Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Eliminating Dairy

Coolclimates

Recommended Posts

Coolclimates Collaborator
Coolclimates
Posted

I've been on the gluten-free diet since early May, but have not had much relief (I was diagnosed with Celiac disease). So now I'm trying to eliminate dairy for awhile and see if I start feeling better.

I have a few questions:

1. can I still have goat and sheep milk, yogurt, etc, as long as it isn't cow?

2. do I need to avoid products with dairy that has been cooked into them, such as cake or cookies? Or do I just need to worry about raw dairy?

I would like your imput.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

I've been on the gluten-free diet since early May, but have not had much relief (I was diagnosed with Celiac disease). So now I'm trying to eliminate dairy for awhile and see if I start feeling better.

I have a few questions:

1. can I still have goat and sheep milk, yogurt, etc, as long as it isn't cow?

2. do I need to avoid products with dairy that has been cooked into them, such as cake or cookies? Or do I just need to worry about raw dairy?

I would like your imput.

Since you are still having problems, it would be best to eliminate all dairy from all sources, both raw and cooked. Give it a good trial--a couple months at least to see if that helps.

If it turns out to be a dairy problem, at some point after you've been feeling better, you could try a little goat's milk cheese to see how you do with it.

I was dairy free for over 5 years, and found at that point I could tolerate it again.

cassP Contributor
cassP
Posted

some people who cant do dairy CAN do sheep & goat. i have goat yogurt in the fridge- it's delish

like the above poster said (correlating with what ive read)- it may be possible to eat dairy again after your villi in your small intestine have healed.

i really believe in a diet (which i will not name since people dont like it)- BUT- i really believe that i should not be eating dairy. HONESTLY- sometimes dairy bothers me & sometimes it doesnt. since ive been gluten free, its been better but sometimes it will give me a little D. and a couple of times without giving gross TMI- i have seen that i was UNABLE to digest some cheese.

its hard for me to give up dairy.. good luck :)

oh- and ps- ive taken a liking to HEMP milk- its delish in my cereal... but still cant find a substitute for my coffee cream

lucia Enthusiast
lucia
Posted

CoolClimates,

My impression from reading everyone's posts is that for both these questions, the answer is going to depend on your body. For awhile, I could tolerate goat's cheese and yogurt even though I couldn't tolerate other kinds of cheese or milk. Then, I started reacting to goat's cheese and yogurt as well.

Lucia

Coolclimates Collaborator
Coolclimates
Posted
  • Author

thanks for all of your imput, everyone. Oh gosh, this is gonna be harder than I expected. It's hard enough eliminating all the gluten from my diet, but now dairy as well. I was hoping sheep and goat products didn't count. I've never had any of the severe stomach problems that some celiacs do (I only have acid reflux), and I don't seem to notice much change if I get glutened. So hopefully my body is not that sensitive. But I've just been feeling so tired all of the time, and that is frustrating.

cassP Contributor
cassP
Posted

thanks for all of your imput, everyone. Oh gosh, this is gonna be harder than I expected. It's hard enough eliminating all the gluten from my diet, but now dairy as well. I was hoping sheep and goat products didn't count. I've never had any of the severe stomach problems that some celiacs do (I only have acid reflux), and I don't seem to notice much change if I get glutened. So hopefully my body is not that sensitive. But I've just been feeling so tired all of the time, and that is frustrating.

maybe u should ask your doc to check your B12 & D levels. and GET A COPY OF YOUR RESULTS!!! your levels could be too low- and the doc could just brush it off. A LOT of Celiacs need major B12 & D supplements! i got mine checked cause im ALWAYS tired- but my B12 was great?!? so, i think the thyroid is the next test- which is another thing u need to get checked with Celiac!

lcarter Contributor
lcarter
Posted

Here's something else to think about if you are continuing to have problems even though you are religious about staying on a gluten free diet. Celiac disease falls under the heading of a "Malabsorption Syndrome". It is not unusual for people with celiac disease to also have malabsorption issues with one or more of the following: dairy [all factions of milk] and fructose [found as fruit sugars + long starchy chains of fructose molecules called "Fructans"...found in wheat, plus some other foods. Sorbital, and HFCS are particularly problematic. Look up "Fructose Malabsorption" on the internet for a complete list of offending foods to avoid - be careful not to mix it up with a very serious disease with a similar name, called "Hereditary Fructose Intolerance".]. Two other frequent problem-makers for celiac disease patients are soy and corn. [There's probably others that I am not familiar with.] An elimination diet is probably your best bet for discovering what else it could be besides gluten in wheat, rye, barley...and for some of us, oats. At first, it is best to make a short list of safe foods and stick to it. Then, gradually try adding other individual offending possibilities, one at a time, every 3-5 days, or longer if you tend to have symptoms which are a delayed reaction rather than immediate. It should become very evident what is causing your continuing symptoms. Remember..."a patient can have as many diseases as he/she pleases"...so it could be more than one food causing symptoms. So, continue the elimination diet until you run through all the possibilities. Good luck...this takes some time to do on your own. Unfortunately, not many doctors are very helpful with this or knowledgeable about malabsorption syndromes in general. [i am familiar with Dairy Intolerance and Fructose Malabsorption because I have both as well as Celiac Disease. Luckily so far, corn and soy are not problematic for me.] Sure hope this helps - your situation can be sooooo frustrating! Best of luck, Linda

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


txplowgirl Enthusiast
txplowgirl
Posted

Hey Cool,

It's tough but you will feel so much better. I am gluten, dairy and soy free. Hang in there. It's been over a year and i find that i'm finally starting to be able to eat some dairy every once in a while. Like some little thing about once a week. No more than that or i have consequences.

You can do it.

Coolclimates Collaborator
Coolclimates
Posted
  • Author

Well, I HAVE been gaining weight (probably 6-7 pounds) since going on this gluten-free diet but i can't tell if it's because I'm now absorbing nutrients or if this new diet is just causing me to gain weight (without necessarly healing my intestines). I'm trying to be careful not to eat too many bad foods, but it's hard because i've always eaten a lot of sweets and carbs and I'm now worried I will keep gaining weight, so I'm trying to cut back a bit or at least eat things with more nutrients. I've been staying away from dairy for the last few days, but am still eating sheep and goat cheese. I'm hoping that is not considered "dairy." Which is another question: when people say "dairy" do they mean only products from cows or from other animals as well?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,918
    • Most Online (within 30 mins)
      7,748
    Dizzyma
    Newest Member
    Dizzyma
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Newly diagnosed mam to coeliac 11 year old

      By trents · Posted

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Newly diagnosed mam to coeliac 11 year old

      By Dizzyma · Posted

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Severe severe mouth pain

      By Russ H · Posted

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.