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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.

7,183 topics in this forum

  1. Bridget Meier
    Ursa Major

    New With Another gluten-free Question Re Yeast?

    By Bridget Meier, Last action:
    • 2 replies
    • 1.3k views
    • Ursa Major
    • Ursa Major
  2. kimber
    lbsteenwyk

    Safe Cheerios?

    By kimber, Last action:
    • 13 replies
    • 4.4k views
    • lbsteenwyk
    • lbsteenwyk
  3. Bridget Meier
    fisharefriendsnotfood

    New Poster/possible Celiac Daughter

    By Bridget Meier, Last action:
    • 5 replies
    • 1.8k views
    • fisharefriendsnotfood
    • fisharefriendsnotfood
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  4. Bridget Meier
    CMWeaver

    New, Reading Posts, Now Questions?

    By Bridget Meier, Last action:
    • 1 reply
    • 1.3k views
    • CMWeaver
    • CMWeaver
  5. mochalatta
    CMWeaver

    How Long Will The Diarreha Last After Going Gluten Free?

    By mochalatta, Last action:
    • 4 replies
    • 2.5k views
    • CMWeaver
    • CMWeaver
  6. Kassidy's mom
    Jenn2005

    Anyone Know If Quaker Oats Are Safe?

    By Kassidy's mom, Last action:
    • 14 replies
    • 18.9k views
    • Jenn2005
    • Jenn2005
  7. averyevansmom
    Becky6

    Back From The Flu Or Somthin Else

    By averyevansmom, Last action:
    • 1 reply
    • 1.2k views
    • Becky6
    • Becky6
  8. Becky6
    taweavmo3

    Any Thoughts?

    By Becky6, Last action:
    • 5 replies
    • 1.7k views
    • taweavmo3
    • taweavmo3
  9. BamBam
    ravenwoodglass

    Gave Up Casein

    By BamBam, Last action:
    • 4 replies
    • 2.2k views
    • ravenwoodglass
    • ravenwoodglass
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  11. Guest Lucy
    Ursa Major

    Is This Flu Or Gluten Reaction

    By Guest Lucy, Last action:
    • 1 reply
    • 1.5k views
    • Ursa Major
    • Ursa Major
  12. e&j0304

    We're Back...getting Celiac Panel And Biopsy

    By e&j0304, Last action:
    • 10 replies
    • 1.9k views
    • e&j0304
    • e&j0304
  13. e&j0304

    Home From Colonoscopy/endoscopy

    By e&j0304, Last action:
    • 0 replies
    • 1k views
    • e&j0304
    • e&j0304
  14. mcb167
    shayesmom

    Sleeplessness In 10 Year Old

    By mcb167, Last action:
    • 3 replies
    • 1.5k views
    • shayesmom
    • shayesmom
  15. lorka150

    Parents?

    By lorka150, Last action:
    • 2 replies
    • 1.3k views
    • lorka150
    • lorka150
  16. Guest tracey and emma
    Guest

    Help Please Need Your Opinion.

    By Guest tracey and emma, Last action:
    • 6 replies
    • 1.9k views
    • Guest
    • Guest
  17. elfkin

    Gluten Contamination, Scratching, And Dev. Delay

    By elfkin, Last action:
    • 5 replies
    • 2.6k views
    • elfkin
    • elfkin
  18. elfkin

    Trying To Figure All Of This Out

    By elfkin, Last action:
    • 5 replies
    • 1.3k views
    • elfkin
    • elfkin
  19. JacobsMom
    Smunkeemom

    Anyone Else With A Gasy Child?

    By JacobsMom, Last action:
    • 1 reply
    • 1.3k views
    • Smunkeemom
    • Smunkeemom
  20. lovemyboy
    shardawn1

    Disagree With Doctors

    By lovemyboy, Last action:
    • 14 replies
    • 2.2k views
    • shardawn1
    • shardawn1
  21. jadesmum
    VydorScope

    Recovery Time

    By jadesmum, Last action:
    • 9 replies
    • 2.7k views
    • VydorScope
    • VydorScope
  22. lonewolf
    Guest

    "de-glutening" A 10 Year Old

    By lonewolf, Last action:
    • 11 replies
    • 2.4k views
    • Guest
    • Guest
  23. Maureen

    Daughter With Depression

    By Maureen, Last action:
    • 7 replies
    • 2.3k views
    • Maureen
    • Maureen
  24. averyevansmom

    Biopsy Results.....

    By averyevansmom, Last action:
    • 17 replies
    • 3.5k views
    • averyevansmom
    • averyevansmom
  25. Guest MyKidsMom
    Guest

    Typical Symptoms In Young Kids?

    By Guest MyKidsMom, Last action:
    • 17 replies
    • 4k views
    • Guest
    • Guest
  26. emsmom

    Good Kids Chicken Fingers

    By emsmom, Last action:
    • 9 replies
    • 2.5k views
    • emsmom
    • emsmom

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  • Recent Activity

    1. trents
      - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their...
    2. Trish G
      - Trish G posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease? Thanks!!!
    3. kpf
      - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      ttg iga high (646 mg/dl) other results are normal

      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease: fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches n...
    4. knitty kitty
      0

      Gastrointestinal Beriberi

    5. knitty kitty
      - knitty kitty replied to Rejoicephd's topic in Related Issues & Disorders
      4

      Basic metabolic panel results - more flags

      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency. Your symptoms seem really familiar. Malabsorption is a real thing that happens with Celiac. A multivitamin is not going to prevent nor correct nutritional deficiencies. Doctors do not recognize nutritional deficiency symptoms. Gastrointestinal Beriberi is not recognized...
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  • Posts

    • trents
      Fiber Supplement

      By trents · Posted

      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease:  fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches neutropenia I never dreamed in a million years she would consider celiac disease. It was a shock to me. It’s definitely not what I went to her for. 
    • knitty kitty
      Basic metabolic panel results - more flags

      By knitty kitty · Posted

      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency.  Your symptoms seem really familiar.  Malabsorption is a real thing that happens with Celiac.  A multivitamin is not going to prevent nor correct nutritional deficiencies.    Doctors do not recognize nutritional deficiency symptoms.  Gastrointestinal Beriberi is not recognized often.  Caused by thiamine deficiency, high dose thiamine supplements or IV administration with other vitamins, minerals and glucose under doctor's care is needed.   Thiamine deficiency is found in anemia.  Thiamine deficiency in the kidneys can result in electrolyte imbalances and cloudy urine.  Thiamine deficiency can cause high blood sugar which can cause cloudy urine.  Dehydration can cause cloudy urine.   I'm linking some PubMed articles.  You see if your symptoms match.  Discuss the possibility of Gastrointestinal Beriberi with one of your specialists soon!  Just to rule it out.  I'm very concerned.   I'm linking some PubMed articles.  You see if your symptoms match.   Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal disorders encountered in modern medical settings. Left unattended, it may progress to wet or dry beriberi, most often observed as Wernicke encephalopathy.". . And... Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
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