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Latest Celiac Disease News & Research:
Everything posted by skbird
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ARCHIVED Sunkist -- Yikes, Diet Vs. Reg Is Really Impt!
skbird replied to celiac3270's topic in Gluten-Free Foods, Products, Shopping & Medications
Well, you have to be [an intelligent life-form from another planet], if you are a "Super Advanced Community Member"! Use the force, celiac3270! Stephanie -
Here's a great tip - if your brown sugar gets too hard, put it in the microwave for abut 30 seconds. It softens right up. I used to do this all the time. Stephanie
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ARCHIVED Enterolab Results...
skbird replied to Rachel--24's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Rachel - I don't know how I know all this stuff, just soak it up, I guess. I was uncertain when I was typing my response so I'm happy to learn that I got it right. You'll find you know more than your docs and nutritionists in no time, trust me. Pretty funny, we should all be doctors by default! Stephanie -
When we were kids, my brother used to test me on this - he'd turn the contrast on the tv so it was black and the volume down, and then ask if the tv was on or not (I'd leave the room). I could always tell. I can tell when a monitor or tv is on but no signal in any room in the house. It feels like being psychic but I know it's the sound. When I was in...
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ARCHIVED Health Valley Soups?
skbird replied to LRgirl's topic in Gluten-Free Foods, Products, Shopping & Medications
I use their broths. The split pea soup I like is by Amy's (often found in the same section of the store as HV) and it says right on the label GLUTEN FREE (ah, the words I love!) Stephanie -
ARCHIVED Enterolab Results...
skbird replied to Rachel--24's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi all - I don't know a whole lot about this but know that antibodies are a problem when they attack your body by mistake. It could be that the antibodies being tested by EnteroLab are those that attack your body, while Elisa tests and the like find other reactions, not just autoimmune antibodies. I do know that those found by Enterolab are the... -
You know, I have a lot of food problems and really, my husband and I have noticed that sushi is the only meal I can eat when I feel like crap. Seriously, must be the combo of rice (easy on my stomach), good protein, some pickled ginger, and wasabi. I use Braggs liquid Aminos for my soy sauce (can't take the fermented wheat free tamaris) and I usually feel...
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Cabbage soup is supposed to be really healing to the gut. Chop an onion up, sauté it in some olive oil, then add a chopped head of cabbage (get a big pot! or just use half a cabbage) and then add some salt and pepper, sauté some (just for a minute or two, to kind of mix it all around in the pan) and then add enough water to cover the cabbage, or half water a...
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ARCHIVED Are Apples Gf?
skbird replied to blueshift's topic in Gluten-Free Foods, Products, Shopping & Medications
I used to have a hard time eating most fruits until I went gluten free. Apples were definitely one of them - they made me feel really gassy and oddly enough, very hungry (think that was a blood sugar thing). But now I can eat them pretty much no problem (sometimes still get the hunger thing). How long have you been gluten free, maybe you need to heal more... -
ARCHIVED I Don't Have Celiac
skbird replied to redheadheather's topic in Parents, Friends and Loved Ones of Celiacs
Hi Heather - I know what you mean about feeling disappointed - it is hard to accept when you think you've figured something out and then that's not what the problem is. What tests did you have? Do you feel better avoiding gluten? Is it possible you didn't have all the tests? Not saying I'm wishing it on you! Just that I know I wouldn't test positive... -
ARCHIVED Enviro-kidz Cereal...my Kids Hate It
skbird replied to a topic in Parents, Friends and Loved Ones of Celiacs
Hmmmm, I love the peanut butter Panda Puffs but honestly, as a kid, I didn't like anything peanut butter (cookies, cereal, etc). I have gotten Barbaras Brown Rice puffs - they are a lot like Rice Krispies and not much sugar. Another thought would be to try to make your own granola, if your kids would like that. I keep meaning to, it seems pretty easy - just... -
ARCHIVED Enterolab Results...
skbird replied to Rachel--24's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hey, Rachel - you did all right. If you have two gluten sensitive genes, then you got one from each parent. So I know both of my parents have one each, as well. What confuses me on this issue is I don't believe I've seen *anyone* post they have only one gluten sensitive gene. Official Celiac, yes, but not gluten sensitive (there are a total of four -... -
ARCHIVED Gluten Free Candies, Treats
skbird posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I have this tin of peppermints on my desk at work and suddenly it occurred to me that they could be dusted in some kind of starch so I looked them up on the web (website was on the back of the tin) and not only are they gluten free, but everything they make is. Check them out: Open Original Shared Link I just thought that was cool! Stephanie -
This doesn't quite fit me but I have had several episodes of smelling something concrete then smelling it everywhere for the next day or so. Worst case was when we saw a cat that got hit by a car right in front of us, and for the next two days I could smell it at the oddest moments. In fact, during that time I was undergoing diagnosis for bipolar (which in...
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ARCHIVED Anyone Cook With Flax Seed?
skbird replied to a topic in Gluten-Free Recipes & Cooking Tips
Supposedly if they smell like oil-based paint, they are rancid. I have never noticed that smell but who knows? Linseed oil, what is used on antiques a lot, is industrial flax oil, so that smell would make sense. I like to get whole flax seeds and just grind them in my coffee grinder, that way they are fresh when I want them. Supposedly you don't have to... -
ARCHIVED Enterolab Results...
skbird replied to Rachel--24's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, his would be 0602 and 0501. (both DQ1, or also known as DQ5 and DQ6, though that part isn't as important). Wow, you have been very thorough. Isn't it a bummer what we've all gone though to get to this place where we are trying to be healthy? When I got mine done at Enterolabs I had been gluten free for 5 months already and my Iga was only 9 though... -
I know what you're talking about, WH, I get that kind of stool a lot, too. I actually have been having crazy inconsistencies lately, one day this kind, the next another. My doc thinks gluten isn't the whole problem - I have to agree at this point. I don't see how a colonoscopy would help you - an endoscopy *might* be illuminative with regards to villi...
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Don't worry about the spelling, no one's graded here! Actually, when I was 17 I went to Idaho to see my uncle (Moscow) and was telling someone about going through "Coor-dallen" (for pronunciations sake) and they said "where???" and lauged at me. I was pronouncing it like it was French (the origin of the name) but of course no one there says it like that!...
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ARCHIVED Anyone Cook With Flax Seed?
skbird replied to a topic in Gluten-Free Recipes & Cooking Tips
Here's some info on cooking with flax. While ground flax in baked goods still imparts fiber, you start to lose the benefits of the oil when it is cooked over something like 110 degrees F as it starts to break down the benefits of the oil. It's best used raw - try sprinkling on salads or in cereal. I put mine in yogurt or in smoothies, also do bake with it... -
I don't know about restaurants but there is a gluten free food manufacturer in Coeur d'Alene called Namaste - Open Original Shared Link I like their pizza crusts and hear the brownies are good. I would go see if you could get a factory tour! Stephanie
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ARCHIVED Enterolab Results...
skbird replied to Rachel--24's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Deb - Well, you must get the gene stuff pretty well if you know you can determine your husband's genes by the process of elimination. That's a step beyond the average. Anyway, it looks like you guys all have one DQ1, and double at that (for you!). DQ1 is the one that has been linked to neurological issues, as well as microscopic colitis and... -
ARCHIVED Cardamon As A "cure" For Cd?
skbird replied to Jnkmnky's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You can still use it in lassis - also I made coconut jasmine rice recently - jasmine rice with coconut milk and turmeric, and I put cardamon in it, too. It was great! Stephanie -
Yeah, I think the bit about making it harder to get me in is a little odd. I mean, I can understand they are busy, but that isn't enough of a reason. I have also heard there is a great gastro in Grass Valley or Nevada City, posted by someone on this board or another. Anyway, if I have difficulty, I will look into other docs. I am having a bad IBS flare up...
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ARCHIVED Chocolate Chip Cookies
skbird replied to greg-gard's topic in Gluten-Free Recipes & Cooking Tips
My favorite store-bought is Pamela's Pecan and chocolate chunk shortbread. They are a bit on the crunchy side which I like, but if you leave them open they do soften a bit. I absolutely love them. But you can also make Toll House cookies, just like the recipe on the bag of chocolate chips, if you use pretty much any gluten-free flour, or blend. Brown rice... -
ARCHIVED Biopsy Or Not?
skbird replied to Rachel--24's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
About the gene test being accurate - one of the genes I have is mostly associated with people of Medeterranean descent and since I'm 3/4 Dutch and the rest Welsh/Scot, I wrote in and asked if this could be a mistake. The reply I got was no - and that anyone in Europe could have crossed over a gene at some point. As you can see from my av, I don't *look* like...