Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gerd And Celiac Disease


Oukvekpwv

Recommended Posts

Oukvekpwv Newbie

Hi, I'm new to the site and trying to figure stuff out. I apologise if the topic was already posted I'm sure it already has but I'm just mostly introducing myself and making conversation.

Over the past year or so I have lost 109lbs, almost to goal weight, have a few more to go. Around 6 months or so ago I was diagnosed by my doctor with GERD, it took a little bit to find a medicine that worked but after I found one it worked for the most part and I was alright. A few months into taking the medicine everyonce in a while I still have had a bad night. Most recently, this past week or so, my stomach has been negativly active in more ways than one. Something made me rethink why these things were happening or maybe think of that maybe a few things were happening at once. Something told me to look up Celiac Disease to see if the symptoms could be something that matched what I was going through. I don't know if it is just late night pain ridden delirium that I was thinking I might have Celiac Disease or not but some of the symptoms seemed to match some of the recent things that have been happening to me. I haven't seen a GI yet partially because I was afraid that GERD was still considered a pre-existing condition under my health insurance and wasn't sure if everything would be covered, and my doctor said it could wait if the medicine was working. But still feeling these things are a bit beyond my tolerance, and I fear that prolonged non-treatment would be dangerous. I plan to call to make an appointment with my doctor today to discuss what is happening and when I could get to see a GI.

I've read that to properly diagnose Celiac Disease it would be best to go about a normal diet, so I didn't make any changes yet. I guess I will see how it goes. It's hard for me to tell because I can't seem to pinpoint what foods are affecting me, some foods I can tell, but other times by body still reacts.

Is or has anyone gone through anything like that? or know much about the relationship between GERD and Celiac Disease?

thanks, Nice to meet everyone,

PS. Is there a way to make my contact info private on my profile, or is it already but I just see my info? I never knew of a forum that required info like that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Only you can see the profile info. Log yourself out & come back and click on your picture in this post. You can see what everyone sees. Click other members pictures, like mine, & you can't see my address.

Oukvekpwv Newbie

Only you can see the profile info. Log yourself out & come back and click on your picture in this post. You can see what everyone sees. Click other members pictures, like mine, & you can't see my address.

oh cool alright, thanks :D

Jenniferxgfx Contributor

I've treated my GERD as a normal thing I get to live with for 15 years now, only recently finding it's gone away with a gluten free diet. I've spent a LOT of money on GERD drugs over the years!! It was so severe I worried about ulcers often, and it'd started making me gag and vomit. I have a bunch of other symptoms, so GERD was the "normal" "easy to treat" problem, so doctors never saw it as a symptom of a bigger issue. It's definitely lot normal, though.

Oukvekpwv Newbie

I've treated my GERD as a normal thing I get to live with for 15 years now, only recently finding it's gone away with a gluten free diet. I've spent a LOT of money on GERD drugs over the years!! It was so severe I worried about ulcers often, and it'd started making me gag and vomit. I have a bunch of other symptoms, so GERD was the "normal" "easy to treat" problem, so doctors never saw it as a symptom of a bigger issue. It's definitely lot normal, though.

Yea, Even the generic medicine can get a bit pricey.. at first I was worried about ulcers until I learned that long term non-treatment/reducing of symptoms can lead to cancer, and so could Celiac Disease I hear, so the cancer is a bigger deal to me. My grandmother and father had GERD I dont know if they had Celiac Disease. My grandmother died of cancer I'm assuming stemming from her GI issues but the cancer was found too late to worry about where it started.

I at times have that nausious gagging feeling. The worst is the horrible abdominal pain, its the worst most vivid pain I've ever experienced, is the pain the same for untreated Celiac Disease? I wonder.. Even if it turns out that I am negative I am still considering a diet change, gluten free possibly even vegan.. I've been eating healthier for a while now, its somewhat discouraging to think that its not healthy enough not to be in pain or intestinal discomfort.

mommida Enthusiast

You are right stay on a "normal" diet for testing.

There seems to be many links between Celiac and other disorders.

Some Celiacs who have started the gluten free diet have noticed that their GERD resolves.

You really didn't go into much detail about your symptoms but since you say Celiac fits them there are other disorders with these symptoms....

Hernia

H. Ployri

parasites

Eosinophilic Gastro. disorders (*gluten can be a "trigger" for these eosinophils*)

this is just a short list, but enough reason to go for further testing.

Good luck with testing and I hope you find answers for a speedy recovery!

beebs Enthusiast

I had extremely severe GERD for years...really bad and was medicated but still eating a packet of tums a day and still getting it all the time. It felt like a heart attack and caused Jaw pain. Anyhow - when I went Gluten free my GERD was gone within a day. No kidding. I have to have an endo to check for damage to the Esophagus, but it is amazing the difference.

You deffo need to get yourself into a GI though. If you have GERD there is a 20% chance of developing Barrett's Esophagus - which are precancerous cells - not something to muck about with..and if you can find whats causing it all the better. Good luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

I had very bad GERD. I went on prescription meds and after a while one would stop working and I'd go on another. It was real bad when I was eating gluten. It's the first symptom that settled down once I went gluten free.

I haven't been gluten free for long..just over two weeks. I'm hoping at some point I can go off medication?

redheadsmom Rookie

I also suffer from GERD and have been every RX PPI out there over the last 7-8 years. I'm currently on Prevacid. I'm 1 week into being gluten free and so far I haven't noticed any difference but I'm also being treated for SIBO right now too so I'm hoping within the next few weeks I will start seeing some improvement with my GERD.

Jessica

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      7

      Help understand results

    2. - Jordan Carlson posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fruits & Veggies

    3. - wellthatsfun posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      heaps of hope!

    4. - Tanisha L commented on Scott Adams's article in Kids and Celiac Disease
      1

      New Study Reveals Age and Racial Gaps in Pediatric Celiac Testing

    5. - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      7

      Help understand results

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,997
    • Most Online (within 30 mins)
      7,748

    Gail Schoeninger
    Newest Member
    Gail Schoeninger
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.