Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm So Happy!

Poppi

By Poppi
in Coping with Celiac Disease

Recommended Posts

Poppi Enthusiast
Poppi
Posted

I don't know if this belongs in "Coping With" but there is no "Celebrating" section so I'm putting this here.

2 1/2 months ago I could not walk my youngest son to school. 6 blocks was too far for me. My arthritis was crippling, I had no energy, every part of my body hurt. SIX BLOCKS was beyond me. I was terrified at the thought of living another 60 years in this body becoming more and more crippled.

Today I completed my intro level sea kayak certification. 6 hours in a kayak paddling against wind in ocean swell. Wet exits, eskimo rescues, using my upper body strength the lift and turn kayaks in the water and climb in and out of the boats. It was exhausting but I am so proud of myself. I was the only woman in the course and the other 3 participants were military men in great shape (my husband and 2 coworkers). I kept up with them all day and did everything that they did. Occasionally it took a couple of tries but I did it.

The 2 coworkers and the instructors were horrified at lunch when I was telling them what I can't have because of celiac but it didn't phase me at all. Go ahead and eat your sandwich, drink your beer ... being gluten free has given me a life I always envied in others.

I'm so happy right now. Exhausted and sore but happy.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bigbird16 Apprentice
bigbird16
Posted

How awesome, Sara!!!! Congratulations!!!!!!:D

kareng Grand Master
kareng
Posted

Super Woman!

psawyer Proficient
psawyer
Posted

Awesome!

glutenfreegirl Enthusiast
glutenfreegirl
Posted

I am so proud for you....you give me hope and inspiration.....please share all of your success stories that are to come....I look forward to hearing the next one.....

Harpgirl Explorer
Harpgirl
Posted

Awesome job! Kayaking is not easy! Keep it up! :D

Lisa Mentor
Lisa
Posted

Very Cool! You are an inspiration for all women, challenged with health issues or not! And, I'm sure, an inspiration to those looking for the light at the end of tunnel. :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Greenling Newbie
Greenling
Posted

Wow, that's really cool. Congratulations on the certification! And how amazing to feel soooo much better in such a short time. :)

IrishHeart Veteran
IrishHeart
Posted

WHOOHOO! You go, girl!! Major kudos!! :)

Poppi Enthusiast
Poppi
Posted
  • Author

Thank you so much. Every part of my body hurts right now but it was worth it. We're looking at doing our level 1 skills certification in August and that is two 8 hour days in a row.

Newtoitall Enthusiast
Newtoitall
Posted

wow that's exactly what I want!

congrats!

lol beer+fitness = lolol

teach them how to be healthier =D

lizard00 Enthusiast
lizard00
Posted

This makes me so happy! Congrats! :D

wheeleezdryver Community Regular
wheeleezdryver
Posted

That is totally AWESOME!!!!!! You go, girl!!!! B):D

11475 Apprentice
11475
Posted

Congratulations - that's amazing and you should be so proud. Great for us all (members new AND old to the boards) to read about such successes! Really happy for you :)

YoloGx Rookie
YoloGx
Posted

Amazing! You are indeed an inspiration.

Good luck in August, I am sure you will do well!

love2travel Mentor
love2travel
Posted

Wow - good for you! I'm glad you went ahead with it and did not allow your pain, etc. to control you. You have taken such a big step and now I bet you feel as though you could do anything. It is thrilling that you were able to do this so early into your gluten-free lifestyle after such horrible crippling! Amazing. :D

Poppi Enthusiast
Poppi
Posted
  • Author

Thanks again everyone. I feel so blessed to have recovered so quickly. I read about so many of you who are still dealing with crippling health problems even after years of being gluten free and my heart breaks. My life isn't all sunshine and roses yet, and I'll never get the cartilage back in my feet so there are high impact things I probably will never be able to do but I'm so happy to be on my way.

I am thinking that we will push the level 1 course back to October or even next year. I had the most intense and painful muscle spasms/burning pain in my neck, arms and hands last night. Everything from the base of my skull to the tips of my fingers was on fire. It was awful. The only time I can remember being in that much pain was when I was in the hospital with meningitis last summer and after 14 days on constant high doses of dilaudid a doctor decided I was a drug addict and cut me off the drugs cold turkey and sent me home. Withdrawing from that was the worst 3 days of my life and the pain last night was very similar. I have a lot of work to do on my stamina and fitness before I'll be ready to do two days of hard paddling. I'm happy to have a goal though and I look forward to achieving it.

Thanks so much for your kind words and support, I means a lot coming from people who understand how deep people like us have to dig to do things that feel normal to most.

IrishHeart Veteran
IrishHeart
Posted

I am thinking that we will push the level 1 course back to October or even next year. I had the most intense and painful muscle spasms/burning pain in my neck, arms and hands last night. Everything from the base of my skull to the tips of my fingers was on fire. It was awful.

Thanks so much for your kind words and support, I means a lot coming from people who understand how deep people like us have to dig to do things that feel normal to most.

Your courage and determination is inspirational!! I am just so happy for you!!!

Sara, this "burning fire" you describe??--is exactly what I live with --right up through my skull, too--down my arms, spine, pelvis, hips, legs and feet..and it IS awful, isn't it. arrgh! :blink: HOWEVER!! The good news is... you can use your muscles & joints now that you are healing your gut (as they should be used) and you will recover from your heavy workout!! Baby yourself for a few days. It will subside. Use ICE at first, then heat. The inflammation will die down. If you can tolerate them, OTC (gluten free, of course) NSAIDs will help. ( I can't do those myself)

You DID IT and that is so amazing!!! :)

By sharing your success, you gave me a shot of renewed hope and "push" and I'll continue my grueling daily physical therapy exercises to regain lost muscle mass with your accomplishment in mind!!

Thank you, honey! :)

You're one brave kiddo!! ;)

Lori2 Contributor
Lori2
Posted

I am thinking that we will push the level 1 course back to October or even next year. I had the most intense and painful muscle spasms/burning pain in my neck, arms and hands last night. Everything from the base of my skull to the tips of my fingers was on fire. It was awful.

My son does long-distance bike riding. He has found that additional magnesium has eliminated all his muscle soreness and cramps. There is magnesium available that is manufactured to be almost 100% absorbable so that is doesn't cause diarrhea. I use it for the leg cramps I get at night. This might help you.

IrishHeart Veteran
IrishHeart
Posted

My son does long-distance bike riding. He has found that additional magnesium has eliminated all his muscle soreness and cramps. There is magnesium available that is manufactured to be almost 100% absorbable so that is doesn't cause diarrhea. I use it for the leg cramps I get at night. This might help you.

That's great!! Would you mind sharing the brand name, please!?? The big D is a common complaint for many on here after taking Mag. supps. :unsure:

love2travel Mentor
love2travel
Posted

That's great!! Would you mind sharing the brand name, please!?? The big D is a common complaint for many on here after taking Mag. supps. :unsure:

Sorry to jump in here but my chronic pain management surgeon highly recommends magnesium glycinate. He said nearly all magnesium available is only absorbed about 20-30% EXCEPT for mag glycinate which absorbs 85-90%. He also recommends that those with chronic pain need to gradually take up to 900-1800 mg per day (at night time)!! I am currently at 750 mg and soon will be at 900 mg. I do notice a definite decrease in leg cramping and spasms, especially at night so am getting up less often to walk around at night - am guessing it is due to either the magnesium, other supplements I am on, and/or being gluten-free for four months.

IrishHeart Veteran
IrishHeart
Posted

Sorry to jump in here but my chronic pain management surgeon highly recommends magnesium glycinate. He said nearly all magnesium available is only absorbed about 20-30% EXCEPT for mag glycinate which absorbs 85-90%. He also recommends that those with chronic pain need to gradually take up to 900-1800 mg per day (at night time)!! I am currently at 750 mg and soon will be at 900 mg. I do notice a definite decrease in leg cramping and spasms, especially at night so am getting up less often to walk around at night - am guessing it is due to either the magnesium, other supplements I am on, and/or being gluten-free for four months.

That's great news!! I use the glycinate form myself-- but have been reluctant to "up it" too quickly as I do not wish to see if the D will reappear :lol: ...maybe it's time for me to "boost" it :)

How soon did you notice a reduction in the muscle spams?? a few months? Thanks!!

love2travel Mentor
love2travel
Posted

That's great news!! I use the glycinate form myself-- but have been reluctant to "up it" too quickly as I do not wish to see if the D will reappear :lol: ...maybe it's time for me to "boost" it :)

How soon did you notice a reduction in the muscle spams?? a few months? Thanks!!

Just in the past week or so. I realized I wasn't complaining about my pain as much. At first I thought it was my attitude (hee hee) but then I realized it was physiological as well. I thought it was a teeny tiny difference so was wondering if I was imagining things but then it hit me the other day. My calves are spasming a lot less. My back/hips/shoulders/myofascial pain still sucks but I am sure that will gradually improve over time. Even if it improved 30% - seriously. That would even help! I, too, have been increasing my magnesium super gradually. Irish, I really hope it works for you very soon! :)

YoloGx Rookie
YoloGx
Posted

Another related thing that helps me sleep better at night and have less spasoming is to take a hot bath with a couple of handfuls of epsom salts in it. Given I now have out and out salicylic acid sensitivity, for some reason I can't use as much epsom salts as I used to, but boy is it effective for helping me detox now as well as smoothing out my nerves and muscles.

IrishHeart Veteran
IrishHeart
Posted

Just in the past week or so. I realized I wasn't complaining about my pain as much. At first I thought it was my attitude (hee hee) but then I realized it was physiological as well. I thought it was a teeny tiny difference so was wondering if I was imagining things but then it hit me the other day. My calves are spasming a lot less. My back/hips/shoulders/myofascial pain still sucks but I am sure that will gradually improve over time. Even if it improved 30% - seriously. That would even help! I, too, have been increasing my magnesium super gradually. Irish, I really hope it works for you very soon! :)

I'm with you--any reduction in pain is a good thing! ;) Thanks for posting!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,593
    • Most Online (within 30 mins)
      7,748
    Mherb
    Newest Member
    Mherb
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.1k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • CelluloseSick
      Anyone Here Sensitive To Fillers Such As Cellulose?

      By CelluloseSick · Posted

      Thanks Scott. its been a tough journey. i haven’t been able to take any painkillers for pain, because they all contain some form of cellulose. I’m finally working with a compounding pharmacist to get compounded Ibuprofen w/o cellulose filler … I’ll let you know how that works out. when I tell doctors about my problems with cellulose and medications, sadly they really don’t understand the magnitude of the problem. My reason for responding to the original post was to let others know they’re not crazy - and there’s such a thing as cellulose intolerance. Thank you so much for your response.
    • Scott Adams
      Anyone Here Sensitive To Fillers Such As Cellulose?

      By Scott Adams · Posted

      Hello @CelluloseSick, it sounds like you’ve been through a really challenging journey trying to pinpoint and avoid cellulose fillers in medications. Severe migraines and liquid diarrhea, especially with Ulcerative Colitis, must make this an incredibly difficult issue to manage. It’s frustrating how hidden these ingredients can be, and it definitely takes a lot of detective work to connect the dots. While true cellulose allergies or intolerances don’t seem to be well-documented, some people do report digestive issues, headaches, or other symptoms when exposed to cellulose-based fillers. Unfortunately, there isn’t a clear statistic on what percentage of the population suffers from this, but anecdotal evidence suggests that you are not alone. Have you found any specific resources or medical professionals who acknowledge this issue? It’s great that you’ve been able to find compounded medications with sucrose fillers—hopefully, that continues to work for you!
    • CelluloseSick
      Anyone Here Sensitive To Fillers Such As Cellulose?

      By CelluloseSick · Posted

      Btw, I recently switched from Compounded T3/T4 ( which had cellulose in it, unbeknown to me) and was making me sick to a brand called NP Thyroid. No cellulose filler
    • CelluloseSick
      Anyone Here Sensitive To Fillers Such As Cellulose?

      By CelluloseSick · Posted

      So happy to have found this Post. ive been struggling with cellulose fillers in meds for years. When I found out, I looked for meds that do not contain cellulose filler or have had to get compounded meds made with sucrose filler. My reactions are:  severe migraines and liquid diarrhea ( not fun when you suffer from Ulcerative Colitis). not sure what percentage of the population suffer from such allergy. you'd have to be a pretty good sleuth to find this and make the connections. Bravo for you!   anyone know what percentage of population suffers from cellulose intolerance? thanks?    
    • Scott Adams
      Recently diagnosed with Celic disease

      By Scott Adams · Posted

      If you replace the gluten products you normally ate with gluten-free versions, and I mean the breads, be careful, as many gluten-free products can be high in calories and low in nutrients (high carb).
×
×
  • Create New...