Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Headache Survey


Newtoitall

Recommended Posts

Newtoitall Enthusiast

I'd like for anyone willing to contribute by copy pasting with their answers.

What causes your headaches.

What are they like? How long do they last?

What do you Trust above all else to help get rid of the headaches.

Have you had trouble with any headache medications? (I.e contains gluten, soy, ect.)

When you take something, how long do you find it takes to help? does it totally elivate the headache?

Thanks again to anyone who can contribute, Please have others you know fill it out, the more the better for any future new members looking for quick easy info on something to take.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



srall Contributor

Since going gluten/dairy/corn free my headaches have really abated. It used to be I could have a migraine for days. Now I will get a headache if I need to eat. Unfortunately if I don't eat in time the headache might last the rest of the day. But it's usually gone by morning. They are not like migraines. Just tightness usually or sometimes just in my forehead. Does that make sense?

Mother of a Celiac Rookie

My daughter, with Celiac, who is now gluten, grain and corn, dairy, and chocolate free, gets headaches when she has something that she has an intolerance to. They usually last as long as that food is in her system. Most of the time they are also accompanied by stomachaches too, if not then sometimes they are caused by an on coming sickness. She has been getting a lot of headaches lately that we are trying to figure out...

eatmeat4good Enthusiast

Had daily migraine headaches for years and years. Sometimes unable to get out of bed 2 or 3 days.

Gluten free 6 months...now I only get a migraine with my menstrual cycle.

Susie M. Newbie

I'd like for anyone willing to contribute by copy pasting with their answers.

What causes your headaches.

What are they like? How long do they last?

What do you Trust above all else to help get rid of the headaches.

Have you had trouble with any headache medications? (I.e contains gluten, soy, ect.)

When you take something, how long do you find it takes to help? does it totally elivate the headache?

Thanks again to anyone who can contribute, Please have others you know fill it out, the more the better for any future new members looking for quick easy info on something to take.

I've been suffering from chronic migraines constantly for the last two years, and was really hoping when I found out that I had celiac disease that going gluten free would help. I was diagnosed and went gluten free last June. I've tried going Dairy free for two weeks, but that didn't seem to make much of a difference. If anyone has any suggestions, I'd definitely appreciate it.

As for my medications, my Walgreen's pharmacist has been really good about calling the manufacturer's and making sure everything is gluten free, and she has been able to find alternatives that are. The Imitrex does seem to help the pain, but it never goes completely away.

CarolinaKip Community Regular

I use to have 9 plus migraines a month until I went gluten-free. I'd go through so much migraine meds! Now I only get a dull headache when I get into some gluten. I have not had a migraine in 10 months gluten-free! A lot cheaper on meds now!

etta694 Explorer

Something.. I think dairy and acidic foods but I'm not sure, starts a whole series of sick feeling and an awful headache with sharp pain. I have taken acetaminophen but.. I was not thinking at all and didn't even look to see if it had gluten in it... but it killed the pain for 3 hours. It came back with a vengeance when I ate gluten free spaghetti sauce and rice pasta...and a gluten free peanut butter cookie. All acidic foods.

I hope there are some more posts here because this is a question for me too.

And now, from another thread, I think it may be SA (salicylic acid sensitivity! Ureka!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
ilikepie Apprentice

A lot of foods I am intolerant to cause me headaches. The biggest offenders are sugars and alcohol. I can eat most whole raw fruits, but ANYTHING else sweet gives me major headaches. It usually depends on how much of it I eat. If I take a sip of alcohol or eat less than a teaspoon of cane sugar, I will have a severe throbbing headache for at least 4 or 5 days, day and night. It's best if I lay still and not talk or move. I used to take ibuprofen, which helped minimally, but, it's so hard on the stomach...not something I want to further aggravate. I usually just try to drink lots of water because it feels like it dehydrates me, or like all the water has been sucked out of my brain.

Kate79 Apprentice

I've been suffering from chronic migraines constantly for the last two years, and was really hoping when I found out that I had celiac disease that going gluten free would help. I was diagnosed and went gluten free last June. I've tried going Dairy free for two weeks, but that didn't seem to make much of a difference. If anyone has any suggestions, I'd definitely appreciate it.

As for my medications, my Walgreen's pharmacist has been really good about calling the manufacturer's and making sure everything is gluten free, and she has been able to find alternatives that are. The Imitrex does seem to help the pain, but it never goes completely away.

Just wondering if you've been tested for vitamin deficiency. Low levels of magnesium and vitamin d, among other things, can contribute to migraines.

Kate79 Apprentice

Going gluten free seems to have resolved most of my migraines. I still get them with my monthly cycle and if I accidentally have gluten. They vary in severity - before going gluten free I had low-level headaches that would last for several days as well as very severe migraines with nausea and vomiting that would keep me in bed for 1-2 days. I never found any regular or prescription medications that worked for me, so I just try to sleep it off when I get one.

Evangeline Explorer

Gluten causes me to get headaches. But after avoiding all grains for 2 months, I tried to eat corn again. It felt like my head was about to explode. My brain felt bigger than my skull.

I now believe I am part of those 45% of Celiacs who are intolerant to the gluten in corn as well and have begun a grain-free diet.

I don't take anything when I have a headache. I write down the foods I ate the day and that day and try to start noticing patterns.

T.H. Community Regular

I get very sudden, skull pounding headaches from some of my allergens, like sugar-cane, coffee (just inhaling near the stupid stuff), and soy.

I get a dizzying pounding headache that leads to vertigo when I get gluten. So far, all grains have given me the same headache, except that when I have tried some of these grains in the wild (some grow native, near me), I get no headache, so gluten cc is what I believe is the issue. I am growing some of these grains in my yard, as well, to determine if there are any grains that are actual problems, or if it's all gluten cc.

The biggest issue with this has been with corn in medication, so at the moment, ALL medication has given me a horrible headache, so I can't take any meds that help - they just make it worse. :-(

Sometimes a warm shower helps, sometimes a cold compress on my forehead, but usually, I just do something to distract myself and suffer for a while, unfortunately.

  • 3 weeks later...
jstwnttbhealthy Newbie

what gives me a headache or a migraine (depending on the amount ingested) is msg. it's in so many food under disguise: Open Original Shared Link

lizard00 Enthusiast

What causes your headaches.

Gluten and soy

What are they like? How long do they last?

migraine level, make me nauseaous

What do you Trust above all else to help get rid of the headaches.

nothing works except for time and rest

Have you had trouble with any headache medications? (I.e contains gluten, soy, ect.)

nope

When you take something, how long do you find it takes to help? does it totally elivate the headache?

it usually doesn't help at all (if it's gluten or soy related)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to bold-95's topic in Introduce Yourself / Share Stuff
      2

      I hate to cook!

    2. - Wheatwacked replied to bold-95's topic in Introduce Yourself / Share Stuff
      2

      I hate to cook!

    3. - Wheatwacked replied to Mrs Wolfe's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Cartilage and rib pain.

    4. - knitty kitty replied to Mrs Wolfe's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Cartilage and rib pain.

    5. - bold-95 replied to Diana Swales's topic in Introduce Yourself / Share Stuff
      4

      Recently qualified Nutritionist looking for support


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,390
    • Most Online (within 30 mins)
      7,748

    Natalia Benza
    Newest Member
    Natalia Benza
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      In 70-year-olds, DHEA (Dehydroepiandrosterone) levels are significantly lower than in young adults, typically around 20% of youthful levels, according to the National Institutes of Health (NIH) | (.gov). This decline is a natural part of aging, with DHEA production decreasing from its peak in the third decade of life. While some studies suggest potential benefits of DHEA replacement in older adults, particularly in women, results are not consistently positive across all studies. 
    • Wheatwacked
      Welcome @bold-95.   That's a tough situation.   Understanding DHEA Deficiency in Menopausal Women A major cause of hypothyroid is iodine deficiency.  In the 60's bread had 90 mcg, milk 100 mcg per cup and we used iodized table salt.  A sandwich and glass of milk supplied 300 mcg,  Now in the US bread does not use iodine as dough condition, milk has a bad name and table salt is avoided.  Net reduction from 1970 to 1984 of 50% of iodine intake.   Urinary iodine levels (mg/dL) in the United States, 6-74 years of age NHANES I, 1971-74 Median 32.00 2NHANES III, 1988-91 Median 14.5 NHANES 2000 Median 16.1 There has been a trend for increased prescribing of levothyroxine (LT4) in the United States.  LT4 was the tenth and seventh most commonly prescribed drug based on the number of prescriptions in 2005 and 2006, respectively. From 2008 to 2011 the number of LT4 prescriptions rose from 99 million to 105 million, with LT4 being the second most prescribed medication.1 From 2012 to 2016 the number of annual LT4 prescriptions increased steadily from 112 million to 123 million, with LT4 being the most prescribed medication.2,3 During 2017 and 2018 LT4 was the third most prescribed medication, with 98 million Levothyroxine prescriptions trends may indicate a downtrend in prescribing. DHEA and hypothyroidism are linked, with some evidence suggesting that low DHEA levels may be associated with hypothyroidism.
    • Wheatwacked
      For minor aches and pains, my go to is Original Alka-Seltzer.  Aspirin and bicarbonate.  It is dissoved in water before you swallow it so no tablets to aggravate the stomach wall.  The bicarbonate buffers the stomach acid for upset stomach. Willow bark contains a chemical called salicin, which is similar to aspirin. It has pain and fever reducing effects in the body. The last time I took Advil for serious pain it spiked my BP to 190. Some blood pressure medications have been linked to rib pain or musculoskeletal pain as a side effect.  I had to stop Atnenolol because it had me bent over like a 90 year old with a walker.  Another med prescribe by my doctor left my knees unstable.  Currently, Losartan has weakened my back and thighs.  Can't walk to my mailbox at the street and back without having to rest my legs.  Upper body is however increasing muscle mass.  No one believes me though; think I'm malingering.  Those blood pressure meds also had no effect on my BP, but doctor wants me to continue on (man up, its good for you, with the Losartan + clonidine.  What has been working is Clonidine.  It has lowered my BP. but it is considered third tier BP med.  No side effects and it lowers my BP from 160+ to between 115 and 139.  
    • knitty kitty
      @bold-95, welcome to the forum. Rib pain can be caused by Chondritis, an inflammation of the cartilage in the ribcage or breastbone.  Vitamin D deficiency causes this condition and Osteopenia. Celiac disease damages the lining of the small intestine, making absorption of nutrients like vitamins difficult.  Nutritional deficiencies result.  Diseases can be caused by not having enough of certain vitamins and minerals. Vitamins are chemical compounds that our bodies cannot make, so we must get them from food or supplements.  Vitamins are crucial to our bodies functioning properly.  Eating a nutritionally dense diet is important, but to correct nutritional deficiencies, supplemental vitamins are needed.   Over the counter pain relievers like NSAIDs and PPIs can cause additional inflammation and damage to the small intestine.  OTC pain relievers worked for me but they hurt my digestive system worse.  Yes, Cobalamine Vitamin B12, Pyridoxine B 6, and Thiamine B 1 have an analgesic effect when taken together.   I'm leaving links below so you can see for yourself.   Analgesic and analgesia-potentiating action of B vitamins.     https://pubmed.ncbi.nlm.nih.gov/12799982/#:~:text=Disregarding pain resulting from vitamin,three are given in combination.   Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/   B Vitamins in the nervous system: Current knowledge of the biochemical modes of action and synergies of thiamine, pyridoxine, and cobalamin https://pubmed.ncbi.nlm.nih.gov/31490017/   Role of B vitamins, thiamine, pyridoxine, and cyanocobalamin in back pain and other musculoskeletal conditions: a narrative review https://pubmed.ncbi.nlm.nih.gov/33865694/   The Combination of Neurotropic Vitamins B1, B6, and B12 Enhances Neural Cell Maturation and Connectivity Superior to Single B Vitamins https://pmc.ncbi.nlm.nih.gov/articles/PMC11987730/  
    • bold-95
      Diana, I replied “ready,” but I’m brand new to the site and don’t know if I replied via the correct place.  I would like to participate.
×
×
  • Create New...