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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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Pain & Numbness on one side of body
Scott Adams replied to BNGed8's topic in Related Issues & Disorders
I believe that the supplements are probably gluten-free, and would not throw them out, but perhaps switch over to a brand that has "gluten-free" on the label. -
Thanks for clarifying her situation, and it sounds like she's been diagnosed with refractory celiac disease, and she's not recovered with a gluten-free diet. We have articles on this here: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/refractory-celiac-disease-collagenous-sprue/ and this article indicates that Tioguinine is a possible...
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- collagenous colitis
- collagenous spru
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One other thing that helps with the brain fog, at least for me and others here, is turmeric. Even though I'm gluten-free I take organic turmeric each day with breakfast. It reduces inflammation, and I believe has helped improve my memory. As with everything, just be sure the turmeric you get is gluten-free, as I've heard that it can also be contaminated.
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I take AN-PEP enzymes (GliadinX...they are a site sponsor here) before any meal outside my home, as they've been shown in several studies to break down small amounts of gluten in the stomach, like you might get in a cross-contamination situation eating out. Nowadays there are apps to help you find restaurants with gluten-free menus, and I would try...
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I think this symptom, and the brain fog, are possible reasons why so many doctors try to prescribe anti-anxiety, anti-depressants, etc., and try to explain gluten sensitivity away as a psychological issue.
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Hi Alan, welcome to the forum! I think that your health is your first concern, and to me it sounds like you are doing a very good job taking care of yourself, which will probably help you a great deal with managing your school life. You've got lots of time to date and meet others, so I would not worry too much about this aspect of life. Believe it or...
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Yes, welcome! The 2nd worse symptom to my diarrhea was vertigo, or the feeling like things were spinning or I was falling, which also caused me to have panic attacks. The good news is that going gluten-free should fairly quickly resolve your symptoms, but be sure you fully understand the gluten-free diet. This article might help:
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- bombay sapphire
- celiac disease
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I'm sorry to hear you ate gluten. Please see this article, as it might be helpful:
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To me it seems reasonable to make the same connection in adults that this study makes with children. There have been too many people who have had the same experience here--antibody tests just below the cut off level and were told they were fine, keep eating gluten--yet their chronic symptoms would not go away until they went gluten-free. My own daughter falls...
- 11 comments
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- celiac disease
- children
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CELIAC DISEASE AND POLYCYTHEMA VERA
Scott Adams replied to SamIPD's topic in Related Issues & Disorders
Welcome to the board! I'm not sure if you're trying to explain the later vaccine speculation in this topic, or the high red blood cell issue that some of us have discussed. I've been gluten-free for over 25 years, so it would be doubtful that my eating gluten before my diagnosis would trigger my high red blood cell condition for life. My guess is that my... -
newly diagnosed and need support
Scott Adams replied to Christine Wilson's topic in Coping with Celiac Disease
Welcome to the forum Christine! Even trace amount of gluten, especially over time, can add up and cause serious health issues to anyone with celiac disease. I started taking a couple of GliadinX (they are a sponsor here--AN-PEP enzymes have been shown in studies to break down gluten before it reaches your intestines) before I eat outside my home, just in... -
So if I understand your post, she has celiac disease, which can cause the lesions often referred to as "collagenous sprue," and you are wanting to use this as an excuse not to get vaccinated? I believe that this is a very poor choice, especially if she's going to a university in the Fall. The vaccine may save her from being hospitalized or even dying from...
- 22 replies
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- collagenous colitis
- collagenous spru
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I had a significant reaction to the J and J vaccine
Scott Adams replied to Lynn Nichols's topic in Related Issues & Disorders
I think not getting it would be a serious mistake that could cost your life, but clearly people are making such decisions. The overwhelming evidence shows that all the vaccines are safe, and very effective at keeping you out of the hospital, and from dying from what is a very contagious disease. -
Pain & Numbness on one side of body
Scott Adams replied to BNGed8's topic in Related Issues & Disorders
You might try duck eggs. I can get them at farmer's markets, Asian markets (make sure there isn't a red marker mark on them--ask for fresh eggs), and some higher end supermarkets (they are often used in French pastries). -
Pain & Numbness on one side of body
Scott Adams replied to BNGed8's topic in Related Issues & Disorders
The article below may be helpful if you're still having symptoms, and going dairy-free, at least for a couple of months, might be a good idea. In my daughter's case we believe it was possible celiac disease causing the issue, but her antibody tests came back just under the cut off for celiac disease, so she's officially non-celiac gluten sensitive.... -
Pain & Numbness on one side of body
Scott Adams replied to BNGed8's topic in Related Issues & Disorders
It would be a good idea to get it checked out, so going to your doctor is a good idea. It's possible that it's a totally unrelated symptom, but in my daughter's case she had the same symptom whenever she ate gluten. -
Omeprazole
Scott Adams replied to Suffolkman's topic in Gluten-Free Foods, Products, Shopping & Medications
Cutting back on the amount of Omeprazole likely caused more acid to be produced in your stomach, which makes digestion easier, so perhaps you need to be on a lower dose, or don't need to be on it at all, but be sure to discuss this with your doctor. This article covers continuing symptoms after going gluten-free, so it may be helpful: /celiac-disease... -
upper gi Barium Swallow Test
Scott Adams replied to moon122975's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks for the info, and welcome to the forum! -
I doubt that alkaline water would be helpful for celiac disease symptoms, but it seems to be the latest fad now. Beware that one brand has been linked to at least one death, and many illnesses: https://www.fda.gov/food/outbreaks-foodborne-illness/investigation-acute-non-viral-hepatitis-illnesses-real-water-brand-alkaline-water-march-2021
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Strange diagonal creases on forearm
Scott Adams replied to Simmons15's topic in Related Issues & Disorders
Welcome to the forum! I do wonder in your case if the marks come from holding your baby with your left arm, which sounds possible. If you do have an iron deficiency be sure to get screened for celiac disease, as this forum is here to help those on a gluten-free diet due to gluten sensitivity or celiac disease. -
I had a significant reaction to the J and J vaccine
Scott Adams replied to Lynn Nichols's topic in Related Issues & Disorders
Stomach issues are listed as the known side effects of each covid-19 vaccine, so it isn't surprising that you had this side-effect. My wife, who doesn't have celiac disease or gluten sensitivity, had stomach issues for around 1 week after receiving her 2nd dose of Moderna. The good news is that the vaccine may save you from being hospitalized or even dying... -
Pain & Numbness on one side of body
Scott Adams replied to BNGed8's topic in Related Issues & Disorders
Welcome to the forum @Drmthomas! I doubt that contact sports would be in any way linked to a trigger for celiac disease, at least I've never seen any studies that indicate this, but there are known viruses that have been linked. @BNGed8 it sounds like your throat issues could be your body's way of telling you to cut back on the cigars! -
Pain & Numbness on one side of body
Scott Adams replied to BNGed8's topic in Related Issues & Disorders
It seems unlikely that you would develop an allergy within the last few weeks, and it’s possible that it’s a new reaction to gluten contamination. Some people get very sensitive to gluten after they stop eating it.