Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Much Can We Trust Food Manufacturers?


Seeking2012

Recommended Posts

Seeking2012 Contributor

Ok so lets say we read the ingredients list and we found no wheat, barley, or rye ingredients. Great. But we know that's not the end of the story.

 

So lets say we look for allergen information, and there is none. And again we know that our detective work isn't over.

 

So lets say we then call the food company at the number listed on their packaging and the customer service rep tells us over the phone that the food/ingredients are processed on gluten-free equipment and there is no cross-contamination.

 

Is our work now done; can we trust them? Does it end here? I say this is a Celiac who never has GI symptoms, so my gut isn't going to tattle on them.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



w8in4dave Community Regular

I have never called a company. If I have problems with a product I just never buy it again. I actually only had problems with some rice once and then gave it away and now only buy gluten-free rice. I look on this site for good products. Tried and true stuff. I figure someone eles has already done the foot work why should I do it again? I trust everyone in here. 

LauraTX Rising Star

I feel your predicament, as I also have no telling GI symptoms.

 

In the end, there is a level of trust that you have to place in companies.  For me, I will spend the extra dollar on something that is made by a company who takes the time to give clear allergen information.  Certified gluten-free stuff is the way to go if you can, but once you get into more everyday products like pasta sauce, salad dressing, etc, it is important to me that I buy brands that are very gluten-free friendly with their labeling.  

 

If I have to go out of my way and contact a company to get allergen information, I will buy a clearly labeled/allergen info at the ready product instead of it, unless it is something exceptionally good.  I also shop at a grocery store who has the best gluten-free labeling on their private label products out of the 6 other grocery stores around me. Why work hard to seek out info when there is a clearly labeled choice... I choose to spend my money rewarding the companies who are clear about disclosing things in the first place.

 

I am also very anal retentive about making sure things are gluten-free because my body will not tell me if I get glutened.

cyclinglady Grand Master

I hear ya! But I have the best "gluten meter" -- my husband! One glutening and he is cranky and snores heavily that very day ( never snores otherwise!). Makes it easier to track down a gluten source which is almost ALWAYS from a restaurant. I can pretty much trust manufacturers.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    2. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    3. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,803
    • Most Online (within 30 mins)
      7,748

    MaryAlice
    Newest Member
    MaryAlice
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.