Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr. Fasano's Gluten Freedom Discussion

powerofpositivethinking

Recommended Posts

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

Since Dr. Fasano's book was just released, I thought it would be a good idea to start a discussion thread.

 

I've always known rice works well with my body.  The one health advocates say is terrible for you, white rice, always makes me feel great!  I took a nutrition class and found out that rice is the least reactive food, so that explains a lot to me.

 

Dr. Fasano states that, "the Chinese diet is mainly based on rice."  This is from pg. 13 of his book, "In China, consuming Western-style food, and thereby eating increasing amounts of gluten, has become a sign of climbing the social ladder of the Chinese economy.  The predictable byproduct has been increased reports of celiac disease in China.  My pessimistic predication is that along with expanding its economic boundaries, China will also expand its boundaries for celiac disease and other gluten-related disorders."

 

That makes sense to me!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

The entire book is well written and having met the man, I can honestly say, that he is the most down-to-earth compassionate doctor there is and 

we are fortunate he is our most vocal celiac advocate. Case in point, while he was speaking to this giant room full of people, a baby started to cry and fuss at the back and the mom scrambled to get him out of there and Dr. F stopped his presentation and said so sweetly, with a smile "No need to take the baby outside. He's not bothering me. please, stay, stay! it's all right." Imagine having him as your child's pediatric gastro? Imagine having him as your doctor? yeah, me too. lol

 

anyway....

 

He begins the discussion of that opinion about the predictable rise of celiac he can foresee by saying "China has always been considered immune from celiac disease because the diet is based on rice" but the influx of fast food chains is likely a CAUSATIVE factor. (meaning just one part of the triad, or the "holy trinity" as he calls it for triggering the disease and autoimmunity to gluten) 

 

be sure to read the parts about zonulin! fascinating.

 

His book also discusses the multi-fold process of triggering the disease in pre-disposed individuals based on the HLA DQ2/DQ8 genes, environmental "triggers" and the consumption of gluten.

 

He is one of the more notable GI doctors who believes that NCGS is a real clinical entity and his team is working on finding biomarkers for it.

 

I love the part where he "cooks for us". 

 

All in all, I think every celiac/NCGSer and their families should read it. IMHO

cyclinglady Grand Master
cyclinglady
Posted

This thread is so timely! I just ordered his book on Amazon (along with toaster bags for our trip and I hope they work). I can not wait to read it.

kareng Grand Master
kareng
Posted

This thread is so timely! I just ordered his book on Amazon (along with toaster bags for our trip and I hope they work). I can not wait to read it.

Off topic, I know - did you get the " toast it " brand? They are plenty big and work great. But very hot when you take them out of the toaster. So have a hot pad or a couple of napkins ready.

Now..... Back to Dr F and his book....

skullgrl Rookie
skullgrl
Posted

Thanks for the heads up! I just bought the book, should get here on Monday, I'm excited.

cyclinglady Grand Master
cyclinglady
Posted

Off topic, I know - did you get the " toast it " brand? They are plenty big and work great. But very hot when you take them out of the toaster. So have a hot pad or a couple of napkins ready.

Now..... Back to Dr F and his book....

No, they were the Boska Holland brand. I read the reviews and they seemed okay. I thought they might be useful at the B & B's in England. We are staying in one B & B in Bath that caters to Celiacs for several days. I will use the bags at other B & B's that are not gluten friendly. I plan on packing in food at those locations.

Gemini Experienced
Gemini
Posted

No, they were the Boska Holland brand. I read the reviews and they seemed okay. I thought they might be useful at the B & B's in England. We are staying in one B & B in Bath that caters to Celiacs for several days. I will use the bags at other B & B's that are not gluten friendly. I plan on packing in food at those locations.

Oh.......Bath is lovely! Hope you have a great time!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Oh.......Bath is lovely! Hope you have a great time!

Thanks! Counting down...six weeks.

GottaSki Mentor
GottaSki
Posted

My copy arrived last week...can't wait to read it!

GF Lover Rising Star
GF Lover
Posted

Just got mine on my Kindle.  Woot Woot.

 

Colleen

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      Hi @KathyR37 and a very warm welcome here. I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana
    2. trents
      - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    3. Theresa2407
      - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

      thank you for your advice. I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated. I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    4. KathyR37
      - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and gloves when cooking for them. One huge problem...
    5. Scott Adams
      - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are fee...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748
    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      New here

      By cristiana · Posted

      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      New here

      By trents · Posted

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      Probiotics

      By Theresa2407 · Posted

      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.