Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Jaqui Karr's Celiac Books


Coolclimates

Recommended Posts

Coolclimates Collaborator

I just found 2 new celiac disease books via Amazon. They are both by Jaqui Karr. One is called

"Celiac Disease: Safe/Unsafe Food List and Essential Information On Living With A Gluten Free Diet"

and the other is called "Gluten Safe & Unsafe Ingredient List: the fundamental pocket guide for Celiacs"

I am tempted to buy them via Amazon as the reviews are excellent and it looks like she really knows what she's talking about. She seems to edge on extreme caution. She says she doesn't believe rice and corn to be safe. And that caramel color and vinegars can be a problem. I thought that this was pretty outdated information. But the reviews seem to think that she is much more accurate in describing products and foods than most books.

Has anyone read these books? If so, what are your thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

I just found 2 new celiac disease books via Amazon. They are both by Jaqui Karr. One is called

"Celiac Disease: Safe/Unsafe Food List and Essential Information On Living With A Gluten Free Diet"

and the other is called "Gluten Safe & Unsafe Ingredient List: the fundamental pocket guide for Celiacs"

I am tempted to buy them via Amazon as the reviews are excellent and it looks like she really knows what she's talking about. She seems to edge on extreme caution. She says she doesn't believe rice and corn to be safe. And that caramel color and vinegars can be a problem. I thought that this was pretty outdated information. But the reviews seem to think that she is much more accurate in describing products and foods than most books.

Has anyone read these books? If so, what are your thoughts?

I haven't read these books but would not buy any book that had such outdated information. Just because she doesn't believe corn and rice aren't safe doesn't mean she is right. Many, many Celiacs eat corn and rice without any issues so I have no idea why she would say that. Sounds like she has based her book on personal opinion and not true science.

Ditto for caramel color and vinegar. The only vinegar that is deemed unsafe for Celiacs is malt vinegar. Otherwise both are gluten free, unless a person has an allergy to them.

Coolclimates Collaborator

Yeah, I can't tell if she's being overly paranoid about those things. The vinegar and caramel color seem like really outdated info. She is a Celiac and a dietician but that still doesn't mean she knows it all. However, all the reviews on Amazon have been excellent regarding her books and they are about $11.95 each. I just don't want to buy them and realize that I wasted my money and just get overly paranoid...

T.H. Community Regular

Yeah, I can't tell if she's being overly paranoid about those things. The vinegar and caramel color seem like really outdated info. However, all the reviews on Amazon have been excellent regarding her books and they are about $11.95 each.

I haven't bought the book, but there's a chance she has a point. Really depends on how she approaches it, I'd expect, yes?

Is she having an issue with wheat derived vinegar and caramel coloring? If so, she's got a point, because processing the gluten OUT of these isn't all that's a concern. These would also both be ingredients that are processed in facilities that also process wheat. That's an issue for some celiacs, although if it's not one for you, then no worries.

Rice and corn tend to fall into that category, too, unless they are specifically processed to be gluten free.

A recent study ( Open Original Shared Link ) was looking at 'naturally' gluten free grains and flours and whether they were actually gluten free, according to the 20ppm standard. White rice flour was one of the flours that tested over 20ppm. So even if rice and corn aren't automatically an issue, they are still ingredients to pay attention to due to processing cross-contamination, I'd imagine.

love2travel Mentor

I haven't read these books but would not buy any book that had such outdated information. Just because she doesn't believe corn and rice aren't safe doesn't mean she is right. Many, many Celiacs eat corn and rice without any issues so I have no idea why she would say that. Sounds like she has based her book on personal opinion and not true science.

Ditto for caramel color and vinegar. The only vinegar that is deemed unsafe for Celiacs is malt vinegar. Otherwise both are gluten free, unless a person has an allergy to them.

I have not read the books, either, but just wanted to add that I DID see seasoned rice vinegar lately in a specialty ethnic store that had "WHEAT" on the label. Just something to be aware of!

Coolclimates Collaborator

Sigh. That's why I'm so conflicted :( I don't get any symptoms if I'm glutened so I can't tell whether I'm continuing to accidentally consume small amounts of gluten. And I really don't know how sensitive I am to minute amounts of gluten because of the lack of a reaction. the only way that I have been able to measure my progress with with blood tests to check my antibodies. My last blood test was in April and it showed that my antibodies were still very elevated and I was still quite sick. I will be getting my blood tested again in Oct and I've been much more picky about my diet. But I just don't know if this is stuff I need to be concerned about or not. It's great not to get sick if I accidentally ingest gluten, but on the other hand, I don't know if I'm continuing to poison myself with minute amounts of gluten.

love2travel Mentor

Sigh. That's why I'm so conflicted :( I don't get any symptoms if I'm glutened so I can't tell whether I'm continuing to accidentally consume small amounts of gluten. And I really don't know how sensitive I am to minute amounts of gluten because of the lack of a reaction. the only way that I have been able to measure my progress with with blood tests to check my antibodies. My last blood test was in April and it showed that my antibodies were still very elevated and I was still quite sick. I will be getting my blood tested again in Oct and I've been much more picky about my diet. But I just don't know if this is stuff I need to be concerned about or not. It's great not to get sick if I accidentally ingest gluten, but on the other hand, I don't know if I'm continuing to poison myself with minute amounts of gluten.

I can relate! I have never had an obvious reaction to gluten so have found it tough. However, my very recent bloodwork shows my antibodies are now NEGATIVE rather than off the charts positive so I have been doing well! That is after five months of being uber strict so just keep on doing the very best you can! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

I have not read the books, either, but just wanted to add that I DID see seasoned rice vinegar lately in a specialty ethnic store that had "WHEAT" on the label. Just something to be aware of!

I think most people who take Celiac disease seriously would know to check the label of anything bought in an ethnic specialty store because it most likely would not originate in the States. Other than that, the only vinegar we have to be concerned about would be malt vinegar. The amount of people who may react to distilled vinegars is pretty low, otherwise most celiac organizations worth their salt would bring this subject to everyone's attention and list distilled vinegars as questionable for some. They don't so any book saying that mainstream vinegar isn't safe is outdated.

Ditto for corn and rice. It's easy enough to find dedicated facilities to buy gluten-free grains from so these should not be a worry, unless you have a problem with them which is not celiac related. It's pretty amazing the vast difference in information you can find in books on this subject and it's no wonder people are confused.

ravenwoodglass Mentor

The amount of people who may react to distilled vinegars is pretty low, otherwise most celiac organizations worth their salt would bring this subject to everyone's attention and list distilled vinegars as questionable for some.

I have to agree and I am one of the rare celiacs that do have problems with distilled gluten grains. If someone is having continued problems or continues to have elevated blood work then maybe drop it for a bit and see if that helps but most will tolerate distilled gluten just fine.

Coolclimates Collaborator

thanks for all your comments so far...has anyone read these books at all?

psawyer Proficient

I have not read those books. It sounds that they may have misinformation on some things.

I recommend Shelley Case's book, which I have read. It is full of practical, realistic advice; recipes; and sources of gluten-free food. For more info, visit her site Open Original Shared Link She lives in Canada, and serves on the advisory board of the Canadian Celiac Association. Her writings cover the United States very well. In my opinion, if you live in North America and only want to buy one book, this is the book to buy.

Coolclimates Collaborator

My dietician whom I see in Chicago, Lori Rowell, said that Jaqui Karr's books are Australian and that Australia has very different standards about gluten-free than the US does. So that probably explains why some of her information doesn't seem to gel with the info that I've gotten. I do have Shelley Case's book. It's a very good book, but quite technical. I own many Celiac books and I like "Living with Celiac Disease" and "Celiac Disease for Dummies" the best. Also like Jax Peters Lowell's "the gluten-free Bible" although there are some real discrepancies when it comes to that book, I think. It's also rather outdated.

T.H. Community Regular

My dietician whom I see in Chicago, Lori Rowell, said that Jaqui Karr's books are Australian and that Australia has very different standards about gluten-free than the US does.

Oh, yes, that would explain it. The different rules would affect a lot - much more restrictive definition for gluten free - and then wheat is used as a derivative for many more products in Australia than it is in the USA, as well. I imagine her book has a LOT of products that are no good that would be different here.

Coolclimates Collaborator

I'm so glad to have found this out before buying these books and then getting all paranoid. Not that I have anything against Australia (I'd love to go there someday!) but it does sound like they have really different rules.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,921
    • Most Online (within 30 mins)
      7,748

    Rusty49
    Newest Member
    Rusty49
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.