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The 100% Positive Thread
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25 posts in this topic

Got something great to say about Celiac Disease that you want to shout off the rooftops?

Know someone who needed to be convinced to get tested and have some advice you gave them that helped?

Sure, we all know that getting a Celiac diagnosis, or even suspecting one, can be scary and frustrating. But there are good things too. Please share how your diagnosis has made you a happier person!

(Please keep this specifically to Celiac; you can start another thread about intolerances if you like but I'd really like this to be something that we can show to people to help give them motivation to get tested for celiac disease).

Thanks! I'll start:


> I have discovered that being hungry isn't supposed to hurt.

(I had always just assumed that pain was hunger.)

> I am feeling more motivated to do things, which in turn makes me feel better about myself.

> I've discovered that it's much easier to eat healthy than I ever imagined.

When you're forced to think about everything that goes into your mouth, it's easier not to eat those potato chips. Similarly, when you are forced to plan each meal in advance or risk not having anything in the house you can eat, it's easier to keep the house stocked with veggies and all that good stuff. I am starting to actually have a positive relationship with food.

> As a combination of all of the above, I have lost 5 pounds in less than a week.

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Ads by Google:

Let's see:

I look 20 years younger

My boobs are more perky

My wrinkles are gone

:ph34r: Ok.....Maybe not but

I feel better & more perky!

More energy!

My blasted anemia that made me feel dizzy and I couldn't get enough oxygen to my brain is gone!

I have tried new foods I didn't know existed and like some of them!

I have a great excuse not to eat the rubber chicken at an awards banquet!

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I'm still alive.

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It was a complete fluke that I was even tested for celiac. I'm not sure I would have accepted it if it didn't just happen while I was out like a light. It happens to be one of the best things that has ever happened to me.

I don't feel amazing exactly, but compared to a year ago I feel great.

I have enough energy to leave my house a few days a week and to be out of bed most days which is awesome!

I'm eating healthy (more or less) for the first time in my life and it feels pretty darn good.

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I'm still alive.

Thank goodness for that :)

For me, gone is the anemia that I had for years (despite supplements), tingling and numbness in my lower legs, face and arm, night sweats, constant nausea (when I worked outside the house I never ate breakfast because of it), chronic diarrhea, fatigue, brain fog <_< , easy bruising, in the last 6 months before diagnosis unexplained weight loss. My gynecologist poo-poo'd the idea that my endometriosis was linked somehow but I wonder.

I lived with all that for 20 years--medical tests always came back normal so I managed to work around it thinking it was just me.

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I no longer eat the junk food full of chemicals that would have killed me in the long run whether I had celiac or not.

And I feel closer to my Mom even though she passed away several years ago. She had celiac, and now that I understand how badly she suffered I wish I could tell her. But she knows...

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I have not had a migraine in twelve years. That was a bonus!

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Peter, I'm with you on the migraines! Only time I get them now is if I get accidentally glutened. Let's see, I'm healthier than I've ever been, I'm finally at a mostly normal weight and able to stay at it without much effort (I finally self diagnosed when I was losing weight very quickly and couldn't afford to lose another pound), I get compliments on my skin and hair all the time, I no longer have to live with bloating and gas all the time, blood sugar has stabilized. And ya know, I guess I don't bruise as easily as I used to either - didn't think of that until I saw someone else mention it!

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Without trying I lost 15lbs in 2 months while still eating icecream a few times a week.

My belly is essentially GONE! I thought it was middle aged belly fat. lol

No more stomach aches every day.

No more migraines.

Bathroom trips aren't nearly as ...smelly.

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I have a butt now!

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I don't have abdominal pain anymore. After being subjected to a bunch of tests as a teenager because of it, my mom finally told me it was "normal" to have "aches and pains". Well, guess what? It's NOT normal!

Tilley

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No DH, mouth blisters gone, and it was celiac disease, not non-Hodgkins lymphoma, causing my illness. And I quit smoking while I was ill.

richard

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No more acne, no more chest pains, no more acid-reflux - and best of all, I've been able to lose all that stubborn weight that wouldn't come off before!!!! 16 pounds down and a couple more to go!!!! I'm going to look great for my wedding next year!!!

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I don't have to worry (for my daughter's sake) what the side effects are on a lifetime's worth of medication . . . 'cause seriously, how do they really know what being on a medication for 80 years would do to you?

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I love this thread!! Two years after my diagnosis:

I no longer pass out when I simply try to stand up.

I am free from my migraines, neuropathy and heart palpatations.

I have become an even better cook and eat healthier than I ever did before.

My recent biopsy shows I now have a normal small intestine when my original showed Marsh 4 destruction!! :D

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I don't have to scope out where the bathrooms are wherever I go! :D

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I'm still alive.

:) Me, too. (whew!)

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I'm eating way healthier

Stomach is fine, I rarely feel bloated

I learned how to cook a handful of very delicious (and healthy) dishes

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I posted before about migraines, but here is another thing. I have not vomited after eating in twelve years. It was a common occurrence, sometimes after eating just a few bites.

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I feel pretty great!!! I haven't been sick except for when I have accidentally been glutened!!

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My son can get through the day without having a screaming fit.

My daughter is no longer so depressed that she can see nothing good about herself.

I have discovered that I don't actually dislike crowds or feel the need to isolate myself like I used to when I was sick all the time. Who knew that something I thought was 'just me' was actually gluten!

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I have saved a lot of money on toilet paper. :lol:

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I have saved a lot of money on toilet paper. :lol:

:lol: :lol: :lol:

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My daughter and I both feel so much better, obviously, but the best thing to me is that my daughter is eating such a better variety of foods, and much healthier foods. She snacks on apples dipped in (natural) peanut butter now. No more crackers for every snack! I swear she ate nothing but crackers and bread before, but I saw her snacking on carrot sticks earlier too, and she said they tasted good. It's too bad she had to be forced to improve her diet due to this, but it is good that her diet has improved regardless. She'll be healther both for avoiding gluten, which makes her so sick, but she'll be healther on top of that because she's eating so well.

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The gluten-free Banana-Nut muffins I made taste better than the old ones I used to make with wheat flour :)

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    • I had a negative biopsy and was still diagnosed with Celiac. My GI ran a bunch of tests looking for the cause of my 15+ years of diarrhea and the only thing that came back positive was the entire Celiac panel. All very high. So he performed an endoscopy with biopsy. The biopsy was negative. So he ordered a genetic test. When that came back as "high risk" he decided a trial gluten free diet was in order. After 8 weeks my symptoms resolved and my antibodies were back to normal. Since then, follow up testing had shown I have osteoporosis. I am a 40 year old male.  So yes, you can definitely still have it and have significant damage with a negative biopsy. 
    • Annual celiac antibody testing is, in my opinion (and based on what celiac researchers have published), is critical, especially for a 12 year old.  Life is going to get harder for her.  Peer pressure is huge (I have a 15 year old daughter), and remaining diet compliant can be tough.   In Dr. Fasano's, Gluten Freedom, he discusses a young patient who became ill in high school after being gluten free for years.  His parents were perplexed.  Dr. Fasano took the young man aside and he confessed that while on a date, he didn't want to bring up his celiac disease.  So, he ate pizza.  He was too embarrassed to tell his parents.   My daughter does not have celiac disease.  She was first tested two years ago.  Since she is symptom free, is not anemic and her other lab work is fine, we'll wait to test her in another year.  It all depends on the patient, but every few years, testing is recommended for all undiagnosed first-degree relatives.   It certainly sounds like your younger children should be screened.   I wish you both well!      
    • Perhaps you should consider asking for a GI referral.  You might just skip the blood tests and go directly to an endoscopy/biopsies while you are still consuming gluten.  It is the "gold" standard for a celiac diagnosis anyway!   Here's the deal with going gluten free.  You can do it.  It costs nothing, but you must give it six months or longer.  You'd need to think like a celiac, but it can be done!  I'll tell you my tale.  My hubby went gluten-free 15 years ago per the very poor advice of his GP/PCP and my allergist.  After a year of mistakes and learning, he got well.  It worked!  Thirteen years later, I was formally diagnosed.  (It was a shock as I was only anemic at the time.)  Hubby would be the first to say that I have had way more support from family, friends and medical.  I must say, it's nice to see those lab results.  It really helped me adhere to the diet in the beginning too.   So, you know your medical situation.  You must do what's best for you!   I hope you feel better soon!  
    • I'm sure going to have a long talk with my doctor.  Then I'll find a new one that will support me and make sure that my daughter and I both have the proper testing done yearly.  
    • also:  glutendude - i don't get it.  shouldn't it be glutenfreedude?  lolz i eat out few and far between.  most of the times i've been glutened it's been eating out.  this weekend i'm getting my bacon cheeseburger on at red robin  i always get my 'good' waitress - lucky, i guess, paula takes good care of me   and i will eat at bonefish but they have a limited 'safe' menu.  look for places that have the 'GiG'  training they know their stuff.  mellow mushroom, melting pot, california pizza kitchen, pf changs are all supposed to be trained that way.  they know to avoid cc and change their gloves, etc.  
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