
Scott Adams
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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I would follow your doctor's advice and repeat the blood test after 6 weeks of eating gluten. If the results are positive I would consider myself, at the very least, gluten sensitive, and go on a gluten-free diet. Due to your unusual circumstances your doctor may ask you to do another biopsy if you have positive blood tests. It's your call whether you would...
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For a gluten challenge I believe they recommend at least 6 weeks of eating ~1 slice worth of wheat bread a day before the blood tests. Certainly doing this would be a good idea if you would not otherwise be able to maintain a gluten-free diet for life, or if you had any doubts about whether or not you should be gluten-free.
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What Brands of Ketchup are Gluten-Free?
Scott Adams posted an article in Gluten-Free Foods & Beverages
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Is This Silent Celiac??
Scott Adams replied to Anita99's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Oh, and here are some articles on the MTHFR mutation and celiac disease: https://www.celiac.com/search/?&q=MTHFR&type=cms_records2&search_and_or=and -
Is This Silent Celiac??
Scott Adams replied to Anita99's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In case anyone is interested, here are the summaries we've done on the connection between celiac disease and liver issues: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/liver-disease-and-celiac-disease/ -
There was a really good knockoff that I used to sell when I owned The Gluten-Free Mall called Josef's Chocolate Sandwich Cookies, but they are no longer available. https://www.amazon.com/Josefs-Gluten-Chocolate-Sandwich-Cookies/dp/B001B485RO/ref=cm_cr_arp_d_product_top?ie=UTF8
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I can't tell from your post if your diarrhea issues have gone away. If not, be sure that your diet is 100% gluten-free, and that you don't have additional food intolerance issues (some could be temporary), like cow's milk, other grains, soy, etc. The average time to healing is about 2 years, but this depends a lot on how badly your gut damage was, and...
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I believe that this is not correct. All protocols I have seen indicate that you MUST be eating gluten daily for at least 2 weeks before the endoscopy for celiac disease is done. This could explain why your results were negative. Many people with celiac disease or gluten sensitivity do have additional food intolerance issues, some of which may be temporary...
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Natural light seltzer
Scott Adams replied to pdubzz's topic in Gluten-Free Foods, Products, Shopping & Medications
All seltzer should be gluten-free, and I doubt any would bother labelling it GF. -
Welcome to the forum! To me it seems like, at the very least, you have gluten sensitivity, even if it might be technically classified as "non-celiac gluten sensitivity." Your blood test results and genetic test support this, and may even support you having celiac disease, although that's not been confirmed yet with a biopsy. You have classic celiac disease...
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Diagnosed?
Scott Adams replied to bobandlucy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here is the standard panel: -
Given how many people are gluten-free now it seems like an obvious addition to their offerings.
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Is This Silent Celiac??
Scott Adams replied to Anita99's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think more research needs to be done on this particular symptom of neck/shoulder pain and celiac disease. It's been mentioned here too often for it not to be a common problem for those with celiac disease. Thanks for bringing up the vagus nerve connection... -
Do you drink any liquor straight? Favorite alcohol?
Scott Adams replied to JM12's topic in Super Sensitive People
I generally stick with red wine, but 100% agave tequila is my favorite spirit. -
Have you ever considered getting food allergy tests done to find the culprits, and then avoid them if possible? If you can't avoid them perhaps you could at least rotate your diet so that you don't eat them as often. I will assume that you are 100% gluten-free and that isn't causing you issues, but it never hurts to double check your diet to be sure.
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Is This Silent Celiac??
Scott Adams replied to Anita99's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you have been gluten-free for such a long time then no current tests done now would give you correct results. You must be eating gluten daily for 4-6 weeks for blood tests to be accurate, and 2-4 weeks for the endoscopy to by accurate. If you are certain that you have issues with gluten, and are positive for both DQ2 and DQ8, perhaps you don't need... -
Sherbert
Scott Adams replied to Nikki Neff's topic in Gluten-Free Foods, Products, Shopping & Medications
Read the labels carefully, but most should be gluten-free. Here is a list of GF ice creams: -
Diagnosed?
Scott Adams replied to bobandlucy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A blood test is a positive for celiac disease and it’s unfortunate that you have to wait that long for a biopsy. Making a diagnosis with blood tests alone, combined with symptoms going away when you go gluten-free might also be a possibility in your case, and I’d discuss this with your doctor. Be sure to tell him how bad your symptoms are and don’t spare...