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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- cristiana replied to maylynn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease84 Years and very little progress
Hello there @maylynn I'm a slow healer from the UK. I sympathise. Despite three endoscopies which showed nothing wrong, I frequently suffered from a very sore stomach, bloating, feeling queasy. For some time I was taking the wrong iron supplement (Floradix instead of Floravital - the former has gluten in it, but the latter none). But... -
- RMJ replied to SMK7's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms18High IGA antigliadin, everything else normal, what does this mean?
Yes, it would make sense to go mostly gluten free, since it gives your troubles. -
- SMK7 replied to SMK7's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms18High IGA antigliadin, everything else normal, what does this mean?
Yes, I made an effort to eat extra gluten at least 3 weeks before the endoscopy. I probably ate a some amount in the weeks before that. I had diarrhea, which resolved once I cut back after the endoscopy. So I think it would make sense to go mostly gluten free? -
- ShariW commented on Scott Adams's article in Gluten-Free Foods & Beverages1Is Costco Rotisserie Chicken Gluten-Free? A Must-Read for Celiac and Gluten-Sensitive Shoppers (+Video)
I have been OK with Costco rotisserie chicken. Not OK with rotisserie chicken from some other stores in my area like Fresh Market and Food Lion. I am very sensitive to cross-contamination.- 1
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- RMJ replied to SMK7's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms18
High IGA antigliadin, everything else normal, what does this mean?
Yay for the normal biopsy! Thanks for the follow up. Were you eating gluten prior to the endoscopy?
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Hello there @maylynn I'm a slow healer from the UK. I sympathise. Despite three endoscopies which showed nothing wrong, I frequently suffered from a very sore stomach, bloating, feeling queasy. For some time I was taking the wrong iron supplement (Floradix instead of Floravital - the former has gluten in it, but the latter none). But I would say even very little iron from an approved source made my stomach sore, I think it can be quite irritating. Perhaps that is an issue for you? Oats (the gluten-free pure ones) were an issue for many years (now fine). Even though my endoscopy findings did not reflect any problems with healing, or any other issues, I self-diagnosed myself with gastritis as it seemed the feeling of nausea and in my case burning in the stomach pointed to it. I went onto a gastritis/reflux diet and that really helped. Have a google - there are tonnes online. That meant avoiding spicy, greasy food, onions, tomatoes, coffee and alcohol. (Actually, I don't drink, but I did toast someone during that time at a baptism and it set my stomach on fire.) Instead of drinking strong coffee, I drank water, camomile tea, warm ginger water... so soothing. I would not go to bed with a full stomach when things were bad, I would let my stomach rest from say 8pm to 8am, which really helped. My husband and I then decided to buy a new oven and to buy a new dishwasher - we did need new ones anyway. The new oven had two compartments, gluten goes in one, gluten free in the other. The new dishwasher was a Miele which does a full rinse with clean water before washing the dishes. But before I could afford a new dishwasher I would hand wash the dishes and make sure they were really rinsed well, no residue (unlike our old dishwasher that was really not rinsing well at all). I stopped eating out for quite a few years - I think this is a biggy - although I would have coffee and soft drinks out. Eventually, my levels normalised. What of the above was the 'silver bullet'? I am not sure, but finally I did feel a lot better. Occasionally I will take an over the counter PPI (omeprazole) or a small dose of Gaviscon, but most of the time I don't need them now. I'm not expecting anyone to go to all these lengths, but it could be that one or two of the tips I give you might work. Don't give up hope! Cristiana
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Yes, it would make sense to go mostly gluten free, since it gives your troubles.
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Yes, I made an effort to eat extra gluten at least 3 weeks before the endoscopy. I probably ate a some amount in the weeks before that. I had diarrhea, which resolved once I cut back after the endoscopy. So I think it would make sense to go mostly gluten free?
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Yay for the normal biopsy! Thanks for the follow up. Were you eating gluten prior to the endoscopy?
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By Scott Adams · Posted
I think that with the elevated antibodies found in past tests, and a negative biopsy, you are firmly in the NCGS camp. If symptoms go away on a gluten-free diet it would be confirmation that you should likely stay on the diet.
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