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Celiac Disease & Gluten-Free Diet Blogs

1desperateladysaved's Blog

From: I Attended My First Support Group Meeting.

Jun 20, 2012   It was to be my 5 year outing. That time when Mom goes to do her own thing. I was finally going to find some celiacs with live faces to share stories with. :)   I figured out who would take care of the little ones. I scrambled to make a special homemade pizza which would be done before I left. This was my first pizza in a long while since crust, tomato sauce and cheese don't work.   Finally the pizza was done, but alas it was past time to leave. I scrambled to
1desperateladysaved

1desperateladysaved

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1desperateladysaved's Blog

The Beginning Of Nowhere

In my second year of college (at 19 That would be 1982)., I fell ill with mono-nucleosis. I slept for up to 20 hours a day and was still tired. A month or so later, my blood tested normal, so I returned to college in an attempt to catch up and finish the quarter. Sleep still did not refresh me. I dragged myself to class. Sometimes I could not cross the campus intime for the next class.   Then, I came down with pleurosy ("The old lady's disease) and spent more time on the couch. My lungs we
1desperateladysaved

1desperateladysaved

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1desperateladysaved's Blog

Hope For The Family: How A Husband Can Come Around

My family didn't like the idea of yet another diet change! They didn't see how fatigued or foggy I felt. I must admit the whole thing seems a bit unbelievable.   After hearing 30 years of my complaints my husband turned a deaf ear to my supposed health problems. Here I was trying to follow a 100% gluten diet without support.   I heard it might get better. Then my husband told me he regretted telling me about the forum. I was finding ideas that were not convenient to the family. I was
1desperateladysaved

1desperateladysaved

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Beachmama's Blog

Advice Please

I am writing from the UK. My daughter (now 32) was diagnosed privately with hypothyroidism (not auto-immune)11 years ago, having suffered with numerous symptoms for the previous 9 years. We have recently discovered that her many symptoms overlap dramatically with coeliac disease and we are now concerned that she may indeed be coeliac as the thyroid treatment has proved largely unsuccessful. She has had 4 tests (again privately) - Iga (anti-endomysium), IgA and IgG (antigliadin, and IgA (antit
Beachmama

Beachmama

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1desperateladysaved's Blog

What A Difference A Day Makes. "mommy You Are Big."

I noticed upon awaking today that my tongue, abdomen and thighs were swollen. My tongue was also dry. I dunned my gloves and mask and rewashed the dishes from last night. I just didn't feel secure that there wasn't still gluten clinging to them.   I am glad that inspite of the swelled up feeling my mind seems clear still today.   The family got out the wheat eggrolls for lunch, while I was yet in the room. I demanded that the eggrolls go outside immedietly. When they didn't, I quickly
1desperateladysaved

1desperateladysaved

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1desperateladysaved's Blog

Deliverance Has Certainly Begun.

My first blog never quite got in before it was gone. I worked so long and hard at it that I couldn't start over. Someday, I would like to put it in. But for now, I am jumping in here.   Four months gluten free:   Things are going a bit better with the family. They are cooking foods which I can't eat/smell outside.   My husband is starting to notice a dramatic change in my irritability and reaction to stress. Infact, things have slid off like water off a ducks back. I have to say it is
1desperateladysaved

1desperateladysaved

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sophie5's Blog

Gluten Free World?

Hello everyone... My three year old daughter was diagnosed this morning with celiac disease and honestly before talking to her doctor today I had no idea even what this was. Embarrassing yes but no one in my family has this or do any of my friends so I have never been around this. Right now I am an emotional disaster bc I feel so sorry for her and all of the people out there that have to deal with this everyday. SO just for the start I am looking for tips on dealing with all of this overwhelm
sophie5

sophie5

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Gluten Free Breeze (formerly Brendygirl) Blog

List: What And Where Have I Been Eating Lately?

I blog regularly, but not on this site much anymore. I liked this site because it is mostly celiacs, so I will occasionally post here, but no pics for this site. I've been diagnosed since 2005, so here is WHAT I've been eating lately:     Trader Joe's gluten free boxed mac n cheese (the ONLY one I'll eat) Gluten Freeda's gluten free ice cream sandwiches (new flavor: Cherry Cheesecake) (Whole Foods) Amy's frozen Gluten Free Burritos (I heat these on my own plate, covered in the work micro
brendygirl

brendygirl

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Hannahbutterfly's Blog

Listen To Your Body.

Hi, I read that some of you have problem with DH, I have very mild when I was a younger, I think it is more like a rash. My skin looks good now, but I'm aged lol. I started gluten free diet last Nov, after my 3rd pregnant my body changed so much and when I eat gluten food I would threw up and not feeling good. I heart act funny when I eat gluten food, so I keep away for good, even it's hard. Always take good vitamins when go on gluten free diet and I have to eat red meat( two time a week) and
Hannahbutterfly

Hannahbutterfly

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A Celiac's Journal

Midol Products... Gluten-Free?

I'm thinking not.   Not only an I a celiac but I'm also lactose intolerant. It is ridiculous how sick I get when I have dairy. It feels as if I drank rotten milk or have food poisoning.   So, every time that I get my period, I get that feeling and I always take Midol with no help. If anything, it makes me even more sick to the point where I'm doubled over in pain. The Midol company said two things. The first time, they said that the factory may contain traces of wheat. The second time, the
BBrien

BBrien

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nvsmom's Blog

End Of Withdrawl Is In Sight

I'm starting to feel better. Yeah! I think withdrawl was worse for me that how I would feel after a gluten fest. It was no fun at all. My headaches are pretty much gone and I don't feel exhausted anymore; that's probably why I'm not quite as grumpy now.   I have glutened myself already. I had an Estrella Damm Daura beer. It said gluten-free so I didn't read the label too closely until I was half done... It's still made from barley! No wonder it tasted like regular beer. I had been brac
nvsmom

nvsmom

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nvsmom's Blog

Round 2 Withdrawl

I thought i was gluten-free for the first 1.5 weeks but discovered I wasn't. My hummus has gluten and I forgot about checking one vitamin. I was having bad headaches too... thought it was withdrawl. I guess it was pms.   I am almost 100% sure I am gluten-free now, and have been for about 4 days, and I feel just beat! My headache is back and huge and I feel so tired it seems like an effort to open my eyes after blinking. I'm a bit down too so that could be contributing to the fatigue.  
nvsmom

nvsmom

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gluten-free Lover's Blog

Stress Breakdown

Gonna have some down time.
GF Lover

GF Lover

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gluten-free Lover's Blog

Cardiologist Continued

My Doc is also looking at my one of my meds I take. He is very suspicious because my symptoms are disproportionately more severe than the lung damage would warrant. The med is Zonegran. It is the one that helps with the skin pain of fibro. And I started it when the symptoms became severe. I just remembered this very recently. My Doc told hubs during golf last night he would dig further and get with my rheumatologist to discuss it.
GF Lover

GF Lover

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gluten-free Lover's Blog

Wow. I Just Got My Warning.

I received my results today from my cardiologist. I have diminished lung capacity, BUT, since I have smoked my last cig a week ago, I have in effect stopped the progress of this Obstructive Lung Disease. AND it is reversible!! My heart is perfect, I was just not getting enough oxygen when stressed.   So now I keep using my inhaler and re-test in 6 months. I also start rebuilding muscle and endurance that I've lost from being sick so long. It's time to let the pain be there and go on d
GF Lover

GF Lover

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gluten-free Lover's Blog

Cardiac Testing Done

Well, in the last couple weeks I've had a Pulmonary Function test, an Echocardiogram, the Holter Monitor and today the stress test.   I collapsed on the treadmill so they had to do it chemically, ugh. Today the nurse doing the heart stressing said I had an episode of ischemia. Something to do with arteries and not enough oxygen.   Anyway, I see my Doc at 11:00 am tomorrow so I'll get some answers. Not really sure I want to know these answers tho.   I've taken some anxiety meds to try
GF Lover

GF Lover

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nvsmom's Blog

All Systems Stopped

Ugh, I haven't gone bathroom in 3 days and I'm starting to get rather uncomfortable. LOL I wish it would get going again. I'm starting to get quite a distended belly, and it's gross to think about why. That's TMI isn't it?   I just realized that I hadn't checked my fibre supplements to see if they are gluten-free, and one isn't. I haven't really been gluten-free these past... 10 days or so. Just really gluten-lite. Oops. Oh well, I'll get there. It took 38 years to get here so I shoul
nvsmom

nvsmom

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nvsmom's Blog

Down A Few Pounds

I've been gluten-free for just over a week and I'm down about 4lbs. Kind of a nice bonus. If I stopped eating a bowl of popcorn in the evenings, I'd probably be down even more.   I'll cut the popcorn to once a week and see if I can't take advantage of my damaged gut to lose a few pounds before it heals and it becomes harder to lose weight... like everyone else. LOL I guess this is the benefit of being celiac: easier to lose weight... for a while.   It probably helps that I'm not tr
nvsmom

nvsmom

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nvsmom's Blog

First Kiddie Birthday Party, I Ate Carrot Sticks

I took my boys to a kiddie birthday party today, and it was the first time that I felt like I'm missing something. They had a wonderful cheesecake, various bowls of chips (no idea of the brands), a few other snacks, and a plate of veggies. I ate a few carrot sticks.   It wasn't awful passing up on homemade cheesecake... okay, yes it was awful but it was do able. I didn't even pout. But I can see where the limited diet will get really annoying in a year or so when this diet grows tiresome.  
nvsmom

nvsmom

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Celiac Ninja's Blog

The Joys Of Pregnancy...

Honestly it's not so bad being pregnant. Minus the swelling from various foods or things I drink that I have been informed are gluten free. The baby is growing quickly, seems to have growth spirts like a normal kid does out of the womb. I swear, in one week, I went from 145-150 and stayed there! I thought the scale was broken, I put the scale in the goodwill pile...everyone else who weighted themselves on the scale came up normal. Darn it! lol But, from a very very helpful website about pregnan
Celiac Ninja

Celiac Ninja

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Skylark's Blog

Getting Started On The Diet

Before you go off gluten, you need proper celiac testing. Celiac testing only works on a full gluten diet. (Four slices of bread a day worth of gluten.) If gluten turns out to be your problem, you won't want to re-poison yourself for two months to find out if you have celiac disease.   Tests you need: Total IgA TTG IgA deamidated gliadin (also called gliadin peptide) IgA and IgG If the total IgA comes back deficient you need TTG IgG.   Your normal doctor can order this. It's called a c
Skylark

Skylark

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nvsmom's Blog

Acceptance Is Coming

I have so many things I need to check for gluten! Mostly vitamins and remedies. I took a Hyland's Calme/forte tablet in the middle of the night when my son kept waking me up and I was unable to get back to sleep. Within a few minutes I had a stomach ache that kept me awake... the opposite of what I was hoping for. lol   About half of my vitamins are obviously gluten-free. I'll have to look into the rest.   I really gotta look into the bacon... that's killing me. lol   I'm getting les
nvsmom

nvsmom

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nvsmom's Blog

Starting gluten-free

I "think" I went gluten-free yesterday... not sure. This is what I ate:   m1 - 2-3 egg bake w/ red pepper, onion, spinach, spices and rice milk, 2 slices chicken bacon m2 - no snack - out of house running a field trip. m3 - 3-4 egg leftover m4 - apple m5 - bratwurst, sauerkraut, peas, cottage cheese, yams m6 - bowl popcorn and spices   Today I double checked the bacon I ate since I was going to have more at breakfast, and it has smoke flavour... that often has gluten! I guess I need to
nvsmom

nvsmom

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  • Blog Comments

    • Scott Adams
      GLUTEN EASE TABLETS DONT WORK

      Yes, I have one of the older models and have tested many products with it. For me it seems like a valuable tool and I have used it to test foods that I eat regularly, which are naturally gluten-free, for example salsa, refried beans, etc. 

    • Brenda Sanchez
      GLUTEN EASE TABLETS DONT WORK

      Has anyone tried the NIMA gluten detector?  I'm seriously thinking of investing in one. I haven't eaten out at a restaurant since my late diagnosis 4 years ago (I'm 55 in March)  Any information would be greatly appreciated 

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