Additional Food Intolerances - Poll

[CR5442]

Hi everyone

 

I thought it might be interesting for us all to list what we are intolerant too in addition to Gluten as so many of us seem to have problems after cutting gluten from our diet - we might be able to experiment on cutting certain foods based on the findings.  It might be interesting also to find out what symptoms you had with them which lead to you sussing out you were intolerant.  Here's mine:

 

Eggs - heartbeat/heat/irritability

Dairy - heat/irritability/massive water retention

Soya - heartbeat raised, water retention

Corn - hearbeat raised

Rice (? TBC) - heartbeat raised

Fish - itchy, water retention

Shellfish - itchy, water retention

Coconut - raised heartbeat, high irritability

Palm oil - heat, high irritability, water retention

Potato? - water retention

[NoGlutenCooties]

Oats.

Both my mom and my uncle have Celiac and neither can tolerate oats.  My uncle gets his typical glutening symptoms which include bloat, chills, cold sweats, diarrhea, and vomiting.  My mother gets dry, very itchy skin with an itchy/crawly sensation on her back and legs.  Given their experiences with oats I haven't touched them since going gluten free.

(And yes, these reactions were to the certified gluten free oats.)

[bartfull]

Corn: similar to gluten but much more severe. D, nausea, weakness, brain fog, severe muscle spasms, and a drop in core body temperature. Oh yeah, and psoriasis flares.

 

Soy: Psoriasis flares, minor D.

 

Nightshades: Can eat a little. Too much and I get joint pain and psoriasis flares.

 

High salicylate foods: D and psoriasis flares.

 

Histamines? Not sure, but I have had the symptoms of MCAS all my life.

[Salax]

Corn & Rice - Colitis flares up, horrible intestinal pain, esp. in the morning. back and front

Cow's milk products - Horrible stomach pain, D, cramping, sick to my stomach

Large quantities of non-organic tomato (like a sauce or chili, etc) - Colitis flare up horrible intestinal pain, esp. in the morning. back and front (Oddly organic is fine, not an issue with organic)

Oats (gluten-free obviously) - Hives (Joy of itchy skin and welts)

[GottaSki]

Most Dairy, grains, legumes, nightshades, nuts (except almond), seeds, all histamine containing and inducing foods along with all sorts of things floating around in the air -- just call me bubble girl

[FruitEnthusiast]

After going gluten-free, developed the same symptoms as with gluten to: rice, eggs, nightshades, coconut, soy. I haven’t tested any of them since because I’m still healing.

 

Symptoms: C, brain fog, blurred vision, nausea, fatigue, joint pain, occasional mild neuropathy in feet. Still get those at times, especially brain fog. In the first six months I also had irritability and anxiety but they went away.

 

Already sensitive to corn and mold (cultured/fermented foods) long before NCGI dx. Symptoms: sinus congestion, headache.

 

Recently maybe tuna (or it was mercury), I won’t know until I see an allergist. Symptoms: itchiness, eye irritation, insomnia, increased heartbeat.

[CR5442]

This is amazing... to see that there are so many other things that we are reacting to... some of which are way away from gluten.  I was wondering if any of you had had a reaction to the components in probiotics.  I'm not sure how they make the cultures for dairy free ones.  Does anyone know?

[kareng]

In all fairness, I feel I must answer this.  I don't really have any other food issues.  Nothing I would call an intolerance.  I think it is normal for everyone , Celiac or not, to have some foods that might not work for them.  I know many people that are lactose intolerant, for example.  They don't have Celiac.  It is just a fact that adult mammals don't usually retain the ability to digest lactose.

 

Also, remember that Celiacs that are healed and happy and living their lives are not likely to be commenting here.  Forums like this attract people new to the disease and people with continuing problems.  Its just a fact of life.

 

Many times. these food "intolerances" resolve after the gut has healed and the GI system gets its self regulated and on track.  Just wanted t give a different view.

[IrishHeart]

I have a histamine intolerance because of lack of an enzyme called DAO in my gut. I hope it resolves entirely in time. My GI doc seems to think it will. He's been right about everything else in my recovery process so far, so I believe him!  

 

I have noticed that I am able to eat more foods with high histamine in them during the past few weeks (yaay!) and not have any symptoms, so I figure he's right. I do take probiotics and after all I have learned about the gut and or bodies being a microbiome, I firmly believe this has helped turn things around for me. I had an imbalance of bacteria (testing showed this after diagnosis and since then, I have dosed with proBs)

 

It's great to have bacon, chocolate and tomatoes back. I loves my bacon!

 

At one point, I could not tolerate dairy, eggs, soy, citrus and so many other foods. But my GI tract was a burning mess.

 

I still can't have MSG and food additives, nitrates, and corn is tough to digest for me, but I am not sure that has anything to do with celiac. 

 

Most people have  corn showing up in their (ahem....) well, you know. 

[CR5442]

In all fairness, I feel I must answer this.  I don't really have any other food issues.  Nothing I would call an intolerance.  I think it is normal for everyone , Celiac or not, to have some foods that might not work for them.  I know many people that are lactose intolerant, for example.  They don't have Celiac.  It is just a fact that adult mammals don't usually retain the ability to digest lactose.

 

Also, remember that Celiacs that are healed and happy and living their lives are not likely to be commenting here.  Forums like this attract people new to the disease and people with continuing problems.  Its just a fact of life.

 

Many times. these food "intolerances" resolve after the gut has healed and the GI system gets its self regulated and on track.  Just wanted t give a different view.

Question is how long did it take for your gut to be healed?  I have been on a 'clean' diet for nearly three years and still have problems, though admittedly not as bad as previously.  However I still react to a bunch of things and I think that maltodextrin in my probiotic might be the next thing.

[FruitEnthusiast]

I have a histamine intolerance because of lack of an enzyme called DAO in my gut. I hope it resolves entirely in time. My GI doc seems to think it will.

 

I have noticed that I am able to eat more foods with high histamine in them during the past few weeks (yaay!) and not have any symptoms, so I figure he's right. I do take probiotics and after all I have learned about the gut and or bodies being a microbiome, I firmly believe this has helped turn things around for me. I had an imbalance of bacteria (testing showed this after diagnosis and since then, I have dosed with proBs)

 

Histamine issues are what I am dealing with also. Some may have celiac issues only, but many of us have leaky gut or other gut related problems which opens the door to many other food intolerances.

 

I’m seeing an allergist soon for allergy testing and I assumed that was where I would have my DAO enzymes checked. It sounds like I need to have my GI check that for me? Actually I’m not sure I have found the right GI yet. He’s the one who told me to go off gluten before testing me for celiac!!! I’m going to make an appt to see a GI at UCLA.

 

I’m taking good probiotics. Also glutamine for leaky gut, which I think has helped. My gut is messed up too, but my digestive symptoms are much better already, especially after cutting out histamine foods/liberators.

 

Thanks so much for posting about this!

[GottaSki]

Question is how long did it take for your gut to be healed?  I have been on a 'clean' diet for nearly three years and still have problems, though admittedly not as bad as previously.  However I staill react to a bunch of things and I think that maltodextrin in my probiotic might be the next thing.

 

This is a question I have asked many times.  The truth is no one can answer it for you personally.  It takes as long as it takes.  If it is taking more than six months to a year to see marked improvement, it is time to investigate other causes in addition to gluten.

 

Personally, I have had two periods of greatly improved health over the past five years which were followed by flares that were as bad or worse than prior to celiac diagnosis.  I am currently improving, but have learned to be very careful to assume I have found the complete answer to handle the damage caused by many years of living with undiagnosed celiac disease.

 

As Irish says..."every day is a healing day" -- there are days when I am having a horrid flare of symptoms that I don't believe it....but it is true as long as I keep looking for answers to solve my particular health puzzle.

[cyclinglady]

I have had allergy issues (cats, mold, tree pollen, and some foods)  my entire life (so has my family).  I don't think it's related to Celiac Disease at all.  Just the luck of the draw! 

 

I forgot to add that my husband has NO allergies.  He's been gluten free for 13 years and enjoys good health!  It's no fair!!!!!

[FruitEnthusiast]

I have had allergy issues (cats, mold, tree pollen, and some foods)  my entire life (so has my family).  I don't think it's related to Celiac Disease at all.  Just the luck of the draw! 

 

I think some of us are inclined to have histimine issues for whatever reason. I'm the only one in my familiy with allergies though... bees, wool, cats, mold, dust...

[cahill]

WOW I havent  though about listing this ,,, maybe be overwhelming

 

 

At one point in my journey I really really started to wonder if I was intolerant of EVERYTHING ,, I did an elimination diet and (pretty much) reacted to most every thing I ate,,, but as Irish says "every day is a healing day" Over time my gut healed ,I was able to reintroduce some foods with success but some are still troublesome

 

Current list looks something like this ;

 

Gluten ( of course ,lol)

Soy, mostly neurological issues & constipation

Potatoes,, at one point I was intolerant of all night shades but  am able to tolerate  (in limited amounts  ) all except potatoes

shell fish

Nuts,walnuts & almonds top the list

coconut 

peanuts  ,  but other legumes I can tolerate small amounts on occasion

corn but can tolerate small amount on occasion

most fruits  are hit and miss ,, so I rotate them in my diet

veggies well I mostly just dont eat them ,or if I do it is in  limited amounts here and there ,

chicken ( it just plain makes me sick ) not sure why I can tolerate turkey but not chicken

histamine issues ??? not sure about this but  I am currently on loratadine daily and it seem to be helping .

seeds of any kind ( including flax ,chia pumpkin

 

 

 

At one point dairy and eggs but as I have healed I have successfully reintroduced them both ( this was an important mile stone for me ,,, it makes life soooooo very much easier    )

[cahill]

In all fairness, I feel I must answer this.  I don't really have any other food issues.  Nothing I would call an intolerance.  I think it is normal for everyone , Celiac or not, to have some foods that might not work for them.  I know many people that are lactose intolerant, for example.  They don't have Celiac.  It is just a fact that adult mammals don't usually retain the ability to digest lactose.

 

Also, remember that Celiacs that are healed and happy and living their lives are not likely to be commenting here.  Forums like this attract people new to the disease and people with continuing problems.  Its just a fact of life.

 

Many times. these food "intolerances" resolve after the gut has healed and the GI system gets its self regulated and on track.  Just wanted t give a different view.

I have to agree

 

Most people come to these forum to seek help ,information and move on.

 

 

I am more of the exception then the rule   

[IrishHeart]

I have to agree

 

Most people come to these forum to seek help ,information and move on.

 

 

I am more of the exception then the rule 

 

 

And some of us "veterans" hang around to "pay it forward" to the newbs. We just can't help ourselves. Could be the "mother hen" syndrome.

[Adalaide]

I also have a histamine intolerance. (thanks mom for beating me over the head til I learned my lesson ) For me this has led to developing a full on allergy to heat which includes breathing problems when I get too hot, rashes when I'm in the sun and hives when exposed to extreme heat (like from a really hot oven). I also starting having oral allergy symptoms to avocados. Beyond that, I have learned how to live and eat on a regular low histamine diet, fitting some small amounts of everything into my diet without overdoing any single thing. For a long time tomatoes were always a huge, automatic hit for me no matter how small an amount I ate and now it seems I can tolerate them in small amounts. Yay!

 

I also generally avoid MSG because it is a migraine trigger for me. A few other things are too, that I can't think of off the top of my head now but that I would recognize on a food label.

[w8in4dave]

This is a very interesting thread, I am Celiac and intolerant to Corn, Gas bloating the big"D" I think I can have some in very small amounts, but not HFCS . I am Lactose intolerant , I get the same way with Lactose I can eat some cheese and stuff but no milk. Or too much cheese. I am soy intolerant I don't even want a bite thank you anyway. I don't care if I ever eat that again. I hope I get my Corn intolerance back all the way It would be nice to eat a box of chocolate again Yea I did have some and yes it had corn. I ate some anyway and thought ohh well it was worth it! Suffer but worth it! I guess as long as I can eat cheese I am happy, I was never big on milk anyway. I don't have a problem with being Celiac it's the corn that bothers me! I hate being Corn intolerant! I don't know how some of you do it with all your intolerances. 

[moosemalibu]

This is a very interesting thread, I am Celiac and intolerant to Corn, Gas bloating the big"D" I think I can have some in very small amounts, but not HFCS . I am Lactose intolerant , I get the same way with Lactose I can eat some cheese and stuff but no milk. Or too much cheese. I am soy intolerant I don't even want a bite thank you anyway. I don't care if I ever eat that again. I hope I get my Corn intolerance back all the way It would be nice to eat a box of chocolate again Yea I did have some and yes it had corn. I ate some anyway and thought ohh well it was worth it! Suffer but worth it! I guess as long as I can eat cheese I am happy, I was never big on milk anyway. I don't have a problem with being Celiac it's the corn that bothers me! I hate being Corn intolerant! I don't know how some of you do it with all your intolerances. 

 

Soy lecithin is also commonly used in chocolate.. just wanted to say that in case you are getting hit twice. I've never payed attention to corn so I don't know if that is a common chocolate additive.

[w8in4dave]

Soy lecithin is also commonly used in chocolate.. just wanted to say that in case you are getting hit twice. I've never payed attention to corn so I don't know if that is a common chocolate additive.

I know Corn was listed in the ing. I am not sure if Soy Lecithin was or not. I have since gave up chocolate Lol maybe one day I can have some  

[CR5442]

I can't have chocolate either in any form so I totally commiserate!

[moosemalibu]

Just wanted to add that I figured out (no big surprise, it's common) that I'm intolerant to sugar alcohols. Removing them from my diet helped my chronic D significantly. It was sneaking in through a protein bar (I would bring 1/3 of a bar to work and eat it as a snack daily). Since removing it I am improving by leaps and bounds.

[across]

 It would be nice to eat a box of chocolate again

enjoy life makes wonderful chocolate chips that contain only "Evaporated Cane Juice, Natural Chocolate Liquor (Non-Alcoholic), Non-Dairy Cocoa Butter."

They are made in a dedicated facility that doesn't process the major allergens. They really scratch the itch for chocolate.

[dilettantesteph]

I have avenin enteropathy in addition to celiac disease, I believe based on a severe reaction to gluten-free oats. 

 

Other than that, other food issues seem to be caused by damage from glutening and are temporary until the gluten is removed from my diet and the damage has healed.  With frequent glutenings, there can be ongoing problems. 

 

I get most severe problems with dairy and high fat foods, but there are others that I haven't sorted out.