all dairy and see if it makes a difference.

GFinDC Veteran
GFinDC
Posted

I started this gluten-free diet three weeks ago as a result of family history of health issues and Enterolab results, not because I was having any significant ones of my own, especially not digestive issues. However, I have noticed increased digestive problems... bloating, gas pains, etc. with today being the worst. What is going on? I didn't have intestinal damage to begin with so why the upset?

I know this probably gets asked alot by newbies...sorry. But what do I do?

Thanks so much!

How do you know you didn't have intestinal damage? Some people have silent celiac where they don't have GI symptoms but they are still being damaged. Personally I think people go through an adjustment phase where their gut bacteria balance changes due to the different foods they are eating. Things that might help: staying strictly gluten free, eating no sugar or sugary drinks, taking a dairy-free probiotic, getting more fiber in your diet, and time. I know I had gut spasms for weeks after going gluten-free as my intestines were healing. You may also find you have additional food intolerances to root out. Any of the top 8 allergens are a good starting point for things to eliminate if you don't start feeling better after a while. Keep trucking on the diet, it takes time to adjust and to get better. I am a little over 2 years in and have gotten quite a bit better just this year after eliminating soy completely.

shepgs Apprentice
shepgs
Posted
  • Author

I'm just going off my Enterolab results. My ttg level was in the normal range, as was the malabsorption part. It was just the IgA that was elevated. Does all that mean there wasn't any damage? I'm still new to figuring that stuff out. Also, my casein level was normal. I am realizing as I type that that's different than lactose issues, though.

I haven't been adding any beans or bean flours, trying to avoid digestive issues others relate and, frankly, I'm just not a bean fan, tastewise. I've been using sorghum, millet, and brown rice flours, along with the requisite starches...and xanthan gum.

I think after today (son's birthday) I'll take a hiatus from baking (too stressful) and stick to plain, naturally gluten free foods. Hopefully, that will help. I only thought of true celiac (not gluten sensitive) patients as dealing with this part.

Any more input is welcome. Thank you!

Reba32 Rookie
Reba32
Posted

the only sure way to know if you have intestinal damage is to have the endoscopy and biopsy. Blood tests cannot see damage to the villi, and as previously noted, some Celiacs do not have noticable gastric distress symptoms.

Try just whole natural foods for a while, rather than going nuts with the baking and prepackaged gluten free alternatives. There's no gluten in broccoli or steak. :) Thank goodness!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,919
    • Most Online (within 30 mins)
      7,748
    globello
    Newest Member
    globello
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Newly diagnosed mam to coeliac 11 year old

      By trents · Posted

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Newly diagnosed mam to coeliac 11 year old

      By Dizzyma · Posted

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Severe severe mouth pain

      By Russ H · Posted

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.