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Latest Celiac Disease News & Research:
Everything posted by GFinDC
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Hi, You could try some milk of magnesia to get things moving real good and get all the nastyiness out quick. And also take some DPP-IV for whatever help it can give. Definitely avoid any sugar for a while and take a pro-biotic for a few days. I am experimenting with not drinking much water right around meals. I figure if I have low stomach acid...
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ARCHIVED Jiff Peanut Butter
GFinDC replied to mjlnesbitt's topic in Gluten-Free Recipes & Cooking Tips
Jif is gluten-free, but unless you get the natural version it will have soy oil in it. Most peanut betters have soy. Which is kind of dumb, as peanut butter is plenty oily anyway. Soy may be a problem for you if you are reacting to Jif. -
ARCHIVED Advice Re: Negative Tests And Symptoms
GFinDC replied to kel72's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Kelly, Wheat is one of the grains that celiacs have to avoid. Rye and barley are just as bad, and for some people oats are a problem too. I'm surprised your sister thinks she can eat wheat sometimes, because if she has celiac she would be doing damage to herself by doing that. It is very possible for the tests to be wrong. They are not 100... -
ARCHIVED What Are Your Favorite Rice Cakes?
GFinDC replied to dhiltonlittle's topic in Coping with Celiac Disease
I like the Lundberg rice cakes also. Corn Thins are another alternative, similar to rice cakes but much thinner. The Corn Thins are made in a dedicated facility. -
ARCHIVED Gluten Free Grains - Sorting The Myths From The Truth
GFinDC replied to inmygenes's topic in Gluten-Free Foods, Products, Shopping & Medications
The CSA had an article about celiacs who react to oats a while back. I seem to remember them saying there are something like 10 to 15% of celiacs who do react to oats. I used to eat oats all the time, but I can 't do them anymore. Quinoa is supposed to be rinsed well before cooking as it has a natural coating on the seeds that can irritate some people... -
ARCHIVED Would Appreciate Some Advice
GFinDC replied to Alyahsdad's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ah, very cool. Congrats on taking charge of your diet and feeling better! Yep, dairy can be a real problem. The lactase enzyme that digests milk sugar (lactose) is produced by the villi lining the small intestine. So if the villi are damaged by the antibodies (celaic reaction) then no lactase enzyme. So you end up with lactose intolerance. Lactose... -
ARCHIVED "gluten Free" Items That "got You"
GFinDC replied to NorthernElf's topic in Gluten-Free Foods, Products, Shopping & Medications
I can't do the Glutino pretzels because of the soy in them. Just wondering if you have tried eliminating soy yet? It is one of the top 8 most common allergens so it could be a problem for you. It sure does a number on me! -
ARCHIVED Newly Diagnosed Meeting In Virgina June 14th 2:00pm
GFinDC replied to mvineyard's topic in Introduce Yourself / Share Stuff
Hi, I sent your question on to Daniel. There is an event at the Whole Foods in Fairfax coming up. Daniel may swing by with more info. Open Original Shared Link Saturday, May 1st GLUTEN-FREE FAIR DAY! 1-4pm Fair, 4-5:30 Cooking Class Join us on Saturday May 1st for our Gluten-Free Fair Day! Fair is from 1-4pm... -
ARCHIVED Please Provide Some Insight.....
GFinDC replied to momofmoe's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Have they tested her for a wheat allergy? Celiacs can have wheat or other food allergies in addition to the celiac gluten intolerance. If she has celiac she needs to avoid all wheat, rye, barley, and oats. Oats may not be a problem for her but 10 to 15% of celiacs have a reaction to oats. Here is a list of the top 8 food allergens for the USA from... -
You can use corn oil or olive oil. I've seen coconut oil recommended also. Hellman's canola oil cholesterol free mayo is soy free. I cut out all soy, including soy lecithin.
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ARCHIVED Can You Get A False Negative If Already gluten-free?
GFinDC replied to ruhbehka's topic in Dermatitis Herpetiformis
That's my understanding, that DH can be biopsied near the lesion not in. DH only happen with celiac, so if they test it and he has DH then yes he has celiac. -
ARCHIVED Positive Results - No Symptoms
GFinDC replied to betts13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Regarding lack of symptoms, maybe reading this thread will help. The OP (original poster) said he had a little gassiness and anemia before diagnosis. New And Questioning Things Probably not that original a concept There is silent celiac, where people have damage but no apparent GI symptoms. There have been other people who posted about being... -
ARCHIVED Migraine, Carpal Tunnel, Depression, Psychosis Linked To Celiac Disease
GFinDC replied to irish daveyboy's topic in Publications & Publicity
You are bring'in me down David. I just drank a gluten free beer. Oh wait, that's a good source of folate. Guess I had better drink another gluten-free beer. Not so bad after all! And those nuts I just ate with my beer are a good source of Vitamin E. Ok, feeling better. It seems biopterin is produced in the pineal gland. Not sure I can do anything... -
ARCHIVED New And Questioning Things
GFinDC replied to MartialArtist's topic in Coping with Celiac Disease
Hi, That actually is a real good question. It seems like if you eat gluten the antibodies would show up in the bloodstream pretty quick if there was a problem right? But the thing is, the antibodies don't just randomly wander around any old where in the body. Ok, I am getting out my Wiki degree. The way I understand it is, the antibodies are not randomly... -
ARCHIVED Regret Being Gluten Free?
GFinDC replied to BethM55's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi Beth, I totally agree that you should not keep a little bit of gluten in your diet. Bad, bad idea. I was also surprised when I went gluten free and I seemed to become much more sensitive to it. I think it is because you are starting to heal, and your gut is going to feel the attacks more intensely now. Or something like that, I don't have a perfect... -
ARCHIVED Frustrated Beyond Words....
GFinDC replied to Bobbijo6681's topic in Coping with Celiac Disease
Have they checked your gall bladder? That seems like something the GI would have tested already. I have read that gall stones can cause pain that area. Open Original Shared Link -
ARCHIVED I... But... Look, Can Someone Tell Me If This Is A Lot?
GFinDC replied to MagpieWrites's topic in Coping with Celiac Disease
Yowza, free cranberry and vodka courtesy of MIL! :) 55 bucks seems pretty cheap to me, especially for 2 peeps. At least she went to P.F Chang's with you. So maybe she isn't totally unwilling to learn. -
I don't have DH myself. But I do take DPP-IV (DPP-4) if I think I may get some gluten somehow. DPP-IV helps break down the gliaden protein. There is another enzyme called AN-PEP that I haven't tried. AN-PEP is supposed to work better in combination with DPP-IV. Anyway, I don't know if these enzymes would help with DH symptoms or prevent outbreaks.
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ARCHIVED Would Appreciate Some Advice
GFinDC replied to Alyahsdad's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You can do the blood tests and endoscpoy, but do keep eating gluten until all testing is completed. The tests are not super reliable anyway, and if you stop eating gluten before the tests they are even less reliable. Enterolab can test for the gliaden antibodies and also several other antibodies, casein egss etc. They can't say you have celiac, but... -
ARCHIVED Had Repeat Egd
GFinDC replied to Roda's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Roda, I think you are on the right track with thinking about other possible intolerances. Dairy and soy are a couple that I'd think are worth eliminating for a while. Dairy is such a common problem for us, and soy is also. Lots of the gluten-free products have soy in them too. If you are eating something every day that is irritating your system... -
ARCHIVED Celiac And Obsessive Compulsive Disorder/anxiety
GFinDC replied to lakegirl410's topic in Related Issues & Disorders
There seems to be some link between celiac and schizophrenia. I don't know if there is any link to OCD or other disorders. Probably depression is linked. Gluten ataxia is also linked to celiac. It seems to me that celiac can definitely affect the brain. I don't think there is really any doubt about that. There are also people who put their autistic... -
ARCHIVED My 2010 Celiac Campaign Has Begun.
GFinDC replied to imracin68j's topic in Introduce Yourself / Share Stuff
That's great that you are working to raise awareness! Here is a link to the gluten-free challenge going on in May. Pamela's Products is sponsoring the challenge. I thot it might be something yoo would like to share with your friends. Open Original Shared Link Welcome to the first ever Gluten-Free Challenge! Let's bring everyone to the table, the... -
ARCHIVED Endoscopy After 3 Months Of Gluten Free
GFinDC replied to bluebonnet's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Right, and you need to be on gluten for quite a while, maybe 2 or 3 months every day. If you had one positive test, it seems like that would be enough to settle the issue? The endoscopy seems to be a hit or miss type thing, not a guaranteed answer, even after being on gluten. The positive test results are said to be more reliable than the negatives results... -
ARCHIVED Vague Symptoms And What Tests To Ask For?
GFinDC replied to Bojax's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Could be celiac or gluten intolerance, or an allergy. You can check with CSA (celiac sprue association) or GIG (gluten intolerance group) to see if they have local groups who might be able to recommend a doctor. There is also a doctors thread in the Doctors forum here. Lots of doctors don't seem to get the symptoms connection to food. -
ARCHIVED Good Morning! I'm New To This Forum And Am Not Sure If I'm In The Right Place.
GFinDC replied to LadyLightnen's topic in Introduce Yourself / Share Stuff
Welcome, sounds like you do belong here! Sounds like you may have a problem with gluten. If you search on celiac related conditions, or associated conditions, you will find lists of other autoimmune diseases that people with celiac tend to get. Fibromyalgia is one of them. Some people find there other autoimmune symptoms decrease after a while...