Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Miserable ;(

lucky28

By lucky28
in Coping with Celiac Disease

Recommended Posts

lucky28 Explorer
lucky28
Posted

Increasingly over the last month or so my symptoms have returned worse than ever; D, cramps,gas,bloating etc. It actually seems worse than before diagnosis and going gluten-free. I am miserable. I have been gluten-free since august. I am exploring all possibilities for this; cc, other intolerances, possibly other issues. Possibly a ss? I am so tired of feeling like this! I try to have a good outlook and press on- but this is starting to get to me! I have decided that I am going back to my original gluten-free diet of rice, chicken, bananas and almond butter; the foods I had started with when I first went gluten-free and started to feel better and see how that goes. Thanks for letting me vent, I am just so uncomfortable and frustrated!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

Your body may be de-toxing, or you may be sensitive& getting gluten from utensils,dining out or a product around your house....For instance pet food ???? scratched plastics,scratched pots & pans ...

lucky28 Explorer
lucky28
Posted
  • Author

Mamaw, unfortunately it may be all of the above :( (Except the dining out) We are on a very tight budget here and it has taken me since august to get just some basic commercial gluten-free products. I guess I will go back to rice (rice cooker has remained gluten-free) and cooking my food in tin foil (no cc). Then instead of expanding my pantry, work on getting the pets gluten-free and some new tupperware for food @ work. Possibly ask for new pots and pans from santa ;) Do you think I NEED to get rid of my cast iron? I can probably count on one hand the # of times over the last 10 or so years it was used for anything glutenny. Do you think scrubbing and re-seasoning would work?

Di2011 Enthusiast
Di2011
Posted

There does seem to be a lot of us that get sad/angry/depressed around the three month mark. Just seems like it is taking forever with only small if any improvement :(

I had to go back to basics. Meat, veg, fruit. Added ONE ingredient at a time and only one a day or every few days if I was having troubles. Makes it so so so much easier to find what works and what doesn't. Seems my body is quite happy now without all the chemicals/additives. I really hope this works for you too.

Make sure you find something to keep you calm ( i know.. sounds impossible). Read, walk, play with your pet, put on your favourite music. And get on here to vent or get more advice because without this place I would have been in the mental ward!

sahm-i-am Apprentice
sahm-i-am
Posted

Hugs to you Lucky28!

domesticactivist Collaborator
domesticactivist
Posted

Processed gluten-free stuff doesn't sit well with us. Staying away from it is for the best. We reseasoned our cast iron successfully, and got used stainless steel pots.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,600
    • Most Online (within 30 mins)
      7,748
    rita jean
    Newest Member
    rita jean
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.