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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Good input from Jen1975. You would need to have been eating regular amounts of gluten (defined as two slices of wheat bread daily or the equivalent amount of gluten) before testing for 6-8 weeks for the antibody tests and for at least 2 weeks before the endoscopy/biopsy.
  2. trents
    Andre, you might want to look at hot cereals. My favorite has become buckwheat groats. It's the seeds of a plant in the same family as Rhubarb and not related to wheat. Delicious! But it is a long cook cereal, about 10 minutes: https://smile.amazon.com/Organic-Hulled-Buckwheat-Groats-Anthonys/dp/B00QKXVAN2/ref=sxts_rp_s1_0?crid=2RE86Q2DTPK9Z&cv_ct_cx...
  3. trents
    Thanks for the correction, clarification and additional information. You can add pictures with any new post by clicking on the paperclip symbol in the lower left corner of the post text box before hitting the "Submit Reply" button. After a post is made you can add a picture later by clicking on the three horizontal dots in the upper right corner of the...
  4. trents
    You are correct. IGE is for allergies. An entirely different immune system pathway. Here is a description of tests that can be run for celiac disease and their strong and weak points: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ If you don't get any cooperation from your doctor soon, I advise getting another one. Also...
  5. trents
    " . . .but my celiacs gene wasn't active." Have you had genetic testing done and if so, did it turn up that you have either or both of the genes for celiac disease that have been identified with the disease so far? The only way to know if your celiac genes are currently actively expressing themselves is to get proper testing to rule out celiac disease as...
  6. trents
    That sounds like an allergic reaction rather than either a celiac or a gluten sensitivity reaction.
  7. trents
    Make sure the Gaviscon, Bentyl and any ofther meds/supplements you are taking are gluten free.
  8. trents
    What kind of reaction? Did your lips swell as described by the original poster in this thread or something else.
  9. trents
    IGga test? Do you mean IGG? Pilgrimgirl, You really need to get screened for celiac disease with tests that are specifically for celiac disease. You need to get several IGA tests run. Sounds like you got allergy/food sensitivity testing done but not celiac disease testing. Do you understand there is a difference between gluten sensitivity and celiac...
  10. trents
    Not specifically that I know of. Zonulin has been identified as the regulator of spacing between the cells that line the small bowel. So, therapies for leaky gut are being investigated that involve zonulin but no breakthroughs yet. There is just a lot that isn't yet known yet about how it works and how to manipulate it. Since there is a connection between...
  11. trents
    Yes. Tis true.
  12. trents
    Has an iron supplement been considered? Ferritin is low but what about hemoglobin and hematocrit? What vitamin and mineral deficiencies has he been tested for? Has he had an edoscopy with biopsy done yet to test for celiac disease. We get some people with damaged villi that show up in the biopsy but not in the antibody tests.
  13. trents
    Concerning dairy consumption via cheddar and yogurt to eliminate some of the lactose, a dairy intolerance can have nothing to do with lactose which is the sugar component in dairy. It can also be due to the protein component found in dairy called casein.
  14. trents
    How were you diagnosed with gluten sensitivity? Really, the only reliable way to arrive at that diagnosis is to first rule out celiac disease through testing designed to detect celiac disease. Many of the symptoms between the two are essentially the same. Testing for celiac disease can be done in one or two ways or both. The first way involves a blood draw...
  15. trents
    I have only seen anemia of chronic disease in the frail elderly.
  16. trents
    Welcome to the forum, Louise. You might want to google hemochromatosis with regard to the high ferritin levels.
  17. trents
    I think leaky gut and celiac go hand in hand. My understanding is that the theory is that it may be kind of a chicken and the egg question in the since of which causes which.
  18. trents
    But you do not have celiac disease, correct?
  19. trents
    Welcome to the forum, Mommy! It is common for celiacs to develop other food intolerances/allergies because of the "leaky gut" syndrome that accompanies celiac disease. Common among them are dairy, soy, corn and eggs. But it can be almost anything. It might be helpful to keep a food diary for your daughter to see if any patterns turn up between what she...
  20. trents
    WRBO I think means Wheat Rye Barley Oats. The first three are the gluten containing grains and oats contain a protein (Avenin) that is suspected to cause gluten-like reactions in about 10% of celiacs.
  21. trents
    As ravenwood glass said, having the gene does not equate to having celiac disease. Most who have the gene or genes do not become celiacs. It also takes some kind biological stress event (such as a viral infection) to activate the disease and turn what is genetic potential into active celiac disease. But, many people have a "silent" form of the disease in...
  22. trents
    And to be our own medical advocates by being appropriately assertive.
  23. trents
    That is true in the USA as well.
  24. trents
    RMJ, I was just extrapolating on what I have heard Scott say about antibody numbers below the cutoff line for positive, or at least what I understood him to say. He never said normal = zero but he has said that small numbers near the cutoff line may still indicate a celiac process is going on. I respect Scott's opinion in these matters since he has been involved...
  25. trents
    Some would say that normal = zero. In other words, even small numbers indicate inflammation is going on. Have you and your husband had genetic testing done yet? Your hubby certainly has a lot of symptomatic phenomenon that is characteristic of celiac disease. But from the medical community's standpoint, his numbers don't warrant additional testing. I wonder...
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