Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not So Gluten Free


Littllemel

Recommended Posts

Littllemel Apprentice

Is there a list of foods that say they are gluten free but people have had reactions from? I swear the kinnikinnick bread I got is giving me a reaction.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

I absolutely love your Avatar Mel!

Regarding your question, I've found that there are certain grains and other foods that don't agree with me, even though they are gluten-free and acceptable to other people with celiac disease or gluten intolerance. I react to quinoa, so I avoid a number of gluten-free products because they include quinoa seed or other derivatives. It took me quite awhile to tolerate certified gluten-free oats. I had a reaction from a reputable gluten-free manufacturerer's gluten-free granola early on. Some posters have had issues with Rice Chex. I could eat corn tortillias like crazy at first, and then not at all.

I haven't had the desire to try gluten-free Bisquick because it upset me the first time I tried it.

It's tough trying to figure out what bothers you, but it's easier if you stick to whole foods at first while you're healing, and really pay attention to what goes on the next day(s). I don't know if it's quinoa for you, but I think that brand has quinoa in it. I haven't bought it, but it's well respected.

Good luck!

Lisa Mentor

Is there a list of foods that say they are gluten free but people have had reactions from? I swear the kinnikinnick bread I got is giving me a reaction.

Depending on how long you have been gluten free will determine your ongoing heath. It takes time, days weeks, months and even years to feel 100% healthy.

There is no list of foods, but being an expert at label reading and expanding knowledge will carry you safely. :D

Coolclimates Collaborator

I personally don't get sick if I get glutened so it's hard for me to tell. However, i would caution you eating foods whose labels say "no gluten ingredients" such as those at Trader Joes. Although no gluten is put in intentionally, these products could very well have issues with cross-contamination. 'no gluten ingredients" should be a red flag. I personally avoid products that say that.

kareng Grand Master

Lots of foods have " no gluten added" whether they state that or not. Frozen corn has " no gluten added". But they don't label it that way. It just means they haven't tested anything for gluten. Most items don't bother saying " no gluten ingredients".. They just list the ingredients. If we required companies to test everything for gluten, the price would go up.

GFinDC Veteran

I think some Kinickinick products have potato starch in them. Yo might react to that. You really need to look at all the ingredients in a product to see what might be a problem. And then try to match the ingredient list up to other products that cause symptoms. That way when you find a match you can shout "Eureka!" and stop eating those ingredients.

dilettantesteph Collaborator

Different celiacs/gluten intolerants react to different levels of gluten. The large majority show no symptoms at all even on a normal gluten filled diet. The products that give no symptoms for one are different than the products that give no symptoms for another. Some of us feel that we need to avoid all processed foods. Others feel the need to grow most of their own food to avoid contamination from farming practices.

Many seem just fine eating the typical gluten free diet containing the standard gluten-free foods.

There can't be such a list as it is different for different individuals.

It takes awhile to figure out if you are in a more sensitive group or a less sensitive group. Then sensitivity levels change, and other food intolerances can show up. This condition is a challenge for some.

They say that the large majority do fine with the proposed gluten free standards.

I also have had problems with food from the company that you mentioned. I have problems with most processed grain containing foods.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Littllemel Apprentice

I think it might be something I am putting on my skin. Avalon Organics Moisturizer Plus w Vit C is the only product I have where I can't verify if it is gluten free. The company won't commit to an answer. I didn't use it today but I am still itchy all over.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,023
    • Most Online (within 30 mins)
      7,748

    Tubbybooboo
    Newest Member
    Tubbybooboo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.