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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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That sounds like an allergic reaction rather than either a celiac or a gluten sensitivity reaction.
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What kind of reaction? Did your lips swell as described by the original poster in this thread or something else.
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News: Celiac.com: Caulipower Launches in Canada
trents replied to Scott Adams's topic in Publications & Publicity
IGga test? Do you mean IGG? Pilgrimgirl, You really need to get screened for celiac disease with tests that are specifically for celiac disease. You need to get several IGA tests run. Sounds like you got allergy/food sensitivity testing done but not celiac disease testing. Do you understand there is a difference between gluten sensitivity and celiac... -
Children with Celiac and parenting
trents replied to Mommy's topic in Parents, Friends and Loved Ones of Celiacs
Not specifically that I know of. Zonulin has been identified as the regulator of spacing between the cells that line the small bowel. So, therapies for leaky gut are being investigated that involve zonulin but no breakthroughs yet. There is just a lot that isn't yet known yet about how it works and how to manipulate it. Since there is a connection between...- 8 replies
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- getting glutenned
- missing school
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(and 2 more)
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Has an iron supplement been considered? Ferritin is low but what about hemoglobin and hematocrit? What vitamin and mineral deficiencies has he been tested for? Has he had an edoscopy with biopsy done yet to test for celiac disease. We get some people with damaged villi that show up in the biopsy but not in the antibody tests.
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News: Celiac.com: Caulipower Launches in Canada
trents replied to Scott Adams's topic in Publications & Publicity
How were you diagnosed with gluten sensitivity? Really, the only reliable way to arrive at that diagnosis is to first rule out celiac disease through testing designed to detect celiac disease. Many of the symptoms between the two are essentially the same. Testing for celiac disease can be done in one or two ways or both. The first way involves a blood draw... -
High ferritin in coeliac blood test
trents replied to Louise1991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have only seen anemia of chronic disease in the frail elderly. -
High ferritin in coeliac blood test
trents replied to Louise1991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, Louise. You might want to google hemochromatosis with regard to the high ferritin levels. -
Children with Celiac and parenting
trents replied to Mommy's topic in Parents, Friends and Loved Ones of Celiacs
I think leaky gut and celiac go hand in hand. My understanding is that the theory is that it may be kind of a chicken and the egg question in the since of which causes which.- 8 replies
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- getting glutenned
- missing school
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(and 2 more)
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News: Celiac.com: Caulipower Launches in Canada
trents replied to Scott Adams's topic in Publications & Publicity
But you do not have celiac disease, correct? -
Children with Celiac and parenting
trents replied to Mommy's topic in Parents, Friends and Loved Ones of Celiacs
Welcome to the forum, Mommy! It is common for celiacs to develop other food intolerances/allergies because of the "leaky gut" syndrome that accompanies celiac disease. Common among them are dairy, soy, corn and eggs. But it can be almost anything. It might be helpful to keep a food diary for your daughter to see if any patterns turn up between what she...- 8 replies
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- getting glutenned
- missing school
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(and 2 more)
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Klonopin And Gluten?
trents replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
WRBO I think means Wheat Rye Barley Oats. The first three are the gluten containing grains and oats contain a protein (Avenin) that is suspected to cause gluten-like reactions in about 10% of celiacs. -
I hate not knowing!
trents replied to PixeI's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As ravenwood glass said, having the gene does not equate to having celiac disease. Most who have the gene or genes do not become celiacs. It also takes some kind biological stress event (such as a viral infection) to activate the disease and turn what is genetic potential into active celiac disease. But, many people have a "silent" form of the disease in... -
And to be our own medical advocates by being appropriately assertive.
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Interpreting test results
trents replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That is true in the USA as well. -
Interpreting test results
trents replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
RMJ, I was just extrapolating on what I have heard Scott say about antibody numbers below the cutoff line for positive, or at least what I understood him to say. He never said normal = zero but he has said that small numbers near the cutoff line may still indicate a celiac process is going on. I respect Scott's opinion in these matters since he has been involved... -
Interpreting test results
trents replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Some would say that normal = zero. In other words, even small numbers indicate inflammation is going on. Have you and your husband had genetic testing done yet? Your hubby certainly has a lot of symptomatic phenomenon that is characteristic of celiac disease. But from the medical community's standpoint, his numbers don't warrant additional testing. I wonder... -
Interpreting test results
trents replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As you are discovering, deanna, there is so much ignorance about celiac disease, even in the medical community, that people will almost always get a negative answer from family members when asking if it runs in the family. Celiac disease is a medical new boy on the block, even though there is historical evidence that it has existed since antiquity. People... -
Klonopin And Gluten?
trents replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
It should be gluten free and okay for celiacs. However, some celiacs develop and intolerance to corn apart from any gluten issue just as they do dairy, soy, eggs, etc. because of leaky gut. -
I would suggest you get some bloodwork done to get a better idea of what might be causing this. Not every medical problem is related to having celiac disease. How's your insurance?
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Have you had any blood work done lately to check for anemia, vitamin and mineral deficiencies? Read meat is absolutely the best natural source of iron and of the most easily assimilated kind of iron (heme iron). There is a form of anemia called "pernicious" anemia related to being unable to assimilate B12 because of lack of something called "intrinsic factor...
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I wouldn't think one week of vegan eating would bring on anemia unless your iron levels were already borderline. But do keep in mind that there are no vegetable sources of B12 except some fermented cabbage products and B12 is vital to iron absorption.