Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Have Bad Reactions To Quinoa?


GlutenFreeManna

Recommended Posts

psawyer Proficient

You don't need to soak it for hours. There is a naturally occurring coating of saponin, which needs to be rinsed off. Some quinoa you can buy is already free of the saponin and can be used out of the package. Bob's Red Mill is one of those. If you leave the saponin on, the stuff will have a bitter taste, and may cause a reaction. Saponin is a natural protection against insects and herbivores.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Saponin is a natural protection against insects and herbivores.

Saponin must be the lectin content in quinoa which does me in. I don't think you can soak it off???? Well, maybe a little bit, like kidney beans, but it doesn't all come off for those who are extremely sensitive to it.

  • 3 weeks later...
gfquestion Newbie

I am on a gluten-free diet for almost 5 months and still have problems with many foods, including grains in general. I have pain and bloating when I eat a bowl of grain which may feel almost as a reaction for gluten. I discovered I can eat only a small amount of grain (the safe ones of course) because of the high content of fiber. I decided to wait until my gut heals before. I just eat safe veggies and proteins (no spices etc) and I feel much better now.

Maybe you should wait with grains until your gut heals? B)

I get the same thing with grains, including corn. I just yesterday realized that my problem is with all starches though, including beans and rice. Is this the same for you? I am thinking I will need to limit my carb consumption to only monosaccharides--- the kind we can easily digest.

rdunbar Explorer

I phased quinoa out completely 3 months ago, and my guts felt better immediatly. I don't think it was causing symtoms other than hurting my tummy.I found out that is a gut irritant and can damage the villi of your intestine, although it does this in a very different manner than gluten which is autoimmune, not ideal when you are trying to heal up your gut.

It could be that you are also reacting to gluten cross contamination present in the corn in the pasta too. Corn on the cob fresh may be fine, but processed corn almost always is contaminated with gluten; they use the same machinery to harvest it , and it's intermingled in industrial storage and shipping, ect...

psawyer Proficient

Corn on the cob fresh may be fine, but processed corn almost always is contaminated with gluten; they use the same machinery to harvest it , and it's intermingled in industrial storage and shipping, ect...

Can you provide a source for this allegation, please. Oats and wheat are similar, and often have overlap, but corn? I've been on the gluten-free diet for more than ten years, and this is a new one to me.

  • 2 weeks later...
Marz Enthusiast

It appears that Quinoa doesn't agree with me either :( I've always rinsed it well - scrubbed the seeds between my fingers and rinsed until clear, as well as rinsing after cooking. It was pure quinoa so no cc with wheat, and there were definitely no wheat-like particles amongst the quinoa seeds.

Was fine the first week of eating it, had a break of a week or two from eating it, and now every time I eat it I get severe runs the next day. It's almost identical to my chicken/egg intolerance, except much more severe. I can't see anything else I can blame it on, so unfortunately looks like I need to find a different cereal for breakfast... again...

The reaction was different to a glutening, so I don't think the reaction has anything to do with celiac, it's just an intolerance of some sort, maybe trace amounts of that saponin substance my body is reacting to. Oh well...

Marilyn R Community Regular

I had a horrific reaction to quinoa purchased in bulk from a health food store a month after going gluten-free. I rinsed it well and steamed it in a rice steamer. Had it for dinner and made a salad with the leftovers for lunch the next day. I loved it but my body HATED it and beat me up severely for a week. (CC could have been a factor, but not with that severe of a reaction.) It will take a long, long time before I'm ready to try it again if it is an ingredient in something, and I'll probably never try it in it's whole form again. I've been fine with sesasme seed anything, so I don't think seed is the problem. And coconut has been fine, which is in the grass family. (Ok with lemongrass too.) I think it's a plant protein issue, but don't have anything to scientifically substantiate it, just wondering out loud, so to speak. :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I had a horrific reaction to quinoa purchased in bulk from a health food store a month after going gluten-free. I rinsed it well and steamed it in a rice steamer. Had it for dinner and made a salad with the leftovers for lunch the next day. I loved it but my body HATED it and beat me up severely for a week. (CC could have been a factor, but not with that severe of a reaction.) It will take a long, long time before I'm ready to try it again if it is an ingredient in something, and I'll probably never try it in it's whole form again. I've been fine with sesasme seed anything, so I don't think seed is the problem. And coconut has been fine, which is in the grass family. (Ok with lemongrass too.) I think it's a plant protein issue, but don't have anything to scientifically substantiate it, just wondering out loud, so to speak. :unsure:

Quinoa is high in lectins, a plant protein (gliadin is a lectin).

WheatChef Apprentice

Quinoa was one of the grains tested in that study that showed millet was frequently unsafe. None of the quinoa forms registered any gliadin. It's totally possible to have reactions to many other compounds besides gluten but quinoa does not have gluten. This is not to say that your particular source (especially anything out of a bulk bin!) is safe from cross contamination, it just means that quinoa by itself does not contain gliadin. It is so very far away from wheat on the taxonomical charts it might as well be an animal.

mushroom Proficient

Quinoa and millet both have a high lectin content (non gliadin) and can cause problems for folks sensitive to lectins.

jester Rookie

I haven't had my tests done yet, and this is probably going to sound ridiculous, but at this point I really hope I have celiac. The more I read (especially here) the more I see myself. Everything I read I'm jumping in my chair going YES! YES! That's me! Sad, isn't it?

I was looking up quinoa because I had it for the first time last night - felt crummy but I'd felt crummy all day. Then today I had a big bowl of leftover quinoa for lunch and within half an hour I had to lie down. I felt so horrible, weak, unfocused, like I had a bowling ball in my stomach and was going to vomit. I had to just lie in bed for an hour before I felt okay to get back up.

I've never had such an obvious reaction to anything before, and I'm hoping maybe it wasn't actually FROM the quinoa because I really, REALLY liked it, but it looks that way, doesn't it?

Marilyn R Community Regular

Quinoa was one of the grains tested in that study that showed millet was frequently unsafe. None of the quinoa forms registered any gliadin. It's totally possible to have reactions to many other compounds besides gluten but quinoa does not have gluten. This is not to say that your particular source (especially anything out of a bulk bin!) is safe from cross contamination, it just means that quinoa by itself does not contain gliadin. It is so very far away from wheat on the taxonomical charts it might as well be an animal.

Wheatcheaf, I appreciate your input, but know that my reaction from quinoa was not CC. The reaction was severe. I think the protein is a problem, and appreciate the positive responses from others.

Marilyn R Community Regular

Oops, meant to add this. Good luck Jester! If indeed your problem is with gluten, life will be so much better once you know what ails you...YAY! Life will be a little more complicated, but still SO much better.

  • 4 weeks later...
eatingganesh Newbie

Thank you Mari and RunnerMom for your replies. Yes, this reaction was worse than any glutening I have had. RunnerMom I will not be quick to try Amaranth, if that is the case. I have not tried chia flour yet, but I will remember it for later. I think I'm going to stick to mostly steamed veggies and safe meats for now. I guess I need to let my stomach heal more.

And thank you for posting the thread. I love quinoa and ate a whole bunch last night, didn't get any cramps or pain, but was alarmed to awake with diarrhea and see the quinoa floating about undigested.

I have always had pretty severe grass allergies, though... so I guess I'm not surprised, but darn - one more thing to avoid.

  • 1 year later...
astrologer50 Rookie

I tried chia seeds, just a teaspoon and washed it down with juiced carrots and got pain in my stomach which lasted for ages. I know they are a superfood and love to use. How do you desensitise your body. Has anyone else had a reaction to white chia seeds?? :(

I have had CRAZY bad reactions to quinoa! Worse than gluten: I get immediate stabbing pain in my stomache, sweaty with chills, 'D', etc. It's weird because I could eat it at first then all of a sudden, one day I had a violent reaction to it. I bought amaranth as a replacement and the same thing happened! After that I read online that both are in a similar class of grasses (I think -someone correct me if I am wrong b/c I looked a couple years ago). Anyway, I stay away from both now, which is a bummer b/c they are a nutritious alternative to wheat and lower glycemic index than rice flours. Now I have found Chia flour and Chia seeds and I use this instead. It's super healthy, higher in Omega 3s than flax seed, more digestable, high in fiber...all the stuff WE need. Check it out. :)

  • 9 months later...
kwylee Apprentice

As my system has become much more discerning over the past 2+ years of strict adherence to this way of eating, I have found that I cannot tolerate quinoa, among other non gluten/non dairy/non soy foods I used to eat with no problem before. I've come to realize it's just the way I am now. C'est la vie!

1desperateladysaved Proficient

I haven't had my tests done yet, and this is probably going to sound ridiculous, but at this point I really hope I have celiac. The more I read (especially here) the more I see myself. Everything I read I'm jumping in my chair going YES! YES! That's me! Sad, isn't it?

I was looking up quinoa because I had it for the first time last night - felt crummy but I'd felt crummy all day. Then today I had a big bowl of leftover quinoa for lunch and within half an hour I had to lie down. I felt so horrible, weak, unfocused, like I had a bowling ball in my stomach and was going to vomit. I had to just lie in bed for an hour before I felt okay to get back up.

I've never had such an obvious reaction to anything before, and I'm hoping maybe it wasn't actually FROM the quinoa because I really, REALLY liked it, but it looks that way, doesn't it?

You are not happy to have a gluten problem, but to know at last about the problem you do have! It can be helped and it is real!

shadowicewolf Proficient

I don't eat straight quinoa. I normally eat it in my pasta that is mixed with corn. I normally have that once a week or so and sometimes if i eat to much i get that feeling but its probably because i over ate.

Celiac Mindwarp Community Regular

I tried quinoa twice, and I might just as well have tipped it straight down the toilet, given how quickly it went through me. Shame, I loved the taste and texture.

Corn does sound the other possible culprit (or both, you gotta love celiac). I am just starting to admit I am going to have to eliminate it.

Happy healing x

Pegleg84 Collaborator

FYI: I started another thread (linked to this one) on this topic here:

Some new relevant info coming out there, I hope.

Something to do with lectin (which is also in milk, grains, nightshades, etc)

Would be good to have a comprehensive thread/guide to the quinoa challenged.

  • 1 year later...
Starving Amy Rookie

Late to the party but quinoa messes me up. Gluten is still up for debate, though I am pretty sure. Quinoa shuts my intestines down causing joint pains and back pains, though. I want to shrink down in size and beat quinoa's butt. I was reading the outer "husk" or whatever, the outer covering will perforate intentional walls the same way gluten does. I have no idea why it's as popular as it is. My reaction to quinoa is almost worse than gluten. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.