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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Yes, it's a tough decision. No one can tell you what to do. But let me share with you something I have learned in my 70 years on earth. We start out with dreams and goals that aren't always possible to fulfill in their original form. Typically, they represent things we enjoy and do well with. But often, life intervenes and we have to modify the original dream...
  2. trents
    I was officially diagnosed with celiac disease 20 years ago using both the antibody test and the endoscopy/biopsy. Besides gluten, I have developed a partial intolerance to eggs so I don't eat many of them. So, I am not self-diagnosed. I rotate between oatmeal, buckwheat and Might Tasty Hot cereal (mostly corn meal and sorghum). By the way, sorghum and qinoa...
  3. trents
    A person with pernicious anemia can swallow B12 pill all day long and it won't impact their anemia because they aren't assimilating the B12 since they lack intrinsic factor. You should read this to get a proper understanding of pernicious anemia: https://pernicious-anaemia-society.org/pernicious-anaemia/ As I said, the parietal cells are killed off by...
  4. trents
    Most who are gluten intolerant have no issues with these "fake grains." They are widely considered safe alternatives to wheat, barley and rye. Of course, there will always be some people who don't tolerate one or more of them.
  5. trents
    So how do you know you had pernicious anemia and not regular anemia? If lack of animal protein consumption can cause pernicious anemia then whey aren't more vegetarians and vegans afflicted with it?
  6. trents
    Please provide a research link that not eating enough animal protein can cause pernicious anemia. You make a lot of assertions that you provide no evidence for except referencing this Dr. Osborne. Not eating enough red meat can contribute to normal anemia because it may result in insufficient dietary intake of iron. But pernicious anemia is a different...
  7. trents
    Pernicious anemia is not caused by not eating enough animal protein. Pernicious anemia is caused by the death of parietal cells in the stomach that secrete an enzyme known as intrinsic factor. Intrinsic factor is necessary for the absorption of B12 which in turn is necessary for the assimilation of iron in the diet. I'm guessing the death of the parietal...
  8. trents
    Sorry, my mistake about the DH. It was included in another post you quoted that was made by someone who does have DH. My concern is that you may be missing a health issue that is not related to gluten. Have you looked into SIBO? It is true not many medical doctors know much about nutrition but it is possible the distress you feel when eating grains is...
  9. trents
    No rash? But you say you have DH which is a rash.
  10. trents
    I are not doubting that various grains cause you physical distress but what I and others on this forum are challenging you on is your indiscriminate use of the term "gluten" in connection with other cereal grains besides wheat, barley and rye. And if Dr. Peter Osborne says these other grains contain gluten he is wrong. By the way, Dr. Osborne is not a medical...
  11. trents
    Should be unless you are one of those celiacs who can't tolerate the oat protein avenalin. Avenalin is similar to gluten in structure. Affects about 10% of celiacs.
  12. trents
    LiJ, you say you have been diagnosed with gluten intolerance. Do you mean celiac disease or non celiac gluten intolerance (NCGS)? What symptoms do you experience when consuming gluten? Even when wheat flour is in the air it can get into our guts through breathing as it gets trapped by the mucous in our air way and mouths. Some of that mucous eventually drains...
  13. trents
    The OP lists the things that he is "down to" in his restrictive diet back in post #1 and dairy is not among them.
  14. trents
    Gluten is a specific protein found only in wheat, barley and rye. It goes by no other name. There are somewhat similar proteins found in other cereal grains but technically speaking, they are not gluten. https://www.beyondceliac.org/gluten-free-diet/is-it-gluten-free/rice/ "Yes, all rice (in its natural form) is gluten-free. This includes brown rice...
  15. trents
    The gluten containing grains are wheat (in its several varieties), barley and rye. Strictly speaking, rice does not contain gluten and neither do oats, though I have heard of "oat gluten" used informally. About 10% of celiacs react to the oat protein avenalin like they do gluten. Lots of people with celiac disease (e.g., those who can't tolerate gluten) don...
  16. trents
    Too bad the physician didn't include a total IGA score along with the tTG-IGA. If total IGA is low it can give artificially low scores in individual antibody scores. Do you have access to any biopsy results/Marsh scores? I'm not clear on whether or not you have ever had the endoscopy/biopsy for celiac done.
  17. trents
    You only have a few minutes to perform an edit. Try creating a brand new post and then immediately try the three dots looking for the Edit function. The edit time window was recently reduced by our administrator because spammers were abusing the edit function.
  18. trents
    If you click on the three dots at the upper right corner of one of the posts you have already made you will see a choice to "Edit." Click on that and it will give you attachment tools at the bottom of the edit window.
  19. trents
    Yes, damage to the villi can be patchy and missed by inexperienced doctors doing the biopsies. Numerous samples need to be taken from various areas of the duodenem.
  20. trents
    There is not just one antibody test that can be run. The most common is the tTG-IGA and the only one many physicians will order. Do you have or can you get a copy of the results that will specify what antibody test or tests were actually run? Do you have online access to your medical records? We would also need the reference ranges. Scores without reference...
  21. trents
  22. trents
    When's the last time you had a follow-up antibody test or biopsy?
  23. trents
    What about SIBO?
  24. trents
    It's so frustrating when you have to work around all these food issues. Gluten, histamines, oxalates, dairy, oats and what did I leave out? Seems like every food that is nutritious has some downside in it for some people.
  25. trents
    Probably due to cross contamination from being cooked on the same grills or in the same vats as breaded food items.
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