Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Headache Survey


Newtoitall

Recommended Posts

Newtoitall Enthusiast

I'd like for anyone willing to contribute by copy pasting with their answers.

What causes your headaches.

What are they like? How long do they last?

What do you Trust above all else to help get rid of the headaches.

Have you had trouble with any headache medications? (I.e contains gluten, soy, ect.)

When you take something, how long do you find it takes to help? does it totally elivate the headache?

Thanks again to anyone who can contribute, Please have others you know fill it out, the more the better for any future new members looking for quick easy info on something to take.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



srall Contributor

Since going gluten/dairy/corn free my headaches have really abated. It used to be I could have a migraine for days. Now I will get a headache if I need to eat. Unfortunately if I don't eat in time the headache might last the rest of the day. But it's usually gone by morning. They are not like migraines. Just tightness usually or sometimes just in my forehead. Does that make sense?

Mother of a Celiac Rookie

My daughter, with Celiac, who is now gluten, grain and corn, dairy, and chocolate free, gets headaches when she has something that she has an intolerance to. They usually last as long as that food is in her system. Most of the time they are also accompanied by stomachaches too, if not then sometimes they are caused by an on coming sickness. She has been getting a lot of headaches lately that we are trying to figure out...

eatmeat4good Enthusiast

Had daily migraine headaches for years and years. Sometimes unable to get out of bed 2 or 3 days.

Gluten free 6 months...now I only get a migraine with my menstrual cycle.

Susie M. Newbie

I'd like for anyone willing to contribute by copy pasting with their answers.

What causes your headaches.

What are they like? How long do they last?

What do you Trust above all else to help get rid of the headaches.

Have you had trouble with any headache medications? (I.e contains gluten, soy, ect.)

When you take something, how long do you find it takes to help? does it totally elivate the headache?

Thanks again to anyone who can contribute, Please have others you know fill it out, the more the better for any future new members looking for quick easy info on something to take.

I've been suffering from chronic migraines constantly for the last two years, and was really hoping when I found out that I had celiac disease that going gluten free would help. I was diagnosed and went gluten free last June. I've tried going Dairy free for two weeks, but that didn't seem to make much of a difference. If anyone has any suggestions, I'd definitely appreciate it.

As for my medications, my Walgreen's pharmacist has been really good about calling the manufacturer's and making sure everything is gluten free, and she has been able to find alternatives that are. The Imitrex does seem to help the pain, but it never goes completely away.

CarolinaKip Community Regular

I use to have 9 plus migraines a month until I went gluten-free. I'd go through so much migraine meds! Now I only get a dull headache when I get into some gluten. I have not had a migraine in 10 months gluten-free! A lot cheaper on meds now!

etta694 Explorer

Something.. I think dairy and acidic foods but I'm not sure, starts a whole series of sick feeling and an awful headache with sharp pain. I have taken acetaminophen but.. I was not thinking at all and didn't even look to see if it had gluten in it... but it killed the pain for 3 hours. It came back with a vengeance when I ate gluten free spaghetti sauce and rice pasta...and a gluten free peanut butter cookie. All acidic foods.

I hope there are some more posts here because this is a question for me too.

And now, from another thread, I think it may be SA (salicylic acid sensitivity! Ureka!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
ilikepie Apprentice

A lot of foods I am intolerant to cause me headaches. The biggest offenders are sugars and alcohol. I can eat most whole raw fruits, but ANYTHING else sweet gives me major headaches. It usually depends on how much of it I eat. If I take a sip of alcohol or eat less than a teaspoon of cane sugar, I will have a severe throbbing headache for at least 4 or 5 days, day and night. It's best if I lay still and not talk or move. I used to take ibuprofen, which helped minimally, but, it's so hard on the stomach...not something I want to further aggravate. I usually just try to drink lots of water because it feels like it dehydrates me, or like all the water has been sucked out of my brain.

Kate79 Apprentice

I've been suffering from chronic migraines constantly for the last two years, and was really hoping when I found out that I had celiac disease that going gluten free would help. I was diagnosed and went gluten free last June. I've tried going Dairy free for two weeks, but that didn't seem to make much of a difference. If anyone has any suggestions, I'd definitely appreciate it.

As for my medications, my Walgreen's pharmacist has been really good about calling the manufacturer's and making sure everything is gluten free, and she has been able to find alternatives that are. The Imitrex does seem to help the pain, but it never goes completely away.

Just wondering if you've been tested for vitamin deficiency. Low levels of magnesium and vitamin d, among other things, can contribute to migraines.

Kate79 Apprentice

Going gluten free seems to have resolved most of my migraines. I still get them with my monthly cycle and if I accidentally have gluten. They vary in severity - before going gluten free I had low-level headaches that would last for several days as well as very severe migraines with nausea and vomiting that would keep me in bed for 1-2 days. I never found any regular or prescription medications that worked for me, so I just try to sleep it off when I get one.

Evangeline Explorer

Gluten causes me to get headaches. But after avoiding all grains for 2 months, I tried to eat corn again. It felt like my head was about to explode. My brain felt bigger than my skull.

I now believe I am part of those 45% of Celiacs who are intolerant to the gluten in corn as well and have begun a grain-free diet.

I don't take anything when I have a headache. I write down the foods I ate the day and that day and try to start noticing patterns.

T.H. Community Regular

I get very sudden, skull pounding headaches from some of my allergens, like sugar-cane, coffee (just inhaling near the stupid stuff), and soy.

I get a dizzying pounding headache that leads to vertigo when I get gluten. So far, all grains have given me the same headache, except that when I have tried some of these grains in the wild (some grow native, near me), I get no headache, so gluten cc is what I believe is the issue. I am growing some of these grains in my yard, as well, to determine if there are any grains that are actual problems, or if it's all gluten cc.

The biggest issue with this has been with corn in medication, so at the moment, ALL medication has given me a horrible headache, so I can't take any meds that help - they just make it worse. :-(

Sometimes a warm shower helps, sometimes a cold compress on my forehead, but usually, I just do something to distract myself and suffer for a while, unfortunately.

  • 3 weeks later...
jstwnttbhealthy Newbie

what gives me a headache or a migraine (depending on the amount ingested) is msg. it's in so many food under disguise: Open Original Shared Link

lizard00 Enthusiast

What causes your headaches.

Gluten and soy

What are they like? How long do they last?

migraine level, make me nauseaous

What do you Trust above all else to help get rid of the headaches.

nothing works except for time and rest

Have you had trouble with any headache medications? (I.e contains gluten, soy, ect.)

nope

When you take something, how long do you find it takes to help? does it totally elivate the headache?

it usually doesn't help at all (if it's gluten or soy related)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      32

      Does anyone here also have Afib

    2. - knitty kitty replied to lehum's topic in Super Sensitive People
      9

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    3. - Scott Adams replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    4. - Theresa2407 replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    5. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,940
    • Most Online (within 30 mins)
      7,748

    Joyce B
    Newest Member
    Joyce B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
    • Scott Adams
      The reaction one gets when they get glutened varies a lot from person to person.  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Theresa2407
      A gluten ingestion can last for many months.  Many years ago there was a celiac conference in Fl.  Everyone there got contaminated with some having difficulty 6 months to recover.  It will hit your Lympatic system and spread  through the body and effect your nevous system as well. Most times when I get glutened it is from a prescription med that wasn't checked close enough.  the Pharmacuticals change vendors all the time.
    • Hmart
      Thank you so much for the responses. Every piece of information helps.  I only knowingly ate gluten once, that was four days ago. I had the reaction about 3-4 hours after consuming it. I’m concerned that after 4 days the symptoms aren’t abating and almost seem worse today than yesterday.  I haven’t had either breath test. I did ask about additional testing but the PA recommended me to a celiac specialist. Unfortunately the first available is mid-December.  As far as diet, I am a pescatarian (have been for 25+ years) and I stopped eating dairy mid-last week as my stomach discomfort continued. Right now, I’m having trouble eating anything. Have mostly been focused on bananas, grapes, nut butters, DF yogurt, eggs, veggie broth.   I ordered some gluten-free meal replacements to help.  But I’ll get all the items (thank goodness for Instacart) and try the diet you recommended to get me past this period of feeling completely awful.  Yes, my doctor diagnosed celiac. I was concerned it wasn’t right based on the negative blood test and my continued symptoms.  Even if you are ‘glutened’ it shouldn’t last forever, right? Is four days too long?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.