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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    TTG IgA was 128 u/mL - normal is <7 u/mL According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in...
  2. Scott Adams
    Yes, good call....people should avoid ingesting colloidal silver https://www.nccih.nih.gov/health/colloidal-silver
  3. Scott Adams
    There is something called refractory celiac disease, which is celiac disease that does not improve on a gluten-free diet. It is pretty rare, but does happen to some people. We've summarized lots of articles about it in this category: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/refractory-celiac-disease-collagenous...
  4. Scott Adams
    The articles we've run on lectins are a bit old, but are still interesting: https://www.celiac.com/search/?q=lectins&quick=1&type=cms_records2&search_in=titles
  5. Scott Adams
    It is confusing, and the regulations are very similar now between the EU and USA, including being able to use Codex quality wheat starch in gluten-free products. It's a newer change in the USA, but these products have been used safely by most celiacs for decades. They usually reliably test below 20ppm, however, super sensitive celiacs should avoid these products...
  6. Scott Adams
    Eating in restaurants is probably the most common cause of cross-contamination. For a few years now I and other celiacs on this forum have been using GliandinX (a sponsor of this site) before eating out, or eating any foods they are not sure about. AN-PEP enzymes in that brand have been shown in multiple published studies to bread down small amount of gluten...
  7. Scott Adams
    I'm not sure how long you've been 100% gluten-free, but to me it sounds like you could have possible undiagnosed celiac disease and/or non-celiac gluten sensitivity. Many people with either condition have additional food intolerances which may go away after 1-3 years on a strict gluten-free diet. In the case of celiac disease, those additional intolerances...
  8. Scott Adams
    Welcome to the forum! I'm sure that others will chime in here, but the articles below might be helpful. Being vegetarian will create additional challenges for you, but many forum members have made the switch to a gluten-free diet, so it's definitely doable.
  9. Scott Adams
    Often what are described as "cross-reactors" are common food intolerances that newly diagnosed people with celiac disease have because of their leaky gut state. Many of these may go away after being on a strict gluten-free diet for a couple of years, and which will normally allow the gut to heal. In my case I was able to add back 90% of my "cross reactors...
  10. Scott Adams
    Welcome to the forum! You're not alone, and others here have reported issues with tapioca as well, and here is a search of the forum for this topic: https://www.celiac.com/search/?&q="tapioca"&type=forums_topic&search_and_or=and&sortby=relevancy Can I ask how long you've been gluten-free, and has your diet been 100% gluten...
  11. Scott Adams
    It's possible that these are made in different countries, and the info you see on the internet may not apply to the ones at the Dollar Store. The info on the package should be the most accurate, and it sounds like they are made in a shared facility that also processes wheat, and they may even use shared equipment. There are similar wheat products, so...
  12. Scott Adams
    Could you please clarify what "LADA" is? When I search it I see a brand of cars...
  13. Scott Adams
    We've done articles on this topic:
  14. Scott Adams
    Technically yes, but if you are having issues don't eat it. We did test one pizza crust with a Nima sensor that indicated that it contained gluten above the 20ppm level. You may want to read these two articles and their comments:
  15. Scott Adams
    Restaurants can change owners, recipes, etc., without notice, so it's always important to call ahead or ask these questions before ordering. We'll update this list if we find out any info is incorrect, or has changes. Please let us know which restaurant you called.
  16. Scott Adams
    I've not heard of a high protein, and specifically an Atkins or Paleo Diet, causing any issues in people with celiac disease. On the contrary, many people who have switched over to those diets after going gluten-free have claimed that it has helped them finally get relief from their ongoing symptoms (specifically cutting out all grains, bad carbs, sugar,...
  17. Scott Adams
    So it looks like you don't have low IGA, so that means those tests would be accurate had you been eating the recommended amount of gluten for 6-8 weeks leading up to the test, which you said that you did not do. Not eating gluten, or eating little gluten before the tests could cause false negative results.
  18. Scott Adams
    This is an old thread, but in general someone with celiac disease should use a dedicated gluten-free sponge, and never use a shared sponge that has come into contact with gluten.
  19. Scott Adams
    Welcome to the forum! Is there a chance they did a test for Immunoglobulin A (IgA)? I ask because if you are deficient for this test it will lower scores on certain tests, and the normal celiac blood test protocol is described in this article: So it is possible to have a negative blood test (especially if you have low Immunoglobulin A - IgA), and a...
  20. Scott Adams
    That is one method that should work for you, however, I still recommend, at the very least, always looking at the ingredient labels and allergen warnings, as ingredients and suppliers could change at any time. I became an ingredient "expert" years go by maintaining these lists, but if you are in the USA look for "gluten-free," or better yet, "certified gluten...
  21. Scott Adams
    This article might be helpful:
  22. Scott Adams
    Although these articles are older, they are interesting and discuss lung issues and celiac disease:
  23. Scott Adams
    Unless it is cross-contaminated millet is safe for those with celiac disease, but it is possible for anyone to have additional food intolerances or food allergies to other foods/grains.
  24. Scott Adams
    Good call, did they do a total IGA as part of the celiac blood panel? This is considered standard, because some people have low IGA which can skew the tTG results. If you do have naturally low IGA they can do other tests for celiac disease, however, to me it sounds like you already know that gluten is the cause of your issues, which means you have gluten...
  25. Scott Adams
    I also want to mention that one medium coconut has about 36g of dietary fiber, which is a lot, so the bloating could also be due to having so much fiber. If you do eat processed coconut, as @trents mentioned, be sure it is not contaminated and is gluten-free, and even then, perhaps eat less of it due to its high fiber content.
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