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Found Something For Inflammation


AVR1962

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Celiac Mindwarp Community Regular

Fair point :o

  • 2 weeks later...

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GottaSki Mentor

Six weeks on tea - eight weeks without all other supplements.

Tea is steeped very dark - twice per day -- I'm currently using two teabags in the morning and reusing them for second cup.

Am still slowly improving - more hours vertical.

Have added almonds back into diet - Happy Dance :wub:

Might lose the only high lectin food that remained in my diet - the incredible edible egg - going without for 7-10 days to see if it helps.

Not certain tea is reason for improvement - but seems to be partially responsible - when I don't drink it I feel worse -- again not scientific but remains promising.

Son stopped for almost a week - reflux did not worsen, but sinuses did - he's back on one cup per day.

  • 2 weeks later...
kareng Grand Master

I think the tea was upsetting my stomach. Just a blech feeling. Tried Patti's sour cherry drink - it's a really god cherry limeade! So yummy but it isn't helping my joints. My hips are getting worse. So I'm trying this from Rosetapper. The oils have no taste in some Sunny D ( left over from Thanksgiving for the nephews) but it is oily. Only been doing it 2 days, so I'll report back.

Rosetapper:

"That said, I can give you a couple of remedies that should work for your muscles and joints. First, you should take chelated manganese, which you may be deficient in and which is extremely necessary for the health of your muscles, tendons, and ligaments. Secondly, if you take 1/2 teaspoon of organic flaxseed oil and 3/4 teaspoon of organic safflower oil and mix them in a smoothie or glass of juice once a day, your muscles will stop aching almost immediately. Your joints should start feeling better, too, in a few days. I'm pretty sure these remedies will help you out--good luck! "

IrishHeart Veteran

I think the tea was upsetting my stomach. Just a blech feeling. Tried Patti's sour cherry drink - it's a really god cherry limeade! So yummy but it isn't helping my joints. My hips are getting worse. So I'm trying this from Rosetapper. The oils have no taste in some Sunny D ( left over from Thanksgiving for the nephews) but it is oily. Only been doing it 2 days, so I'll report back.

Same here with the nettle tea and my gut. Had to stop it.

I tried ginger tea--steeped it. Very good for gut, no help with bones/joints

Love the tart cherry juice and seltzer with lime, but no help with the ouchies.

I tried the omega oils for 2 months--for my muscles and connective tissues.....I did not notice anything.

Not being a downer, just honest. As I always am.

Hope they work for you, K!

Rosetapper has good luck with that protocol for her muscles.

I am off grains again. I started to notice less pain and overall, just better energy, etc.after 3 weeks...then at THanX, I had some grains....and the pain shot right back up.

well, Duh, Irish....

GFinDC Veteran

I stopped the nettle tea also. I kept some for trying later, but don't drink it every day now. Same thing with peppermint tea. I don't think people should drink it every day either. Ginger tea worked for a while, but I had to stop it also. And cinnamon, and chocolate tea. Some things seem to be ok in small occasional quantities, but not in constant consumption. At least for me that's how it works.

bartfull Rising Star

A friend of mine has life-threatening gout. He tried the cherry juice and it helped some, but then he started taking celery seed capsules (from the health food store). His gout which used to flare up on him every few days has not bothered him in MONTHS now. They say it is great for arthritis pain too.

  • 2 weeks later...
Skittles Enthusiast

wow thats amazing! What is nettle tea? Is it like an herbal tea? also, can you just get it at the grocery store? or health food stores?

Wanted to share this....I have been on a gluten-free diet for 1 1/2 years but for the longest time still having issues.....something in my body was being attacked randomly like a wild fire. I went completely grain free, sugar free 6 months ago and FINALLY after over a year the buzzing in my ears went away. If I did have any corn or rice I noticed my hands would get tight and my feet would hurt. So I tried nettle tea which claimed to help with inflammation.....BINGO, it worked!!!! I drank a cup every day the first week, now I drink a cup every other day and I can now have small amounts of corn and rice without my hands and feet hurting, and no more ringing in my ears!!!!


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GottaSki Mentor

I get mine reasonably priced and delivered from Amazon. I have seen it at both the health food store and regular grocery store -- at the grocery it was labeled for prostate.

Skittles Enthusiast

thanks! :)

AVR1962 Collaborator

wow thats amazing! What is nettle tea? Is it like an herbal tea? also, can you just get it at the grocery store? or health food stores?

Skittles, nettle tea is made from the weed/plant, nettle. Have you ever heard of stringing nettle? It is a tall green plant that grows wild at least in Europe, not sure where all it grows. There are some teas that come mixed but I actually like the one that is nothing but nettles.

After my first week of more of daily nettle tea I backed off to 1-2 cups per week only steeping the tea for approx 1 minute (otherwise it is too strong for me) and I have not had any inflammation issues since. My body is no longer on fire and I am no longer chasing the next health issue. I actually feel normal now.

My husband has problems with gout and has been using the tea as long as I have and is reaping the benefits himself. We ran out at one point and he noticed he started having cramping in the arches of his feet which he had not even realized had gone away. He feels the tea keeps the cramps in his feet away. He drinks the tea almost daily but my body is super hyper sensative so I have to be real careful.

Skittles Enthusiast

I read where a couple of people were talking about it healing inflamation. Are you talking about inflamation in the stomach? Just wondering because my stomach gets swollen sometimes if I eat something that doesn't agree with me. And it isn't always just gas.. sometimes it just feels inflammed.

  • 2 weeks later...
GottaSki Mentor

I read where a couple of people were talking about it healing inflamation. Are you talking about inflamation in the stomach? Just wondering because my stomach gets swollen sometimes if I eat something that doesn't agree with me. And it isn't always just gas.. sometimes it just feels inflammed.

Sorry no one answered -- inflammation everywhere in the body for me.

Update regarding Nettle Tea:

My son and I are still drinking once daily - he has one tea bag and I use two bags and let mine steep for a long time. We have found that if we skip a day or two our issues - my joint pain and abdomen bloat return slightly -- his sinuses become more stuffy -- this still has not cleared completely -- but is much improved since he has been drinking the tea.

I have found a reason that nettle tea is working for me -- it is a natural anti-histamine and I have recently found the connection between histamine containing and histamine stimulating foods to some of my unresolved symptoms -- I had already previously removed many histamine containing foods because many of them also contain lectins - removing them all has helped A LOT :)

Have been looking for a good - easy to understand list of histamine intolerance for the past month or so and found a very nice one yesterday -- here's the link if anyone is interested:

Open Original Shared Link

Skittles Enthusiast

Thanks GotttaSki

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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