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Never Thought I Would Be Able To Do This


ravenwoodglass

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txplowgirl Enthusiast

CONGRATS Raven! Gives me hope that my problems will be gone in time too. :D


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psawyer Proficient

Well done, and congratulations. It is possible to overcome many obstacles it you try hard enough. :)

Roda Rising Star

Cheers and congrats!!

kareng Grand Master

Congrats, Raven! I feel I should say something deep and meaningful here......but then you would ask who wrote it for me!

Really, this is a great accomplishment! You have overcome a lot of obstacles. :D

kayo Explorer

I have chills! Congratulations doesn't seem like a big enough word for all that you have accomplished. You're amazing, simply amazing. :)

gifree Apprentice

In 2002 I had given up all hope of ever being able to do anything but live in pain and continue slowing dieing. Even after diagnosis I still had little hope of ever being able to accomplish much as my brain and body were so very damaged. Everything was so hard from thinking to walking to even talking to my children. I felt trapped in my own body.

I had to quit college one semester short of my degree in 1996 due to being so very sick from undiagnosed celiac. In 2008 I tried to go back to school and finish my last semester but my brain was still not back enough and my memory was still so poor and movement was still so difficult at times that I went back for a little over a month and gave up. It was just too hard physically and mentally. To say that was demoralizing is an understatement. But I continued with physical therapy for my motion issues and never gave up on the idea that I could heal fully.

Last summer I decided to give it one last shot. I sit here now with tears in my eyes still not quite believing that I took my last exam today. I did it. I finished my duel degrees. Even if I don't ever find a job with them at least my children can say now that their Mom at least finished college. Something no one else in my family (other than my children) ever did. It was hard and I spent many many hours studying to get my brain to be able retain what I was reading but I did it. I even had a 100% average in 2 of my classes going into the exams.

For those of you who are still struggling with neuro damage keep the faith. We can recover even from severe brain damage. I wish it hadn't taken so long but I am so glad I never gave up. You shouldn't either.

Big, big congrats Ravenwood!! I know from personal experience how difficult it is to persevere academically when Celiac affect's one's cognition...so, a big hats off to you!

Hang that diploma prominently and proudly!

Googles Community Regular

Awesome! That is so cool!


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Ox on the Roof Apprentice

Congratulations! You are a kind person and even though I've been here a short time, you've already been an encouragement. I celebrate with you! Someone should bake you a good ol' gluten-free CAKE! :D

plantime Contributor

Way to go!!

sandsurfgirl Collaborator

Congratulations!!!! I am SO proud of you! What an inspiration you are. Thank you for sharing and for all you do to help others on this board. Way to go!!!!!

Woot woot! Woop Woop! Yippee!!! Yay! Awesome! You're number one! Go Ravenwoodglass! (that's my cheerleader impression)

finally diagnosed Apprentice

In 2002 I had given up all hope of ever being able to do anything but live in pain and continue slowing dieing. Even after diagnosis I still had little hope of ever being able to accomplish much as my brain and body were so very damaged. Everything was so hard from thinking to walking to even talking to my children. I felt trapped in my own body.

I had to quit college one semester short of my degree in 1996 due to being so very sick from undiagnosed celiac. In 2008 I tried to go back to school and finish my last semester but my brain was still not back enough and my memory was still so poor and movement was still so difficult at times that I went back for a little over a month and gave up. It was just too hard physically and mentally. To say that was demoralizing is an understatement. But I continued with physical therapy for my motion issues and never gave up on the idea that I could heal fully.

Last summer I decided to give it one last shot. I sit here now with tears in my eyes still not quite believing that I took my last exam today. I did it. I finished my duel degrees. Even if I don't ever find a job with them at least my children can say now that their Mom at least finished college. Something no one else in my family (other than my children) ever did. It was hard and I spent many many hours studying to get my brain to be able retain what I was reading but I did it. I even had a 100% average in 2 of my classes going into the exams.

For those of you who are still struggling with neuro damage keep the faith. We can recover even from severe brain damage. I wish it hadn't taken so long but I am so glad I never gave up. You shouldn't either.

Congrad's.... you earned every bit of that degree, its never to late to finish what we started many years ago....

be proud...

Mama Melissa Enthusiast

Congrats Raven!!!!!That is awesome all that hard work did pay off:)

Marz Enthusiast

Wow, congrats Raven!! Taking up studying after several years of not studying is hard enough, having to deal with celiac disease and disability on top of that must have been almost impossible.

Well done for tackling the impossible, you are an inspiration! :)

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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