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Do You Expect Relatives To Cater To Your Gluten-Free Diet?


ljgs

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ljgs Explorer

My 13-year-old was just diagnosed a month and a half ago. So far things are going pretty well, but I'm feeling a little irked over something and want opinions. A few weeks after her diagnosis we were invited to my husband's sister for a family birthday party. She was good about providing safe BBQ food for my daughter--even a separate grill--but then there was a big fat wheat birthday cake. My daughter was able to eat dessert because I brought gluten-free brownies, which other people ate but which were viewed with suspicion after my father-in-law announced to everyone that they were gluten-free. The following week my kids went to stay overnight with my in-laws. They went to a minor-league ballgame and I ended up packing dinner for my daughter because there wasn't much to eat at the game. My mother-in-law asked me to send breakfast food so she would have something. I guess I was just hoping she would have offered to buy my daughter's favorite cereal or something (how hard is it to find gluten-free Chex?) So...on to tonight: Rosh Hashanah. We're going to my mother's house. My in-laws are also coming--we're lucky that both families are close and always spend major holidays together. My mother took care to cook the brisket gluten-free, in a foil pan, as well as potatoes and other stuff. She forgot to get gluten-free gefilte fish but at least she sent my dad out this morning to try to find it. (Unsuccessfully--I ended up buying it myself today.) Then my mother told me that my mother-in-law was bringing some desserts. I know, of course, that they will not be gluten-free, nor will any effort have been made to find gluten-free desserts. My mother-in-law doesn't cook or bake at all, so asking her to make something would be out of the question.

Am I too sensitive? We recently spent a week on vacation with my in-laws and they were willing to go to the restaurants that would accommodate my daughter on most nights. On the few nights they didn't want to join us, they went to places that weren't safe for my daughter. My mother-in-law told me at the end of the trip that she was very happy we were able to eat together most nights--she had thought that we weren't going to be sharing many dinners during the trip because she figured we would need to go to "strange" restaurants that wouldn't serve anything she and the rest of the family would like. I asked her why she thought that and she had no answer.

Are my in-laws (parents and sister) a little insensitive or am I just too sensitive?


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scarlett77 Apprentice

My 13-year-old was just diagnosed a month and a half ago. So far things are going pretty well, but I'm feeling a little irked over something and want opinions. A few weeks after her diagnosis we were invited to my husband's sister for a family birthday party. She was good about providing safe BBQ food for my daughter--even a separate grill--but then there was a big fat wheat birthday cake. My daughter was able to eat dessert because I brought gluten-free brownies, which other people ate but which were viewed with suspicion after my father-in-law announced to everyone that they were gluten-free. The following week my kids went to stay overnight with my in-laws. They went to a minor-league ballgame and I ended up packing dinner for my daughter because there wasn't much to eat at the game. My mother-in-law asked me to send breakfast food so she would have something. I guess I was just hoping she would have offered to buy my daughter's favorite cereal or something (how hard is it to find gluten-free Chex?) So...on to tonight: Rosh Hashanah. We're going to my mother's house. My in-laws are also coming--we're lucky that both families are close and always spend major holidays together. My mother took care to cook the brisket gluten-free, in a foil pan, as well as potatoes and other stuff. She forgot to get gluten-free gefilte fish but at least she sent my dad out this morning to try to find it. (Unsuccessfully--I ended up buying it myself today.) Then my mother told me that my mother-in-law was bringing some desserts. I know, of course, that they will not be gluten-free, nor will any effort have been made to find gluten-free desserts. My mother-in-law doesn't cook or bake at all, so asking her to make something would be out of the question.

Am I too sensitive? We recently spent a week on vacation with my in-laws and they were willing to go to the restaurants that would accommodate my daughter on most nights. On the few nights they didn't want to join us, they went to places that weren't safe for my daughter. My mother-in-law told me at the end of the trip that she was very happy we were able to eat together most nights--she had thought that we weren't going to be sharing many dinners during the trip because she figured we would need to go to "strange" restaurants that wouldn't serve anything she and the rest of the family would like. I asked her why she thought that and she had no answer.

Are my in-laws (parents and sister) a little insensitive or am I just too sensitive?

No & No actually. My husband and I have had very similar issues. We were especially upset with my family because at first they didn't take it as seriously as we did. We were told that we were being overly protective and taking it way too seriously. I have major issues with this way of thinking. It is my JOB as a parent to ensure the safety of my kids so yes I am going to do everything in my power to ensure that my son is eating safe food. My other issue was that my mother, who of all people knows what it is like to have a medical issue that people have to cater to occasionally, would be proactive and do some research about Celiac. Find safe foods or ask questions to have safe food on hand if we come to visit (which we did quite often since we only live 3 miles away). Honestly, it wasn't until my nephew was diagnosed with nut and dairy allergies and landed in the hospital a couple of times did they start taking us more seriously. I actually stopped talking to my family for awhile because of this. I ended up writing a 4 page letter expressing my issues and concerns and we are now starting to try to work things out.

People have a hard time wrapping their heads around special diets that omit such common things as bread. We HAD to learn the daunting task of how to eat healthy and navigate hidden sources of gluten such as from CC or that malt in rice crispies. To "normal" people it seems impossible, much like the way we felt when some of us (or our kids) were diagnosed. Is it fair to make extended family eat gluten-free solely for the purpose of inclusion? No. But it would be nice if the took the opportunity to understand about it and take their loved ones into consideration. For example, don't expect them to make a gluten-free cake for a non-Celiac birthday...but it would be nice if they called you to let you know so you can bring something for your DD. It would be even better if they offered to purchase/make a treat for her because she wouldn't be able to eat the cake. Or at least make sure the ice cream is gluten-free. I personally make sure that b-day cakes and goodies that I host are gluten-free. If I invite my nephew I also make sure goodies are nut free and dairy free. It is a bit of a challenge at times, but he is my nephew and his health is important to me. If for some reason I can't accommodate him (which is rare-only when we are going to our grandmother's) I will coordinate with my sister to make sure we feed the boys similar items.

And about the restaurant thing...when DS was first diagnosed my mom went and bought a couple of gluten-free specialty items to keep at her house. They were horrid and DS did not like them. I had to explain to her that there are MANY main stream gluten-free items out there that she likes that she can just keep on hand like raisins, chex, mission tortilla chips, etc. She had no clue and I told told her point blank:"that is because you didn't even look." She had just assumed that omitting gluten meant everything had to be "special".

Education is key...but they have to be willing pupils.

kareng Grand Master

Yes.

:huh: Oh! maybe I should add something. Because this is new to you and everyone else, there will be a learning curve. It will take the people who don't deal with it everyday, longer to "get" it. Bring your own dessert and keep some aside so its safe from crumbs.

With my parents, they started asking stupid questions like "Can you eat eggs? Can you eat...?" I just said yes. We looked at the ingredients of some stuff they had at home and found that most stuff was gluten-free. Not including the bread, crackers, obvious stuff. I think people don't realize that most foods like meat, veggies, fruits, etc are gluten-free unless you add something. CC is the real issue with a lot of peoples food. Enjoy the Holiday!

Skylark Collaborator

I'm impressed that your SIL even went to the trouble of setting up a separate grill. It sounds like your MIL doesn't want to go out of her way, but she is taking the diagnosis seriously enough to make sure you are sending safe food.

I'd call them a touch insensitive as far as not providing dessert for a kid (who really cares about it). We've seen some real horror stories with relatives not taking the diagnosis seriously and feeding kids gluten behind parents' backs, so your relatives are actually doing better than many!

You might have to make more suggestions to your MIL. She might not have thought of Chex cereal. She also may not have a clue about gluten-free desserts and probably will want to follow your family's holiday traditions. You could suggest she grab some halva or a tin of Manichewitz macaroons, either of which is gluten-free if your daughter likes them. (I haven't seen gluten in any major brands of halva.)

GlutenFreeManna Rising Star

My 13-year-old was just diagnosed a month and a half ago. So far things are going pretty well, but I'm feeling a little irked over something and want opinions. A few weeks after her diagnosis we were invited to my husband's sister for a family birthday party. She was good about providing safe BBQ food for my daughter--even a separate grill--but then there was a big fat wheat birthday cake. My daughter was able to eat dessert because I brought gluten-free brownies, which other people ate but which were viewed with suspicion after my father-in-law announced to everyone that they were gluten-free. The following week my kids went to stay overnight with my in-laws. They went to a minor-league ballgame and I ended up packing dinner for my daughter because there wasn't much to eat at the game. My mother-in-law asked me to send breakfast food so she would have something. I guess I was just hoping she would have offered to buy my daughter's favorite cereal or something (how hard is it to find gluten-free Chex?) So...on to tonight: Rosh Hashanah. We're going to my mother's house. My in-laws are also coming--we're lucky that both families are close and always spend major holidays together. My mother took care to cook the brisket gluten-free, in a foil pan, as well as potatoes and other stuff. She forgot to get gluten-free gefilte fish but at least she sent my dad out this morning to try to find it. (Unsuccessfully--I ended up buying it myself today.) Then my mother told me that my mother-in-law was bringing some desserts. I know, of course, that they will not be gluten-free, nor will any effort have been made to find gluten-free desserts. My mother-in-law doesn't cook or bake at all, so asking her to make something would be out of the question.

Am I too sensitive? We recently spent a week on vacation with my in-laws and they were willing to go to the restaurants that would accommodate my daughter on most nights. On the few nights they didn't want to join us, they went to places that weren't safe for my daughter. My mother-in-law told me at the end of the trip that she was very happy we were able to eat together most nights--she had thought that we weren't going to be sharing many dinners during the trip because she figured we would need to go to "strange" restaurants that wouldn't serve anything she and the rest of the family would like. I asked her why she thought that and she had no answer.

Are my in-laws (parents and sister) a little insensitive or am I just too sensitive?

I'm sorry, I'm having trouble seeing what the issue is? Is it just that they are not willing to buy gluten free food or make gluten free desserts for your daughter? It sounds like they are being accommodating in many ways--cooking barbecue and other things on foil, going to some restaurants that have gluten free menus, asking you to send safe breakfast food, etc. Also the comment at the end from your MIL about thinking you would have to go to strange restaurants makes me think they really just don't know much about what your daughter can eat. Perhaps you need to educate them a a little about celiac diseas/gluten. Give them a list of mainstream items that your daughter can have so they will see that there are many options for what to feed her. But in the end even if they understand what your daughter can and can't have, they may tell you they are more comfortable with you sending food so they know it's safe for her. If that's your only problem you should be happy. That's much more than some inlaws do. I have read many horror stories on here about grandparents and other extended family members trying to feed celiac kids items with gluten on purpose, saying either a "a little won't hurt them" or not believing that it's a real illness. There are stories of relatives getting caught putting flour in casseroles that they claim are gluten free to "test" whether gluten really makes their celiac relative sick or if it's "all in their heads". At least it sounds like your in-laws are willing to make reasonable accommodations. You can't expect that they will not make a regular birthday cake for their non-celiac relative's birthday or completely change their lifestyle and start checking all labels of things and buying gluten free stuff. The best you can do is what you are already doing--sending food your daughter can eat and bringing a dessert she can eat whenever there's a party.

Cheryl-C Enthusiast

Having just been through something similar this weekend, I would say yes to both questions.

When it's your allergy (or in this case, your child's) you are naturally going to be more informed, invested, etc; it's only natural.

It sounds like your inlaws are not familiar with what kinds of things she can have - maybe provide them with a list of mainstream food she can have? Having something there to read (instead of trying to remember) might give them more confidence and be more willing to try.

Separate grill rocks - that's very thoughtful. When we did our bbq here, my dad cooked the (plain) chicken first and the (pre-seasoned steaks second, to remove CC. Some people need a nudge here and there to think about CC.

The cake thing is frustrating, but no, you can't expect everyone to go gluten-free. Our bb

Cheryl-C Enthusiast

(sorry, I got cut off? LOL)

Our bbq was a birthday party, and out of 13 people, I'm the only one gluten-free. My aunt brought a cake for everyone else, and I got a cupcake from the bakery I trust. The only thing that ticked me off was that the rest of my family somehow got their crumbs all over everything - including the gluten-free cookies my mom had made! Arg! Again, it's about information.

It's a big change, and some people don't handle changes well. I've had people say "It's only got a little flour, it won't hurt you" or "It's not like you'll die" or any number of things that show ignorance of the information. Rather than being mad for too long, I take breaths and respond (politely) firmly.

Good luck!


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tarnalberry Community Regular

Are they insensitive? No, I don't think so. You cite a number of instances where they are showing rather a lot of sensitivity.

Are you being sensitive? Yes, but understandably.

The thing is - you (through your daughter) live with this. You know the adjustments, the modifications, the specialty food, the impact on daily life from living with it every day. This is completely foreign to their habits and life. I would never expect anyone to make large changes to accommodate me (and, if need be, my daughter), whether they are family or not. But there's a lot of room for compromise here. The first thing to do is to help educate them. When you are asked for gluten-free cereal for her, say "well, can you pick up Rice Chex at the store when you're there? that's gluten free and she loves it."

(But, honestly, with dessert - I wouldn't WANT people to try to accommodate me. Chances are, they'll get it wrong and I'll get sick.)

ljgs Explorer

Thank you!!! I'm glad to hear that everyone thinks my in-laws are being accommodating. I wanted to believe that. I think you're right--a lot of it is just misunderstanding and not knowing what is safe and what isn't. I guess I expected my entire extended family to start Googling celiac and to automatically know what has gluten and what doesn't. But that's just me, I guess. And I truly cannot believe grandparents would knowingly gluten a child. What a horror show! I think I would stop speaking to relatives who did that. I'll count my blessings and just keep providing food for my daughter and know it is safe. :)

K-Dawg Explorer

I never expect my relatives to cater events in a gluten free manner. I typically bring my entire meal, today being one of those days!! lol. When they offer and take it very seriously, being aware of and taking steps to avoid CC, I am grateful.

I'm also grateful that I can go to these events, with my own meal, and feel GOOD the entire time...no feeling sick after dinner and wanting to get out of there and go home. When I was first diagnosed, I was overwhelmed..it seemed impossible to figure this diet out and I just don't expect anybody else to do that...especially in the time frame I needed to do it. Not everyone needs to be an expert! Just me. Over time, my relatives have become more educated.

But, no. I don't expect other people to understand all the issues related to the gluten-free diet or celiac disease. I just expect them to be gracious when I say, "thanks for making that pie, but I"m unable to eat it because....."

KDawg

Thank you!!! I'm glad to hear that everyone thinks my in-laws are being accommodating. I wanted to believe that. I think you're right--a lot of it is just misunderstanding and not knowing what is safe and what isn't. I guess I expected my entire extended family to start Googling celiac and to automatically know what has gluten and what doesn't. But that's just me, I guess. And I truly cannot believe grandparents would knowingly gluten a child. What a horror show! I think I would stop speaking to relatives who did that. I'll count my blessings and just keep providing food for my daughter and know it is safe. :)

modiddly16 Enthusiast

I actually hate being catered to with my family. I really don't like to stand out and make people change everything just for me, it makes me really uncomfortable. That being said...my family does it because they're my family. Sometimes, its not sucessful and sometimes its great but the fact that they even want to try is enough for me! It seems like your family is trying for sure, but there is definitely a learning curve. I've been a celiac for almost 7 years and sometimes my dad still offers me pretzels haha and then is like, "oh...whoops" and then picks on me telling me how delicious they are. That stuff doesn't bother me.

I tend to bring my own desserts or food to those events, most of the time people don't even know its gluten free and they chow them up!

I know its hard not to be overprotective of your daughter, the initial years of diagnosis can be quite challenging but it sounds like your family has been more sensitive than most stories I've heard on this board!

Cheryl-C Enthusiast

But, no. I don't expect other people to understand all the issues related to the gluten-free diet or celiac disease. I just expect them to be gracious when I say, "thanks for making that pie, but I"m unable to eat it because....."

KDawg

This is the really important part. It's like some people are determined not to get it. Thanks for offering, but it's made with _________ and you know I can't eat _______ so why are you getting so bent out of shape when I (very politely) say "It really looks great, but unfortunately because of my allergy I can't have any"? It's like you trying their food is more important than you being safe.

luvs2eat Collaborator

I think they sound like they're trying to be accommodating and that's good. In fact, I'd RATHER take my own food/desserts so I won't get glutened w/ the best and most loving intentions. My incredibly sweet, late MIL bought me a loaf of gluten-free bread but it was disgusting tasting and I felt like I had to eat it because it was expensive and she went so far out of her way to find it. I'd rather bring my own bread!

I ask people never to cook to accommodate me because I don't trust that I won't get glutened! It's just easier... and safer... for me to bring stuff!

srall Contributor

I read your post last night and it got me thinking. I have gluten intolerance, and I only have to look out for myself. It must be hell trying to protect a child from gluten. And I agree, a relative knowingly glutening a child is horrifying. This answer might be sort of off topic. But whenever I'm heading somewhere, like most everyone else on this board I eat a huge meal before I go, and then pack some snacks. I have found that when I've been questioned about why I'm not eating at a party and I say "Oh I 'don't' eat wheat or dairy" instead of "I 'can't' eat wheat or dairy" it seems to sort of shut people down more quickly. Maybe I sound a little imperious, but I think it comes across as "it's not really up for discussion" where as "can't" seems to invite "Why?" "What about white bread?" "I don't think this soy sauce has wheat?" "A little won't hurt you." (Of course in a restaurant I say "can't)

Your relatives actually sound very supportive to me. Since going of gluten and dairy I am the one who has done the crash course about what is safe for me. I was so incredibly ignorant about all this 6 months ago. The least I can say for myself is that if someone left their child in my care I would have been as careful as possible to make sure what he/she was eating was safe.

Takala Enthusiast

Just wanted to say hello, and here is a website that you and your relatives might enjoy- the blogger has an extensive archive of gluten free kosher recipes :)

Open Original Shared Link

Gemini Experienced

I think they sound like they're trying to be accommodating and that's good. In fact, I'd RATHER take my own food/desserts so I won't get glutened w/ the best and most loving intentions. My incredibly sweet, late MIL bought me a loaf of gluten-free bread but it was disgusting tasting and I felt like I had to eat it because it was expensive and she went so far out of her way to find it. I'd rather bring my own bread!

I ask people never to cook to accommodate me because I don't trust that I won't get glutened! It's just easier... and safer... for me to bring stuff!

Truer words were never spoken! My family are determined to not get this whole thing and it's probably because many of them have it also and choose to stay in denial. I bring a cooler with me whenever I visit family because they will end up making me sick. It's a pain to have to tote food around but it beats the hell out of getting really sick away from home.

I also do not like anyone to buy anything gluten-free for me because we all know that there is really great gluten-free food and really horrible gluten-free food. No different than regular, gluten loaded stuff. They always end up getting something horrible or something that is not even gluten-free....my mother is famous for that because she refuses to read labels. I have found that if you are emotional about food, then being Celiac and trying to lead a normal life will be incredibly hard. Just take care of yourself and yours who need to be gluten-free and ignore everyone who will never understand anyway. I have come to accept after 5 years gluten-free that the vast majority of people on this planet have no idea what is in their food that they eat everyday. It is what it is. :blink:

anabananakins Explorer

I read your post last night and it got me thinking. I have gluten intolerance, and I only have to look out for myself. It must be hell trying to protect a child from gluten. And I agree, a relative knowingly glutening a child is horrifying. This answer might be sort of off topic. But whenever I'm heading somewhere, like most everyone else on this board I eat a huge meal before I go, and then pack some snacks. I have found that when I've been questioned about why I'm not eating at a party and I say "Oh I 'don't' eat wheat or dairy" instead of "I 'can't' eat wheat or dairy" it seems to sort of shut people down more quickly. Maybe I sound a little imperious, but I think it comes across as "it's not really up for discussion" where as "can't" seems to invite "Why?" "What about white bread?" "I don't think this soy sauce has wheat?" "A little won't hurt you." (Of course in a restaurant I say "can't)

Your relatives actually sound very supportive to me. Since going of gluten and dairy I am the one who has done the crash course about what is safe for me. I was so incredibly ignorant about all this 6 months ago. The least I can say for myself is that if someone left their child in my care I would have been as careful as possible to make sure what he/she was eating was safe.

My situation is very much like yours srall and I try to handle it the same way.

All I really ask is for people not to be offended. Please don't buy me special food or go lots of trouble, just let me do my thing without a guilt trip and I'll be fine. That said, I haven't eaten at relative's places yet. I flat out told my dad I wouldn't be eating at their place again (I don't get alone with my step mother enough to bother educating her, and they live so close by it's easier if we just eat out) and with my mum it'll be a combination of me doing the cooking, or keeping a close watch on things when she cooks (there are a bunch of meals she always makes when I visit that I know are gluten free by ingredient, I just have to be careful about cross contamination.

Going back to the original post, I think they sound like they are really trying. With the dessert/cake option, maybe you could bake a batch of stuff they could freeze? That'd allow for more spontaneous treats so she doesn't feel left out. I wouldn't trust baked goods in a gluten containing house so no point in them making anything like that anyway. It's nice that they are being careful not to contaminate the gluten free by ingredient meals.

Michelle1234 Contributor

I think your relatives sound terrific! Consider the following:

Unknowingly they are doing the right thing. It is extremely hard to figure out what is really gluten free and what isn't. You can't always go by what the package says as often something is processed on a line that also processes wheat and you get a reaction any ways. By them asking you to send the food they will know what is safe and can have it on hand at another time. Asking them to pick something out that a kid will like (you know kids can be picky) is inviting frustration on their part and possible glutening. If you sent the food and she gets sick then they can't be blamed for picking the wrong thing. Keep sending her with her own food.

It's great that they are making the accommodations they can at family events. However this is a dangerous path to follow. Often when I'm invited somewhere those who know about my gluten problem will try to accommodate me. Fresh fruit is cut up on a cutting board (contaminated of course) or something else that could be gluten free is innocently cross contaminated. It why we had to buy all new cooking dishes, blender, mixer, toaster etc. when I went gluten free. Getting it out of the cooking implements is hard. It is far easier to set up a protocol where you bring your own food. It gets very messy when they go to special effort and you know you should turn it down because of the cross contamination risk. However they went through all the effort, you eat it, and then get sick. Just always bring your daughters food. It is safer for her and gets her into a good habit for the future.

Eating out is tricky. You can have on-hand a list of restaurants that are OK and the things your daughter can order safely. Share this with your relatives. Show them by example how to order for her (it takes alot of effort to order gluten free and sometimes you have to abandon the effort if your getting the wrong answers about dedicated fryer, cooking surface etc). Sometimes give your relatives a list of choices on where to eat so they start to become familiar with the restaurants that work. Frankly it is often difficult to eat with people at restaurants because they are talking while tearing up bread (crumbs flying every where etc.) or some such thing so socializing at restaurants is not very easy.

Once a good friend threw me a birthday bash with gluten free cupcakes. I've never heard the end of how horrible they were. Everyone wants to know how can I eat them. What choice do I have? None. You can't expect others to not have a birthday cake just because your daughter can't eat it. It's going to be hard enough for her to continue to get invites socially when she needs special accommodations. It's going to be up to you to make sure she goes with the proper food items so no one feels bad about including/inviting her. When I first went gluten free I still went out the same amount with the same people. But after a few years I didn't get included as much as not everyone wants to go to the restaurants I can go to all the time and not everyone wants to sit through the gluten free ordering process for an unknown (to me) place.

Being gluten free successfully takes alot of time and effort. Over the years your relatives will pick up on what is OK and what isn't but it is a learning curve for everyone.

Best wishes,

Michelle

halfrunner Apprentice

I spent a lot of time this weekend saying "thanks but hubby can't have that" in regards to leftover pizza, chicken, potatoes, etc. When my family says "I forgot" I tell them that I don't expect them to, that's my job. My family doesn't usually think to watch out for DH. If we go out to dinner, I call ahead and talk to the manager about menu options.

DH's family also doesn't make any accommodation. I ask what the menu is and try to make the same items gluten free so DH does not stick out because he's eating different stuff. It would be nice if all the members of both families would quit trying to feed him stuff that isn't gluten free, but you can't change people who don't want to learn or change. DH's sister does try and make sure she uses gluten-free ingredients, which is more than I can say for everybody else.

I agree with the other posters who say at least your family IS trying. It's a start.

Ahorsesoul Enthusiast

No. I do not expect others to cater to my needs. This is for a health reason. People who are not bothered by gluten do not understand what gluten is or that there is also the problem with cross contamination. When I go to some one's house to eat I bring my own food and snacks. When I go out to eat with friends I always carry something with me in case the menu does not have something gluten free.

I was eating at a friends house. She insisted that she made a gluten free dish just for me. So I had her show me what she put in it. Potatoes, cabbage, squash, all fine until we checked the dried chicken broth she used for seasoning. Had wheat listed as an ingredient. She never thought she needed to check spices. It's way to hard for family members or friends to do things gluten free.

I would not impose on others the restrictions a gluten free diet entail. It is my responsiblity not theirs.

Aphreal Contributor

Personally and this is only me, I actually request no special treatment be made. When I eat somewhere like a family event, I take responsibility for my own dietary needs. When I went to Colorado for 4 days, I sent a box of my own food and with that, worked around what mom cooked.

Your family is far more accomindating than most would be. I would have had guilt over that but that's just me. I don't want to be made a fuss over.

If your sweet babygirl has a favorite cereal, I would feel obligated to supply it and send it when she goes somewhere overnight.

You are blessed. Sounds like a wonderful family you have. I would be sure you keep on hand things your daughter can have and always be prepared to take it anywhere.

  • 3 weeks later...
Juliebove Rising Star

I wish! But then other times I don't wish because they truly don't get it. They have bought her a gluten free birthday cake a couple of times. They do buy safe sorbet. But mostly if there is a dinner, I am expected to provide our gravy, our potatoes, our rice, our dessert, or whatever. My mom doesn't like to cook and certainly doesn't like to make more than one thing. I have bought some boxed gluten-free gravy and showed it to her. Told her where I bought it. I am hoping she will get this or at least tell me to bring this for Thanksgiving. I see no reason why everyone can't just eat this.

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    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      how much gluten do I need to eat before blood tests?

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    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
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