Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Well Do You Feel Gluten Free?


dhiltonlittle

Recommended Posts

dhiltonlittle Contributor

As long as there is no gluten in your diet do you generally feel ok or do you still experience symptoms?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

My symptoms are long gone, but it took a few months on the gluten-free diet to accomplish that. I feel fine now.

Ahorsesoul Enthusiast

If all the hidden gluten out of my diet I am fine. For me, any tiny bit sets my body off. I thought I was doing great with a mixed kitchen. My dh only had his bread and wrapped snack in his own cabinet. But I've seen improvement in myself since my dh went gluten free and now the whole house is gluten free.

frogholler Newbie

As long as there is no gluten in your diet do you generally feel ok or do you still experience symptoms?

I went on a gluten free diet around 5 days ago and noticed positive changes within the first 24 hours. The first major change was the fact that I was no longer having coughing spells with a lot of mucous.Every morning, I would start coughing and produce a lot of mucous within minutes after getting up. That all stopped. Last Sat. night, I went to a friend's house for a pasta dinner and within minutes after consuming just a small amount of pasta and a few bites of garlic bread, my stomach literally blew up and the waist band of my slacks felt very tight. That's when I decided to go gluten free to see if I felt any different. I am a blood type O and knew I wasn't suppose to have wheat but never realized how important that fact was. I also had no energy and had to force myself to do any chores around the house. Now I feel more energized. My Dr. had some blood work done and I got the results today. The tests showed that I had Celiac disease and my intestines have already been damaged due to my diet but hopefully, if I'm careful and stick to the gluten free diet, I will overcome any other intestinal problems I have been coping with for awhile.

tmbarke Apprentice

As long as there is no gluten in your diet do you generally feel ok or do you still experience symptoms?

I feel like a new woman that has her own mind! Except when I crave a BKburger!

tarnalberry Community Regular

Well, many of us have other (sometimes related, sometimes unrelated) issues going on. I would say "I feel fine" but compared to others I know without other medical issues (particularly fibro, chronic migraines, and hypermobility (but not Ehler's Danlos)), I would never say I feel "great", but it's a relative term anyway. I certainly can still get an upset stomach or intestinal tract from some foods that aren't gluten. But that's a more complicated example. Learning to separate gluten-issues from other issues is an important thing to do. ;)

Reba32 Rookie

After going gluten free, I feel 100% better, but not 100%. If you follow.

I think after years of being malnourished and muscle wasting and whatnot, I will never be "normal". However, I feel soooooooooooooooo much better without gluten in my diet (and it was pretty much within 24 hours of going gluten free that I noticed a difference) that there is not a snowball's chance in hell that I would ever deliberately eat something that contained gluten!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



masterjen Explorer

I've been gluten-free for a month after being confirmed as having Celiac. I feel worse, not better, as I have rib discomfort, headaches, migraines and muscle weakness that I never had before being gluten-free.

MRM Apprentice

i could say the same as Reba32, 100% better but not 100%. i was excited this morning that i felt like blow drying my hair and brushing my teeth. a month or two ago i would have just sat back down and probably fallen asleep. i think i need to pull a few more things from my diet but everyday is better then the last.

Shannonlass Apprentice

I feel better in ways but it's hard to tell really as I had a 6 month run of hell prior to diagnosis. I moved to the Middle East at the end of last July. I had been suffering with nausea when eating/after eating for 3+ years but things deteriorated badly. I began to throw up as well. Then in mid november I got the most awful diarrhoea which continued for almost a month. I lost at least a stone weight. A parasite called giardia was apparently responsible (though they never got a positive test.) I was fine for 3 weeks then mid January the diarrhoea came back again. Lasted for a couple of weeks.In the meantime the nausea/vomitting had disappeared completely which was bizarre but meant I could eat normally for the first time in 6 months. My doctor referred me to a consultant and he was the one who diagnosed celiacs disease almost 5 weeks ago. I still suffer from bloating and flatulence but am hoping it will go away soon. I'm trying my best with the diet and for the most part coping well. I'm hoping to see more improvements soon.

serenajane Apprentice

I have been gluten free about 6 weeks now. After the first 2 weeks the fog lifted (eyes would feel heavy felt like I was looking at the world through a haze)

I felt less bloat at first. I am still making the frequent trips to the lavatory. I am still not fully absorbing the nutrients I should be. I have also gained a little weight not real happy about that. I am going to talk to my doc about seeing a nutritionist to help me balance the new way of eating.

Bottom line I am not going to cheat on purpose either I have excepted that this is what I need to do and thats what I must do. Now if the risk wasn't life threatening I can't say the same would be true. I am not a fan of a colostomy bag so I will be a good girl and follow the diet.

The good news is there are a lot of very talented and creative people that are working hard so that people in our situation don't have to feel left out.

marys gone crackers are my new favorite crackers

ciavyn Contributor

WHEN I haven't accidentally glutened myself, I feel GREAT! Really, really good, with very few GI issues. Unfortunately, it takes me about three weeks to get over being glutened. But I really do feel 100% better...I guess I'm lucky that way.

meatslayer Newbie

Learned I was Celiac one month ago. Gluten free for that month... feel so much better, it's crazy. Maybe not 100% but I'm not on the toilet 10 times a day, I'm getting nutrients from my food again.

People like to moan and make misery out of their situations here, I say move on deal with it. I don't miss any thing, it made me sick. Moved on.....

jackay Enthusiast

I feel a lot better but still have insomnia, muscle pain, headaches and gas which I feel are from intestine candida and other food intolerances. The anxiety is gone and believe me that was extreme. The depression is better and I no longer have diarrhea so in some ways I am way better.

I know when I accidentally get glutened because I get diarrhea and depression that lasts for up to four days.

Lgood22573 Rookie

I feel absolutely fabulous. I am guessing, exactly like a "normal" person without illness feels like.

jackay Enthusiast

I feel absolutely fabulous. I am guessing, exactly like a "normal" person without illness feels like.

I hope to get to that point some day.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,406
    • Most Online (within 30 mins)
      7,748

    Kbradway
    Newest Member
    Kbradway
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.