Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

1,069 Excellent

About ravenwoodglass

  • Rank
    Advanced Community Member
  • Birthday July 31

Contact Methods

  • ICQ 0

Profile Information

  • Gender Female
  • Interests Gardening, photograpy, painting and drawing, textile arts, glass art, reading
  • Location Upstate NY

Recent Profile Visitors

57,464 profile views
  1. So sorry you are having such a very hard time. Have you been back to your GI for retesting to check your antibody levels and the state of your villi?  If not it would be a good idea to get that retesting done. While it is quite rare there is the possiblility of refractory celiac. Hopefully that is not the what is going on but if it is the doctor may be able to do something to help.  
  2. New here

    There are folks that will have nasty reactions to large, or at times very small (case for me) artificial sweeteners.  They can also be quite addictive. It would be a really good idea to cut down your intake, or ideally stop the diet soda altogether. It could be contributing to your need for hospitalizations. Or even be the root cause for them.
  3. Karen, welcome to the board. With everything you have done it is highly unlikely there is gluten still in that room that is causing your issues. Please read the Newbie 101 thread at the top of the Coping page. It will help you pinpoint the cause of your continued issues. How long have you been diagnosed?  What are the symptoms you are getting? There could be something else you are reacting to or it could be you are reacting to something else that you had eaten or been in contact with before you go into the room. Gluten reactions are usually delayed by a bit which can make it hard for us to figure out what is getting us.  
  4. Will doctor number 1 give you an official diagnosis?  It sounds like your blood work was high enough that there is no doubt in that doctors mind. You are also responding well to the diet. If you could get the biopsy in a week or so then personally I would go for it. Since you can't have one until the end of January you would have two choices, stay on gluten until then or challenge for a few weeks before the procedure.  Reactions after we have started to heal can be more intense than they were before we went gluten free. Personally I would go with doctor 1 as long as he will put your official diagnosis in your medical record. With storngly positive blood test results the chances of a false positive are basically nil.
  5. So sorry to hear that your little fur friend is having these issues. Have you had him seen by your vet? He is getting up there age wise and these issues could have a number of causes.  You might want to think about also giving him steps or a ramp up to your bed. He may have just landed wrong and strained something or he could be getting arthritic although that wouldn't account for the spasms as far as I know. Cats can be in a great deal of pain and not show it so a trip to the vet would be ideal. If you can get him in when he is having an episode that would be helpful. As far as grain free foods go there are many on the market. I give my kitties Goodlife. It does have brown rice but seems to be a good quality and my kitties do well on it. Hopefully others will be on with some good grain free ideas for you. I hope what is going on with your kitty isn't serious and that he is back to his old self soon.
  6. Clinique cosmetics

    I don't see anything that would be a problem with the 3 products you listed. If they agree with your skin and you like them you should be safe gluten wise with those. Do check any other products especially lipsticks before using as not all their products are gluten free.
  7. I feel like I am drowning.

    Welcome. It is hard at first. More than a few of us have broken into tears at the grocery store during the first few days or weeks. Some of us also go through a withdrawl which can contribute to the depression and anxiety about all the changes we have to go through. It will get better. Try to concentrate on all the naturally gluten free food that is around especially at first. Fresh meats, chicken, fish, eggs, potatoes, fruit, rice and plain veggies etc are all naturally gluten free. With 5 kids you are likely very busy so things like a crock pot or cooking in large batches and freezing will be helpful. Do be sure to get the kids checked. If they are negative on the first test make sure that you retest every 2 years or so. Celiac can hit at any age so do let your parents and siblings know they also should be tested. I can't stress enough that things will get better. The trade off for all the hassle is being healthy for yourself and your family. Do check out the recipe section and I hope you heal quickly.
  8. Need Neurology Recommendation SF Bay Area/Peninsula

    Sorry it has been so long with no reply for your query.  A neurologist is not likely to be able to help. Many are not even familiar with the neuro effects of celiac. What will help is time and being extremely careful to take all the precautions humanly possible to avoid CC. Have you had your B12 levels checked? It is ideal to have past results to compare with a present reading if possible. From what I understand our bodies can loose the ability to utilize B12 even if results are still in a 'normal' range so being able to look at a dropping pattern can be helpful. If your levels are near or below 500 sublingual B12 or B12 injections may be helpful in your healing. If you can't get those levels checked then go ahead a get a sublingual B12 at the drug store and take it for a bit. It is a water soluable vitamin so you will excrete the excess. It is important to get the sublingual as that bypasses the damaged gut. The nervous system can take a very long time to heal but for many it will. If you have any movement problems a physical therapist can also be helpful. Mine got me walking normally for the first time in my life.  Folks like myself who went many, many years without a diagnosis can suffer some permanent damage but that doesn't happen with everyone.  It is hard to be patient when that patience can be required for at times years but hang in there.
  9. They make full spectrum lightbulbs. Perhaps that might help? I don't know if they would help with D production but might be worth a try. Sorry you are still suffering so much and hope you get some relief soon.
  10. Your description describes my gluten reaction perfectly except I am usually toilet bound for 3 to 5 hours. Is there any chance you could be getting gluten CC anywhere? Have you read the Newbie 101 thread at the top of the Coping section? It could clue you in on ways you may be getting CC. It doesn't sound like you have been gluten free for very long and it can take some time to heal and get used to all the little things we have to do to keep us safe.
  11. Your friend needs to see a GI ASAP. If money is an issue for more testing most hospitals will work with her for payment or in some circumstances may even cover the cost of testing in part or completely. 30 lbs in a month is a lot and she could have something very serious or even fatal. I hope she can get some help soon.
  12. I Can't Help But Wonder About This...

    I have DH and I did have to avoid iodine for a while after I went gluten free. I didn't have to worry about naturally occuring iodine in foods I just dropped iodized salt and made sure any supplement didn't contain iodine. (Some may have to be that extreme but I didn't). I also didn't worry about salt added to stuff that was prepared and even potato chips didn't have an adverse effect. I think if companies used iodized salt then I would have never healed DH wise. Perhaps contact the FDA for their regs on the salt added to prepared foods. They would be able to tell you for sure if iodized salt was commonly used or needs to be noted on the label.
  13. You need protein and carbs. I do hope you are not eating just tuna everyday for a protein source. You don't want tuna more than a couple times a week. Add in some eggs, chicken, beef or pork. If you are not much of a meat eater then go with beans and rice, nuts and nut butters.  Add some freshly crushed hemp seeds to your salads. A good source of protein that is easy to digest. You can get a gluten-free Hemp milk. I liked the chocolate when I was trying to gain. Quinona is naturally gluten free. I wouldn't worry about it saying gluten-free. There is a pasta with that and corn however I don't remember the name of it off hand. There are quite a few gluten free pastas. You may want to try some of the cooked veggies mixed with one and smothered in olive oil or butter. On busy days I will boil some frozen veggies and garbanzo beans (canned, rinsed and drained) and at the end of the cook I throw in Thai Kitchen skinny rice noodles then smother it with butter and parmesan cheese. Plenty of calories and protein and you could use olive oil if you are avoiding dairy. I am sure others will have more ideas for you.
  14. Testing Questions

    Being strictly gluten free will take care of the rash although it will take some time to heal and for the antibodies to leave the skin. Even the tiniest amount of CC will reactivate the rash. If you do choose to use Dapsone please make sure your doctor runs a liver panel first and that the panel is rerun frequently while you are on it as that med is quite toxic. People with celiac can have liver impact from the disease so it is vital that you make sure your liver hasn't already been impacted.
  15. It is never a good idea to buy stuff from bins. The chances of cross contamination are very high. I hope you are feeling better soon.