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aeraen

What Do You Miss?

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Pizza definitely! For some reason Auntie Anne's pretzels get me everytime I walk by in the mall...sigh. Anyone else dream about eating gluten? Since I was diagnosed I dream about eating things I shouldn't and it seems so real I start getting upset thinking I shouldn't be eating this!! :)

I have dreams where someone forces me to eat gluten to make me sick! I think I might rather have your dreams :unsure:

I don't miss specific foods surprisingly. I thought that I would, but I'm to the point where if I want something, I can make it, and if I don't want to make it then I guess I didn't want it so bad after all.

I do miss convenience and spontanaiety. I had a messed up relationship with food before (eating disorder) and having to think about every bite of food that I eat really isn't good for me mentally. But what else am I going to do?

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Definitely the convenience of being able to go anywhere on the spur of the moment without worrying about CC and so on. The most difficult is traveling to other countries where language is an issue (even with restaurant cards).

As far as food goes, authentic Italian wood-fired pizza. And great fresh pasta. Have been making fresh gluten-free pasta but it just isn't the same! Am also experimenting with pastry. gluten-free Profiteroles just don't compare, either.

Lea and Perrins Worcestershire in Canada is not gluten-free - miss that.

Haven't found bagels, phyllo, croissants, buns or English muffins I love - some are almost ok but barely edible so am making all my own.

I miss standing at the pantry, looking at my expensive fabulous condiments.


<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

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To freely walk into anywhere with my children and freely eat without worry. Bud-light, Paneras sandwiches really bad!! My daughter and I would eat there once or twice a month. Subway, Papa Johns cheese bread. A good bagel. My favorite mexican place and BBQ joint!!!!!!!!!!!!!!!!!!!!

So true!! Every time I eat out on a gluten-free menu I have to think "Is this really worth it? If I get really sick, can I be admitted to Labor and Delivery tonight for fluids?" I am so tired of worrying. Also... I miss...

BURRITOS~!!!! LOL


Diagnosed with Gluten Allergy April 2010. Family history of Celiac disease and bowel cancers. Already feeling a billion times better since going gluten free.

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I really miss the convenience. I used to live on bagel bites, pizza rolls, and chicken nuggets.....Thought I do enjoy Bell and Evans and Applegates chicken tenders, I miss my tyson chicken...

I also miss

Krispy Kreme doughnuts

Cheesticks

Corn dogs and funnel cake from the fair

Churros

a good sandwich

Mcdonalds cheeseburgers

Wendys chicken nuggets

Taco bells soft chx taco

Good homemade waffles

My moms homemade noodles and homemade rolls

Italian and french bread from the bakery

and the list goes on.....

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I REALLY, REALLY, REALLY miss flour tortillas... I don't like corn tortillas in the same way. For a quick lunch I used to eat refried beans, cheddar cheese and salsa in a flour tortilla. I won't eat a corn tortilla burrito... blah.. I also used to eat a flour tortilla with turkey, mustard, sprouts, cucumbers and cheese. Loved making my own wraps. Or I'd melt some cheddar cheese on a tortilla with salsa.... <sigh>

I've heard there are some "rice" tortillas, I need to try to find some because if anything were to set me back, it would be this sacrifice. Other than that, I've found perfectly acceptable replacements for everything else. A local chain makes an AWESOME gluten free pizza and I found Jason's Deli to be great so I have two really good substitutes for those kind of take-out meals.


Nancy

Gluten'd myself (1 meal) on 2/15/2011 thinking I was going to get a second Celiac Panel done

Gluten Free began 02/11/2011

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^ Goldfish! Yes. I also miss mozzarella sticks. I have tried making my own but they never turn out tasting very good. I miss pierogies, and soft, warm Italian bread. I seem to have found an acceptable substitute or recipe for everything else.


Celiac diagnosed October-November 2010 (blood test negative, biopsy inconclusive after gluten-free for 6 weeks, miraculous diet results).

October 2010: Gluten free.

November 2010: No HFCS or artificial sweeteners.

March 2011: Gradually fading out soy.

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What DON'T I miss??

I miss Subway tuna hoagies

I miss stuffed crust Pizza Hut Pizza

I miss Burger King's bacon double cheeseburger...

... and McDonald's double cheeseburger and Big Macs

I miss REAL french bread

I miss ice cream sandwiches and Carvel cakes w/ cookie crumbles as the middle

I miss Girl Scout cookies

I miss Tasty Cakes

I miss Olive Garden

I miss all the fair food I used to enjoy

I miss Rice Krispie treats w/o having to buy really expensive cereal

I miss being able to order anything from any menu w/o dire consequences

I've never tasted:

A Krispie Kreme donut

Anything from Panera

A panini sandwich

Lots of things I can't remember at the moment

I've been gluten-free for nearly 10 years, but every once in a while... I'm really nostalgic for the stuff I can't have anymore.

I think this is an important post. You've shown that even after 10 years, you'll still miss food. That's okay! For me, every year gets easier, but I still miss certain foods. What I've found, though, is that I don't dwell on it anymore. I can pick up a pizza for my kids and have a short pity-party for myself, but quickly shake it off and make myself some dinner. What do I really feel on nights like this? I feel like a neglectful mom who feeds her kids crap while she makes herself something healthy to eat. That goes for most of the food I miss. When I watch my kids eat it, I temporarily feel sorry for myself but then I am horrified that I'm letting them eat it!


Jenn

dx celiac 9/2007: gluten-free 9/2007

corn intolerant: corn-free 5/2010

nut allergy: nut-free 8/2010

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Guinness and other real beer... but I've only been gluten-free since yesterday. It will be interesting to see what really drives me nuts.


"Look at me, look at me, it's fun to have fun, but you have to know how"

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Chewy crusty hot bread. :( sigh...

Other than that, add me to the "convenience" list. I really hate to cook, and have never baked from scratch in my life. I made quiche the other day and made my crust from gluten-free Bisquick. Just Bisquick, shortening, and water. But it was more effort than I'm used to putting in for crust. I used to buy the frozen kind. :rolleyes:

And for whoever it was who said they miss rice crispy treats without having to buy special cereal -- well, I just heard that Kelloggs is making Rice Crispies gluten free! woot! lol..

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I really miss the convenience. I used to live on bagel bites, pizza rolls, and chicken nuggets.....Thought I do enjoy Bell and Evans and Applegates chicken tenders, I miss my tyson chicken...

I also miss

Krispy Kreme doughnuts

Cheesticks

Corn dogs and funnel cake from the fair

Churros

a good sandwich

Mcdonalds cheeseburgers

Wendys chicken nuggets

Taco bells soft chx taco

Good homemade waffles

My moms homemade noodles and homemade rolls

Italian and french bread from the bakery

and the list goes on.....

I saw a pizza roll commercial yesterday and thought..MAN I miss those things with a little extra salt. So unhealthy, but ya know ;) Today for me taco Bell 7 layer burrito and 3 layer chips.......Chick fil A regular sandwich with extra mayo and pickles....A McDs fish filet no cheese extra tarter sauce...sigh...so I'm in a junk food mode

I like this thread it's almost like therapy for I miss... :P


How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving and tolerant of the weak and strong. Because someday in your life you will have been all of these.

George Washington Carver

Blood work positive 4/10

Endo biopsy positive 5/10

Gluten free 5/10

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My Mom's homemade apple pie. It is beyond delicious--truly the BEST pie in the world-- and it was my "birthday cake" my whole life. Every bite was orgasmic. I was born on Thanksgiving. Last Thanksgiving, she did not make it for the family-- so I wouldn't feel bad. I cried anyway.

My husband's fresh baked French bread...crispy on the outside and squishy on the inside. Heaven!!

Our awesome homemade pizza. We had the dough down to a science. Total Perfection.

Creating masterpieces in the kitchen. I haven't felt well enough to do that in 3 years.

I also miss calling people up spontaneously and saying meet me at ....(fill in the blank with a pub or restaurant's name) and eating/drinking whatever I darn well please.

I miss the convenience of just picking up something on the run.

I miss a lot of things. :(

What don't I miss?? Feeling like death every single day. :D


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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We are going home to Maine (from Florida)) this summer and I am already missing FRIED WHOLEBELLY CLAMS wicked bad!

I'll just have to double up eating the lobstah and buttah......LOL

ah man....lobstah and buttah..that's the stuff ....really wicked pissah (yeah, I grew up in Bahston) love the whole bellies... yum!! my mouth is watterin ova heah in Noo Yawk....drool.....


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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I miss the social aspect of food. Can't eat the food at pot lucks, group restaurant trips, game night....and people are so confused. "there is no flour in it" they say. But what canned, seasoned or other miscell. did you add in there? Lol. And definitely the convenience since I loved fast food. But thankfully would trade that for the pain going away :)

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Not only am I intolerant of gluten, but also dairy and corn, and probably other foods that I have not figured out yet. There is not much I can eat these days. Before I knew about the dairy and corn intolerances, I was missing these gluten foods:

-Pizza

-Panera baked potato and cream of chicken and wild rice soups

-Cheescake Factory desserts

-Oreo milk shakes

-granola

-Samosas

-ravioli/dumplings/tortelini/gnocchi

-crab rangoons

-all chinese food (especially deep fried ORANGE CHICKEN)

-Unagi (with Unagi sauce)

-Cracklin' Oat Bran cereal

-Ferraro Rochet chocolates

-most types of meat balls

-many curry dishes

-Wontons

-pies

-french fries

-Java chip frappucinos

-bread and soup

-many types of chili

-Tiramisu

-Nutella sandwiches

-stuffed french toast/belgian waffles

-Malt balls

-Ramen Noodles (don't judge!)

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-crab rangoons

-all chinese food (especially deep fried ORANGE CHICKEN)

-Unagi (with Unagi sauce)

-Ramen Noodles (don't judge!)

Ah DAMNNNNNNN why u gotta bring up crab rangoon :( :( :(

and i LOVE Ramen... i love almost ALL asian food- and all those places are unsafe :( all those hole in the wall places u see on the food network :( makes me so sad

chinese takeout :(

but i have to say- im so sorry but i have NEVER liked Malt balls ever in my whole entire life!! i told my mom EVERY YEAR at EASTER- "i HATE these Malt balls".. and she would still put them in my basket every year.. yuck


1986- Elevated Speckled ANA/no Lupus.negative Sjorgens

2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.

no biopsy (insurance denied)

6/2010- Enterolab Gene Test:

HLA-DQB1 Allele 1 0302

HLA-DQB1 Allele 2 0302

HLADQ 3,3 (subtype 8,8)

7/2010- 100% Gluten Free

8/2010- DH

10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(

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AWWWWWWWW!!! WAAAA!!! CRAB Rangoon !! (IrishHeart cries and wails )) :D


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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I JUST realized that I can't have my roasted barley tea anymore (mugicha). I loved that stuff. It tasted kinda like coffee but without the caffeine...


gluten-free 25 Feb 2011
soy-free 30 March 2011

dairy-free 30 August 2011 (roughly)

25 yrs old
diagnosed Celiac through biopsy and blood test (WAY positive) as of 25 Feb 2011

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the thing i miss most is the SPONTANEITY!!

but if i was told i could eat gluten tomorrow i wouldn't change. i don't feel like i'm missing out on anything really. if i want pizza, i have gluten-free pizza; if i want a cupcake i find a gluten-free cupcake.

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I miss walking out the door for the day/weekend with only my license and debit card!

I miss beer battered fish tacos and pot stickers. =)

And, I very much miss the social aspect of food, too... sharing a bunch of appetizers, passing around plates and sampling it all.

Ahhh... must learn to cook more exciting foods :P


Diagnosed 2/12/09 by biopsy after years of anemia, neuropathy, dizziness, brain fog, pain and more.

Negative blood tests (following gluten light diet)

Still healing with time, harmony, and good food.

Grain-free 1/11/11

Blogging Gluten-Free

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I miss real beer.Gluten free beer is horrible.For me being Italian food used to be a huge part of my life and most of the foods I grew up with I can no longer eat.Sometimes I feel like I lost my identity.Nothing like a nice ricotta pie.


Positive bloodwork

Positive biopsy

Gluten Free 10/2010

At the end of the game the Pawn and the King are placed in the same box.

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I miss real beer.Gluten free beer is horrible.For me being Italian food used to be a huge part of my life and most of the foods I grew up with I can no longer eat.Sometimes I feel like I lost my identity.Nothing like a nice ricotta pie.

I'm no help on the beer. :P BUT I noticed you mentioning Italian food. My best friend is Italian and she comes and makes me her "mum mum's homemade gravy" or for swedes like me her " grandmothers homemade spaghetti sauce" LOL Anyway, I found some AWESOME gnocchi's at whole foods that are gluten-free. They were potato and basil.... and mixed with my best friends "gravy", it ROCKED!


Nancy

Gluten'd myself (1 meal) on 2/15/2011 thinking I was going to get a second Celiac Panel done

Gluten Free began 02/11/2011

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I'm no help on the beer. :P BUT I noticed you mentioning Italian food. My best friend is Italian and she comes and makes me her "mum mum's homemade gravy" or for swedes like me her " grandmothers homemade spaghetti sauce" LOL Anyway, I found some AWESOME gnocchi's at whole foods that are gluten-free. They were potato and basil.... and mixed with my best friends "gravy", it ROCKED!

I make delicious gluten-free potato ricotta gnudi as well as pasta and sauces. My husband and I travel to Italy twice a year and I find it extremely difficult to pass on the gluten-laden dishes there. Traveling to different countries is when I am most tempted - at home I'm not as I make everthing myself. But Italy....sigh....


<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

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