Jump to content

GFinDC

Advanced Members
 View Profile  See their activity

  • Posts

    6,047

  • Joined

  • Last visited

  • Days Won

    112

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by GFinDC

  1. GFinDC
    Hi ZenGrowing, Your antibody test results are pretty high. Even if they don't find the villi damage on the endoscopy I'd say you have celiac disease. Being not a doctor in real life, I doubt your insurance company wilt take my word for it though. But it's pretty hard to explain antibodies like the DGP IgG without celiac disease. You should definitely...
  2. GFinDC
    Hi Lyndsey, Your symptoms could be from celiac disease. You should ask your doctor for a full celiac disease antibody panel. If the blood antibodies are positive, then they should do an endoscopy and take 4 to 6 biopsy samples for review. These are the antibody tests: Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated...
  3. GFinDC
    Welcome to the forum Kurt! Here are the blood antibody tests they do for celiac disease. Each of theses tests also has a range for normal antibody levels. Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and DGP IgG Total Serum IgA If you are positive on the immune reactions then they...
  4. GFinDC
    Hi dhaze, You don't need to eat a lot of gluten to keep the immune reaction going. A single cracker or half slice of bread is enough. Some people find it easier to eat the gluten first thing in the morning and get the worst symptoms over in time to get some sleep.. Others do better eating the gluten at night before bed and trying to sleep through...
  5. GFinDC
    Hello Amberg, Welcome to the forum! First off, if you feel bad and you know you have celiac disease, than stop eating gluten now! Like right now! Dang it! You can't heal your body by continuing to poison it. Celiac is an autoimmune disease and as long as you continue to eat gluten the immune system reaction will continue. Even after you...
  6. GFinDC
    Sounds good Katie, I might try the banana option. I've seen where they might sell banana flour for gluten-free baking, a while back. Here's another thread with a similar idea. I've haven't made any nuker bread in awhile myself.
  7. GFinDC
    Hi Dhaze, Yes, try to get the blood tests done now. You want to get the full celiac panel, DGP IGA, DGP IgG, ttg-IgA, serum IgA, Anti-endomesial antibodies. I understand your school is strict, but we are talking about a lifelong incurable condition here. Celiac disease is not a minor condition, and living with it takes some adjustment. Symptoms...
  8. GFinDC
    Hi, You need to stay on gluten until all testing is completed. Testing for celiac depends on detecting antibodies in the bloodstream but they start to decline when we go gluten-free. So going off gluten before testing can cause the testing to fail. Welcome to the forum!
  9. GFinDC

    ARCHIVED Poochini

    GFinDC replied to Poochini's topic in Gluten-Free Restaurants

    Hi Poochinni, Welcome to the forum! I am sorry you had a bad experience at your local Texas Roadhouse. I encourage you to contact them and tell them about the issues. Feedback can make a difference. Maybe next time they will be more careful. I have eaten at my local Texas Roadhouse several times and didn't have any problems. But I expect...
  10. GFinDC
    Hi RPM5, I haven't tried t myself. And I wouldn't try it at this point. Personally I have no desire to try anything with wheat grass in it, regardless of what the claims about it being gluten-free are. IMHO there are plenty of vitamins and supplements around that don't have any gluten ingredients in them. So why take a chance on it?
  11. GFinDC
    Thanks for the interview transcript Questor! Here is a link to a video by Dr. Fassano talking about celiac disease and zonulin. Open Original Shared Link
  12. GFinDC
    Maybe I'm nuts, but doesn't this say your serum ferite is 62? so it is a a few points lower than the normal range of 65 to 175? 65-175 ug/dL Low I am not saying being low is a good thing.
  13. GFinDC
    Hi FBMB, It sounds like you are trying anyway. You eat many things I wouldn't eat myself, but I probably have more food intolerances than you. The Bisquick is one example. I'd never recommend that to a newbie person going gluten-free. It 's basically carbs and they are bad for your healing gut. Parmesan would be a no-go also. And the fajita spices...
  14. GFinDC
    Hi Pegleg, I'd say you did a fairly good job of testing your intolerances. Eliminating foods for a period and them re-introducing them slowly, and one at a time is better. So you could re-introduce white potatoes for a 2 couple weeks and see what happens. But no other nightshades. When you re-introduce a food, try to eat it in as plain / basic a...
  15. GFinDC
    Hi Deb K, It's easy to make mistakes at first. Getting the gluten-free diet down can take months really. What you said about starting small and slowly adding foods is actually a good plan. That's one way to do an elimination diet. The biggest sneaky gluten culprits are usually processed foods and cross contamination. you can eliminate the processed...
  16. GFinDC
    I am sorry you are going through such a tough time FBMB. It's not easy watching loved ones decline, and feeling helpless to do anything about it. My mom died of cancer some years ago. She was told by the doctors she had 6 months to live, but she made it 5 years. Most of that time at home. I don't think its a matter of being tough. Maybe its more important...
  17. GFinDC
    You are in the early healing phase of the gluten-free diet. It's not likely your digestion will be perfect for a while still. 6 months to a year and half, maybe things will be better. Are you cooking your own foods? Or eating foods others make? How about processed foods, are you eating a lot of them?
  18. GFinDC
    It is a good idea to check with the marinara sauce maker. They should be able to tell you if it is gluten-free. If they act like they don't know what gluten is, then I wouldn't eat it.
  19. GFinDC
    Serum IgA doesn't diagnose celiac disease. It is just a proof that the immune system makes IgA antibodies. Some people are IgA deficient, they don't make normal amounts of IgA). So for those people the IgA tests are no good. They have to use the IgG tests instead.
  20. GFinDC
    Hmm, It's so nice that you still have your parents (triggers)! It wouldn't be a bad thing to give them both a big hug and shout "I love you" every day. They won't be around forever after all. Some pro-biotics might help your gut a little. Avoiding carbs and sugar is a real good thing also. After a while your gut flora will tend to get better and...
  21. GFinDC
    Well, she didn't heal for no reason. If the only change was taking her off gluten, then that seems like the important thing. How can the doctor say her gut damage is not related to gluten if she healed when she was off it? Riddle me that one Batman! I hope you get some "official" doctor answers soon. Unofficially, my section of the peanut gallery...
  22. GFinDC
    Ok, so the gluten challenge is 12 weeks for the blood testing and 2 weeks for the endoscopy. I don't know if you have problems digesting dairy now, but if you start having dairy symptoms during the challenge that could be a celiac symptom. You could also have your nutrient levels checked now and at the end of the challenge. Just to see if there is any...
  23. GFinDC
    Hi, The endoscopy does say the results are suggestive of celiac disease. They also found possible eosinophilic esophagitis evidence. Basically, her esophagus is irritated and inflamed. A 2nd opinion is a good idea IMHO. Find another GI who is familiar with celiac disease diagnosis. There may be a celiac support group in your area. If so, they may...
  24. GFinDC
    Hi Oz, The results are showing the measurements for levels of antibodies to gliaden, the protein in wheat. There are several types of antibodies they test. If you look to the right side of the text lines the reference is the normal, not a problem reading range. It seems all your results are high/positive. Are you sure you still have guts left in...
  25. GFinDC
    Hi FBMB, There are several members of the forum who have multiple AI diseases. Probably the longer you have celiac and continue to eat gluten, the more likely it is to get a 2nd AI disease. But probably is all we gots, there aren't any research studies about that I don't think. Those members are posting and helping others live with celiac disease...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.