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Scott Adams

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Everything posted by Scott Adams

  1. Scott Adams
    It is a grading scale that assigns a score to the villi damage seen during an Endoscopy. From this article regarding Michael Marsh:
  2. Scott Adams
    Perhaps the study found undiagnosed celiacs who might not need an SSRI at all? It would be interesting to do a study that screened people on SSRI's for celiac disease, to see if they might have it at higher rates than the general population.
  3. Scott Adams
    Welcome to the forum! The standard recommendation for a gluten challenge would be to eat around 2 slices of wheat bread daily for 6-8 weeks before a blood test, and 2 weeks before an endoscopy, so it's not clear if you were eating enough before your blood tests. You mentioned that you "had very elevated IgG levels (89)," so you had one positive blood...
  4. Scott Adams
    This article might be helpful:
  5. Scott Adams
    I agree with @Russ314 here, but do want to point out that for those who do take such risks, and there are many, AN-PEP enzymes could possibly help to mitigate any issues that might otherwise occur by eating food that has small amounts of contamination. Again, I'm not encouraging anyone do this, but surveys I've taken in the past have shown that over 20% of...
  6. Scott Adams
    Welcome to the forum! I also live in a mixed household that isn't 100% gluten-free. My family is very good at not "double dipping" a butter knife, for example, after they might put some mayonnaise on a piece of wheat bread, but I'm sure that this approach may not work for everyone, and some celiacs might want to keep their own condiments and label them...
  7. Scott Adams
    Welcome to the forum @BME21! It does sound possible that you were not eating enough gluten before your celiac disease screening for it to allow for a positive test, but it's not clear how much gluten you were eating before the tests, and for how long. Normally you would eat 2 slices of wheat bread for 6-8 weeks before a blood screening, and for 2 weeks...
  8. Scott Adams
    It does seem like if you washed off the cashews well just before you ate them it would also wash off anything like wheat flour dust. I personally would do this, but I also understand that there are some very sensitive celiacs out there who wouldn't.
  9. Scott Adams
    In our recipe section we do have these:
  10. Scott Adams
    Welcome to the forum! It's possible that the medication has wheat starch or other non-gluten-free ingredient. You can search the ingredients of any prescription medications here: https://dailymed.nlm.nih.gov/dailymed/ Do you have DH?
  11. Scott Adams
    Welcome to the forum! It can take up to 2 years for some of these symptoms to go away, possibly even longer. This category is devoted to articles on this topic: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/
  12. Scott Adams
    Welcome to the forum. The thread you posted in is pretty old, so they may not see your post, but I'm glad you found us! It sounds like you are self diagnosed with gluten intolerance, which is now called non-celiac gluten sensitivity, for which there currently isn't a screening test, but up to 10x more people have than celiac disease. It also sounds...
  13. Scott Adams
    I did not realize that such services were available, so it’s interesting to learn of this possibility.
  14. Scott Adams
    No, I believe the goal of the GliadinX study would be for urine samples to test negative, which would mean the gluten was neutralized before it could cause any damage.
  15. Scott Adams
    Be sure to keep eating gluten daily until all celiac tests are finished.
  16. Scott Adams
    Welcome to the forum! If I am reading your results correctly, it looks like you have one positive test for celiac disease: t-Transglutaminase IgG my value: 6 - U/mL 0 - 5 U/mL - H It's a bit less specific than the tTG IgA, but still a positive test. At this point your doctor may want to schedule an endoscopy to confirm a celiac disease...
  17. Scott Adams
    I understand your point, however, obvious classic celiac disease symptoms are often overlooked by doctors, and if a person has undiagnosed celiac disease any meds would simply mask those symptoms, not treat the cause. Too often this is the case. Of course there are examples of people who need such meds, but I believe the first step would be to address the...
  18. Scott Adams
    I agree with @trents and your doctor seems to be missing some key information. At this point you might be able to say that you have non-celiac gluten sensitivity, but not celiac disease. Around 10x more people have NCGS than celiac disease, and unfortunately there isn't a test for it, yet the treatment is the same, a gluten-free diet for life. Perhaps your...
  19. Scott Adams
    Welcome to the forum @Christy Sue, please let us know how your tests turn out. Be sure that you've been eating ~2 slices of wheat bread per day in the 6-8 weeks leading up to the blood tests, and 2 weeks before an endoscopy.
  20. Scott Adams
    and here is a recipe:
  21. Scott Adams
    I've had discussions with the owner of GliadinX and taking 2-3 pills will not cause any issues, besides making it more expensive for you. I've taken up to 3 when I got accidental gluten exposure, and this product review is about my mother's experience, and is a true story: I can't recommend knowingly eating gluten, for example from a shared fryer--I...
  22. Scott Adams
    Thank you for posting this...tons of info here!
  23. Scott Adams
    We've done several articles on these potential treatments, and Larazotide Acetate seems to be ahead of them all at this point: https://www.celiac.com/search/?q=Larazotide&quick=1&type=cms_records2&search_in=titles I don't believe any are designed to allow you to eat gluten regularly, but feel free to correct me if I'm wrong on this.
  24. Scott Adams
    Thanks for pointing out a new product, as I've not seen them here in the USA yet: https://www.nestle-cereals.com/uk/brands/products/nestle-gofree-corn-flakes Hopefully they will also show up here at some point. If you try them, please let us know how they are.
  25. Scott Adams
    Welcome to the forum. Were you gluten-free at all before your blood tests and biopsy? If so, this could create false negative results, as you should have been eating 2 slices of wheat bread per day for 6-8 weeks before the blood test, and 2 weeks before the biopsy. I also want to point out that around 10x more people have non-celiac gluten sensitivity...
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