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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    Sounds like you may be alleric to something in both products. Next time you are at the store compare the ingredients of each to see if they have one in common that you don't think you eat in other products.. It might be a good idea to schedule an appointment with your doctor for a referral to an alergist to be on the safe side.
  2. ravenwoodglass
    I don't know if this will help while you are waiting on the endoscopy but figured it might so here goes... If your life permits you could try going to bed so you can get up a couple hours earlier. Then eat something shortly after you are up like Cream of Buckwheat or Cream of Rice, an egg or something else gluten-free. You don't have to have gluten at...
  3. ravenwoodglass
    If you haven't had her tested yet please do not go gluten free. Get the celiac testing first as if she does feel better gluten free when she has to go back on gluten for testing she may have much worse symptoms. There will also be a higher risk of false negatives.
  4. ravenwoodglass
    If your done with all celiac related testing now you should give the diet a good strict try for at least a couple months.
  5. ravenwoodglass
    There is still much to be learned about genetics when it comes to celiac. If you can do bring a peer-reviewed article or two with you when you go back to the doctor for follow-up. Not all doctors are up on the newest research and it may help with your son and others in the diagnosis process. I hope your son heals quickly.
  6. ravenwoodglass
    You have a lot of small intestine and damaged places can be missed when biopsies are taken. Also some doctors don't consider biopsies to be positive until the villi is completely destroyed. You have a brother with celiac and you had positive antibody tests. IMHO you should consider yourself celiac and get strictly gluten free. Repeat antibody tests in 6...
  7. ravenwoodglass
    Welcome to the board. You can take probiotics whenever you want to whether you are gluten free or not. Have you had testing for celiac done by an MD? If so what were your results? If not it would be a good idea to stay on gluten and get that testing done. As Karen said the gluten item leaves your body in a short time but if you are celiac the antibody reaction...
  8. ravenwoodglass
    Ulcers were the only GI symptoms one of my children had. Also a weak positive on the test doesn't always mean you don't have celiac. It is IMHO more likely you do. I hope your doctor took more than one biopsy and took them from different spots as damage can be patchy. I also had ulcers at diagnosis and was given PPIs but I chose to wait and see if...
  9. ravenwoodglass
    Welcome to the board. Your celiac testing was pretty much useless since you had been gluten free for 4 months. If you want testing for celliac you need to go back on gluten for a couple months first.
  10. ravenwoodglass
    Welcome to the board. It can be important for young ones to have a firm doctor derived diagnosis so they can get the accomodations they will need in school. Since his symptoms are not to severe it would IMHO be best to keep him on gluten until the endo is done. You could cut down his intake if that makes you feel better. You could also talk to his ped...
  11. ravenwoodglass
    DH is usually bi-lateral and it also itches horribly and leaves purplish scars that take a very long time to fade. While your rashes don't sound like DH that doesn't mean they may not be gluten related. I hope you get some answers soon and that you heal quickly.
  12. ravenwoodglass
    Welcome to the board. If you had positive blood tests for celiac you have celiac. I don't think they have developed tests for 'gluten sensitivity'. You may find it helpful to read the Newbie thread at the top of the coping page. Lots of good info there.
  13. ravenwoodglass
    My vote goes for cloth also. Better for the environment and much less expensive plus so useful for other things when the little one no longer needs them.
  14. ravenwoodglass
    So sorry you have gone through so much. Many of us can identify with your post so well. I would suggest you make one more trip to that local doctor to say goodbye after you have been gluten free for a few months and your lesions have healed. Do be sure to lower or eliminate iodine for a bit as that can keep the antibodies active. Some have to avoid...
  15. ravenwoodglass
    Thanks for posting I was just looking at this a short time ago. Something I found interesting was the last line of the article- " The psychosis that the woman experienced was an extreme condition and very unique, Fasano said. " While not common I am not sure that it is that unique. There is a fair amount of research that has been done on the effects...
  16. ravenwoodglass
    So sorry this happened to your son. Kids at that age can be cruel and it is hard to be different. While not ideal you could try sending him in with prepackaged food that can be held in his hand as he eats. A granola bar, string cheese, fruit cups, chips, drink boxes etc that sort of thing. If all items are packaged then he would know if the item had been...
  17. ravenwoodglass
    Have you considered switching him to an hypoallergenic formula since he is reacting to foods you are eating? Then you could start introducing low risk foods to him one at a time when he is ready for solids. For example when he is ready for cereal try cream of buckwheat rather than the more common baby cerealss and whole foods like mashed fruit rather than...
  18. ravenwoodglass
    Thank you for letting us know this sad news. She was always ready to lend a kind ear and comfort to those here that needed it. She has been and will continue to be missed.
  19. ravenwoodglass
    It doesn't take years for everyone to have DH clear up without meds. I stopped getting new lesions within a couple weeks gluten free although it did take a bit longer for the lesions I had to clear completely. For a couple years if I got glutened new lesions would show up within hours but they healed faster than prediagnosis. After a couple years DH would...
  20. ravenwoodglass
    I've only tried a couple buns and wasn't real happy with them. Not awful but both kinds fell apart. Then I found the 'Against the Grain' baguettes. Those work very well for me. They have a nice crust that holds together and reminds me of a good Italian bread. Make a real good cheeseburger sub.
  21. ravenwoodglass
    You have only been gluten free for a couple of weeks and it can take some time for DH to heal. Make sure to check your topicals for gluten ingredients. Gluten can't be absorbed through intact skin but your skin is not intact and gluten ingredients in shampoos lotions etc. could be a problem. Also be sure to read the Newbie 101 thread at the top of the coping...
  22. ravenwoodglass
    You had symptoms and blood tests showed high antibodies. You went gluten free and saw a resolution of symptoms and your antibodies went down. You then did a gluten challenge which you say was hard. I take that to mean your body reacted. You have your answer. What you need to do is to remain gluten free. As some folks have already stated it is possible to...
  23. ravenwoodglass
    Welcome to the board Justin. It does seem like you are in the right place. If I read it right it sounds like you were gluten free except for a couple slip ups when you had your blood tests. If that is the case then the tests would not be valid. You have to be eating gluten for any celiac related testing to be accurate. If you are going to have the biopsies...
  24. ravenwoodglass
    ((((((((((((((((((((((((((((((((((((((((((HUGS)))))))))))))))))))))))))))))))))))))))))) You will be missed. You have been a great help to many. Sorry you got such news.
  25. ravenwoodglass
    Good point and at two sometimes even the hair might need a quick wipe down with a damp cloth!
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