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Latest Celiac Disease News & Research:
Everything posted by dilettantesteph
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ARCHIVED Gluten In Injection Medication A Problem?
dilettantesteph replied to abaker521's topic in Gluten-Free Foods, Products, Shopping & Medications
Blood cells are a lot larger than a molecule and they go through small blood vessels. Cells contain lots of molecules. Nonetheless, I agree that gluten would not be in an injection. I just wanted to give you a reference size for large molecules, small blood vessels, cells, etc. -
ARCHIVED Girlfriend Making Me Sick And Dont Know Why
dilettantesteph replied to deals88's topic in Super Sensitive People
They don't have to not eat at all, just not eat gluten or the allergen. That's a lot easier and more reasonable to ask. -
ARCHIVED Barley Amylase?
dilettantesteph replied to Nikki2777's topic in Gluten-Free Foods, Products, Shopping & Medications
An amylase is an enzyme that breaks down carbohydrates. A barley amylase comes from barley. If it's purified enough it could be considered to be gluten free just like other purified gluten grain derived products like alcohols, wheat starch, other barley enzymes etc. Open Original Shared Link Open Original Shared Link I would avoid it, but I am very... -
ARCHIVED Pete's Coffee Question
dilettantesteph replied to mommyto2kids's topic in Food Intolerance & Leaky Gut
I have posted about the possilbe contaminaiton of ground coffee with gluten several times, for example here: https://www.celiac.com/forums/topic/105398-have-you-heard-of-the-problem-with-coffee-for-us/ In my opinion, the U.S. Pharmacopeial is a reliable source of information: Open Original Shared Link You can search their food fraud data base and you will... -
ARCHIVED So Sick Of Not Feeling Well
dilettantesteph replied to Azenka's topic in Coping with Celiac Disease
I feel your pain. It feels much like what I have gone through. I've been at this 6 years. In my case an additional sensitivity to oats causes a lot problems. Gluten free does not mean oat free. Some celiacs have problems with trace gluten: Open Original Shared Link I have also had problems with fat malabsorption which seems to be from exocrine pancreatic... -
ARCHIVED Becoming More Sensitive Over Time?
dilettantesteph replied to BlessedMommy's topic in Coping with Celiac Disease
A lot of celiacs report becoming more sensitive over time. The is some scientific evidence for it too: Open Original Shared Link It is very hard to be sure of the source of glutenings. -
ARCHIVED Did Your Vitamin D Levels Go Up?
dilettantesteph replied to 1desperateladysaved's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Celiac disease affects all sorts of systems in the body. I wouldn't be surprised if it is found to affect vitamin D production as well as absorption. Perhaps that is why vitamin D levels go back up upon removal of gluten from the diet. -
ARCHIVED Did Your Vitamin D Levels Go Up?
dilettantesteph replied to 1desperateladysaved's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I don't think so. I've always spent a lot of time outside. I lived in that same northern city that whole time too. I think that healing the damage caused by celiac disease probably helped with my vitamin D levels too. -
ARCHIVED Psychedelics Changed My Life.
dilettantesteph replied to JamieRmusic's topic in Introduce Yourself / Share Stuff
I see your point. There are drugs available to us that could be effective to treat various ailments. They have been made illegal since they are used recreationally. At this point it is difficult to study their use in medicine. There are certainly more dangerous drugs that can be prescribed than many of these illegal drugs. This issue is being tacked... -
ARCHIVED Psychedelics Changed My Life.
dilettantesteph replied to JamieRmusic's topic in Introduce Yourself / Share Stuff
I'm from Vancouver. I personally knew quite a few people who had problems with drug use. One of my best friends ever died in a car accident driving early in the morning after smoking a lot of pot. Another good friend ODed. One more developed Parkinsons disease and his doctors thought it was related to his extensive LSD and magic mushroom use. Our perception... -
ARCHIVED Did Your Vitamin D Levels Go Up?
dilettantesteph replied to 1desperateladysaved's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I didn't take my supplements with anything and my D levels went up. -
It is easy to get into the trap of eliminating one food after another. You improve because our bodies heal over time and then you think it is because of the foods that you have eliminated. Then the next time that you get glutened you eliminate more foods and so on. You can end up with little to eat and you have eliminated those foods for the wrong reasons...
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ARCHIVED Did Your Vitamin D Levels Go Up?
dilettantesteph replied to 1desperateladysaved's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
What units are you using? If it's ng/mL, your levels are good, if it's nmol/L not so good. Open Original Shared Link My last values were in the normal range while a year after diagnosis I was deficient. -
Elimination dieting can be very difficult. This is especially true when you are already sick. Remember to revisit foods later when you are feeling better and your digestive enzyme producing systems have healed. There can be many reasons why something seems to give you a gluten reaction. There can be coincidence with another gluten exposure that you were...
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ARCHIVED It Was Supposed To Be Over At Gluten Free! Help :(
dilettantesteph replied to AnnaChristine18's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You might want to have a look at this: Open Original Shared Link A supplement might not contain what's on the label.- 88 replies
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Brush border enzyme production is reduced with active celiac disease and can cause lactose intolerance and malabsorption: Open Original Shared Link Open Original Shared Link Lots of us take digestive enzymes, but I have heard that GI doctors think that any benefits are due to placebo effect. It would sure be nice to see some studies and a formulation...
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ARCHIVED Gluten-Free Rice
dilettantesteph replied to skullgrl's topic in Gluten-Free Foods, Products, Shopping & Medications
In my case anyways, the reaction came before any knowledge of cover crops. The cover crops only provided a possible explanation for the reactions. Why would we react to one rice and not another? I suppose it could be a sensitivity to a certain hybrid, but I would think that something else used in the farming process would be more likely. I grow a lot... -
ARCHIVED Contamination Anxiety- Help!
dilettantesteph replied to afitgirl's topic in Coping with Celiac Disease
The problem is that the answer isn't the same for all celiacs. Some of us have to be very careful about contamination to avoid symptoms, and some of us don't. The ones that are unsymptomatic have a hard time figuring out what to do. Here is a long study about the topic: Open Original Shared Link -
ARCHIVED Gluten-Free Rice
dilettantesteph replied to skullgrl's topic in Gluten-Free Foods, Products, Shopping & Medications
Sorry for the possible confusion. I had mentioned that I reacted to rice so I wanted to indicate that it could be from oats and not gluten. -
ARCHIVED Gluten-Free Rice
dilettantesteph replied to skullgrl's topic in Gluten-Free Foods, Products, Shopping & Medications
They explain about cover crops in that first link: "We've planted Oats & Vetch" That could be the reason for my reaction. I am oat sensitive. -
ARCHIVED Gluten-Free Rice
dilettantesteph replied to skullgrl's topic in Gluten-Free Foods, Products, Shopping & Medications
Alter Eco has rice certified gluten-free by GIG. That's what my son and I eat. We have had problems with other rice. We are also oat sensitive. -
ARCHIVED At A Loss; Constant Stomach Pain Continues
dilettantesteph replied to KnightRobby's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the forum, and I'm sorry that you are having problems. To offer help, more information is needed. Do you have a celiac disease diagnosis? Did you get an endoscopy? Why do you think that you have problems with gluten? How did you get the severe hayfever diagnosis?