Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kissing Reaction

CR5442

By CR5442
in Coping with Celiac Disease

Recommended Posts

CR5442 Contributor
CR5442
Posted

Crazy question I know but does anybody here think that they have a reaction from kissing their partner when they have eaten gluten?  How long do you leave and what do you do to deal with this threat?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dilettantesteph Collaborator
dilettantesteph
Posted

Yes, I think I have.  Tooth brushing should help.  If you are extremely sensitive, you may want you partner to be gluten free.  My daughter's boyfriend did that.  He's a really sweet guy.  He's more careful than my husband was.

Pegleg84 Collaborator
Pegleg84
Posted

I can't say for sure that I have or not, but I've been pretty careful. If we're out for dinner or a beer or something, its no kisses until teeth are brushed. If he had some several hours before (assuming lips are pretty clean by then), then a little peck seems to be ok. No making out until guaranteed clean, though. So far so good, as far as I can tell.

It's a precaution, but a necessary one, and one your partner has to be willing to comply with and let you know when they've been eating/drinking gluteny things. I would never make my partner go completely gluten free (outside my house, at least), just like he doesn't expect me to become a vegetarian, but most nights together I cook and he brings wine, so it works out.

notme Experienced
notme
Posted

i did in the beginning (i could not believe it!) and it set me back.  since then, if we are home, he eats mostly gluten free.  he likes his beer, though, so he has to brush up.  (i even bought those little 'wisp' disposable toothbrushes)  easy enough and no worries :)

 

just in case it was my 'magination, i would like to test it out again, but i am chicken.  i don't think he will do it, anyway, just in case......

CR5442 Contributor
CR5442
Posted
  • Author

Phew, I am so relieved!  I thought it was all in my head.  I always felt slightly under par when my boyfriend was round.  We aren't seeing each other any more, but it will explain why I just wasn't quite right.  He got fed up of the rules for gluten free etc!  Nice.  Guess it's better to find out now than later huh?!

CR5442 Contributor
CR5442
Posted
  • Author

Three days after he went I had lost all the puffiness and off colouredness that I had developed... Same as when I eat say dairy, I put on two pounds of water!

notme Experienced
notme
Posted

it's kind of a dealbreaker, right??!!  i'm glad you're not wasting your time on somebody who doesn't care if they are making you ill  :) 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CR5442 Contributor
CR5442
Posted
  • Author

Yeap, too right!

dilettantesteph Collaborator
dilettantesteph
Posted

This condition does let you know which people in your life care more about their own stomachs than your health.

 

My daughter did not ask her boyfriend to go gluten free.  He did it on his own when he found out how sensitive she was.  That was before they even kissed.  He seems like a really caring individual.

Pegleg84 Collaborator
Pegleg84
Posted

Well, that wasn't going to work out, then. If your (potential) significant other can't deal with your life-long condition, then screw that.

 

When you find the right guy, he'll be willing to bend-over backwards to keep you from getting sick, which really just means keeping a toothbrush around and not bringing bread into the house. And never feel that telling someone about your situation from the get-go will turn them off or something, because if they aren't willing to compromise from the beginning, then it's not worth the bother.

 

Glad to hear you're feeling better!

cap6 Enthusiast
cap6
Posted

It takes both partners to work on this issue!  No beer or gluten kisses.  A kiss is ok but a KISS is not!!!!!

CR5442 Contributor
CR5442
Posted
  • Author

I think I stupidly really didn't pay much attention to this and then wondered, whenever he was round, why I felt worse!  I did actually say to him that I thought I was allergic to him... he wasn't impressed but I don't think the message sank in for either of us.  In future I will be stating my condition up front and hopefully that will sort the wheat (haha! pardon the pun) from the Chaff - It's an english saying!!

GuyC Newbie
GuyC
Posted

This thread made me smile. My wife is great but she enjoys her gluten. I'm a very sensitive celiac with quick intensive neuropathy if poisoned. When it's time for bed, I know things might go my way if she brushes her teeth. If no teeth brushing, oh well...

Nikki2777 Community Regular
Nikki2777
Posted

I'm pretty sure I got glutened by kissing my husband after he ate a roll one day.  He's careful now to wipe his mouth off before kissing me, but I do worry about what lurks in his beard!

  • 3 weeks later...
WinterSong Community Regular
WinterSong
Posted

My ex was terrible about this. He hated the fact that I had Celiac Disease and called me paranoid when I told him that he shouldn't french kiss me after eating Frosted Flakes. He had the worst attitude, and it got to the point that I was afraid to say the word "gluten" around him for fear of him getting angry. I'm glad he reacted that way because it showed me what kind of person he really was (he was very selfish about other things, too) and what a future together would be like. We had dated for almost three years, and I'm so glad I didn't marry him. The fact is that if someone can't support you now when it's easy, they would never be able to support you if you developed a secondary condition associated with long term complications of Celiac. 

 

My current boyfriend realized on his own that he needed to brush his teeth (I got a smart one!). So he either brushes or eats gluten-free with me when we're out. He also bought a separate pan and cooking utensil for his place, and he watches out for CC whenever we're out. He's the sweetest, and I'm incredibly grateful to have met such an empathetic man. Forgive me, but I can't stop bragging about him!  :D

 

Advice from my doctor - "If he can't do something as easy as brush his teeth so that you don't get sick....it's time to start looking for another boyfriend..."

dilettantesteph Collaborator
dilettantesteph
Posted

My ex was terrible about this. He hated the fact that I had Celiac Disease and called me paranoid when I told him that he shouldn't french kiss me after eating Frosted Flakes. He had the worst attitude, and it got to the point that I was afraid to say the word "gluten" around him for fear of him getting angry. I'm glad he reacted that way because it showed me what kind of person he really was (he was very selfish about other things, too) and what a future together would be like. We had dated for almost three years, and I'm so glad I didn't marry him. The fact is that if someone can't support you now when it's easy, they would never be able to support you if you developed a secondary condition associated with long term complications of Celiac. 

 

My current boyfriend realized on his own that he needed to brush his teeth (I got a smart one!). So he either brushes or eats gluten-free with me when we're out. He also bought a separate pan and cooking utensil for his place, and he watches out for CC whenever we're out. He's the sweetest, and I'm incredibly grateful to have met such an empathetic man. Forgive me, but I can't stop bragging about him!  :D

 

Advice from my doctor - "If he can't do something as easy as brush his teeth so that you don't get sick....it's time to start looking for another boyfriend..."

 

You are so right about all of this.  It is when you are facing adversity together that you get a real measure of a person.  Good for you to not settle for someone who was not a good person for you.  A person who is not willing to take measures to keep you from being sick is not a person with whom it is worth spending a life together.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
    2. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    3. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
    4. knitty kitty
      - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten! Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten. I can get glutened from the bakery section at the grocery store. The nose and mouth drain into the digestive system and can trigger systemic reactions. I find the histamine release...
    5. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Guinness, can you drink it?

      This article may be helpful:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,244
    • Most Online (within 30 mins)
      7,748
    tmperrella
    Newest Member
    tmperrella
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.