Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Never Had A "last Meal"


glutenfreeinminnesota

Recommended Posts

glutenfreeinminnesota Contributor

So, I usually try to stay positive on here...especially with new people since I know how hard this is to deal with. But, I have to vent and maybe this looming cloud over my head will go away. I never ate a last gluten meal. My last thing I ate was at a pot luck at work, frozen Simeks meatballs cooked in a crockpot....really!? I never thought, hm, I will never eat some of my favorite foods again...I should ENDULGE! Instead I STOPPED the day I found out I had Celiacs. It's been almost a year (in November) and I am just now realizing this? What the heck? But, for some reason, whenever I see a delicious pizza or sub sandwich from my favorite places....I just WISH I would have had just ONE more thing...I can't even remember the last time I actually enjoyed my favorite foods and never knew it would be the last time I would ever eat them. I am just mad at myself for the moment...it will pass I know, but I am just so angry at myself for not eating one more thing....but why hold on to the "woulda, coulda, shoulda"...nothing I can do about it now. Thanks for listening whoever reads this!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I never knowingly had a last gluten meal either. At the time it didn't seem that important - only getting rid of it. Now I purposely didn't smoke one last cigarette because I couldn't bear to think that would be the last. I just woke up one morning and said 'You've already smoked your last cigarette." Better that way :o

jerseyangel Proficient

I never knowingly had a last gluten meal either. At the time it didn't seem that important - only getting rid of it. Now I purposely didn't smoke one last cigarette because I couldn't bear to think that would be the last. I just woke up one morning and said 'You've already smoked your last cigarette." Better that way :o

I agree--I think it's better that way. I never had a "last meal" either. I had been so sick for a while before my endoscopy that I wasn't eating much at all and what I did eat made me sick.

The doctor saw something during the endoscopy and his orders when I left were to begin the gluten-free and lactose free diet--which I did and never looked back.

Now, at 5+ years into it, I do sorta wish I had been able to do a last hurrah, so to speak, I guess because time has put a distance between how sick I was then.

I do understand your feelings, though. I made up for it by learning how to make favorites gluten-free. After a while, your taste buds will forget what the real things tasted like and readjust. Mine did, anyway :)

Jestgar Rising Star

My last gluten meal was thrown up violently a few hours after I ate it.

i-geek Rookie

I spent a week recovering from my "last meal" and came down with a nasty cold right after, probably due to my overtaxed immune system. So NOT worth it.

glutenfreeinminnesota Contributor

Haha, I suppose you are all right! I was soooo sick for years and finally had an answer...it seemed stupid to continue eating something that was "poisoning" my body...so that's why I was so quick to just do it! I always enjoyed food while I was eating it, but absolutely couldn't live with the outcome every day. I forget just how miserable I was I suppose...I miss foods that were slowly "killing" me I guess. So thank you for putting it into a better perspective for me :)

cassP Contributor

there was probably wheat in those meatballs ;)

my last gluten meal was going to be Bang Bang Chicken and Shrimp from Cheesecake.... it's not a meal you would equate with gluten- but its one of my MOST favourite meals on the planet- and i was sure gluten was probably in the sauce (an imitation recipe online had soy sauce in it).

anyways- when i was ordering my takeout- i had a sudden CRAVING for their popcorn shrimp- and in a split second, i said what the hell and ordered it... got home and started pounding them... 2 minutes later i got hot and NAUSEOUS, heart rate shot up to 160bpm... it was HORRIBLE!!!

boy do i understand the longings tho... tonight i totally wanted to drive thru McD's... i wanted cheeseburgers!!!! with squishy buns...i could taste it :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bridgetm Enthusiast

I often crave that one last sub sandwich or cookie or pizza or breaded chicken... Then I remember how awful I felt after eating that junk even before I started having trouble with gluten. Everyone apologizes for eating that junk in front of me, but I can just picture what's happening inside their bodies and feel no jealousy at all.

It's true about your taste buds though. I just brought a load of laundry upstairs and someone was baking brownies in the lounge next door to the laundry room. They smelled amazing and I thought "I want one" but then I realized that it didn't sound that good after all. The smell just reminded me that I was hungry.

Skylark Collaborator

We really forget how desperate we were to feel better. I was so run-down I didn't really care much what I ate. At this point I'm like Bridget. I'll smell gluten food and get hungry but I wouldn't eat it.

gf-soph Apprentice

I did do the 'one last meal' but it was mostly a lot of favourite junk like gluteny chocolate, marshmellows, bikkies etc. I will say it helped, but only because it reminded me that it really wasn't that great. I also felt pretty sick after, which helped. I think regardless of whether you had that meal or not, it's still really hard getting through the first months when everything is adjusting. Funnily enough after 2 years gluten-free, the smell of gluten toast makes me feel really queasy. Don't know why, but it does!

Interestingly, I'm 3 months through an elimination diet and believe it or not one of the challenge foods was chocolate. I loved the first few bits, but by the second day having it I realised that it wasn't nearly as nice as I imagined it was when I couldn't have it. I still have been craving it like mad once I've finished the challenge period, so knowing you don't want it that badly doesn't stop you actually wanting it...if that makes sense!

Take heart that the cravings do lessen, and I think your tastebuds really do change. At the very least, for me I think the vividness of my old taste memories have faded over time, so I don't crave things with such intensity.

sahm-i-am Apprentice

I totally get this! And I agree that our taste buds and cravings change. I craved mushroom soup last month - I have never liked mushrooms before, but that day I was buying 3 different kinds of 'em to chop and saute! Now I crave that instead of homemade wheat bread. Weird!

But, I have not found a good substitute for Cinnabons! Oh My! The one thing that keeps me from cheating is the fear that it will taste off now and ruin the 'memories'! Hope that makes sense.

Wendi

GlutenFreeManna Rising Star

Yikes, "last meal" makes it sound like celiac is a death sentence. You can get gluten free pizza and bread for sandwiches. I tried the King Arthur Gluten Free pizza crust recipe this weekend and it tasted almost like a Pizza Hut pizza to me. I couldn't tell it was gluten free. For bread look for Udi's or Katz. I haven't tried makign my own bread yet, but I'm going to soon because homemade gluten free goodies seem to be the best tasting.

lynnelise Apprentice

I understand where you are coming from, I sometimes see things and wish I could have them one last time. Then I think even if I ate it again I'd still be thinking that I wish it wasn't the last time. I'm not even sure I could enjoy it because I'd be so miserable thinking about never having it again!

sandsurfgirl Collaborator

My last gluten meal was at an all you can eat pizza place and I ended up nearly passing out from the dizzy spells, having every heart attack symptom on the list including shooting pain down my left arm, etc and ended me in the ER thinking I might die. When my husband dropped me off (no sitter and they wouldn't let our small kids come in cuz of germs) I told him "If I don't make it out of here alive or I'm unconscious please don't fall apart. Stay strong for the kids if I die." He cried dropping me off and our family lived through a day of terror.

So... it's just not worth it.

There are very few things I can't replicate gluten free or can't find in existence somewhere. Beer is a tough one. Good dark beer like Guinness, but after what I've lived through it's not worth it.

It's weird the things we grieve though. I was having a pity party myself recently because I got glutened when I ate out the last two times.

Go make yourself some gluten free treats and indulge!

bridgetm Enthusiast

Yikes, "last meal" makes it sound like celiac is a death sentence. You can get gluten free pizza and bread for sandwiches. I tried the King Arthur Gluten Free pizza crust recipe this weekend and it tasted almost like a Pizza Hut pizza to me. I couldn't tell it was gluten free. For bread look for Udi's or Katz. I haven't tried makign my own bread yet, but I'm going to soon because homemade gluten free goodies seem to be the best tasting.

I have found plenty of replacements for my favorites and I often think that they taste better than their gluten-free counterparts, but at the same time it's just not the same.

sandsurfgirl Collaborator

I post this all the time but Gluten Free Pantry's basic white bread mix is AMAZING. So "normal" tasting, makes a nice big loaf and holds together nicely for a sandwich. Their french bread and pizza mix is great too. Makes wonderful pizza crust.

TrillumHunter Enthusiast

I have thought of that, too. I remember leaving the drs office SO FREAKING GLAD that something so simple was what made me sick for so long.

I would have had an everything bagel from my local bakery, but oh well.

moyer17 Newbie

So, I usually try to stay positive on here...especially with new people since I know how hard this is to deal with. But, I have to vent and maybe this looming cloud over my head will go away. I never ate a last gluten meal. My last thing I ate was at a pot luck at work, frozen Simeks meatballs cooked in a crockpot....really!? I never thought, hm, I will never eat some of my favorite foods again...I should ENDULGE! Instead I STOPPED the day I found out I had Celiacs. It's been almost a year (in November) and I am just now realizing this? What the heck? But, for some reason, whenever I see a delicious pizza or sub sandwich from my favorite places....I just WISH I would have had just ONE more thing...I can't even remember the last time I actually enjoyed my favorite foods and never knew it would be the last time I would ever eat them. I am just mad at myself for the moment...it will pass I know, but I am just so angry at myself for not eating one more thing....but why hold on to the "woulda, coulda, shoulda"...nothing I can do about it now. Thanks for listening whoever reads this!!

I felt the same way, I found out through just routine tests so I was not prepared at all. The analogy of the smoker is pretty wise which is something I can relate to (quit 3 years ago) Biopsy was positive and follow up bloodwork very positive. I kind of wish I had a big store bought birthday cake that night, or perhaps a dozen donuts. Oh well, I am very fortunate that there are a number of gluten free foods and and great websites like this.

i-geek Rookie

Yikes, "last meal" makes it sound like celiac is a death sentence.

I think that, for me, I don't so much mourn the foods themselves as I do the convenience factor- and yes, celiac is a death sentence for convenient eating. I remember the last Jimmy John's sub I ate and how convenient it was to grab for lunch from the shop a few blocks away. It was tasty, sure, but not worth the blinding, nauseating migraine that set in an hour later. I don't care about the sub sandwich- I can make really good from-scratch gluten-free bread here at home and top it with my own meats and dressing. On the rare occasion that I want a sandwich, that does the trick. It would be so nice, though, not to have to worry about packing my lunch every single day because there's nowhere safe to eat anywhere close to my work building.

sherrylynn Contributor

I think that, for me, I don't so much mourn the foods themselves as I do the convenience factor- and yes, celiac is a death sentence for convenient eating. I remember the last Jimmy John's sub I ate and how convenient it was to grab for lunch from the shop a few blocks away. It was tasty, sure, but not worth the blinding, nauseating migraine that set in an hour later. I don't care about the sub sandwich- I can make really good from-scratch gluten-free bread here at home and top it with my own meats and dressing. On the rare occasion that I want a sandwich, that does the trick. It would be so nice, though, not to have to worry about packing my lunch every single day because there's nowhere safe to eat anywhere close to my work building.

That is exactly what I mourn is the conveniece of grabbing somthing from subway or mcdonalds. It is somtimes tiring to have to cook all the time.

Cypressmyst Explorer

:lol: It has only been 3 months for me but my last meal, unknowingly, was a hurrah. Pizza from a decent place in Milwaukee, organic brownies that were delicious, and Guiness beer. I affectionately call it the "trifecta." :lol:

The next morning I woke up feeling run down and awful and remembered my cousin telling me about gluten and to watch how I felt after I had pizza the next time (My favorite meal). So I went off gluten the next day for a month to see what improved.

Turns out that dang near everything did. :blink:

I'm not going to lie, I miss my Guiness but not at the expense of my thyroid, joints, muscles, brain etc...

But at least the last thing I had was a Guiness...totally worthy of a last gluten "meal."

Green's Dark Ale is pretty good too though. ;) Best of all, it's not killing me. :ph34r: (Can't wait til they bring their stout stateside!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

    2. - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

    3. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,957
    • Most Online (within 30 mins)
      7,748

    Dogdad21
    Newest Member
    Dogdad21
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.