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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Alnlv, welcome to the forum! I have Celiac and DH (dermatitis herpetiformis) and I get urticaria sometimes. Urticaria can occur when you have a deficiency in Cobalamine Vitamin B12. Cobalamine Vitamin B12 deficiency is frequently found in Celiac Disease. Cobalamine Vitamin B12 can help remove histamine and reduce inflammation when you have...
  2. knitty kitty
    @Erika B, You could ask your doctor for a genetic test to see if you have any genes for Celiac Disease. You don't have to be eating gluten for a genetic test. Having the genes for Celiac Disease means one has the potential to develop active Celiac Disease. Some doctors will make a diagnosis of active Celiac Disease if one has genes for Celiac...
  3. knitty kitty
    @Rogol72, I'm so glad clove tea worked for you, too! So happy you're feeling better!
  4. knitty kitty
    @Wendy.DLH, One more study for you... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8112188/ Do be aware that blood levels of several vitamins and minerals are not accurate. One can have deficiency symptoms before the deficiency is reflected in blood levels. Discuss with your doctor the benefits of supplementing with the eight essential...
  5. knitty kitty
    @Kurlykaitlyn, I have found taking a magnesium supplement after meals helps. The main ingredient in Tums is magnesium citrate. You can find a gluten free/allergen free magnesium citrate or magnesium glycinate supplement without all the questionable ingredients that Tums has. You may want to avoid using a PPI, especially if one is also taking...
  6. knitty kitty
    @Erika B, Low red (and white) blood cell counts are indicative of anemia. Anemia can cause false negatives on antibody tests, as can diabetes. Have you been checked for diabetes? I have Type Two Diabetes. If my blood glucose level gets too high (or too low), I can get body tremors. The continual nausea, vomiting, headaches and diarrhea...
  7. knitty kitty
    @Rogol72, I would suggest Cloves in tea. With honey, if you like, and some cinnamon. It really works surprisingly well. I like Twinings Chai Tea bags or I add a couple of whole cloves and a cinnamon stick to plain tea. You can also use clove oil (make sure it's food grade, not essential oil). Cloves have antibacterial and antiviral properties...
  8. knitty kitty
    @Wendy.DLH, Welcome to the forum! Do get checked for vitamin and mineral deficiencies. Thiamine Vitamin B One can become depleted very quickly. Correcting Thiamine insufficiency is important in many illnesses. Thiamine deficiency is found in migraines, fibromyalgia, chronic fatigue syndrome, POTS, Celiac, Diabetes, Sjogren's Syndrome...
  9. knitty kitty
    @confusedandsick I couldn't finish a gluten challenge. I had genetic testing done. The Hippocratic oath says "first, do no harm..." Maybe one day a better way of testing will be found. Let's hope it's soon. Some doctors will diagnose Celiac Disease with a genetic test and health improvements on a gluten free diet. Best wishes!
  10. knitty kitty
    @Gilly M, hi! Hope you're doing well. Great to hear about your nonstop weekend! Apologies for my delay. There were some weather related connection problems. Your Vitamin D looks great. I take Thiamine at the beginning of meals and Magnesium at the end of meals. That way, I get some of both throughout the day because they make energy...
  11. knitty kitty
    Hi, Kathy! Yes, I've had the prickily-tinglies under my skin where I couldn't stand clothing (especially polyester and synthetic blended materials). I took to wearing my hair pinned up so it wouldn't be itchy on my neck and shoulders. I took to avoiding hot showers. I found my prickily-tinglies were due to deficiencies in several B Complex vitamins...
  12. knitty kitty
    Itchy skin without any rash can be peripheral neuropathy, frequently caused by vitamin deficiencies common in Celiac Disease. How much gluten were you eating? How many weeks did you eat this amount before the blood tests?
  13. knitty kitty
    Hi, @Grace782617274, I've had a similar experience where I was assured by the restaurant manager they could provide a gluten free meal, and promptly served me a salad with croutons. Heavy sigh. Take it as a lesson learned. The majority of people out there are probably clueless about what's in their food, never mind yours. Ask for wheat...
  14. knitty kitty
    Welcome, @Flower Fairy, We recommend a good B Complex, Vitamin D and magnesium glycinate. Eat green vegetables like kale, broccoli, and mustard greens for calcium. Avoid spinach if you're a stone former! You need magnesium, the eight essential B vitamins and Vitamin D to get calcium into your bones and prevent more from coming out.
  15. knitty kitty
    @Deb67, welcome! You're not the only one! I tried Swheat Scoop many, many years ago. It made me terribly sick, too! It was just another clue on my journey to Celiac diagnosis. You're in good company!
  16. knitty kitty
    @Gilly M, Wonderful to hear you're having improvements! The sleep thing can be improved if you get your Vitamin D level up to a minimum of 80 nMol/L. You can take Vitamin D with each meal throughout the day. Taking larger doses will help refill your depleted stores quickly and is not harmful. Vitamin D helps reduce inflammation and calms down...
  17. knitty kitty
    There's a link between anxiety and panic attacks and Thiamine deficiency. I had panic attacks like you describe. My doctors sent me on the same mental health runaround. It's THIAMINE deficiency. Thiamine is needed to control the fight or flight response. In Thiamine deficiency, that response can be activated with little provocation. "For anxiety...
  18. knitty kitty
    Thanks for clearing that up, @Scott Adams!
  19. knitty kitty
    @Emma R., So happy to hear you're doing better! Are you taking a B Complex or are you taking just B12? Big difference. You need all eight B vitamins, not just B12. This is a good one. https://www.lifeextension.com/vitamins-supplements/item01945/bioactive-complete-b-complex?gclid=EAIaIQobChMIy7e2yK3p_wIVbWpvBB2Mwg0oEAAYASAAEgKx3PD_BwE ...
  20. knitty kitty
    @Emma R., How are you doing? Have your symptoms improved? Have you tried a low histamine diet? Are you supplementing with vitamins and minerals? Hope you're doing better!
  21. knitty kitty
    Yes, loss of appetite is one of the early symptoms of Thiamine deficiency. Thiamine is Vitamin B1. There are eight essential B vitamins. We cannot make them so we must get them from the diet every day. Malabsorption due to the damage done to our small intestine in Celiac Disease can make absorbing sufficient nutrients difficult. Thiamine...
  22. knitty kitty
    @scowt1, Take the appointment with the Celiac Disease specialist. You were not happy with the first doctor. I would not be either. Doctors tend to brush off questions and avoid conversations about things they are not knowledgeable about. Run to the Celiac specialist! Remember, you are hiring the doctor. If they were mechanics...
  23. knitty kitty
    @fergusminto, I found following a low histamine diet and taking certain vitamins that help break down histamine helped me. Here's an explanation of the low histamine diet... https://www.verywellhealth.com/what-is-a-low-histamine-diet-4694529 And... Low-Histamine Diets: Is the Exclusion of Foods Justified by Their Histamine Content...
  24. knitty kitty
    The "why?" can also be related to the nutritional deficiencies that most Celiacs develop, not only before diagnosis, but afterwards when these deficiencies are not corrected or worsen on the gluten free diet.
  25. knitty kitty
    Blood levels are not an accurate measurement of vitamins in your body. Most vitamins are used inside cells of organs. The brain likes to keep a certain level in the blood to supply important organs like the brain and heart. So the brain orders the cells to give up their vitamin stores in order to keep the blood homeostasis and supply the brain and heart...
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