Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm So Happy!

Poppi

By Poppi
in Coping with Celiac Disease

Recommended Posts

Poppi Enthusiast
Poppi
Posted

I don't know if this belongs in "Coping With" but there is no "Celebrating" section so I'm putting this here.

2 1/2 months ago I could not walk my youngest son to school. 6 blocks was too far for me. My arthritis was crippling, I had no energy, every part of my body hurt. SIX BLOCKS was beyond me. I was terrified at the thought of living another 60 years in this body becoming more and more crippled.

Today I completed my intro level sea kayak certification. 6 hours in a kayak paddling against wind in ocean swell. Wet exits, eskimo rescues, using my upper body strength the lift and turn kayaks in the water and climb in and out of the boats. It was exhausting but I am so proud of myself. I was the only woman in the course and the other 3 participants were military men in great shape (my husband and 2 coworkers). I kept up with them all day and did everything that they did. Occasionally it took a couple of tries but I did it.

The 2 coworkers and the instructors were horrified at lunch when I was telling them what I can't have because of celiac but it didn't phase me at all. Go ahead and eat your sandwich, drink your beer ... being gluten free has given me a life I always envied in others.

I'm so happy right now. Exhausted and sore but happy.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bigbird16 Apprentice
bigbird16
Posted

How awesome, Sara!!!! Congratulations!!!!!!:D

kareng Grand Master
kareng
Posted

Super Woman!

psawyer Proficient
psawyer
Posted

Awesome!

glutenfreegirl Enthusiast
glutenfreegirl
Posted

I am so proud for you....you give me hope and inspiration.....please share all of your success stories that are to come....I look forward to hearing the next one.....

Harpgirl Explorer
Harpgirl
Posted

Awesome job! Kayaking is not easy! Keep it up! :D

Lisa Mentor
Lisa
Posted

Very Cool! You are an inspiration for all women, challenged with health issues or not! And, I'm sure, an inspiration to those looking for the light at the end of tunnel. :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Greenling Newbie
Greenling
Posted

Wow, that's really cool. Congratulations on the certification! And how amazing to feel soooo much better in such a short time. :)

IrishHeart Veteran
IrishHeart
Posted

WHOOHOO! You go, girl!! Major kudos!! :)

Poppi Enthusiast
Poppi
Posted
  • Author

Thank you so much. Every part of my body hurts right now but it was worth it. We're looking at doing our level 1 skills certification in August and that is two 8 hour days in a row.

Newtoitall Enthusiast
Newtoitall
Posted

wow that's exactly what I want!

congrats!

lol beer+fitness = lolol

teach them how to be healthier =D

lizard00 Enthusiast
lizard00
Posted

This makes me so happy! Congrats! :D

wheeleezdryver Community Regular
wheeleezdryver
Posted

That is totally AWESOME!!!!!! You go, girl!!!! B):D

11475 Apprentice
11475
Posted

Congratulations - that's amazing and you should be so proud. Great for us all (members new AND old to the boards) to read about such successes! Really happy for you :)

YoloGx Rookie
YoloGx
Posted

Amazing! You are indeed an inspiration.

Good luck in August, I am sure you will do well!

love2travel Mentor
love2travel
Posted

Wow - good for you! I'm glad you went ahead with it and did not allow your pain, etc. to control you. You have taken such a big step and now I bet you feel as though you could do anything. It is thrilling that you were able to do this so early into your gluten-free lifestyle after such horrible crippling! Amazing. :D

Poppi Enthusiast
Poppi
Posted
  • Author

Thanks again everyone. I feel so blessed to have recovered so quickly. I read about so many of you who are still dealing with crippling health problems even after years of being gluten free and my heart breaks. My life isn't all sunshine and roses yet, and I'll never get the cartilage back in my feet so there are high impact things I probably will never be able to do but I'm so happy to be on my way.

I am thinking that we will push the level 1 course back to October or even next year. I had the most intense and painful muscle spasms/burning pain in my neck, arms and hands last night. Everything from the base of my skull to the tips of my fingers was on fire. It was awful. The only time I can remember being in that much pain was when I was in the hospital with meningitis last summer and after 14 days on constant high doses of dilaudid a doctor decided I was a drug addict and cut me off the drugs cold turkey and sent me home. Withdrawing from that was the worst 3 days of my life and the pain last night was very similar. I have a lot of work to do on my stamina and fitness before I'll be ready to do two days of hard paddling. I'm happy to have a goal though and I look forward to achieving it.

Thanks so much for your kind words and support, I means a lot coming from people who understand how deep people like us have to dig to do things that feel normal to most.

IrishHeart Veteran
IrishHeart
Posted

I am thinking that we will push the level 1 course back to October or even next year. I had the most intense and painful muscle spasms/burning pain in my neck, arms and hands last night. Everything from the base of my skull to the tips of my fingers was on fire. It was awful.

Thanks so much for your kind words and support, I means a lot coming from people who understand how deep people like us have to dig to do things that feel normal to most.

Your courage and determination is inspirational!! I am just so happy for you!!!

Sara, this "burning fire" you describe??--is exactly what I live with --right up through my skull, too--down my arms, spine, pelvis, hips, legs and feet..and it IS awful, isn't it. arrgh! :blink: HOWEVER!! The good news is... you can use your muscles & joints now that you are healing your gut (as they should be used) and you will recover from your heavy workout!! Baby yourself for a few days. It will subside. Use ICE at first, then heat. The inflammation will die down. If you can tolerate them, OTC (gluten free, of course) NSAIDs will help. ( I can't do those myself)

You DID IT and that is so amazing!!! :)

By sharing your success, you gave me a shot of renewed hope and "push" and I'll continue my grueling daily physical therapy exercises to regain lost muscle mass with your accomplishment in mind!!

Thank you, honey! :)

You're one brave kiddo!! ;)

Lori2 Contributor
Lori2
Posted

I am thinking that we will push the level 1 course back to October or even next year. I had the most intense and painful muscle spasms/burning pain in my neck, arms and hands last night. Everything from the base of my skull to the tips of my fingers was on fire. It was awful.

My son does long-distance bike riding. He has found that additional magnesium has eliminated all his muscle soreness and cramps. There is magnesium available that is manufactured to be almost 100% absorbable so that is doesn't cause diarrhea. I use it for the leg cramps I get at night. This might help you.

IrishHeart Veteran
IrishHeart
Posted

My son does long-distance bike riding. He has found that additional magnesium has eliminated all his muscle soreness and cramps. There is magnesium available that is manufactured to be almost 100% absorbable so that is doesn't cause diarrhea. I use it for the leg cramps I get at night. This might help you.

That's great!! Would you mind sharing the brand name, please!?? The big D is a common complaint for many on here after taking Mag. supps. :unsure:

love2travel Mentor
love2travel
Posted

That's great!! Would you mind sharing the brand name, please!?? The big D is a common complaint for many on here after taking Mag. supps. :unsure:

Sorry to jump in here but my chronic pain management surgeon highly recommends magnesium glycinate. He said nearly all magnesium available is only absorbed about 20-30% EXCEPT for mag glycinate which absorbs 85-90%. He also recommends that those with chronic pain need to gradually take up to 900-1800 mg per day (at night time)!! I am currently at 750 mg and soon will be at 900 mg. I do notice a definite decrease in leg cramping and spasms, especially at night so am getting up less often to walk around at night - am guessing it is due to either the magnesium, other supplements I am on, and/or being gluten-free for four months.

IrishHeart Veteran
IrishHeart
Posted

Sorry to jump in here but my chronic pain management surgeon highly recommends magnesium glycinate. He said nearly all magnesium available is only absorbed about 20-30% EXCEPT for mag glycinate which absorbs 85-90%. He also recommends that those with chronic pain need to gradually take up to 900-1800 mg per day (at night time)!! I am currently at 750 mg and soon will be at 900 mg. I do notice a definite decrease in leg cramping and spasms, especially at night so am getting up less often to walk around at night - am guessing it is due to either the magnesium, other supplements I am on, and/or being gluten-free for four months.

That's great news!! I use the glycinate form myself-- but have been reluctant to "up it" too quickly as I do not wish to see if the D will reappear :lol: ...maybe it's time for me to "boost" it :)

How soon did you notice a reduction in the muscle spams?? a few months? Thanks!!

love2travel Mentor
love2travel
Posted

That's great news!! I use the glycinate form myself-- but have been reluctant to "up it" too quickly as I do not wish to see if the D will reappear :lol: ...maybe it's time for me to "boost" it :)

How soon did you notice a reduction in the muscle spams?? a few months? Thanks!!

Just in the past week or so. I realized I wasn't complaining about my pain as much. At first I thought it was my attitude (hee hee) but then I realized it was physiological as well. I thought it was a teeny tiny difference so was wondering if I was imagining things but then it hit me the other day. My calves are spasming a lot less. My back/hips/shoulders/myofascial pain still sucks but I am sure that will gradually improve over time. Even if it improved 30% - seriously. That would even help! I, too, have been increasing my magnesium super gradually. Irish, I really hope it works for you very soon! :)

YoloGx Rookie
YoloGx
Posted

Another related thing that helps me sleep better at night and have less spasoming is to take a hot bath with a couple of handfuls of epsom salts in it. Given I now have out and out salicylic acid sensitivity, for some reason I can't use as much epsom salts as I used to, but boy is it effective for helping me detox now as well as smoothing out my nerves and muscles.

IrishHeart Veteran
IrishHeart
Posted

Just in the past week or so. I realized I wasn't complaining about my pain as much. At first I thought it was my attitude (hee hee) but then I realized it was physiological as well. I thought it was a teeny tiny difference so was wondering if I was imagining things but then it hit me the other day. My calves are spasming a lot less. My back/hips/shoulders/myofascial pain still sucks but I am sure that will gradually improve over time. Even if it improved 30% - seriously. That would even help! I, too, have been increasing my magnesium super gradually. Irish, I really hope it works for you very soon! :)

I'm with you--any reduction in pain is a good thing! ;) Thanks for posting!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.