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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


7,182 topics in this forum

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  • Posts

    • Scott Adams
      I am not sure about that brand specifically, but this article may be helpful:  
    • Scott Adams
      First, I’m so sorry you’re dealing with this—constant bloating and gas can be incredibly frustrating, especially when you’ve been so diligent with your gluten-free diet. Since nothing obvious has changed in your routine, a few possibilities come to mind: 1) Cross-contamination or hidden gluten (have you introduced new brands, eaten out more, or tried processed GF foods with questionable ingredients?), 2) New food intolerances (dairy, FODMAPs, or even GF grains like corn/rice can sometimes cause issues over time), 3) Gut dysbiosis (an imbalance in gut bacteria, possibly triggered by stress, antibiotics, or diet shifts), or 4) Non-celiac triggers (like SIBO or fructose malabsorption). You may also want to take choline supplements, as this helps some people. It might help to keep a detailed food/symptom log and try an elimination diet (e.g., cutting dairy or high-FODMAP foods temporarily). Probiotics or digestive enzymes could also offer relief while you investigate.
    • Scott Adams
      Finding gluten-free and oat-free bars that aren’t overly sugary can be tricky, but there are some great options out there! For your little adventurers, consider GoMacro Kids bars (many are GF/oat-free and lower in sugar), 88 Acres Seed Bars (sweetened lightly with fruit), or The Good Crisp Company’s protein bars (grain-free and not too sweet). For homemade ideas, try simple nut/seed bars with dates, almond butter, and chia—no baking needed! Packaged snacks like Chomps meat sticks, Simple Mills almond flour crackers, or seaweed snacks also work well for hikes. If they like savory, roasted chickpeas or lupini beans are protein-packed and easy to carry. Hope this helps—happy trails!
    • Scott Adams
      Using anti-inflammatories for symptom management after inadvertent gluten exposure can be a helpful short-term strategy, particularly for reducing discomfort like inflammation, pain, or swelling. However, it shouldn’t replace strict adherence to a gluten-free diet as the primary treatment for conditions like celiac disease or gluten sensitivity. While NSAIDs (e.g., ibuprofen) or natural anti-inflammatories (e.g., turmeric) may provide relief, they don’t address the underlying immune response or intestinal damage caused by gluten. Additionally, long-term or frequent use of NSAIDs carries risks, such as gastrointestinal irritation. It’s best to consult a healthcare provider to tailor an individualized plan, which may include digestive enzymes, hydration, rest, and probiotics alongside anti-inflammatories when needed. This article, and the comments below it, may be helpful:    
    • Russ H
      There is a predictive model for children on this link. Depends on sex, HLA genes and number of affected close relatives.  The model only goes up to age 12 so it would be interesting to know what the lifetime risk is. https://hputter.shinyapps.io/preventcd/
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