-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
19,223 topics in this forum
-
- 10 replies
- 7.1k views
-
- 5 replies
- 1.8k views
-
- 7 replies
- 4.2k views
-
- 10 replies
- 2.9k views
-
- 2 replies
- 2.3k views
-
- 10 replies
- 2.1k views
-
- 2 replies
- 2.9k views
-
- 11 replies
- 3.3k views
-
- 7 replies
- 3.4k views
-
Celiac.com Sponsor (A10):
Celiac.com Sponsor (A10):
-
- 8 replies
- 2.6k views
-
- 5 replies
- 3.3k views
-
- 40 replies
- 6.1k views
-
- 13 replies
- 6.3k views
-
- 3 replies
- 2.8k views
-
- 5 replies
- 2.4k views
-
- 11 replies
- 1.8k views
-
- 4 replies
- 2.6k views
-
- 2 replies
- 2.1k views
-
- 2 replies
- 2.6k views
-
- 5 replies
- 2.5k views
-
- 13 replies
- 2.1k views
-
- 0 replies
- 2.1k views
-
- 2 replies
- 1.4k views
-
- 9 replies
- 5.2k views
-
- 2 replies
- 1.7k views
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8-M):
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- Scott Adams replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease23Refractory Celiac disease - what to do
Do you eat in restaurants, or food prepared in restaurants? -
- ehb replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease23Refractory Celiac disease - what to do
Thank you, I think with the initial blood tests they did actually do the IgA tests first to make sure those are normal! I am wondering if there are any tests that actually test for the presence of the gluten protein? From my understanding, all of these test for gluten antibodies, which in the case of refractory celiac would switch to a gluten-independent... -
-
- Scott Adams replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease33
Supplements for those Diagnosed with Celiac Disease
That is true, but they are not a bad place to start. I recommend ones One A Day without iron, unless you need iron. You can definitely add other supplements over time if needed, but it's a good starting point that can address a variety of nutrient deficiencies. -
- Scott Adams replied to Pete111's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Celiac Disease Comprehensive Panel
This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests...
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Forum Statistics
-
Total Topics121.3k
-
Total Posts1m
-
-
Celiac.com Sponsor (A22):
-
Who's Online (See full list)
-
Celiac.com Sponsor (A21):
-
Upcoming Events
-
Posts
-
By Scott Adams · Posted
Do you eat in restaurants, or food prepared in restaurants? -
Thank you, I think with the initial blood tests they did actually do the IgA tests first to make sure those are normal! I am wondering if there are any tests that actually test for the presence of the gluten protein? From my understanding, all of these test for gluten antibodies, which in the case of refractory celiac would switch to a gluten-independent mechanism of activation. Because my ttg levels havent changed at all with my increasingly strict diet, I am concerned about distinguishing between the possibilities that 1) I am super sensitive to very very small amounts of gluten and am getting cross contamination from somewhere I haven't identified or 2) have refractory celiac where even if I were to eliminate gluten 100%, my immune system is stuck in this activated state or is reacting to something else. The course of action should be different in these scenarios - in scenario 1, I should really lock in and stop eating processed foods all together (even if labeled gluten-free?) and identify any possible source of contamination no matter how small, but scenario 2 would require some other intervention like corticosteroids or a clinical trial. If I could somehow test the actual presence or amount of gluten in my body, I would think that could distinguish between these possibilities - if gluten is present it is more likely scenario 1, and if gluten is not present it's more likely scenario 2. I would probably need a test I could take regularly like once a day
-
-
By Scott Adams · Posted
That is true, but they are not a bad place to start. I recommend ones One A Day without iron, unless you need iron. You can definitely add other supplements over time if needed, but it's a good starting point that can address a variety of nutrient deficiencies. -
By Scott Adams · Posted
This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.
-
