Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Found Something For Inflammation

AVR1962

By AVR1962
in Coping with Celiac Disease

Recommended Posts

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Fair point :o

  • 2 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 137
  • Created
  • Last Reply
GottaSki Mentor
GottaSki
Posted

Six weeks on tea - eight weeks without all other supplements.

Tea is steeped very dark - twice per day -- I'm currently using two teabags in the morning and reusing them for second cup.

Am still slowly improving - more hours vertical.

Have added almonds back into diet - Happy Dance :wub:

Might lose the only high lectin food that remained in my diet - the incredible edible egg - going without for 7-10 days to see if it helps.

Not certain tea is reason for improvement - but seems to be partially responsible - when I don't drink it I feel worse -- again not scientific but remains promising.

Son stopped for almost a week - reflux did not worsen, but sinuses did - he's back on one cup per day.

  • 2 weeks later...
kareng Grand Master
kareng
Posted

I think the tea was upsetting my stomach. Just a blech feeling. Tried Patti's sour cherry drink - it's a really god cherry limeade! So yummy but it isn't helping my joints. My hips are getting worse. So I'm trying this from Rosetapper. The oils have no taste in some Sunny D ( left over from Thanksgiving for the nephews) but it is oily. Only been doing it 2 days, so I'll report back.

Rosetapper:

"That said, I can give you a couple of remedies that should work for your muscles and joints. First, you should take chelated manganese, which you may be deficient in and which is extremely necessary for the health of your muscles, tendons, and ligaments. Secondly, if you take 1/2 teaspoon of organic flaxseed oil and 3/4 teaspoon of organic safflower oil and mix them in a smoothie or glass of juice once a day, your muscles will stop aching almost immediately. Your joints should start feeling better, too, in a few days. I'm pretty sure these remedies will help you out--good luck! "

IrishHeart Veteran
IrishHeart
Posted

I think the tea was upsetting my stomach. Just a blech feeling. Tried Patti's sour cherry drink - it's a really god cherry limeade! So yummy but it isn't helping my joints. My hips are getting worse. So I'm trying this from Rosetapper. The oils have no taste in some Sunny D ( left over from Thanksgiving for the nephews) but it is oily. Only been doing it 2 days, so I'll report back.

Same here with the nettle tea and my gut. Had to stop it.

I tried ginger tea--steeped it. Very good for gut, no help with bones/joints

Love the tart cherry juice and seltzer with lime, but no help with the ouchies.

I tried the omega oils for 2 months--for my muscles and connective tissues.....I did not notice anything.

Not being a downer, just honest. As I always am.

Hope they work for you, K!

Rosetapper has good luck with that protocol for her muscles.

I am off grains again. I started to notice less pain and overall, just better energy, etc.after 3 weeks...then at THanX, I had some grains....and the pain shot right back up.

well, Duh, Irish....

GFinDC Veteran
GFinDC
Posted

I stopped the nettle tea also. I kept some for trying later, but don't drink it every day now. Same thing with peppermint tea. I don't think people should drink it every day either. Ginger tea worked for a while, but I had to stop it also. And cinnamon, and chocolate tea. Some things seem to be ok in small occasional quantities, but not in constant consumption. At least for me that's how it works.

bartfull Rising Star
bartfull
Posted

A friend of mine has life-threatening gout. He tried the cherry juice and it helped some, but then he started taking celery seed capsules (from the health food store). His gout which used to flare up on him every few days has not bothered him in MONTHS now. They say it is great for arthritis pain too.

  • 2 weeks later...
Skittles Enthusiast
Skittles
Posted

wow thats amazing! What is nettle tea? Is it like an herbal tea? also, can you just get it at the grocery store? or health food stores?

Wanted to share this....I have been on a gluten-free diet for 1 1/2 years but for the longest time still having issues.....something in my body was being attacked randomly like a wild fire. I went completely grain free, sugar free 6 months ago and FINALLY after over a year the buzzing in my ears went away. If I did have any corn or rice I noticed my hands would get tight and my feet would hurt. So I tried nettle tea which claimed to help with inflammation.....BINGO, it worked!!!! I drank a cup every day the first week, now I drink a cup every other day and I can now have small amounts of corn and rice without my hands and feet hurting, and no more ringing in my ears!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

I get mine reasonably priced and delivered from Amazon. I have seen it at both the health food store and regular grocery store -- at the grocery it was labeled for prostate.

Skittles Enthusiast
Skittles
Posted

thanks! :)

AVR1962 Collaborator
AVR1962
Posted
  • Author

wow thats amazing! What is nettle tea? Is it like an herbal tea? also, can you just get it at the grocery store? or health food stores?

Skittles, nettle tea is made from the weed/plant, nettle. Have you ever heard of stringing nettle? It is a tall green plant that grows wild at least in Europe, not sure where all it grows. There are some teas that come mixed but I actually like the one that is nothing but nettles.

After my first week of more of daily nettle tea I backed off to 1-2 cups per week only steeping the tea for approx 1 minute (otherwise it is too strong for me) and I have not had any inflammation issues since. My body is no longer on fire and I am no longer chasing the next health issue. I actually feel normal now.

My husband has problems with gout and has been using the tea as long as I have and is reaping the benefits himself. We ran out at one point and he noticed he started having cramping in the arches of his feet which he had not even realized had gone away. He feels the tea keeps the cramps in his feet away. He drinks the tea almost daily but my body is super hyper sensative so I have to be real careful.

Skittles Enthusiast
Skittles
Posted

I read where a couple of people were talking about it healing inflamation. Are you talking about inflamation in the stomach? Just wondering because my stomach gets swollen sometimes if I eat something that doesn't agree with me. And it isn't always just gas.. sometimes it just feels inflammed.

  • 2 weeks later...
GottaSki Mentor
GottaSki
Posted

I read where a couple of people were talking about it healing inflamation. Are you talking about inflamation in the stomach? Just wondering because my stomach gets swollen sometimes if I eat something that doesn't agree with me. And it isn't always just gas.. sometimes it just feels inflammed.

Sorry no one answered -- inflammation everywhere in the body for me.

Update regarding Nettle Tea:

My son and I are still drinking once daily - he has one tea bag and I use two bags and let mine steep for a long time. We have found that if we skip a day or two our issues - my joint pain and abdomen bloat return slightly -- his sinuses become more stuffy -- this still has not cleared completely -- but is much improved since he has been drinking the tea.

I have found a reason that nettle tea is working for me -- it is a natural anti-histamine and I have recently found the connection between histamine containing and histamine stimulating foods to some of my unresolved symptoms -- I had already previously removed many histamine containing foods because many of them also contain lectins - removing them all has helped A LOT :)

Have been looking for a good - easy to understand list of histamine intolerance for the past month or so and found a very nice one yesterday -- here's the link if anyone is interested:

Open Original Shared Link

Skittles Enthusiast
Skittles
Posted

Thanks GotttaSki

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,606
    • Most Online (within 30 mins)
      7,748
    TGreen
    Newest Member
    TGreen
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Potential celiac need advice

      By Scott Adams · Posted

      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.