Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

To All Our Guests....

Lisa

By Lisa
in Introduce Yourself / Share Stuff

Recommended Posts

Lisa Mentor
Lisa
Posted

To all of those who read, learn and are searching...please feel free to join us. It's affirming to know that you are not alone, to find others who can help trouble-shoot your concerns, get assistance from those who can point you in a direction or just to seek comfort in those who have walked in your shoes.

Not all answers can be found here, but it's a good beginning.

Join us! :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Financialman Newbie
Financialman
Posted

Hi Lisa,

I am brand new to this forum but not to Celiac disease. I finally decided to get involved in a Celiac forum and I am totally amazed with how many people are involved in this one. I hope to be able to add my voice and help all the newbie Celiac members.

Lisa Mentor
Lisa
Posted
  • Author

Hi Lisa,

I am brand new to this forum but not to Celiac disease. I finally decided to get involved in a Celiac forum and I am totally amazed with how many people are involved in this one. I hope to be able to add my voice and help all the newbie Celiac members.

GREAT! Looking forward to it! :D

jerseyangel Proficient
jerseyangel
Posted

Welcome Financialman! :D

  • 3 weeks later...
mom2three23 Newbie
mom2three23
Posted

I was recently diagnosed and am just trying to get my bearings and came across this site! I am so happy I could cry . . . I have so many questions, and yet feel I'm so 'green' I'm not even sure what questions I should be asking. Short of a diagnsis - of which I basically handed to the doctors after years of being sick, at times quite seriously - the doctors haven't been much help at all. So I have become an internet junkie! SO happy to have "found" you!

Lisa Mentor
Lisa
Posted
  • Author

I was recently diagnosed and am just trying to get my bearings and came across this site! I am so happy I could cry . . . I have so many questions, and yet feel I'm so 'green' I'm not even sure what questions I should be asking. Short of a diagnsis - of which I basically handed to the doctors after years of being sick, at times quite seriously - the doctors haven't been much help at all. So I have become an internet junkie! SO happy to have "found" you!

WELCOME!!!

No matter where you have been, there is someone here that has walked in your shoes. :)

So glad you have joined us.

Judy3 Contributor
Judy3
Posted

I've been on this site for a few months since my diagnosis and you guys have been very helpful and friendly. I'm doing excellent now on the gluten free diet or 'the celiac diet' as my gastroenterologist refers to it. Welcome to the new people, we need all the voices we can get so this isn't so difficult.

:D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Bookworm25 Newbie
Bookworm25
Posted

Hi,

I have always been coeliac so in one way it is good as I do not know what I am missing, if indeed I am missing anything at all! I do however get a twinge of jealousy as my friends order anything they like from restaurants and their food shopping trips are quicker as they do not have to check all the ingredients but it certainly could be worse!

I have only recently joined this site and already there is a lot of help on here!

Natasha

Financialman Newbie
Financialman
Posted

Hello to everyone. It looks like community is growing,slowly, but growing. I have been spending time looking around for the last two weeks or so and there is a wealth of information here. We need to recommend this forum to all our Celiac friends. :)

Financialman Newbie
Financialman
Posted

I forgot to ask Jerseyangel how you were able to have over 18,812 posts on this forum since 2005? :)

kareng Grand Master
kareng
Posted

I forgot to ask Jerseyangel how you were able to have over 18,812 posts on this forum since 2005? :)

She talks a lot ( like me) :ph34r:

psawyer Proficient
psawyer
Posted

I forgot to ask Jerseyangel how you were able to have over 18,812 posts on this forum since 2005? :)

Over 6,600 of them are in one topic. :blink:

jerseyangel Proficient
jerseyangel
Posted

I forgot to ask Jerseyangel how you were able to have over 18,812 posts on this forum since 2005? :)

:lol: As my friends have pointed out (and thank you both so much...Peter with statistics, even... :blink: )-- I do like to talk....but silly-ness aside, back in 2005 I had been undiagnosed and sick for over 20 years before finding out what the trouble was. By then, I had been told it was all in my head for so long and kept so much to myself about dealing with the symptoms that when I stumbled onto this site while looking up an ingredient and saw people actually talking about this--I wanted to be a part of it.

The only thing was--at that time I was not computer literate at all (a slight problem :D ) --I was using the kids' computer to try to look up that ingredient and when I finally came up for air after reading practically the whole forum--I had to ask my son how to register and post. :P

Needless to say, I caught on pretty quickly--which I guess is where the 18,000+ posts come in. :rolleyes: I will forever be grateful for the camaraderie, support, information, and finally friendship I found here so I stay on and try to make myself useful in between the fun.

mushroom Proficient
mushroom
Posted

Over 6,600 of them are in one topic. :blink:

Dang! What other statistics can you come up with?? :o

Financialman Newbie
Financialman
Posted

Thanks for the response Jerseyangel and your friends psawyer and kareng. Not to ignore psawyer (4,000+ posts is also a lot) but kareng has over 3,000 posts in little over a year which is also amazing. What's your story?:D

kareng Grand Master
kareng
Posted

Thanks for the response Jerseyangel and your friends psawyer and kareng. Not to ignore psawyer (4,000+ posts is also a lot) but kareng has over 3,000 posts in little over a year which is also amazing. What's your story?:D

I'm trying to beat Patti (Jerseyangel)! Or as some would say - I talk too much!

lexusca Rookie
lexusca
Posted

Hey there I was daignosed this morning and found this forum, any and all info I can get is great. Glad there is a place out there for this

jerseyangel Proficient
jerseyangel
Posted

Hey there I was daignosed this morning and found this forum, any and all info I can get is great. Glad there is a place out there for this

Welcome lexusca, and be sure to let us know how we can help :)

RoseM Newbie
RoseM
Posted

Hi. This is my first post. I'm so excited to have found this forum! :) I was actually diagnosed about a year and a half ago. Ever since then I've sorta been "going it alone" as far as Celiac and the gluten free diet goes. (I mean, I do have a really supportive extended family but I don't get to see them very often. In my day-to-day life, I don't know anyone with Celiac Disease or anyone on the diet.) So it's really awesome to have found a whole community of people who understand. And there's so much information here. I wish I'd found it sooner. :)

mushroom Proficient
mushroom
Posted

Glad you decided to join us, Rose. Welcome, and let us know if there is anything we can do for you.

kareng Grand Master
kareng
Posted

Hi Rose!

  • 3 weeks later...
Tutti Frutti Newbie
Tutti Frutti
Posted

Hi everyone :) I am so happy to have found your forum. For months I have been praying to find out what is "wrong" with me. I do not know anyone with Celiac Disease so I have found many of your posts to be helpful. I have not been diagnosed, I am a student and only have the basic student insurance which means that I can only go to the clinic on campus.

I have experienced muscle twitching, pain and numbness. After eating a meal I get a fever then chills. One day I am constipated and the next day I have dia.... I have lost muscle mass and my hair has been falling out. I feel tired but I can't sleep.

When I eat dairy or soy I get sick and break out so I suspect that gluten could be a problem too. All of this has wrecked my self esteem because I appear to be a pessimistic,crazy person with an eating disorder. Everyone thinks that I must be making up my symptoms.

I am eliminating gluten from my diet. This is the first week and I already notice no flushing or fevers after eating.

Thanks again :)

  • 2 weeks later...
Terri O Rookie
Terri O
Posted

Well imagine that!!! I go to search around the forum (after reading everything in a couple of places) and I find that you are all here! This forum has been a Godsend to me and I thank all you knowledgeable folks for making it so. I have found many answers just by reading! The links people post are fascinating and helpful too. It is so helpful to know that I am not alone in this! THANKS! Terri O

  • 2 months later...
sandsurfgirl Collaborator
sandsurfgirl
Posted

Hi. This is my first post. I'm so excited to have found this forum! :) I was actually diagnosed about a year and a half ago. Ever since then I've sorta been "going it alone" as far as Celiac and the gluten free diet goes. (I mean, I do have a really supportive extended family but I don't get to see them very often. In my day-to-day life, I don't know anyone with Celiac Disease or anyone on the diet.) So it's really awesome to have found a whole community of people who understand. And there's so much information here. I wish I'd found it sooner. :)

You may even meet some real life friends from this board. Two of my greatest and most wonderful friends I met from this very board! We go out for gluten free girls nights and gripe about celiac on the phone and it's great.

With all the info I get here I recruited a celiac. I got a friend to realize that she and her kids needed to go gluten free. They couldn't afford the testing and had insurance issues. So they are healthy and doing great now gluten free and we have gluten free playdates.

Alex'sMum Newbie
Alex'sMum
Posted

Hi :)

My son (9) has just had a positive blood test for coeliac and is waiting for the biopsy. In the mean time I've been reading everything I can. It's been quite a shock, but this forum has been a real help. Reading peoples posts, and realising we're not alone in this and we'll get the hang of it has really helped. My daughter and I are being tested tomorrow, but I'm not worried anymore - we'll deal with this as a family anyway.

Thanks for being such a friendly supportive community :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Haugeabs
      - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil. Gluten free but not certified gluten free. Soy free, GMO free.
    2. trents
      - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even...
    3. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      That is the goal, after all.
    4. Wheatwacked
      - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine. Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years. Doctor recently said to not stop. My 25(OH)D is around 2...
    5. Known1
      - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing your thoughts. I respectfully disagree. You cherry picked a small section from the page. I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,413
    • Most Online (within 30 mins)
      7,748
    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Haugeabs
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Haugeabs · Posted

      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By trents · Posted

      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      That is the goal, after all.  
    • Wheatwacked
      Blood results

      By Wheatwacked · Posted

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Known1 · Posted

      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.