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The 100% Positive Thread
#1
Posted 29 August 2012 - 08:49 AM
Know someone who needed to be convinced to get tested and have some advice you gave them that helped?
Sure, we all know that getting a Celiac diagnosis, or even suspecting one, can be scary and frustrating. But there are good things too. Please share how your diagnosis has made you a happier person!
(Please keep this specifically to Celiac; you can start another thread about intolerances if you like but I'd really like this to be something that we can show to people to help give them motivation to get tested for celiac disease).
Thanks! I'll start:
> I have discovered that being hungry isn't supposed to hurt.
(I had always just assumed that pain was hunger.)
> I am feeling more motivated to do things, which in turn makes me feel better about myself.
> I've discovered that it's much easier to eat healthy than I ever imagined.
When you're forced to think about everything that goes into your mouth, it's easier not to eat those potato chips. Similarly, when you are forced to plan each meal in advance or risk not having anything in the house you can eat, it's easier to keep the house stocked with veggies and all that good stuff. I am starting to actually have a positive relationship with food.
> As a combination of all of the above, I have lost 5 pounds in less than a week.
#2
Posted 29 August 2012 - 09:06 AM
I look 20 years younger
My boobs are more perky
My wrinkles are gone
I feel better & more perky!
More energy!
My blasted anemia that made me feel dizzy and I couldn't get enough oxygen to my brain is gone!
I have tried new foods I didn't know existed and like some of them!
I have a great excuse not to eat the rubber chicken at an awards banquet!
Celiac.com - Celiac Disease Board Moderator
"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White
""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy
#3
Posted 29 August 2012 - 09:08 AM
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#4
Posted 29 August 2012 - 09:32 AM
I don't feel amazing exactly, but compared to a year ago I feel great.
I have enough energy to leave my house a few days a week and to be out of bed most days which is awesome!
I'm eating healthy (more or less) for the first time in my life and it feels pretty darn good.
Gluten free January 2012.
Tyramine free June 2012 - slowly getting a few foods back at a time.... scratch that
Low Histamine April 2013 - I swear this better be the last time I have to restrict my diet because giving up chocolate is the final straw
Iodine free briefly fall 2012
I like nonsense, it wakes up the brain cells. Fantasy is a necessary ingredient in living. It's a way of looking at life through the wrong end of a telescope, which is what I do, and that enables you to laugh at life's realities. -- Theodor Geisel
#5
Posted 29 August 2012 - 09:35 AM
Thank goodness for thatI'm still alive.
For me, gone is the anemia that I had for years (despite supplements), tingling and numbness in my lower legs, face and arm, night sweats, constant nausea (when I worked outside the house I never ate breakfast because of it), chronic diarrhea, fatigue, brain fog
I lived with all that for 20 years--medical tests always came back normal so I managed to work around it thinking it was just me.
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
#6
Posted 29 August 2012 - 09:35 AM
And I feel closer to my Mom even though she passed away several years ago. She had celiac, and now that I understand how badly she suffered I wish I could tell her. But she knows...
#7
Posted 29 August 2012 - 10:09 AM
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)
Celiac.com - Celiac Disease Board Moderator
#8
Posted 29 August 2012 - 10:52 AM
#9
Posted 29 August 2012 - 10:53 AM
My belly is essentially GONE! I thought it was middle aged belly fat. lol
No more stomach aches every day.
No more migraines.
Bathroom trips aren't nearly as ...smelly.

"Acceptance is the key to happiness."
ITP - 1993
Celiac - June, 2012
Hashimoto's - August, 2012
CANADIAN
#10
Posted 29 August 2012 - 11:44 AM
#11
Posted 29 August 2012 - 12:21 PM
Tilley
#12
Posted 29 August 2012 - 12:53 PM
richard
#13
Posted 29 August 2012 - 01:47 PM
"Dark and difficult times lie ahead ahead - soon we must all face the choice, to do what is right, or what is easy..." - Albus Dumbledore (Harry Potter)
Diagnosed Celiac in May 2012 by TTG level and endoscopy
Acid reflux/GERD (stopped since eating gluten-free)
Syncope
Raynaud's Syndrome
Iron Deficient
#14
Posted 29 August 2012 - 06:42 PM
Experience is what you get when you didn't get what you wanted.
#15
Posted 30 August 2012 - 07:52 AM
I no longer pass out when I simply try to stand up.
I am free from my migraines, neuropathy and heart palpatations.
I have become an even better cook and eat healthier than I ever did before.
My recent biopsy shows I now have a normal small intestine when my original showed Marsh 4 destruction!!
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