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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Okay, sorry. I did not understand you were not asking for yourself but for, I assume from your screen name, your son? How old is he? It can be painful when family and friends are not onboard with the diagnosis of celiac disease but many on this forum have and are struggling with that dynamic. You should read this article that appeared in the forum. I...
  2. trents
    Yogurt is a fermented milk product. The fermentation process alters the protein and the lactose (milk sugar) so that they can cause less problems for those who are intolerant to cow's milk. This is very common. But it sounds like you need to become more consistent in avoiding gluten. This may be of help to you:
  3. trents
    I understand that you want to avoid the pain and damage to your villi. But if you have NCGS, consuming gluten won't damage your villi. It doesn't have to be bread. Just the gluten equivalent of two slices of wheat bread. It could be pasta instead. If you can't or won't eat gluten for the prescribed period then you cannot be tested correctly and...
  4. trents
    But you didn't answer my question. In the weeks before the blood draw to check for celiac antibodies, were you eating a substantial amount of gluten? The Mayo Clinic recommends the daily consumption of two slices of wheat bread daily (or the gluten equivalent) for 6-8 weeks leading up to the blood draw for celiac antibodies. If you were avoiding gluten...
  5. trents
    Welcome to the forum, Lindquist! You have it backwards. If you are gluten intolerant, that would be the reason for your GI distress and headache. Can you be more specific about the tests that were run by your doctor for detecting celiac disease? What were the names of the tests and what were the numerical results and the ranges for the tests as...
  6. trents
    Welcome to the forum, momtoceliac! It takes on the average about 2 years for the damaged intestinal villi to heal. Concerning low iron and anemia, have you been checked for pernicious anemia? It's anemia characterized by an inability to assimilate iron from the diet because of damage to the parietal cells in the stomach which are responsible for...
  7. trents
    As a matter of fact, one of the meds that can damage the small bowel villi is a blood pressure medication. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5198241/ PPI's (acid blockers) and NSAIDs like Advil can also damage villi. General non-gluten causes of villous atrophy: Having said all that, in the majority of cases...
  8. trents
    Welcome to the forum, Graziellia! Is your mother still consuming dairy and oats, even gluten free oats? What medications is she taking? There are some foods and some medications that mimic the effect of gluten on the small bowel villi and cause inflammation. What about vitamins and supplements? Are they all gluten free? Wheat starch can be...
  9. trents
    Here is the last paragraph summary from the article's abstract: "Our findings indicate that celiac disease patients possess T cells capable of responding to immuno-dominant hordein epitopes and homologous avenin peptides ex vivo, but the frequency and consistency of these T cells in blood is substantially higher after oral challenge with barley compared...
  10. trents
    Didn't know they used PPI's with children. Really? Well, that was not the cause of my celiac disease since they didn't have such things when I was a kid. Baking soda was about it.
  11. trents
    Thanks for getting back to us with results. Now you know the reason for your health issues and can begin to address it.
  12. trents
    An emergency wait list? That sounds like a contradiction in terms. What kind of symptoms is your daughter having? Is she quite ill?
  13. trents
    Kristin, most of us go through this to one degree or another. Part of the solution is trying different gluten-free products until you find ones that taste good. There are a lot more options out there than there were 20+yr. ago when I was diagnosed. For some foods there is no good gluten-free facsimile available yet but for many there are. Another part is...
  14. trents
    Welcome to the forum, drewbie1776. Have you been diagnosed with either celiac disease or NCGS (Non Celiac Gluten Sensitivity)? If the answer is yes to either, are you practicing a gluten free diet in a committed way?
  15. trents
    B12 is water soluble so it is not toxic in large amounts. You just pee it out if you take more than the body can use. Yes, take as many as you need to. 1000ug is not a high amount per pill anyway.
  16. trents
    Or, already have NCGS if not celiac disease.
  17. trents
    After rereading your original post I just want to reinforce what I already said about continuing to consume gluten until all testing is done. Sounds like your son is only getting sporadic exposure to gluten. The Mayo Clinic guidelines for pretest gluten challenges is the daily consumption of two slices of wheat bread (or the gluten equivalent) or 6-8 weeks...
  18. trents
    It is also possible that your son has NCGS (Non Celiac Gluten Sensitivity) which is 10x more common that celiac disease but for which there is no test. celiac disease must first be ruled out. They share a lot of the same symptoms.
  19. trents
    Welcome to the forum, BamaGal78. It is not uncommon for total IGA to be low in children and for their immune response with regard to celiac disease to be atypical. Their immune systems are still immature. When total IGA is low, it will depress the numbers for individual IGA scores. That underscores the importance of getting a "full celiac panel" performed...
  20. trents
    Gluten interacts with brain cells much like opiates and has addictive properties: https://justthrivehealth.com/blogs/blog/you-may-be-addicted-to-gluten
  21. trents
    Sounds like you could be suffering from depression and maybe anxiety disorder. These mental health conditions can have a nutritional deficiency basis, at least in part, which goes hand in hand with long-term unattended celiac disease. Do you have any meaningful support from family/friends? I might suggest also connecting with mental health services. You seem...
  22. trents
    The Mayo Clinic guidelines for a gluten challenge leading up to the endoscopy/biopsy is two slices of wheat bread daily (or the gluten equivalent) for at least two weeks prior to the procedure. Four weeks should be plenty good. I would make those two slices regular wheat bread and not sourdough as the fermentation process that creates the tangy taste in sourdough...
  23. trents
    Still, if you have celiac disease you might not be getting enough D from the sun because you aren't absorbing it efficiently from your diet. Also, we are discovering that the optimum amount of D is considerably greater than what the established minimum daily requirement is.
  24. trents
    There have been many attempts at a "celiac pill" that did not prove viable in the latter rounds of trial testing. And we were disappointed. So I have guarded optimism.
  25. trents
    This might help you get off to a good start as eating truly gluten free is not as easy as first meets the eye:
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