Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"But You Can Eat Whole Wheat, Right?"

earthtoneNJ

Recommended Posts

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

I saw a sign today advertising for a homemade specialty bread store. I scanned the list of what they make to see if they had any gluten free bread. No such luck, but the last product they listed was "Spelt bread for people with Wheat allergies" :o

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 121
  • Created
  • Last Reply
i-geek Rookie
i-geek
Posted

I saw a sign today advertising for a homemade specialty bread store. I scanned the list of what they make to see if they had any gluten free bread. No such luck, but the last product they listed was "Spelt bread for people with Wheat allergies" :o

Depending on what allergenic protein a wheat-allergic person reacts to, spelt might be safe. At least they didn't suggest it as safe for celiacs.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Depending on what allergenic protein a wheat-allergic person reacts to, spelt might be safe. At least they didn't suggest it as safe for celiacs.

Really? I thought Spelt was just another (older) form of wheat. I thought I saw someone with a wheat allergy post here that they reacted to spelt, so I guess that's where I got confused. Thanks for the info.

ravenwoodglass Mentor
ravenwoodglass
Posted

Really? I thought Spelt was just another (older) form of wheat. I thought I saw someone with a wheat allergy post here that they reacted to spelt, so I guess that's where I got confused. Thanks for the info.

Actually I think you are right. Spelt is wheat and I do think someone allergic to or intolerant to wheat would react. But I could of course be wrong.

jerseyangel Proficient
jerseyangel
Posted

Depending on what allergenic protein a wheat-allergic person reacts to, spelt might be safe.

This is the way I understand it too. Some people with a wheat allergy can use spelt.

Of course, that does not hold true for Celiacs :)

i-geek Rookie
i-geek
Posted

Really? I thought Spelt was just another (older) form of wheat. I thought I saw someone with a wheat allergy post here that they reacted to spelt, so I guess that's where I got confused. Thanks for the info.

It's a varietal of wheat, but not the same species as common wheat(or sub-species; there appears to be some confusion). Some of the proteins in the two species will be identical and someone who reacts to those proteins in common wheat will also react to spelt. However, some of the proteins will be different, and someone who reacts to a protein that is only in common wheat will not react to spelt.

psawyer Proficient
psawyer
Posted

Spelt contains gluten. It is not identical to modern wheat, but neither is barley or rye. Celiacs must avoid all forms of gluten, including spelt.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


srall Contributor
srall
Posted

These are so funny. I'm brand new to this board but I can completely relate to this thread. I realized through an elimination diet in March of this year that I'm extremely gluten intolerant and I've also given up dairy which bothers me too. (May re-introduce wheat to get a celiac's diagnosis as I have many classic symptoms but am dreading the process).

Anyhow, I have been scrambling myself to figure out what is safe and not safe (never thought about make up...will have to research that next)

Anytime I travel or eat out I panic...I realize that nobody but me can be trusted when it comes to what foods are safe for me. In a hotel restaurant in Rhode Island I was already crashing from something I ate and was really struggling. There was a risotto on the menu and I asked the waitress to ask the chef if it was dairy free and if there was any soy sauce. I had already learned not to trust the servers. She comes back and says no soy sauce and dairy free. Risotto comes out...in a cheese sauce, which I discovered after taking a big bite. They did comp my meal.

I too have been asked many of the same questions :"You CAN eat white bread though?" and "What do you eat then?"

Honestly I'm eating 100% healthier since I've had to take control of my diet.

K8ling Enthusiast
K8ling
Posted

I'm having trouble accepting that my son won't eat as well as I can feed him at school. I am going to start sending him lunch, but since being diagnosed we eat SO healthy. Then he goes to school. I took him to school at lunch time today and saw what they were feeding him...and oh goodness. It made me wish I had fed him before he went to school. Being a Celiac has made everyone in my family healthier.

polarbearscooby Explorer
polarbearscooby
Posted

Here is a conversation I had with my Dad's sister. She's supposed to be a nurse...and supposedly the smart one?!?

ME: I can't eat anything with wheat in it...

HER: Oh. So you can only eat White bread? (I HATE THIS LINE!!!)

ME: No. White bread is just bleached wheat. I can't have any wheat at all...

HER: OK...So how bout this cake mix? *holding up a box of regular betty crocker cake mix*

ME: No. Not that either

HER: Oh. Well, You can still eat Ravioli out of the can right? Or spaghetti from a box?

ME: NO. I have to eat special spaghetti, regular pasta is made from wheat...

HER: Ok. I got it. So you can eat Kraft Mac and Cheese Right?

ME: *head palm* No.

Needless to say I NEVER let her cook for me....

i-geek Rookie
i-geek
Posted

Here is a conversation I had with my Dad's sister. She's supposed to be a nurse...and supposedly the smart one?!?

ME: I can't eat anything with wheat in it...

HER: Oh. So you can only eat White bread? (I HATE THIS LINE!!!)

ME: No. White bread is just bleached wheat. I can't have any wheat at all...

HER: OK...So how bout this cake mix? *holding up a box of regular betty crocker cake mix*

ME: No. Not that either

HER: Oh. Well, You can still eat Ravioli out of the can right? Or spaghetti from a box?

ME: NO. I have to eat special spaghetti, regular pasta is made from wheat...

HER: Ok. I got it. So you can eat Kraft Mac and Cheese Right?

ME: *head palm* No.

Needless to say I NEVER let her cook for me....

Oh, that's just frightening.

ravenwoodglass Mentor
ravenwoodglass
Posted

Here is a conversation I had with my Dad's sister. She's supposed to be a nurse...and supposedly the smart one?!?

ME: I can't eat anything with wheat in it...

HER: Oh. So you can only eat White bread? (I HATE THIS LINE!!!)

ME: No. White bread is just bleached wheat. I can't have any wheat at all...

HER: OK...So how bout this cake mix? *holding up a box of regular betty crocker cake mix*

ME: No. Not that either

HER: Oh. Well, You can still eat Ravioli out of the can right? Or spaghetti from a box?

ME: NO. I have to eat special spaghetti, regular pasta is made from wheat...

HER: Ok. I got it. So you can eat Kraft Mac and Cheese Right?

ME: *head palm* No.

Needless to say I NEVER let her cook for me....

I guess she slept through her nutrition classes. Wow I can't believe a nurse could be that clueless, scarey.

Skylark Collaborator
Skylark
Posted

I guess she slept through her nutrition classes. Wow I can't believe a nurse could be that clueless, scarey.

She's one of those foodiots. Ask her where the flour trees grow. You might get an interesting answer. ;)

kayo Explorer
kayo
Posted
I can't believe a nurse could be that clueless

Related story... a friend had gastric bypass surgery and is having trouble with her diet. She suspects she might have lactose intolerance so she called her doctor who said, yogurt and cheese don't have lactose because they're processed so she can go ahead and eat them.

:blink:

I can maybe sort of understand an average person may not know this but a doctor? One who deals with gastric bypass patients who have to drastically change their diets? You'd think they'd be up on basic food intolerance knowledge.

Jestgar Rising Star
Jestgar
Posted

yogurt and hard cheese have very little lactose.....

missceliac2010 Apprentice
missceliac2010
Posted

I can maybe sort of understand an average person may not know this but a doctor? One who deals with gastric bypass patients who have to drastically change their diets? You'd think they'd be up on basic food intolerance knowledge.

Doctors....LOL! Even though I have a print out, right on my refrigerator door that tells me the lactose content of "commonly eaten foods", and yogurt is pretty low in lactose, I still eat soy yogurt. Although, I will admit, because of a lack of not-gross cheese substitutes out there, I still indulge in "regular" cheese, with the help of "Lactaid." I tried once to eat a regular yogurt, and got sick as a dog, even with the Lactaid. I guess we are all different, and we all have to make choices about how far we are willing to "push" our diet. Lactose, unlike gluten, does not make my belly extend, which is the symptom I find most painful and annoying. My clothes don't fit, my back hurts, ugh, it's hell. But Lactose...if I screw up its just a few trips to the potty with D. I take 2 lactaid before a sandwich with a slice or two of cheese, and that is fine, but if I am having a "cheese plate" (a common snack with my BF and I...(different cheeses and rice crackers...yum..), I have to take 3 - 4 Lactaid. It's probably better if I avoid 'cheese plate lunch' day, but hey, it's a risk I am willing to take!

You can find out the general amount of lactose in commonly eaten foods. That way, you have a formal, educated answer to the lactose content of food, and you can make your own choices. I found a great table here:Open Original Shared Link

They have an excellent chart about half-way down the page. I printed 3 and hung on my fridge, one on bf's fridge, and carry one in my purse. Good luck!

kayo Explorer
kayo
Posted
yogurt and hard cheese have very little lactose.....

But very little does not equal none. Besides, he didn't make that distinction so she continued to eat cottage cheese, cream cheese, yogurt, etc.

I'm severely lactose intolerant and been dairy free for a long time so I know my stuff when it comes to lactose, cassein and whey. Lactaid doesn't work for me but I suggested to my friend that she try Lactaid milk or soy milk to see if she feels better.

I don't want to stray too far off topic, just wanted to highlight that nurses and docs can be just as ignorant about food intolerances as anyone else.

mushroom Proficient
mushroom
Posted

But very little does not equal none. Besides, he didn't make that distinction so she continued to eat cottage cheese, cream cheese, yogurt, etc.

Everyone has a different tolerance level. I was severely intolerant of milk, cream, ice cream and frozen yogurt. I could eat cheeses, cream cheese, sour cream, yogurt, butter, without any problem.

Ahorsesoul Enthusiast
Ahorsesoul
Posted

Kind of like asking someone who's can not eat shellfish if they can have shrimp if you remove the shell.

  • 2 years later...
floral Newbie
floral
Posted

When you have a gastric bypass you lose the part of your intestine that digests lactose. You are told before surgery that you will become lactose intolerant. To me it didn't make any difference since I had been severely lactose intolerant since the age of 18. I'm surprised that the above doctor who performs this surgery for a living wouldn't have informed all of his patient's of this beforehand. ?????

Chiana Apprentice
Chiana
Posted

It's possible that he has had other bypass patients report that cheeses, etc. did not give them issues. I know someone who still drinks milk post-bypass, so I think problems/severity is variable.

If the cheese is properly aged (which almost no cheese is these days) then it should contain no lactose. But that takes years. It's just like dry wine - given the proper conditions and the right starting ingredients, fermentation should continue until all sugars have been consumed.
JNBunnie1 Community Regular
JNBunnie1
Posted

Please keep in mind, guys, the conversation you are joining is two years old, and

many of the participants may not be around anymore. Very amusing thread to resurrect

though. :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,196
    • Most Online (within 30 mins)
      7,748
    Marrianne Kraatz
    Newest Member
    Marrianne Kraatz
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      Food Allergies

      By Ginger38 · Posted

      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      7yo struggling!

      By JForman · Posted

      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...