Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking For A Good Probiotic


twe0708

Recommended Posts

twe0708 Community Regular

What is a good probiotic.  I am trying to heal my body and heard that a good probiotic would help.  I developed tonsil stones this past year and read something about intestinal cleansing and that probiotics are a good start.  Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



greenbeanie Enthusiast

I really like the Go Live brand. It's a prebiotic and probiotic mix. I use the flavorless powder packets and mix them with juice, but they also have different flavors. It's really expensive, though (about $30 for a box of 30 at Whole Foods in the U.S.).

notme Experienced

i use culturelle - the only one i've tried so far and it works well.  i am going to 'mix it up' after awhile and try different strains, though :)

twe0708 Community Regular

I really like the Go Live brand. It's a prebiotic and probiotic mix. I use the flavorless powder packets and mix them with juice, but they also have different flavors. It's really expensive, though (about $30 for a box of 30 at Whole Foods in the U.S.).

Thanks Greenbeanie,  Do these have to be refrigerated?  I heard that a good probiotic should be kept in the refrigerator.

greenbeanie Enthusiast

Thanks Greenbeanie,  Do these have to be refrigerated?  I heard that a good probiotic should be kept in the refrigerator.

 

The Go Live packets don't need to be refrigerated. I tried a few different kinds before these , both refrigerated and unrefrigerated (I forget which brands, unfortunately). I eventually settled on these because I wanted a prebiotic as well as a probiotic, and someone had recommended L. Glutamine to me, which is in these packets too. I had also heard that refrigerated ones are better, though, and I wasn't sure how much it mattered. All I know is that these little guys are definitely doing something in there - for the first week my tummy sounded like a washing machine with all the gurgling! I took that as a sign that something new was going on. 

twe0708 Community Regular

The Go Live packets don't need to be refrigerated. I tried a few different kinds before these , both refrigerated and unrefrigerated (I forget which brands, unfortunately). I eventually settled on these because I wanted a prebiotic as well as a probiotic, and someone had recommended L. Glutamine to me, which is in these packets too. I had also heard that refrigerated ones are better, though, and I wasn't sure how much it mattered. All I know is that these little guys are definitely doing something in there - for the first week my tummy sounded like a washing machine with all the gurgling! I took that as a sign that something new was going on. 

Thanks.  I will give them a try.  

foam Apprentice

VSL#3 has all the right cultures, another option is make Kefir, Sauerkraut and generally as many other cultured foods as you can and eat/drink them instead


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blessedmamaofmany Newbie

Whole Foods 365 brand has a good probiotic too.  It's free of all the top allergens.  It's "recommended" refrigeration, but not required. 

Renegade Contributor

I found this yesterday in the newspapers, I plan to buy them, look better then any other I've seen.

 

Open Original Shared Link

 

There is also

 

Open Original Shared Link

 

if you buy one you get the other for half the price, basically 40$ before taxes and shipping for 4 months of very good probiotics.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.