Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hidden Gluten In Drinks?


Billygoat

Recommended Posts

Billygoat Apprentice

I'm fairly new to this discussion board (although not new to gluten-free dieting) and have learned so much about the gluten-free diet lately. I've worked hard to be gluten-free, but over the years I feel like I've been "glutened" even though I don't think I have.

Someone on this board mentioned getting glutened by drinks? How is that? What ingredient has gluten hidden in it? Was it "natural flavors" or the "modified food starch"? I ask because I just drank an IBC Black Cherry soda and I'm feeling like total butt. My head is throbbing and my stomach feels totally bloated. My hips ache.

Can someone help me? I feel awful. :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

You may want to go to the safe and forbidden lists. This link will tell you what gluten can hide under.

https://www.celiac.com/st_main.html?p_catid=12

Both natural flavors and modified food starch have the possibility of having gluten so you need to check each individual product.

Alot of drinks are safe but some are not.

However, the following brands will clearly list wheat,rye, barley, and oats right on the label or they will be safe. This saves us alot of time so we don't have to call about any natural flavors or anything..we just look for one of those four ingredients. With brands other then the following, you have to call.

Aunt Nelly’s

Balance

Baskin Robbins

Ben&Jerry

Betty Crocker

Blue Bunny

Breyers

Campbells

Cascadian Farms

Celestial Seasonings

Country Crock

Dove

Edy’s

General Mills

Good Humor

Green Giant

Haagen Daz

Hellman’s

Hershey

Hormel

Hungry Jack

Jiffy

Klondike

Knorr

Kozy Snack

Kraft

Libby’s

Lipton

Martha White

McCormick

Nabisco

Nestle

Old El Paso

Ortega

Pillsbury

Popsicle

Post

Progresso

Russell Stover

Seneca Foods

Smucker

Stokely’s

Sunny Delight

T Marzetti

Tyson

Unilever

Wishbone

Yoplait

Zatarain’s

higgins Newbie

Another thing to be careful about is the different substances that exist in the same "named" product from one country to another.

For example, I am trying to determine whether or not "Keens" Dry Mustard has gluten in it. I have been told that Canada and the U.S. differ, and that one country has a safe version; the other country does not. I think the U.S. has the safe version, so I might be out of luck.

Depending on where you live, you will be subject to different labelling laws: laws that may allow trace amounts of gluten to be present in "gluten-free" labelled foods. Good luck. It's quite the task ferreting out every last bit of gluten from one's diet.

knvb78 Apprentice
I'm fairly new to this discussion board (although not new to gluten-free dieting) and have learned so much about the gluten-free diet lately.  I've worked hard to be gluten-free, but over the years I feel like I've been "glutened" even though I don't think I have.

Someone on this board mentioned getting glutened by drinks?  How is that?  What ingredient has gluten hidden in it?  Was it "natural flavors" or the "modified food starch"?  I ask because I just drank an IBC Black Cherry soda and I'm feeling like total butt.  My head is throbbing and my stomach feels totally bloated.  My hips ache.

Can someone help me?  I feel awful.  :blink:

<{POST_SNAPBACK}>

knvb78 Apprentice
I'm fairly new to this discussion board (although not new to gluten-free dieting) and have learned so much about the gluten-free diet lately.  I've worked hard to be gluten-free, but over the years I feel like I've been "glutened" even though I don't think I have.

Someone on this board mentioned getting glutened by drinks?  How is that?  What ingredient has gluten hidden in it?  Was it "natural flavors" or the "modified food starch"?  I ask because I just drank an IBC Black Cherry soda and I'm feeling like total butt.  My head is throbbing and my stomach feels totally bloated.  My hips ache.

Can someone help me?  I feel awful.  :blink:

<{POST_SNAPBACK}>

mojodaddio Newbie

I'm curious about this as well. I've been trying to figure out where I'm getting glutened from the last few days and the only common factor is dr. pepper soda. I was afraid of diet coke for a while because NutraSweet contains dextrose, but I just read the their dextrose is corn-derived... but could the natural flavors in Dr. Pepper contain wheat or grain flavors? If anyone knows I'd sure be interested... B)

KaitiUSA Enthusiast
I'm curious about this as well. I've been trying to figure out where I'm getting glutened from the last few days and the only common factor is dr. pepper soda. I was afraid of diet coke for a while because NutraSweet contains dextrose, but I just read the their dextrose is corn-derived... but could the natural flavors in Dr. Pepper contain wheat or grain flavors? If anyone knows I'd sure be interested...  B)

<{POST_SNAPBACK}>

Dr Pepper is gluten free


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mojodaddio Newbie
Dr Pepper is gluten free

<{POST_SNAPBACK}>

Thanks, Kaiti! I found out later that the cornbread I had made (totally gluten free, I thought) had modified food starch in the cream corn! I'm still getting used to looking at the labels on totally illogical things, like the mopping sauce I used for barbecue has modified food starch! Thanks again for the confirmation, it's nice to know what products are safe... B)

  • 3 weeks later...
floridanative Community Regular
Dr Pepper is gluten free

<{POST_SNAPBACK}>

What about regular Coke?

jams Explorer
What about regular Coke?

<{POST_SNAPBACK}>

gluten-free too.

KaitiUSA Enthusiast

Yep Coke is gluten free....pretty much all Coke and Pepsi softdrinks are gluten free.

mandigirl1 Enthusiast

What about Diet Sodas?

Coffee?

Tea?

Ive heard that some coffee and tea can have gluten. How? Why?

Any answers?????

:)

KaitiUSA Enthusiast

AS I said pretty much all Coke and Pepsi soft drinks are gluten free and that includes diet ones.

Coffees and tea you have to watch because they can have gluten.

Celestial Seasonings will mark gluten free on the bottom or sides of their boxes to tell you if it is or not.

Some coffees are flavored and teas as well that have things we can't have in them.

Most of Starbucks drinks are gluten free.

julie5914 Contributor

I'm not sure where IBC drinks are made, but caramel color from outside the US is sometimes not ok. Also check for malt or barley in those. I've found that after being gluten-free for a while I am a little more sensitive to chemicals, so artificial flavors and sweeteners are not flying so well with me, though I don't think I am being glutened. Sometimes cherries mess me up, so maybe it is the cherry flavor in those drinks for you?

  • 2 weeks later...
cinda Rookie
gluten-free too.

<{POST_SNAPBACK}>

hi all... i was offically diagnosed monday... andi am bummed... and overwhelmed.. my doc told me to see a nutritionst... which i will.. but in the mean time... this is a lot to take in.. i didn print the lists you suggested to billygoat.. and i am even more overwhelmed.. where do i start??? help..lol... i'm trying to suck it up .. but this sux!...

:unsure:

cinda Rookie
hi all... i was offically diagnosed monday... andi am bummed... and overwhelmed.. my doc told me to see a nutritionst... which i will.. but in the mean time... this is a lot to take in.. i didn print the lists you suggested to billygoat.. and i am even more overwhelmed.. where do i start??? help..lol... i'm trying to suck it up .. but this sux!...

:unsure:

<{POST_SNAPBACK}>

cinda Rookie

<{POST_SNAPBACK}>

did print...lol... ohhh see i can't even post right i'm so freaked.. :lol:

  • 2 months later...
bknutson Apprentice

this is way late but in case anyone is interested I dont know if it is gluten or not but diet Dr pepper was killing me. I can drink the regular Dr pepper but I could not figure out what was getting me so bad and I finially stopped the Diet Dr pepper and it is going away. Also the splenda I have stopped also. Now I dont know if that is a bother cause I was using that at the same time and I just have not used it since. So suit yourself but it was hurting me bad.

nogluten- Newbie

I've heard Dr. Pepper has prunes in it, but I'm not sure if that's true. If so, maybe that bothered your stomach, although I wonder if the diet would have prunes also? I love Dr. Pepper and it always bothers my stomach. I haven't tried the diet because diet drinks always taste terrible to me.

leonor Newbie

Hi,

I was cheking in the internet about dairy products (which I canno have...) and I foun a site that said that soy products (like yogurt, milk, cheese...) can be considered dairy... Does anyone knows if this is true?

Thanks.

Rusla Enthusiast
What about Diet Sodas?

Coffee?

Tea?

Ive heard that some coffee and tea can have gluten. How? Why?

Any answers?????

:)

A lot of the teas that come in tea bags have gluten in them, something to do with the bag. If I drink tea it has to be leaf tea.

key Contributor

I don't know about IBC drinks for sure, but I read on them one time Modified FOOd starch and didn't buy then, because of that. WHy there would be wheat in a drink is beyond me. FOod starch in a soda! OUr world tries to sabotage us celiacs! No, really though, it could have gluten in it, so I would definitely call them or something before drinking anymore of it.

Monica

tarnalberry Community Regular
A lot of the teas that come in tea bags have gluten in them, something to do with the bag. If I drink tea it has to be leaf tea.

it's something of a celiac urban legend that tea bags are held together with a wheat based glue. no company ever called has said that - and all the ones I've talked to have noted they are steam pressed. it doesn't even make much sense to use a wheat based glue, because it would dissolve in the water!

JessicaB Explorer

Cinda,

I was diagnosed last week, well actually my endoscopy and biopsy is this thursday, i have to start gluten-free after then, im starting tomorrow because my stomach hurts so much. Im new to this too. Print the forbidden and safe lists on this website. I found this soooooo helpfull. I went to the grocery store this weekend, so sad, and went throught that list and actually found alot of food i could cook. Email me and we can keep in touch, mckaylaslove@aol.com

Rusla Enthusiast
it's something of a celiac urban legend that tea bags are held together with a wheat based glue. no company ever called has said that - and all the ones I've talked to have noted they are steam pressed. it doesn't even make much sense to use a wheat based glue, because it would dissolve in the water!

That is interesting so, I can go back to drinking my herbal teas. Like apple and cinnamon. It is nice that we have our own urban legends.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,397
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.