Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help. Pain In My Gut & Not Digesting, Probio's


designerstubble

Recommended Posts

designerstubble Enthusiast

Hi...

 

Any ideas... I have been on my strict diet a while now, all going ok, was feeling... dare i say it... good! But slowly, my BM are not good, undigested food EVERY time, VERY loose, not formed at all. And  I have a pain in my top right corner of my abdomen... right by the lower rib. Somethime achey, sometimes pinchy.

 

I dont want to worry (I'm having enough issues with my little boy at the moment to keep my stress levels high), anyone know anything... I havent been taking my probios for about a month as I cant find a gluten-free, dairy free, soya free, and CORN free one here in UK...

 

Are probiotics a must? Do they really help? Could it be this? I thought probiotics were only useful in the large colon?

Is it a life long thing?

 

Could this be something sinister, I'm not really up for visiting my doctor, as I am about to change doctors again.

I need some self help tips!

 

Thank you thank you thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

I haven't found that probiotics make all that much difference, though they do make some difference so I continue to take a probiotic as well as eat my 100% grass fed yogurt.  I'd look at recent changes to your diet.  If there none, sometimes the change was made at the supplier end.  I have found those the most difficult to figure out.  I have just had to keep on doing elimination/challenge diets until I found the right thing.  One thing that helped me was to sometimes eat more of something to see if things get worse.  Sometimes that is faster or easier than elimination.  It seems that I have gotten more sensitive over time.  That could be happening to you too.  By strict diet, do you mean mainly produce and unprocessed meats?  If not, you could try that.  I hope you feel better soon.

designerstubble Enthusiast

I haven't found that probiotics make all that much difference, though they do make some difference so I continue to take a probiotic as well as eat my 100% grass fed yogurt.  I'd look at recent changes to your diet.  If there none, sometimes the change was made at the supplier end.  I have found those the most difficult to figure out.  I have just had to keep on doing elimination/challenge diets until I found the right thing.  One thing that helped me was to sometimes eat more of something to see if things get worse.  Sometimes that is faster or easier than elimination.  It seems that I have gotten more sensitive over time.  That could be happening to you too.  By strict diet, do you mean mainly produce and unprocessed meats?  If not, you could try that.  I hope you feel better soon.

Thanks for that... thats a good idea about trying more of something...these elimination diets are so exhausting. Interesting that the probiotics havent made much difference for you, i have just read a thread where everyone was saying how good they are...it's so confusing, i thought they weren't doing much but maybe they were? Aaaaaaaagh!

My strict diet is basically unprocessed fruit and veg (i am vegetarian so do not eat meat)... I have got so many allergies since being gluten-free that even my beloved seeds are out, and eggs are gone too sadly. So its fruit and veg. If it wasn't for my green juice in the morning I'm not sure how i would exist or if I would still be alive? 

I just don't understand why everything comes out in the same state that i ate it virtually? Worrying really.

Thanks for your help, I'm trying to be positive, I have even taken up TaeKwonDo! Only once a week, but I don't have the energy for more... 

 

Ps. Are you ever able to include those things you have eliminated because of sensitivity further along, with time?

jhol Enthusiast

hi designer stubble,

 

you sound just like me at the moment- im really struggling. im veggie too( 20 years) and ive seriously been thinking of buying some meat to try!!!!!

 

i too felt fantastic the first few weeks and its been downhill from there. foods that i was eating last month are now a no go. i just took some rice noodles out of the cupboard- there rice noodles right - made out of rice. but no theyve got potato starch in them!!! the gluten free pretzels i was snacking on,potato and soya!!. been feeling crap for past few weeks, im thinking its the soya. so now its veggie,no gluten,no dairy, no nightshades,no eggs,no drinking,no acidy fruits and no soya. dont know what id do if i lost corn !! my bm,s have undigested food in them too and are yellow :blink: im  livin off rice, sweet potato, and hummus at the moment.

soz i cant help you with any advice though.  im really hoping i can reintroduce some foods at sometime.

VeggieGal Contributor

hey, I'm veggie too and having all the same problems...just so unsure which intolerances/allergies I have but know I've got to cut dairy out for sure which is a pain!

I can't normally have corn either but seem ok on the Holland & Barrett mega potency Probiotic Acidophilus (3 billion) its No starch, milk, lactose, soya, gluten, wheat, yeast, fish, porcine, flavours, sweeteners, artificial colours...but does have maltodextrin?? is that corn. I do feel better when I remember to take them anyway.

Hope you feel well soon.

bartfull Rising Star

Designer, if I'm not mistaken, Steph has DH, and those with DH don't usually get the villi damage the rest of us do. They may get digestive SYMPTOMS the way folks with non-celiac gluten intolerance do, but if probiotics don't help her, that could be the reason why.

 

I am in the same boat with you. So many intolerances I can't find any supplements without SOMETHING I can't have. The solution is to eat fermented foods like saurkraut (pardon the spelling), if you can stand the stuff. I can do dairy so I eat organic yogurt - LOTS of it.

 

VeggieGal, maltodextrin DOES have corn, at least it usually does. You could call the company to find out for sure, but if it lists all of those other things it doesn't have without mentioning corn, odds are it deos have corn.

dilettantesteph Collaborator

Ps. Are you ever able to include those things you have eliminated because of sensitivity further along, with time?

 

I'm afraid not.  In the study recently published about trace gluten referred to in the super sensitive section, they said that most of those participants were able to go back to a typical gluten-free diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Hi DS!

 

I used probiotics for several years -- I know they help many folks - but didn't do much for me -- are you taking digestive enzymes?

 

Hated to hear you are having these troubles...many of us do become more sensitive as time gluten-free passes -- I remain ever hopeful that I'll get many of the healthful foods I have lost back and you will too!

dilettantesteph Collaborator

Designer, if I'm not mistaken, Steph has DH, and those with DH don't usually get the villi damage the rest of us do. They may get digestive SYMPTOMS the way folks with non-celiac gluten intolerance do, but if probiotics don't help her, that could be the reason why.

 

I don't have DH, that was another family member.  Probiotics do help.  They just don't help as much as I would like. 

designerstubble Enthusiast

Thanks my lovelies. Your all great help, it's just nice to know I'm not on my own. I thought by now I would have picked up a bit... gluten-free for over 6 months. I'm down in the dumps today, I want to reply to you all individually but I'm so cross and upset with this new 'pressure hives' situation that has been coming on slowly (and peaked today with most of my arm covered)...just wanna go and curl into a ball and cry. So I hope you excuse me, I think I'll feel better if I do that.

Oh and that's bartful, I'll look into sauerkraut... Veggie gal, corn in the holland and barret ones (even higher nature dont do them)... Ugh.

My stomach pain, my hives and welts, my crap everything. :(

GottaSki Mentor

Thanks my lovelies. Your all great help, it's just nice to know I'm not on my own. I thought by now I would have picked up a bit... gluten-free for over 6 months. I'm down in the dumps today, I want to reply to you all individually but I'm so cross and upset with this new 'pressure hives' situation that has been coming on slowly (and peaked today with most of my arm covered)...just wanna go and curl into a ball and cry. So I hope you excuse me, I think I'll feel better if I do that.

Oh and that's bartful, I'll look into sauerkraut... Veggie gal, corn in the holland and barret ones (even higher nature dont do them)... Ugh.

My stomach pain, my hives and welts, my crap everything. :(

 

Boo.  I'm stomping my feet here for you!

shadowicewolf Proficient

The upper right area of the abdomen is where the gallbladder sits. Having issues with it are not all that uncommon. In fact, mine got worse after i removed gluten from my diet.

mushroom Proficient

I'm with Lisa on the digestive enzyme issue.  You won't get goodness out of your foods or supplements if you can't break them down, and that takes enzymes.  Sometimes gluten knocks our pancreas for a loop and it takes a vacation until we heal, thus stops sending enzymes to the gut for digestion.  I take some called v-zyme made for pharmax in the UK.  Apart from the enzymes themselves the ingredients are cellulose, and vegetable magnesium stearate. :)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,827
    • Most Online (within 30 mins)
      7,748

    ABC reno
    Newest Member
    ABC reno
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
    • Ello
      I have always eaten gluten and never stopped until my recent episode. I started more wheat products as my Dr. requested for the Tissue Transglutaminase Iga Antibody. mye result Value <1.0 Value interpretation: <15.0 Antibody not detected > or =15.0 Antibody detected I do not understand any of it. After eating all that wheat product my body exploded with all sorts of symptoms. I stop gluten ASAP. I am still in the healing process. I started having issues after my surgery. 
    • trents
      Welcome to the celic.com community @Ello! You say you had a blood test for celiac disease after eating gluten for 2 weeks. Were you gluten free before that? Had you ever been officially diagnosed with celiac disease previously? You say the result of the blood test was 1.5. Can you provide the name of the test and the reference range for negative vs. positive for the test? I ask because different labs used different reference ranges so scores without a reference range aren't very helpful.
    • Ello
      Surgery was in April 2023 due adhesions wrapped around my small bowel which caused blockage and had to be removed. Adhesions were so badly entangled that Surgeon could not cut out them, so the resection was performed. July 2025 started having severe yellow diarrhea and sometimes constipation. Just had another episode and was tested for celiac. Blood test stated 1.5 after eating gluten for 2 weeks. Lipase level was 120. Having an CT scan to check the pancreas. I have never had any issues eating gluten and now I am so fearful that I might have celiac. Has anyone had a small bowel resection? I am 65 years old. UGGH! I am still feeling bloating etc. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.