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cyclinglady

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Everything posted by cyclinglady

  1. cyclinglady
    You have a positive! You only need one on the panel to be positive. For example, in my case, I was only positive on the DGP IgA and yet I had intestinal damage. The only issue I see is that the Gliadin test is older and was replaced by the DGP. Normally, the EMA might have been included in a full panel. Still, the next step for you is a referral to a...
  2. cyclinglady
    Knitty Kitty, Did you read and understand the study? It did not say that milk proteins can trigger celiac disease (or mention cross reactions), but that they can cause an inflammatory response similar to what occurs in Celiac patients. The study suggests this might be as a result of a leaky gut and other food proteins may cause the same effects. ...
  3. cyclinglady
    Can you define healthy? Were your thyroid antibodies tested and not just thyroid function (e.g. TSH, etc.)? Celiac disease can develop at anyt8ne. If it had been more than two years, get tested again and be sure the DGP and EMA IgA and IgG versions are ordered and not just the TTG? Why? I have Hashimoto’s (my mom has Graves), celiac disease and I w...
  4. cyclinglady
    Anyone try this? This company is working with celiac advocacy groups. For $45 you can determine is gluten is the root cause if your recent ”glutening”. Open Original Shared Link
  5. cyclinglady
    “The US Food and Drug Administration (FDA) on Tuesday issued a draft guidance encouraging drugmakers to provide detailed labeling about whether their products are made from ingredients that contain gluten.” Read more: Open Original Shared Link
  6. cyclinglady
    Just enter “canker sores” in the forum’s search box located at the top right and you will see how many members struggle with canker sores....TONS!
  7. cyclinglady
    If a dermatologist did a skin biopsy and the result was positive for DH, then you have celiac disease. No need for GI testing at all. Again, NO ONE can say FOR CERTAIN how fast antibodies build or decline. That is why the University of Chicago and other celiac centers take a conservative approach. Their guidelines for gluten ingestion are long...
  8. cyclinglady
    Antibodies can remain in your system for months to over a year....or go away within two weeks. It sounds like you were advised to go gluten free and that could have caused your TTG to decrease. Does your GI know you had been gluten free? Some folks with DH have no intestinal or it can be patchy. The antibodies are primarily in the skin. If you...
  9. cyclinglady
    I would start by asking for another round of celiac antibodies tests. Be sure to include the ones that were previously positive and then add the DGP tests. The DGP tests in some studies seem to do a better job of detecting dietary gluten. All antibodies should be coming down. Often it can take a year or longer for antibodies to come down for a...
  10. cyclinglady
    I need to bring our food to another house on Christmas Day and I have not decided yet. I like the ribs idea since I am bring baked beans for everyone to share. On Christmas Eve, I am making a family tradition: stuffed cabbage rolls, sauerkraut, potatoes, and kolacky (cookies) for dessert. My hubby loves cranberry orange coconut shortbread cookies, so...
  11. cyclinglady
    While it could be related to celiac disease or it could be the start of Parkinson’s, it might be a simple palsy. This hand shaking happens in my family. It has for generations. It affects some others in my family differently. They shake their heads. We call it “Bobble Head Syndrome” , not sure that is the medical term. Best to have your mother check...
  12. cyclinglady
    Yes! ?
  13. cyclinglady
    Okay, I am a little confused. You really need to be a full gluten diet for up to 8 to 12 weeks. That is because researchers can not tell how fast an individual builds up antibodies that can be measured in their bloodstream. If you get a negative now, will your doctor re-test? Will your insurance pay for it again?
  14. cyclinglady
    Push for all the celiac blood tests: TTG IgA and IgG, EMA, and DGP IgA and IgG. Make sure they test your Immunoglobulin A (IgA) which in the case for celiac disease acts as a control test. Note: you have to be on a gluten diet for any of the tests to work (like 12 weeks). Open Original Shared Link
  15. cyclinglady
    Depression and anxiety are common with celiac disease. If I am glutened, I become anxious. It is one of the many symptoms that develop when I am experiencing a gluten flare-up. This can resolve on a gluten diet. And who would not be anxious? Dealing with vomiting, abdominal pain, etc? Can stress cause flare-ups? Who knows? It certainly can make things...
  16. cyclinglady
    Welcome Sarah, Ennis is right, if you can find a celiac-savvy dietitian, you might find the extra support helpful, but you can do it in your own. Research, and if in doubt, head back here with questions. We are happy to help. Easiest to stick to non-processed foods in the beginning. It may help you heal faster (less mistakes) and you will not have...
  17. cyclinglady
    Unfortunately celiac disease come with a lot of collateral damage. A damaged gut can set you up with many new issues that can resolve with healing. Ennis is right about checking into a histamine intolerance or even minor Mass Cell Activation Disorder. Best to avoid those triggers for now.
  18. cyclinglady
    I am glad that your doctors are adamant about keeping gluten in her diet until all testing is complete. So, often this advice is not followed by doctors. Shocking but true. So, perhaps reducing of eliminating dairy may help her through until the endoscopy. Your GI can test her for lactose intolerance. If not, try to reduce the amount of lactose. Milk...
  19. cyclinglady
    I am so sorry! Is there any way to call the GI to see if there has been a cancellation? Not sure exactly when your appointment is. Celiac experts recommend 2 to 4 weeks on a gluten diet prior to the endoscopy. What you can do now, is to take her off all dairy. Celiacs are often temporarily lactose intolerance. That can help ease symptoms. Consider...
  20. cyclinglady
    Yes! Benadryl (or genetic version) crosses the blood brain barrier (one reason that it can make you sleepy). A study showed that it MAY cause dementia. So, best to use a second generation antihistamine like Zyrtec or Claritin. I personally save Benadryl for a severe allergic reaction. https://www.health.harvard.edu/blog/common-anticholinergic-drugs...
  21. cyclinglady
    I am sorry that you are struggling with the thought of two restrictive diets. I get it. A year after my diagnosis, my glucose labs results indicated that I was prediabetic. The note attached to my results from my GO told me to exercise more and reduce the sugar in my diet. What? I have always been in shape and exercise more than most people my...
  22. cyclinglady
    This seems like this would only affect food banks located in Missouri: Open Original Shared Link
  23. cyclinglady
    Welcome! Yes, you can have itching but not have DH. This happens to me! Enjoy that gluten! I was anemic when I went in for a routine colonoscopy (yep, over 50). I had only one positive on the celiac panel — the DGP IgA. Because of work issues, I scheduled my endoscopy and colonoscopy seven weeks out. I ate all my gluten favorites. I went overboard a...
  24. cyclinglady
    Hi Maddie! Please do not be discouraged! It can take weeks or months to see improvement because we are each are unique! Your damage may not mirror mine. You have to remember that celiac disease goes way beyond just the GI tract. It took several months for my anemia to resolve and was my main symptom at the time of my diagnosis. But it really took...
  25. cyclinglady
    I cheat and used canned chicken. Nice to have it in the pantry anyway, in case of Earthquakes! The soup looks yummy!
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