Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Wanted To Say Thanks To Everyone For Being So Great!

Sweetfudge

Recommended Posts

Sweetfudge Community Regular
Sweetfudge
Posted

So I've spent some time on another forum (which will remain nameless), and I've shared some personal problems...all I ever seem to get from the people there are criticisms. They just have no regard for how their words make me feel. I'm just happy that I have you all to vent to and help me through my problems in a constructive way! You all rock! ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Canadian Karen Community Regular
Canadian Karen
Posted

Rant away here, you're safe! It's quite therapeutic, eh? ;)

Hugs.

Karen

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

Glad you found all of us here, I felt the same way when I first came here. I thought I was the only person in the whole world with this condition. That I was going to wallow in my own self pity for the rest of my life.... boy was I wrong. I dont even think celiac anymore. Its just my way of life now.. it becomes so natural, its like I was never any other way.

The people here are great. Always supportive, no matter what.

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

Mean people suck!

Our peeps are the greatest!

jerseyangel Proficient
jerseyangel
Posted

Stick with us, Sweetfudge--you're safe here :)

Ursa Major Collaborator
Ursa Major
Posted

You're so right about other forums. I've been a member of many forums, for fibromyalgia, Asperger Syndrome (three of those), Tourette Syndrome, and this is the first one where I've really felt safe.

It seemed on other forums, the nice people (or defenseless ones, like me) get bullied until they leave. Here, any bullies that start treating others badly, are made to leave instead. It's a great place to be.

Jestgar Rising Star
Jestgar
Posted

I think that ever being so miserably depressed while eating gluten, how could I possibly find anyone else's comments or experiences something to grouch about?? :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Sweetfudge Community Regular
Sweetfudge
Posted
  • Author
I think that ever being so miserably depressed while eating gluten, how could I possibly find anyone else's comments or experiences something to grouch about?? :D

lol!

thanks all! :)

Guest nini
Guest nini
Posted

this is a really great site! Thanks to Scott for creating it, and thanks to all the wonderful friends I've met here!

luvs2eat Collaborator
luvs2eat
Posted

I agree... I've learned so much here and know I can ask anything and get experienced and tolerant answers!!

happygirl Collaborator
happygirl
Posted

just as happy as you are to have us, we are happy to have you part of our family!!!

taweavmo3 Enthusiast
taweavmo3
Posted

Yep...had a bad experience too on another celiac forum, and now this is the only place I post. The people here are absolutely awesome, I learn something new everyday. Thanks, ya'll!

floridanative Community Regular
floridanative
Posted

I also agree as this type of forum goes, celiac.com can't be beat. Only very few negative people told me some things that thank goodness turned out not to be true. I ignored them and plunged on learing this new way of life. Now I find I don't have time for this board as much so I love listserv since I it's quick and you may be able to help someone and if not you just don't reply. But when you really need help with a product or anything really, someone on this board is likely to be able to, and take the time to help you. Some of the boards out there are so fanatical they are scary. I got some really bad medical advice from several people on such a board. When their advice about exactly what type of supplement to take turned out to be wrong, I left and never looked back.

Though it's been said before - special thanks to Nisla and Patti as they let me know I would be okay when I was so scared in the very beginning. Happy Holidays guys!

Lisa Mentor
Lisa
Posted

Oh yes, it was not so long ago when I was panicked, struggling and clueless about Celiac Disease. This was my first experience on a message board, as many of you remember. Kaitie, celiac3270, Karen, Lynne, Patti, Judy, Mouse, Rachel, richard, Shirley, as well as others, walked me through this maze, and with their help, I found my way out. Many have become dear friends.

I truely could not have become healthy without ALL of you and I give you my thanks. :)

PS: That's about as sappy as I get, so enjoy it. :P

Lisa

grantschoep Contributor
grantschoep
Posted

Agreed to the idea "this site is great".

I've been on many other sites. Gluten related and ones that are not. So many of the replies to questions are of the following.

1. You didn't say where you were from. You must say where your from.

2. "Search.... this question has been asked 100 times..."

3. Or simple one off "me too" or "ya that". Yes in away this post is one of those, but it contains more letters that "yea that"

Ahh... I just had to rant.

Lisa Mentor
Lisa
Posted

This is such a great post, I just wanted to bump it up a bit.

Kaycee Collaborator
Kaycee
Posted

This place is awesome, I have had experiences elsewhere where I was belittled and made to feel I was making everything up. I felt I had to keep on defending myself.

But here I can just say as much or as little as I want without getting the third degree. It is very therapeutic to just sit and type, it makes me feel better.

The best part, as far as my family is concerned, as I have become a bit obssessed with coeliac, is that I don't bore them to tears with it.

Cathy

jesscarmel Enthusiast
jesscarmel
Posted
Agreed to the idea "this site is great".

I've been on many other sites. Gluten related and ones that are not. So many of the replies to questions are of the following.

1. You didn't say where you were from. You must say where your from.

2. "Search.... this question has been asked 100 times..."

3. Or simple one off "me too" or "ya that". Yes in away this post is one of those, but it contains more letters that "yea that"

Ahh... I just had to rant.

i had the same experience and laughed when i read the thing about "say where you are from" i also hated how you HAD to say "eating out is risky" everytime you mentioned a restaurant!! lol

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Haugeabs
      - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil. Gluten free but not certified gluten free. Soy free, GMO free.
    2. trents
      - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even...
    3. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      That is the goal, after all.
    4. Wheatwacked
      - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine. Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years. Doctor recently said to not stop. My 25(OH)D is around 2...
    5. Known1
      - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing your thoughts. I respectfully disagree. You cherry picked a small section from the page. I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,413
    • Most Online (within 30 mins)
      7,748
    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Haugeabs
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Haugeabs · Posted

      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By trents · Posted

      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      That is the goal, after all.  
    • Wheatwacked
      Blood results

      By Wheatwacked · Posted

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Known1 · Posted

      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.